The Incredible Teen With Butterfly Skin | BORN DIFFERENT

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DESPITE being born with an incredibly painful skin disease - the same disease that killed his older brother, Marky Jaquez is hoping to inspire others with his positive outlook on life. Marky, 19, was born with Epidermolysis Bullosa, often referred to as EB. The condition affects anywhere that he has skin and internally too, such as his eyes, mouth and organs. Marky’s skin is so fragile it could blister with the slightest touch.
Follow Marky's story here:
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Videographer: Nathan Johnson
Producers: Martha Hewett, Kim Nguyen
Editor: Pete Ansell
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[@babygoose8716]

She has kept him infection free for 10 years!! That is incredible!! That’s a good mama right there.

[@Spooky_Dook]

She is. 😊.

[@youmakemelaugh1797]

Mama go that💕🙌🏿

[@shark7874]

Baby Goose, marky is a angel like you

[@TARLEASE02]

That's the first thing I thought when she said it....just wow! That's hard work, love, dedication, and more love. 😊

[@indigoopal8417]

My thoughts exactly

[@shenequamiller264]

I just love how he said thank you daddy, and how he plays with his dog, how he appreciates his mom for all she does, and how he is family oriented. I pray he sees many many birthdays

[@संदीपसंदीप-झ4थ]

Hii

[@JourneyInTheCity]

He passed away … about a week ago

[@ohsoyouthinkyoucandance]

This broke my heart but he did live to 21 and I know his mama took such good care of him and they enjoyed life. I’ve been watching his videos.. sob every time

[@shenequamiller264]

So sad to hear that, he was a gentle soul! RIHeaven sweet baby

[@siennad587]

Marky is truly a warrior!! I adore him and his family! Praying we get a cure for EB so the suffering ends!

[@maxplank2769]

Why suffer every day ??? well, I understand enjoying life, but it's worth it? A minute of joy and all day of pain ??? It's a painful death, euthanasia is the best choice. The misery ends.

[@IsaacShorts12]

This is so sad I agree with you marky got this

[@siennad587]

Max Plank do you feel better about yourself now? Evaluate yourself because what you just said is sick. I’m praying you send positivity and kindness into the world instead of this disgusting rhetoric. Imagine if him or his family saw this. You are sick sir. Get help.

[@MarkytherockJaquez]

Sienna White hi I’m Markys mom and I just read his message and it’s absolutely devastating to read it

[@siennad587]

Markytherock Jaquez I’m so sorry you had to see this. I’ve been following you and your family for awhile. Marky is a true inspiration and light in this world as well as BaBa. God gives his toughest battles to his strongest warriors. Sending you lots of love and light!!!

[@NF-gl2px]

I was very sad to find out Marky passed away this past year. What a beautiful inspiration on so many levels: his strenth, his faith, his kindness, his perseverance, his selflessness....just to name a few. His Mother is a beautiful gem, so devoted & loving. I know you are living pain free with your best friend and brother,Carlos, in Paradise❤🙏Thank you for being the difference in the world. My heartfelt condolences to your family and furry siblings.There is no doubt you are missed fiercely, yet your light still shines so brightly!

[@Josh-fp2qn]

I hope that heaven exists so Marky can be pain free and experience what it’s like.

[@ironeddie9917]

Seriously I was brokenhearted myself. I broke down and cried. He’s not suffering no more he’s at home now.❤️🙏

[@EdWard-ie5wn]

I'm glad he's not suffering anymore. Nobody should have to deal with such a horrifying disease

[@ewarydzewska3253]

Anioł wrócił do swojego Nieba ...

[@jemecalmesijeveux9440]

@@EdWard-ie5wnexactement et désolée de dire cela ,mais c’est une délivrance pour sa famille qui ne vivait que pour lui .personne ne devrait vivre cela toute sa vie ,ni lui ,ni eux . On oublie trop souvent la souffrance d’être aidant

[@jesusroks545]

a friend of mine's child has this. It's amazing how strong these kids are.

[@Areyousayingidontknowmyname]

Most kids aren't given a gun at that age. So strength is one thing they have to gain. I doubt this disease is going to let you have anything but strength.

