The Horror of I.g.A Vasculitis, A slideshow of how a Vasculitis flare up looks.

Vasculitis I.g.A, In a matter of hours my life changed forever, Unable to diagnose in the first couple of weeks, my lower limbs turned into pits of lava from my thighs on both legs to my toes.
The pain was incredible.
Follow my journey, just another fork in the road.
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[@commonsense6967]

OMG! What a nightmare! I hope your recovery is going well now, and that you're enjoying your new hip.

[@mycerebralamyloidangiopath4710]

Thanks for the comment. Nearly at the 3 month mark for the Hip. It is doing quite well and I am coming along well. One leg still shorter than the other but I can get an insert for my shoe and that will solve that. Vasculitis, thanks to a heap of you beaut medications is coming to the pointy end of recovery now. Looking good on the outside but still very bruised on the inside. I am happy where we have got to so far.

[@jociepringle4995]

so glad you are in recovery it’s great to know that it is possible , I’m currently going through the exact same thing with my vasculitis, any advice on what medications have worked for you? None of mine seem to be working 😒

[@mycerebralamyloidangiopath4710]

@@jociepringle4995 Hi, I have been on Prednisolone (I think thats how you spell it) and later I was put on Colchicine to supplement the Prednisolone as because of the side effects of pred they didn't want to raise it up when the pain increased so they had me take Pred and Colchicine at the same time. If that makes sense. All of the soars have dried up now. The pain has gone. The skin is left with huge red patches at the moment but I think they will go as time goes by. I am much happier now and coping mentally better. I am only on the pred for another 2 weeks then finished and 6 weeks for the colchicine then finished. I was able to ween off the Tramadole a few weeks back. Hope you find something soon that will help you. regardss Jean

[@apriljoytan5382]

Hi Jean I hope youre doing well now and have a fast recovery. Recently been diagnosed with IgA vasculitis but been suffering from this for almost 2 months. May question is does it itch on a later weeks? It was not itchy at all but the past 2 days I wake up in the middle because of the severe itch each on my leg and feets usually the red spots and bumps. How did you manage it? Hope you can see my message.

[@mycerebralamyloidangiopath4710]

@@apriljoytan5382 Hi, Mine started as slight little red dots and within a few hours went into a very bad rash which over the following days went into sores and then puss filled sores. They did not itch, ever. Pain was terrible. Apart from the pain on the outside, I had and still have pain on the inside which is like an internal bruising. The sores have now cleared up apart from one which is holding on. It has been a very bad experience. I took Predisalone (think spelling is correct) which I believe was the meds that helped the most. Doctor has recommended yearly Kidney testing as this disease can damage the organs in the body. Hope you get well soon. Jean