The Doctor's Corner: Overcoming Transverse Myelitis (TM)

Guest Kristin Smith, speaks about overcoming Transverse myelitis. Along with discussing further concepts of wellness and being with Dr. Mark Pinsky.
Transverse Myelitis (TM) is a disorder caused by inflammation of the spinal cord. It is characterized by symptoms and signs of neurologic dysfunction in motor and sensory tracts on both sides of the spinal cord.
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[@maxjoseph748]

I fell ill 13 months ago, resulting in paralysis from the waist down. After consistent heavy steroid treatment, I am walking, even running. I still have major bladder and urological problems, potentially needing to self-catheterise. However, the recovery has been vast, however difficult it has been (I am now only 20 years old). Thanks for sharing a video about something hardly ever talked about, or even known of.

[@Jackmanis]

My symptoms started March 15th this year. Feet got numb first, then leg weakness, no pain just numbness. Slowly went from walking to a walker and then to a wheelchair within 8 weeks. My hands are now getting tighter. Bowel and bladder are working ok. My treatment was steroids, didn't work. Started PT last week. Good friend had same thing last year and she was back walking and driving in 6 months. Hang in there, stay positive and keep your body moving.

[@djelliott4524]

Where on the spine was your inflammation? Ive noticed, 6 months in, that I have some pins n needles in the hands and what feels like "trembling" in the upper back...which is so weird. In T9 🤷🏻

[@dunrite5225]

@@djelliott4524 It was in my t5-6 area. There was also a weird sensation in my upper spine/neck area when I tilted my chin to my chest. The name is Lerners syndrome or something like that. It has gone away. I am almost 100% back to what I was before this happened to me. I still have some weird sensations in my back and feet, but most of my muscles have recovered and hitting the gym is a plus. Best of luck to everyone suffering from this.

[@tythebelieveguy4228]

I’m here just doing research… My 83 yr old grandfather just got diagnosed with TM today… He went from riding his Harley Trike Motorcycle to a wheel chair in 1 week… He’s lost most feeling in both legs and has sharp pain in his lower back… Hopefully we can get him walking & riding again… Thank you for this info and be BLESSED on your journey…

[@arshrocks7272]

hows your grandfather now,my grandmom 70 years old is suffering and she cant walk from May 17th 2023,she wants to die rather than live with this condition which is strangulating her

[@alanrabinoff8479]

⁠@@arshrocks7272There’s always hope. I spent my 70th birthday in the hospital when I was diagnosed with TM in 2022. My legs were and are now partially numb. I went from a walker to to hiking poles to now just a cane.

[@andrewcureton5580]

I was diagnosed with TM in November 2018 it affects both legs and lumbar region. Thankfully I'm able to walk. I've recently been prescribed Amitriptyline and also been using a TENS machine twice a day. I think these are slowly helping my symptons to be less painful. I hope this info helps anyone with TM.

[@lulucatlovers6760]

Apakah cuma itu aj bisa kembali membaik?

[@keithwalker7245]

I was struck with TM in 1984. From 1985-2022 I have been very independent using crutches. Because I am older than 40, I notice I get weaker significantly in lower legs. I am in a wheelchair but rehabbing my legs to regain mobility

[@PaulBMiller]

That is a painful disease. I was in a wheelchair and bedridden for months then went to rehab to walk again. I am fully recovered now, I was diagnosed with TM in 2015. Swelling from c1-c5. from 10 medications to 0 medications. The best shape of my life now.

[@sanyamehta6992]

What treatment did you take?

[@djelliott4524]

C1 to C5?!?! Wow!! Was it neck down essentially? Im so curious as to how you got off medication? I waited so long the drs didnt want to do steroids...

[@Jw-mw2xi]

How long did it take for the pins and needles to go away in your case?

[@PaulBMiller]

@@Jw-mw2xi it took several years. I still get some residual nerve issues in my left arms.

[@PaulBMiller]

@@Jw-mw2xi nerve damage is just brutal.

[@lourice.ishi1]

Almost the same story as mine

[@djelliott4524]

Thank you for sharing. I didnt know abt the vitamin D...Im gonna have to supplement. Mine stopped at T9(for now praise the Lord)...stem cells also? Im gonna have to talk to my neurologist. Have you found that anyone with TM has had multiple "attacks"? I was told that it hits once, that after abt 6 months its reached its peak(Im at 6 months or so) and that 1/3 get better, 1/3 stay roughly the same with mild improvements, and 1/3 stay the same. Competitive rowing is amazing good on ya!! 🙏🏻🙏🏻🙏🏻🙏🏻

[@lourice.ishi1]

Need help too. 😭

[@mradulshivhare3118]

My brother has transverse myelitis. If her waist and both legs do not work then please do something for me. What should i do to you Should Routines Stay?

[@ZerinaPhillip]

Please help me. I listen to this video and I have TM/NMO. I have been diagnosed in June 2019. But I still feel I need to see a neurologist that works with this disease.

[@jeffreychiu3730]

How is it going?

[@defrasier]

Dr. Benjamin Greenberg is the man to see…he’s at UT Southwestern. If not him, it’s Johns Hopkins or Mayo clinic.

[@danielpantss]

I;d love to talk to you on my TikTok, I had a very late diagnosed case of TLTM and am interested in your insights....

[@PaulBMiller]

It felt like I was walking on gravel and that moved up to my chest. Lost the ability to walk. It was a very long painful process.

[@debralund6662]

Thank you for your story. I was diagnosed with Neuromyelitis. What is the difference between Neuromyelitis and Trannsverse Myelitis

[@TheDoctorsCorner321]

Transverse myelitis refers to an inflammation of the spinal cord. It has many different causes including autoimmune. On occasion, neuromyelitis optica or optic neuritis are associated with transverse myelitis (TM). Optic neuritis is an inflammation of the optic nerve in the eye. This is commonly seen as the most prevalent first symptom of Multiple Sclerosis. Of course, this can be very complicated so I hope I provided some clarity. Thanks for watching the show.

[@debralund6662]

@@TheDoctorsCorner321 Thank you for answering my question. I have both TM and NMOS. It came on overnight. The Doctors could not find a cause. They called it the Perfect Storm. It has been a struggle. I am in PT learning to do things that once came naturally. Crazy disease. I hope one day they can find a cure!

[@jimkey7651]

It is my understanding that TM is usually a one time attack and NMOSD is ongoing.

[@nicksmith2397]

very nice and helpful, Thanks Doctor #healthnutritionaustralia #regenerativemedicineaustralia #melbournesportsmedicine #sportsdoctormelbourne #bioidenticalhormonetherapy #regenerativemedicine #familysportsmedicine #sportsmedicinedoctor #weightlossclinic #weightlossMelbourne #balanceddiet #healthyeatingAustralia