The impact of frontotemporal dementia on loved ones

Caroline Blatter family shares her experience of the effect that a rarer form of dementia - FTD - has on the whole family and talks about the advice and support she got from Queen Square at a very challenging time

[@denisekay4292]

My sister (3 years younger) has been in care facilities for 7 years. I live far away and hadn't seen her. She is now 57 years old. I saw her this week and it was heartbreaking. To be honest, I can't handle watching this video at the moment. I'm still in a bit of a shock. God bless these people and their families. 🙏❤️🇨🇦.

[@irishgirl1753]

Sorry for your heartbreak 💔

[@toryberch]

I have Lewy Body dementia and im 58 i can feel the mental slowness changing in just 6 months time. Its like your thoughts are wading through syrup. Everybody progress differently for that im grateful 😊

[@dianecrumbley90]

Thank you for sharing that. It must be so hard, especially as you see yourself progressing and can do nothing about it.

[@sallyclay1974]

My sister had Lewy Body Dementia, for 7 years. It's plax in your brain that destroys the brain cells at an accelerated level. She had hallucinations, trouble walking and talking, almost immediately.Round the clock care , diapers, etc! 4 years in her house in Ridgefield, CT, and then the ,last 3, at the assisted living facility, The Residence in Darien, CT. She was a vegetable at the end. Blessings and prayers to the family. Anything neurological, is a horror.

[@barbaravyse660]

Plaques not plax

[@denisekay4292]

​@@barbaravyse660how insensitive!!! Being a grammar police when we're talking about something so sad for families.

[@shirleyjordan5941]

When will assist come in ? I hope I go quickly

[@middlemarie2]

That is no longer living really

[@paulanix7561]

Please!!! Dr. Ken Berry, dr. Anthony Chaffee . Carnivore diet reverses dementia! Cut out carbohydrates!!!! A paradise for parents in Phoenix Arizona has patients checking out!! I love you my friend!! Praying for you!!

[@earthangel8730]

We treat our pets better. Assisted suicide needs to be an option for such diseases.

[@firenze5555]

Who makes these decisions? The family? To get a hold of an inheritance?

[@catherinealexander6255]

Part of the problem is the very high risk for abuse. This has already occurred in countries that have allowed assisted suicide for a while. And the more people choose AS, the more people will be encouraged, and eventually coerced, into doing it. That’s a terrifying prospect.

[@sarac.3259]

​@@catherinealexander6255Indeed. Many speak of witnessing loved ones' suffering - and that is very hard - but I have seen many people in care homes (not just elderly - all ages) who have families but those families don't visit. It's heartbreaking. Are those the ones who will take an interest if money is available when the loved one is gone?

[@firenze5555]

@@catherinealexander6255I agree.

[@Nan-59]

@@catherinealexander6255very scary!!

[@cosmicenigmarevealed]

Nano plastics.