The Patient's Experience: Making MS Boring, by Aaron Boster, MD

Program: A Patience Experience.
Supported by Celgene and Novartis
This was the second presentation of our MS event on 8/10/19, in Cincinnati, OH
Listen to Aaron Boster, MD for and an engaging talk on the topics showing below and why he does what he does.
• Recognizing and managing MS relapse in your life
• Learn about Patient Support Programs
• Mood, Depression and Cognition
• How to prepare with your partner to discuss your MS treatment and plans with your Healthcare team
• Discussing the need for a comprehensive healthcare team
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** Listen to Dr. Boster's entire talk and then listen please to the Q&A following his presentation. --- Leave comments please
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[@marieb9081]

One of your best talks yet...thanks Dr. Boster!

[@mariatuppergoebel3829]

i am cracking up with laughter after listening to your explanation to try and help others understand MS fatigue, as it is my experience and then tears of validation. I really truly appreciate you sharing your knowledge with me and anyone who watches. I've been living with MS for 25+ years and it's so refreshing to listen to you explain from what is MS and on, it's like I'm listening to my own journey with the disease. Thank you thank you.

[@MSViewsandNews]

So glad !

[@gotwake7]

I feel like I need to have a copay for all the information he’s given me. Way more then my local neuro!!!!😂😂

[@JulieTobin-Ruszczyk]

He is magic for me😊

[@msenit4lifepattylong76]

Thanks for posting Stuart! Dr B is a hoot! Great video! ❤️

[@lesliex7894]

Another great talk Dr B. Keep learning more and understanding more from your talks. What would tip 9 and 10 be? 1 thru 8 were great.

[@shannondotson7750]

You rocked it! I am on my 5th therapy since diagnosed (approximately 12 years ago). I am extremely active in my multiple sclerosis community (Minneapolis and surrounding areas) and have improved VASTLY over the years, particularly since Lemtrada three-ish years ago. I, on my own I have massively researched MS from around the public information around the world, from universities/doctors/conventions/etc. I went from an EDSS score of 7 to a 2.5. People frequently ask me how, and I’ve been telling them more, or less what is in this video! Thank you for a link I can share, and your incomparable way of explaining it! Question: When are you coming to Minneapolis, Minnesota? (and if you are, can I help you with suggestions for making it a fantastic success?) Again, you rock! Shannon

[@aditya50499]

The improvement from an EDSS of 7 to 2.5 is incredible. May I know how you were able to achieve it. I'm 25 (SPMS) with an EDSS of 6.5, currently on Rituximab.

[@shannondotson7750]

Aditya Kumar Sahni definitely the alemtuzumab (Lemtrada) helped considerably, in conjunction with that I’ve completely changed how I eat, do stretching and yoga most days, lost weight and work on my balance via exercise and physical therapy. As far as “diet” not really a “diet” but changing what I eat. Basically the food pyramid, switching refined foods to unrefined (switching to brown rice/flour verses white rice/flour) eating more fiber, drinking 90ounces of water a day, following primarily the Mediterranean Diet.

[@teaupouri]

Gracias amigo from new Zealand 🎉

[@michorote106]

Dr.Boster God Bless

[@annamaye77]

Brilliant speech 🙏regards from Russia with Love❤️

[@deborahtruthseeker112]

I have numerous brain lesions, and I am sure that I now have numerous lesions on my spinal cord, but have not had an MRI on my spinal cord for many years. No MS neurologist will accept my Insurance, and my former neurologist died from cancer. I have RRMS.😢

[@Wyomi]

My neuro said not to bother him unless I have a new neurological symptom that last more than a couple of weeks.

[@MSViewsandNews]

sorry you are going through this. Maybe it is time to find a new neurologist?

[@gloriabailey6170]

Why are sll this over four years old fid we sll die

[@julie9155]

My supervisor has a cousin that smokes pot. So though it subsides pain, wouldn't that run parallel with smoking cigarettes speeding up the process and making it worse?

[@julie9155]

I take Gilenya. Hoping there is a new advanced pill soon.

[@sonsofanarchy5316]

Hi, Dr Boster, I have MS, I Hava a friend, I have a both sick, I have MS, he have MS, I make copaxone, he make Tysabri one injection in one month, Jesus

[@deborahtruthseeker112]

There is no tumoric. It is called TURMERIC!!!

[@tamara401]

Best speech ever much love ❤️

[@michorote106]

Love when you do shows u make me laugh

[@deborahtruthseeker112]

I was itching like crazy at church, and a homeless man sitting next to me got scared, and thought I had body lice. He quickly got up, and moved to another seat. It was kind of funny.

[@bevee3711]

😂

[@bevee3711]

Oh the irony….

[@ericalagary6219]

I was diagnosed 4 years ago and they started me on Tysabri in 4 months. Unfortunately, some of my original symptoms stuck with me BUT, no new lesions or flares. I pray it keeps working!

[@deborahtruthseeker112]

The fatige reminds me of narcolepsy. I have fallen asleep many times, and have been banned from a Starbucks location for having MS fatigue, iron deficiency, and low hemoglobin. The barista called police on me, and took out a NO TRESPASSING against me even though I was a good customer. I could not find an attorney to take my case because I was not a Starbucks employee.😮.

[@deborahtruthseeker112]

My deceased sons former doctor said she never heard of being able to get chicken pox more than once. My son had chicken pox several times, and she could not understand it. She is the doctor who diagnosed him.😮

[@ericalagary6219]

Im sad I don't live near you! I want you as my Dr!!

[@russturos8311]

This was a very informative discussion which I appreciate Dr. Boster.

[@michorote106]

I stop smoking January 14 2013 had surgery had a bad tooth infection

[@michorote106]

I feel good when u make me laugh I learn

[@pattirodriguez285]

Patricia Rodriquez

[@michorote106]

Thank you

[@sonsofanarchy5316]

Howdy, Dr Aaron , I have Ms, and i have disease 2014,42 year old, I, m oldest, my daughter encouraged me to. She was in Colentina hospital for me, visit, in therapy, ATI, SHE was in the hospital middle, without Despina I died, thank, greetings, and congratulations, you make many more for me. I, m very fortunate, because I know it you. You are the best doctor in Ohio, my idol was born in Ohio, I love Ohio. He is rock singer., have a goodnight

[@katelinallen3438]

You sir are amazing!!!!