The Myositis Association, Patient stories, Inclusion-body myositis

[@itisfinishednowtimetoclean2723]

Thank You so much for sharing this information. The details, I did not know about bone involvement. My bones are part of my issues. Was diagnosed with myositis in 2021, prior diagnosed with SLE…. I have been so weak sometimes just holding my phone causes my arms to tremor! My thigh muscle has been inflamed for 2 years. Further diagnosis is coming. I pray God give my specialist Wisdom. Thank you again, for your service to our country, and to the Myositis Assn. as well! 💕.

[@gloriagluyas8948]

Hi my name is Gloria i was diagnosed with Dematomyositis with Necrosis and Antisynthetase syndrome but I was diagnosed about 4 years ago now being 2022 and was very lucky to have a rheumatologist professor who was studying the disease and i got diagnosed in around 3 days It came on me so quick and i was so very ill and unable to barely walk or move or pick anything up lot like u said your father is I live in Australia am 60 and my daughter suffers from pain and fatique etc so similar to me Once i heard u say yours is heredity i sent my daughter of u talking about it I have been told over and over it is not hereditary So thankyou so much I have only just found a Myositis Association in Melbourne Victoria Australia and have been waiting for more information from them to take to my doctor as u eould no and understand how difficult it is to try ecplain Myositis to Doctors Specialists etc etc I thankyou so much again for telling your story I'm sure there is a lot more you havent mentioned Such kind regards to u Gloria from down under

[@kpkbkpkb7768]

"fess up" ….you have a sense of humor! Thanks for sharing. I'm new to myositis...means a lot to hear stories.