[@Suvs-ht7sk]

My cousin baby had this disease it was so painful to see him suffer. He passed away a few months before his first birthday. It’s sad he passed but he’s in a better place no more pain.

[@renb6133]

Marky passed not that long ago. He was an incredible person & lived his life with love & grace. The world is a lot poorer without his magnificent spirit. However, glad he’s now free of pain. RIP, Marky! 💕

[@Jay-ii8bb]

There ain't nothing like a mother's and father's love!! I'm in tears!

[@ginamarshall7691]

This is the most horrific and unfair disease. The fact that it leaves these children in almost unbearable pain during their waking hours is something my brain cannot process. They are the sweetest and most loving kids. 😢

[@amberdelligatti9635]

He is so unbelievable! I am with my son in the hospital for over a month now. He has heart diease. Watching your story gives me strength. If you guys can make it work, so can we. Thank you for the inspiration❤

[@megan1445]

I hope your son is doing okay 2 years on

[@Cheroqui-s3s]

Oraremos por tu hijo para que Dios lo sabe ❤

[@majo6322]

You were indeed strong and brave! RIP marky! I'm very proud of you

[@aydenjoy4239]

He died?!?!?!?!?!?!

[@marieked]

@@aydenjoy4239in 2021

[@katandpapa]

I can't imagine the pain he has to live with...I have health issues, ie...Cancer, Sjogrens Syndrome, etc...deal with pain 24/7, but nothing like Marky! He's an amazing young man! BE SAFE,GOD BLESS!🇺🇸🙏❤

[@hmcbolser2584]

God bless you too!

[@aarohiyadav6047]

May God bless you too Dave!

[@coolbeats1555]

May ALLAH bless you and heal and cure you completely Ameen stay strong and never loose hope things will get better with time We all will pray for you may you get fully healed Ameen stay blessed stay safe Takecare of your self jazakallah

[@issystar96]

God bless you

[@Susan-jn3yb]

Prayers for Marky and his family. Thank you for sharing . Praying for you too Dave! I know about cancer and pain ... joy in life in the midst of pain is truly a blessing from God. Hope you have joy always.

[@AngelJuliet]

I’m so sorry you lost both of your children. May they both rest in peace.

[@IAmSuzyQ]

I am proud of him, because he is strong and brave! How could you not be?🤷🏼‍♀️

[@That0neKpopStan]

I wish I was his brother I will tell him ur strong u can do it

[@maxplank2769]

Why suffer every day ??? well, I understand enjoying life, but it's worth it? A minute of joy and all day of pain ??? It's a painful death, euthanasia is the best choice. The misery ends.

[@IAmSuzyQ]

@@maxplank2769 I think that's something that's up to the individual suffering the pain. I also think assisted suicide is a treatment we should all have the right to choose, here in America. As a nurse, I've had several patients who would have made that decision, and it would have given them control over their life and death, allowing them to die with dignity. So many just hung on for weeks, suffering pain I couldn't even begin to imagine.

[@boogiemonstermom677]

@@IAmSuzyQ I totally agree with this. I think it's pretty obvious this boy wants to live, but I do feel assisted suicide should be a legal choice for those who don't, or feel they just can't anymore. Our bodies are ours, and we should have full autonomy over them.

[@IAmSuzyQ]

@@boogiemonstermom677 Yes, absolutely! I've always found it to be odd that anyone would have the right to force another human to keep living, against their will. I think it's important for the person considering suicide, to first receive therapy, and to try medication before being granted assisted suicide, because through those interventions they might find happiness and the will to go on, but of not, let them go. How dare we force someone to live a life of misery, while we just make that decision for them, then just walk away. It's cruel. And when it comes to cancer and other fatal conditions, the decision to die with dignity should be given to that person. No one should have to suffer a slow and painful death.

[@Watcher413]

Woah this guy is probably the most mentally and physically strongest man to ever man. Great to hear that he has a good support group.

