The Girl Behind The Face | Rog Thomas, Tina Thomas & Mui Thomas | TEDxHongKongED

[@psn1758]

Being the Mom of two sons with a form of Icthyosis has been challenging to say the least. Having Friends like Tina and Rog and Mui and listening to their personal struggles shows me that I'm not alone. Thanks so much friends for sharing your story, and I pray a Publisher comes your way very soon.

[@elainaconstantinou8700]

P Neilsen your story as well as theres is inspirational, use are very strong parents to have these problems that there is not cure 4. i could just imagine what use are going through , i would crumble... use are very strong, thoughtful, kind and most of all brave to be going thru this and stay strong and hopeful 🤗 my prayers and thoughts are with use all the way from Australia xxxx😇💖💖🙏🙏👼👼

[@DebraFarquhar]

I continue to admire the strength of your family and the love you have for each other. Best wishes to you all.

[@MrJohn714]

Mui along with her family are the definition of what true beauty is, that can increase with time unlike the outer superficial shell that diminishes as time goes by. You must tend it though and be aware of it because it will only increase in its radiance in proportion to the love in your heart. Why are there people like Mui that have to suffer and carry these heavy burdens, I cant answer that but maybe because there's strength in beauty and sometimes the world needs strong beautiful people like Mui to shine the spotlight on what's truly ugly, the evil, the heartless and the haters.

[@missfrances314]

Hi Rog and Tina, thank you for delivering this talk with Mui in Hong Kong (I believe it is in Hong Kong, right?). So glad to see all of you are just growing stronger and stronger! You two are GREAT parents! Mui, you go, girl!!! - Your old neighbor in Po Lo Che, Sai Kung (1st Floor), David and Frances -

[@Memyloo]

What an inspirational woman! Keep doing you girl! You should be so proud.

[@thegirlbehindtheface3276]

Please visit our website for more info about Mui, Tina and Rog. Thanks! Here’s the link: thegirlbehindtheface.weebly.com/

[@intrepidtomato]

What an inspiring girl. I looked up how people with this condition look at birth - it must be so frightening both for the parents and the other kids in school since this is so unusual, and people fear what they do not understand. This girl has grown into such an admirable adult and she is doing other people with an unusual appearance (and everyone else) a great service by doing this TED talk.

[@thegirlbehindtheface3276]

Hi. Do visit our website for more info. Thanks! Here’s the link: thegirlbehindtheface.weebly.com/

[@ninaparfinenko6593]

Sending love to you, Mui, and to your parents! You rock!

[@drakemcfee9138]

At about 1:20-30, Thomas says she's really no different to "the all of us" he was incredibly incorrect, she is far, far STRONGER in body, mind, personality and soul !!!! Any time I feel down or start down whiney self pity roads I look to ppl like Mui and realize how I've nothing to complain about. Not for the reason that many ppl I've known( I as well, though no more) would see her and "whew! Boy I'm glad that's not me!" What I see is her strength! She rises above it, she refuses to give in or up! You see we've got it wrong, instead of being happy and grateful we aren't like her. We should should strive to be more like her!!! People like her and the kid with butterfly skin are true heroes to me.

[@Rebecca236]

Mui is such a good speaker. 💝

[@nicoleclark3351]

So so so beautiful. Amazing family! I would love to adopt a baby or child with extra needs because they deserve as much love, if not more. And I have a lot to give ❤

[@patriciapineda3979]

Muci you are beautifli unique one of a kind ,and so are your parents you all were blessed, put in each others path to form such a beautiful family. Your family is in inspiration to what being a true human being should be like.people now a days lack empathy in don't have much of a heart don't let that get you down, because their are also great people not everyone is heartless.you can make a difference and you are making a difference by speaking up .your helping other people that are to quite in shy that are struggling by their appearances.,That everyone is worthy of love and respect .keep up the great work your in awesome beautiful young lady take care in a hello to your beautiful parents that raised such a wonderful young lady.

[@thegirlbehindtheface3276]

Thanks. Please visit our website for more info. Here’s the link: thegirlbehindtheface.weebly.com/

[@Scarymaryandperfectfoxchanel]

I love you guys !

[@uzay-yolculari]

Hello maybe help Turkey has fish treatment in Sivas city please delivery message

[@Goodwillwinoverevil1984]

Just her face is different but her body and health seem normal and that's all that should really matter.

[@jennyc8130]

It would be nice if you sub this video or other videos for deaf people and others.

[@thegirlbehindtheface3276]

Jenny Sky Hi Jenny. We've no control over how TEDx presents the video. Do check out our website if you'd like to know more about us. Thanks. it's: thegirlbehindtheface.weebly.com

[@jennyc8130]

The problem with that button is that it's autogenerated, and I never liked how Google butch the english language in video, especially when people have strong accents.

[@thegirlbehindtheface3276]

+Jenny C Hi Jenny. If you go to the media page of our website thegirlbehindtheface.weebly.com/media.html you can read CNN and Mirror online print interviews, amongst others, we've done. Thanks for your interest. We also have a petition on the main page of our website to speak out against "shock" videos. www.ipetitions.com/petition/end-shock-videos/ We are trying to raise awareness. We hope to get as many signatures as possible! Thanks again.

[@gabriella4675]

oi

[@Xyreck]

I wonder if Vitamin-A can fix that. I seen cases of really bad skin problems. And the cure was giving the body a large amount of vitamin A.

[@indigojay974]

Ichthyosis is a genetic disorder, there's no cure for it, just ways to manage it.

[@thegirlbehindtheface3276]

Please visit our website for more info. Thanks! Here’s the link: thegirlbehindtheface.weebly.com/

[@musicmakerjamfr7463]

drole