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âªAfterword from Omochi Mamaâª
I can't believe it... it's a day off! ! ! !
I'm a mom who misunderstood the day off as a day off. When I found out, I stopped thinking, but I had no choice but to laugh ð I'm glad I noticed it the day before! ! ! ð
So, I'm a little disappointed that I couldn't let Omochi do a proper activity. Let's go somewhere again as soon as it gets warmer ð
But anyway, the fact that we were able to go out on the Shinkansen together as a group of three is very happy and has become a precious memory. Dad who laughs with me even when we have a lot of mishaps, and cute Omochi with sparkling eyes. I'm such a mom, but let's go to various places in the future ð€
Omochi is a medically-dependent child with a tracheotomy/tube feeding (gastrostomy). I learned about the existence of a multi-purpose room on the Shinkansen for the first time, and I was very grateful! ! I would still like to use it, as it seems to be more spacious on some routes. If you are considering using it, we recommend that you contact us in advance ðââïžðââïž
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âŒOmochi-kun's growth record is also posted on the blogâ«
ameblo.jp/shin...
âŒOfficial Instagram and TikTok accounts have been openedâª
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TikTok: / hoshinomiraiwaakarui
âŒFor inquiries regarding this channel, please contact the following email address.
mail: hoshino.mirai.0110@gmail.com
[About Omochi-kun]
Omochi-kun (fetal name â nickname), born in January 2023, was born with a deformity in his face and skull.
About his face
ã»Missing upper and lower eyelids
ã»Eyes far apart and low-set
ã»Ears small, low-set, rotated backwards
About his skull
ã»Missing bones from the top of his head to his forehead
ã»Missing bones around his eyes and cheekbones
ã»Small lower jaw
ã»Short nasal bone
Due to his small lower jaw, he had difficulty breathing spontaneously, and underwent a tracheotomy on the day of his birth.
He also has a weak ability to swallow, so he receives nutrition through a gastrostomy tube.
Because there is no bone in his forehead, it feels squishy to the touch.
Because there is no bone around his eyes, his eyeballs are deep inside. I'm sinking into a deep depression.
No one knows how he will grow in the future, not even the doctors, but
Omochi-kun lives his life to the fullest and shows us all different sides, and we love him so much.
We live as a family of three, savoring every moment of happiness.
"There are kids like this in the world."
I think that getting as many people as possible to know about him will lead to a future where Omochi-kun, and by extension, various children who require medical care, can live a little easier.
I would be extremely happy if Omochi-kun's existence remains, even if just a little, in the corner of someone's heart through this channel.
Please support the Omochi Family. ð»
(Music provided by Hikari Surprise Co., Ltd.)