[@Jose-ht2lw]

I think it's important for parents to do a genetic test if it just in case they carry any diseases that can be passed on to their kids. It's one thing one parent carries it, but it's way worse when both have it, the kid gets the worst of it.

[@SpeedDemonStar]

Genetic testing is, unfortunately, still extremely expensive and as such, isn't affordable for most people. One alternative is to look deep into family history to check for such conditions (one way is to make a "medical family tree"), but medical records weren't as common or thorough just a few decades ago as they are now, so it's not always easy, particularly if the fetus never made it to term or the child died before school age and if you don't know all of your family members, that might be made more difficult, but in many cases, it is doable.

[@numbers1812]

So if two people love one and other and they share a gene that could possibly cause a disease in a child they conceive the parents should not be allowed to have a child like Marky?

[@nikkids4266]

I too wish this was possible. But as its been mentioned it’s still too expensive to do genetic testing especially here in the US where you practically need a referral just to sneeze 🤧 🙄. I know firsthand cuz my daughter was born with albinism. No one on both sides had in any memory knowing of this happening. You see both parents must carry the recessive gene and then there’s a 25% chance of each birth having albinism. We were offered genetic testing AFTER she was born, cuz there was warrant for it then. But sadly not before\. Don’t get me wrong my kid is amazing! Honors and early college despite being legally blind (has limited vision).

[@Asachara]

@@numbers1812 yes. why bring suffering for your personal gain. this child is nothing but something to look at and for us to feel better about our lives, something for us to throw money at uselessly, and something to take resources...all the while he suffers in horrible disfigurment and pain. robbed of fulfillment. its absolutely horrific. may his soul rest

[@GroundhogBaby]

@@nikkids4266 well they already had one child with it so they were offered genetic testing, got it, found out they both had the gene, and chose to bring another child in this world to suffer. Very selfish.

[@dcdx8966]

I follow him on Instagram. Even with such a terrible illness he still smiles and has so many celebrity friends. Even in his state he’s affected a so many people with positivity and just somehow oozes confidence. People should learn from him!

[@ChadTepper]

hes amazing i love you guys marky is so brave

[@Daniel-cp9zz]

Yes 🙌

[@aprilleerose]

He was such a trooper, truly incredible boy. Him and his mama.

[@Whiteboyy1234]

My god when you think ur life is really really hard just think of this strong lil kid man stay strong kid your a brave boy!!

[@perfectlyhonest4139]

He’s 20. He appears much younger though

[@pamelamason1715]

You’re an inspiration to everyone that is lucky enough to watch this. You ARE strong and brave! Keep on keeping on Marky and family ❤️

[@katisip1288]

I’m so sad 😞

[@Valentina-gg4tn]

Agreed!

[@lilysmit5667]

, no kn on in k

[@gabrielleg4808]

So happy he has those two doggies to make his days brighter 😊

[@MalleableMetal1]

I was crying just in his wakeup scene. Omg poor guy he's beautiful and I feel so bad he's hurting! Life is so fragile. I'm so glad and proud that you have such a good attitude Marky💜 sending love

[@guyyonce7769]

Butterfly skin and heart of a lion.God bless him and his family.

[@jackie2494]

Poor kid but he’s happier than most people

[@NardosSwaggeos]

Is he though?

[@संदीपसंदीप-झ4थ]

Hii

[@MarkytherockJaquez]

Croix Murphy yes he is this is my son

[@GroundhogBaby]

@@MarkytherockJaquez don't stand up there and say he is happy. He himself says what incredible pain he is in. How can he be happy living a life of total pain and discomfort? Let's be realistic. Nobody deserves to live this way.

[@halcyon3772]

@@GroundhogBaby yeah you're right nobody deserve to live like this, but life ain't fair and that little boy is living his best life, he enjoy as much as he can even with the constant pain

[@dizziechef9502]

He’s a wonderfully brave and strong young man. This is a terrific beautiful mom. And the dad is amazing too. He stayed and supported his family in face of challenges.

[@marieked]

Sadly he passed away December 2021

[@PallidTrash]

Please don't take this the wrong way but if you have one child with this horrendous disease. Why would you try for more? I would be frightened to try for more children.

[@Jama00209]

Because God said be fruitful and multiply

[@jarrodhall3686]

@@Jama00209Oh, well, if GOD said so 😂

[@moonknight2865]

@@Jama00209bruh, god aint real. Stop. If god wants you to have children knowing you are giving them a horrible disease, your god sucks my dude. Sorry to tell you.

[@soggy.cupcakes]

Rest In Peace Marky ❤️ I came here to rewatch some videos of you to remember you. You were such a beautiful beautiful soul. The world will miss you

[@lindsaymarkin891]

Oooh that poor boy! He seems so sweet, but also incredibly strong. I can't even imagine being in constant pain my entire life!! Broke my heart to see that. 😢😭 His mom seems like an amazing woman too. ❤

[@ahbeemarie7451]

Why would they have a second child, knowing that disease would once again be passed on. Its cruel.

[@scumpuppies]

Nothing but the utmost respect for him and his mom. Amazing people. What a triumph of the human spirit.

[@boobmyst3475]

Man I got tears in my eyes. Such an awesome kid and a great outlook and attitude.

[@nocilantro_gack]

I hope they give him the strongest and safest pain meds there is.. what a brave guy.....

[@himangshubailung1055]

How can someone be so strong? It must be a blessing he is spreading love and strength… love you darling 😊❤

[@ellaelliott4415]

We miss you, buddy. We miss you so much. We’ll never forget you and how strong and brave and fearless and resilient you were

[@Dionne2U2]

Marky is a hero and such inspiration. I have severe pain and dealing with it in a positive attitude can be so difficult, seeing Marky and his joy. Hearing his laughter, and absorbing his thoughtful words remind me daily that I can do this and to focus on the positive, just like Marky.

[@tcmichigan8066]

R.I.P. MARKY Prayers for his family and friends and everyone who knew him. You are definitely missed each and every day. No more suffering. I can't wait until we meet someday. Thank you for your short time on earth as you definitely inspired alot of people.

[@oceancat0450]

As a nursing aide, there is so much that goes into care with patients like this. These parents from the time they get up to closing their eyes at night, they’re thinking about Marky and keeping him safe and healthy.

[@ryanwitwickifaddegon4291]

Love the dogs, they teach go beyond the looks, inside is what matters..they're loyal and loving unconditionally to fullest degree. They just know. He's a happy person.

[@claramcewen5938]

What an inspiration! Anyone who has known his story will not forget what true courage looks like. His mother, too gives a remarkable example for us to follow. Love truly carries us through tough situations. God Bless.

[@TopHatRonin]

I am praying for you Brother. You're tough young Man. I salute you 💪.

[@allaboutherterritory]

Wow. The whole family is strong. Hit me even harder knowing he had a brother that passed away from it. Marky is very strong 👏🏾💕❤️

[@AzlianaLyana]

Marky...You have the most wonderful family Ive ever seen. Bless you and family. Stay strong buddy🤗

[@MultiAsssasin]

This is to the parents -You guys are extremely strong mentally I praise y’all To the 19 yr old -You motivate me to get up and stop with the excuses, thank u

[@vanessawatson6794]

God I wish I could take his pain BLESS him Lord

[@Areyousayingidontknowmyname]

Not sure he can handle any more blessing from his Lord. One incurable pain filled blessing is enough.

[@ThriftyBoss]

the lord gave and took his brother's pain already

[@BumpyHumpyDumpy]

Areyousaying idontknowmyname As someone that’s agnostic, I find your comment quite disgusting and the reason why atheists are looked down upon. One could argue that the lord placed this burden upon this young man because of his incredible strength, I don’t know a single person that could deal with half the pain this young man handles and still be a compassionate person. This young man is a gift to our society for spreading awareness about a serious condition and displaying strength that exemplifies the utter greatness of the human spirit. Someone asking for blessings for another person is an expression of love and compassion for their fellow man, and to mock that is quite frankly pathetic.

[@Areyousayingidontknowmyname]

@@BumpyHumpyDumpy Excuse me. I am Agnostic also. Considering my reply was accurate then i am not sure what your problem is. They can't have it both ways.

[@BumpyHumpyDumpy]

@@Areyousayingidontknowmyname If you were agnostic then you wouldn't have said something so heinously ignorant. Your initial comment reeks of narcissistic self-importance that is deeply rooted in atheism, and it's clearly identifiable in this response. I wouldn't be surprised if you learned the word Agnostic from researching my first response to you. You haven't a clue about the concept of faith, which is exemplified in your latter comment. Can't have it both ways? Have you ever done any research at all into the association between suffering and theological beliefs, particularly those of the Abrahamic religions?? Clearly not. Take your short-sighted, ignorant, and down-right offensive self somewhere else. You're completely frivolous, and it's truly pathetic that your jealous of this young man provoked such an ugly expression against someone's faith.

[@lilyflores7018]

I'm so very sorry for your precious loss, my daughter was born with EB and it was so hard to watch her go through so much😢 I lost her at the age of 16....my deepest condolences to you and your family❤ prayers for strength🙏

[@meganadams3607]

The happiness and positivity that Marky and his family radiates is so inspiring. Such amazing individuals ❤️

[@jessie.music1]

If you think pit bulls are vicious... watch this. This makes me smile.

[@alezandradavila2581]

Yes all depends on owner anybody can be taught to be vicious no matter what

[@adararelgnel2695]

Well it depends how they are raised.

[@ryanwitwickifaddegon4291]

Well clearly these beloved dogs have been raised well, and in return protect, love their friend.

[@nicoleeubanks9076]

I was thinking the same thing

[@possiblegames2953]

i went to my neighbors house they had 2 and their pit bull's did not bark at me once even tho i just met em

[@shenequamiller264]

When I say I'm here crying because he is so amazing and he has a wonderful heart with a big smile! He just made my heart burst with his happiness for his big brother and his love for his family

[@audreyallen5744]

This boy its incredible. Even with this horrible disease he lifts up the people around him. His is what a true hero is. Rest in peace angel.😇😇 I wish everyone had his love.🙏🙏🙏

[@sidneyadrienne1219]

"Thank you daddy".... ugh I wish I could take his pain for one day...he has a special heart and I hope they find a cure one day

[@honeybunch6473]

"Thank you daddy". That ripped at my heart. You are strong and brave and full of gratitude and that is why your soul is joyous ❤

[@dtheactivizt]

i almost cried when he talked about how the dogs love him

[@arianacarrucini3923]

Wow loosing a child already and knowing you are going to loose your other child . This is horrible the strength this mom and dad has is extraordinary

[@PRETTYESHIA504]

Literally 😭😭😭😭 when he told his daddy thank you. 😭😭 so brave!! God bless him 🙏🏾

[@jessicaschoonmaker2073]

he is 19 years old not a little boy

[@auroramacula]

@@jessicaschoonmaker2073 yeah its kinda disrespectful to call a grown man "little boy"

[@papayapalmares]

I loved that part too. Marky is amazing.

[@PRETTYESHIA504]

@@jessicaschoonmaker2073 i said what i said. Write your own comment get off mines.

[@bethsummerville341]

Marky, my name is Beth... I just watched your interview on SBfSK, and I want to encourage you in your faith and thank you for being a strong example of that faith. One of these days all of us who trust Jesus will be together with Him and you will be healed - as your brother is now- and we will all praise God "live" forever!! I will pray for you every day until then. You are an amazing blessing.

[@joshuatimothy2966]

U can see the pain in the mom and big Bro's eys 😔

[@brendadickson8871]

So sad God help them

[@REDWASP777]

I have known about Marky for a few years and he has got to be one of the strongest people that I have heard of by far. Marky is a hero to many including myself. Marky is very very special! ❤

[@samiraadams6980]

Truly amazing!, he’s the strongest guy I ever saw, and his family, specially his mom is the real Wonder Woman! My deepest respect

[@fudgevalley]

Marky you are warrior and more of a man than almost everyone I know, or have even heard of. A true inspiration and positive force of nature! Don't let anyone tell you otherwise! A giant walking amongst the rest of us.

[@gapurastudio]

Really kind and humble parent 😭🤗

[@TheRubinator13]

Or selfish? They had a child with the same condition and that child died, they knew the risks of having an other kid, and decided to do so anyway, and all they did was bring in a life of pure pain and suffering. There are so many children that need adopting, and these people decided it would be better to have an other kid with their broken genetics instead of make an other childs life better So not only did they NOT help a child by adopting them, but they damned their own child to a life of suffering just because they wanted children related to them Selfish, selfish people. That man (he's 20, so he's a man now) deserves better parents than ones who basically chose this life for him.

[@oliviarichman6035]

TheRubinator13 i would normally agree with this but they were only 13 months apart. and the first son didn’t die BEFORE the other son was born. in general i do usually frown upon people having children when they KNOW they have such a high chance of them having complications.

[@kyoyo9350]

@@oliviarichman6035 this condition is known at birth, she knew she carried the genes for this and still had another child

[@toucanfeathers102]

Marky was not the first case of "the butterfly disease" before him it was Johnny Kennedy from England I believe. When life gets them down they get back up and they still enjoy life as it is. I could never imagine being in the most intense of pain every day I get up I would feel the need just to be down. This young man is probably the strongest I've seen. Rest in peace marky you were so loved and still is in spirit ❤️

[@raynedrop3434]

God bless you Marky-such an inspiration to deal with such pain and daily challenges. Your parents are beautiful souls as well. Watching your video turned my day & attitude around. Thank you for sharing your story. ❤️

[@maudegrey5038]

When you said no pressure sores My ears perked up That’s Absolutely Amazing!! Huge accomplishment! Good job Mom

[@lonman80]

I cried through this whole thing. My heart goes out to this young man.

[@giadafilotto4774]

RIP Marky. Such an incredible boy with the strongest and bravest mama ever

[@VisionaryTribe]

God bless this child and his family. There’s a special place in heaven for children with disabilities. Praying for him and his healing.

[@hannahr.1164]

I am here because sbsk did a video of him but you cant comment on there videos... I just want to say this person has really really touched me.. Marky is such a strong guy.. Its so heart breaking to see him in pain.

[@amberfurlow6217]

He is an amazing person and his dogs are so cute. I just love this channel.

[@shakejuntgurl]

He’s got a heart of gold. Everyone is struggling but when you see someone like marky and makes your realize your own struggles may not be as bad as you make them - for me anyhow

[@locallilicoasmrlistener_465]

It’s amazing that people can still show that miracles do really exist

[@GroundhogBaby]

That ain't no miracle. That is a life of torture.

[@Areyousayingidontknowmyname]

@@GroundhogBaby I was wondering what the miracle was also.

[@locallilicoasmrlistener_465]

You got that right

[@MarkytherockJaquez]

Angel Fitzwilliams shame on you

[@Areyousayingidontknowmyname]

@@MarkytherockJaquez what for? It's true.

[@misstinahamilton5714]

This is an angel here on Earth . What a strong and wonderful boy he is. As a parent I just can't imagine - my son has had health issues and has grown out of most of them . Seeing your child in pain rips your soul out . God Bless this family

[@jhomarmacawile3646]

He still go in life, This man is so amazing 😍😇

[@kimberlywrenn4254]

Prayers for this wonderful Mom. You made Marky into a loving and kind child and done your best with him. God bless you! Rest in peace Marky❤

[@Jose0421]

RIP buddy. 🕊️

[@brittanyduckworth4037]

Marky you are the definition of strength and bravery. You are an inspiration to never give up no matter how tough it gets. You have a beautiful soul and a wonderful heart.

[@lefroy1]

What a beautiful, brave soul. Same to the fam.

[@Hokuto_Tongi]

Nice pic

[@Perla-w2d]

These kids make me sobb like nothing else. If I could give you my skin I would. Fly high angel ❤

[@annette2771]

Amazing family! Marky, you're so strong and brave! You're an inspiration to many people. 💜

[@laurenferrell4445]

Okay he is BEYOND PRECIOUS!!!!! His spirit is so infectious and heart warming! And his support dogs.... omg! That family is so adorable!

[@demetriouscharles]

So happy to see he’s still striving and living his life to the fullest ❤️❤️💯

[@pixiepie3774]

Well done Mama for keeping him infection free. I've seen quite a few programmes about EB and it breaks my heart that these people have to suffer so much. I have a chronic pain disease and I feel ashamed that I get upset about it. You are the epitome of the word warrior xxxxx

[@coreyunderwood7389]

Your my inspiration ! I’m so proud of you. Your spirit is uplifting, even when you say your in pain you still find some way to smile. GOD BLESS YOU AND YOUR ENTIRE FAMILY🙏🏽💖

[@BGBPW]

I can’t lie... That made me cry. Of course seeing the suffering he has to deal is sad, but the main reason was because of how absolutely beautiful he is. The video was less than 7 minutes but there is no doubt in my heart how truly unique and special he is. His mom is magnificent, and the rest of his family (including the adorable dogs) I know must be, too. My thanks to that family for making the world a better place simply for just existing and making the most out of it. Inspirational.

[@gaucheswife3661]

He's a warrior

[@occhimarroni88]

😭 😭 y’all are so strong!!!!!!!! Thank you for sharing and loving these beautiful children!

[@toadtoadtoadtoadtoad3916]

He's incredibly strong, I admire him so much!!

[@crystalmorris215]

I first came to know of Marky from his SBSK interview with Chris. He's doing so well! Every time I see that kid, he's got an even bigger smile on his face and a brighter spirit. Sending tons of positive energy to his beautiful family!🖤

[@moniquelomax8110]

You are Strong and Amazing! God bless you and your family!❤

[@butterflywarrioredits]

Everyone don’t think of EB as a tremendous burden but in some ways a gift. Sure it must hurt like hell but the people who have this are some of the bravest and kindest people I have ever come across and have been told by others to me. Yes I have it to and I’m not talking from just experience but for those I have met and watched videos about.

[@Thomas2877]

If this doesnt put a tear in your eye then i dont know what will. I cant imagine that type of pain.

[@fonzil5909]

This video made me cry, those parents have a good heart, Marky is also a strong person. In the next life Marky you’ll be free from this disease.

[@cm2ca]

💚Such an inspiring young man & Mom!!!

[@joyceballeck8865]

Awe, those big beautiful bully dogs are so gentle with him and give him so much joy❤️🐾❤️🐾❤️ Blessings abound for this young man!!!

[@Uzbekcha_ASMR_quyoncha]

Aww he’s so strong n bravee I love him 😍

[@JourneyInTheCity]

He passed away … about a week ago

[@sophiaal.2589]

THANK YOU FOR SHARING THIS BEAUTIFUL STORY JOURNEY OF YOUR BEAUTIFUL BABY BOY ❤️🌹💯💜

[@kay_ann]

melissa, you may never see this but, you are an absolute angel. thank you for thanking care of our fragile brother. I love you honey, and please take care of YOURSELF too!!

[@kgotabody13]

He so adorable? Before she said he was 20, I would have guessed that he's 12! I know he would be upset if someone said that he's 12, but he should take it as a compliment because he doesn't seem to age! Anywho, prayers for u handsome! 🙏🏽🙏🏽🙏🏽

[@bevshaw5871]

I did not know this child, and I don’t know his family, but I feel very connected. I can barely make this post right now because of the tears and the lump in my throat. God bless Marky and his brother Bubba’s family. I lost granddaughter from liver failure caused by lupus at age 35 and that was hard to watch her suffer for five years. I can’t imagine what this child and family went through all those years. My love goes out to you all. God bless.

[@GroundhogBaby]

This is so sad 😢. What a horrible way to have to live. My only question is if she had one child with this genetic condition, why did she bring another child into the world, knowing there was a big possibility the next child could have it too. You shouldn't bring a child into the world to suffer.

[@AminaAmina-yn5uc]

I wonder why these people who are extremely in pain all day long every day of their lives are always the most , happy and grateful people ever