The POTScast E159: Mast Cell Matters: Linking MCAS with POTS, EDS, & Long COVID with Dr Maxwell

Treating MCAS, POTS, and Long COVID can be difficult, and physicians must attack from various angles to get patients feeling better. Dr. Maxwell walks us through his thinking and how MCAS is linked to POTS and Long COVID. This episode is a must-listen for patients and practitioners alike.
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[@charlotterose8356]

Thank you for your interest in your patients! Most of your colleagues have no idea what MCAS is...and refuse to believe in POTS...and find handing out anti depressive meds to be the easier road.

[@smirnow127]

This was an amazing talk! Thank you! I wish more pediatric and adult cardiologist were educated in all of this!!! We have had the cardiologist and autonomic specialist who don’t have any of this information. As a parent this was extremely helpful to get my daughters and myself proper treatment. So many patients could be helped with this knowledge.

[@Heatherelem]

This information about how EDS/CCI, POTS, MCAS and long COVID and how they all relate is so incredibly helpful. It is EXACTLY what I have been experiencing and Dr Maxwell explains it all so clearly and succinctly. I will be sending the link to this talk to my Doctor. Thank you so much!

[@seancushman]

Thanks so much, I'm struggling to not be dismissed. Since April trying to get doctors to listen that there's a whole lot of stuff going on, I hope I can hang on long enough to get treatment. You look healthy... I looked a lot healthier 8 pounds ago and then I looked horrible in my opinion. 126 pounds at 6' tall to be said to look good they need a shrink 😢 Thanks for the great information I will be able to share with an interested provider.

[@mountainmolerat]

Dr. Maxwell is great. Can you repair the "saggy" vasculature if you suppress the mast cells or is there a point of no return?)

[@SweetiePieTweety]

His theory about 22:00 timestamp in…. exactly. Wish I could be a case study of this theory. So wish. I want and desperately need answers.

[@seancushman]

Me too. I think I have been Spiky Leaky for 45 years looking back. 40+ years of Migraines. MCAS could have been lifelong, may explain my rages or as I have heard them referred to as "MastoPsychosis".😮

[@seancushman]

If you think you have a CFS Leak check out Dr Ian Carroll from Stanford lots of his talks on KZbin and he makes things very understandable. Highly recommend his talks. I'm adding Dr Andrew Maxwell to my watch list now, this was his second video after discovering him tonight. It's sad what my life has become, soon I'll be an expert on POTS, Dysautonomia, MCAS, EDS, Lyme, CIRS... A true living hell! Happy New Year and hopefully we all heal! 🎉🎉🎉

[@renu653]

​@@seancushmanI hear you. Becoming an expert on all these things ( I'm a health care professional btw) and letting doctors set their ignorance aside n help , it is so frustrating. Never imagined this kind of life.

[@shelcoller7893]

Thank you for the thorough explanation of mast cell activation. Appreciate you!!!

[@ShirleyKapaun]

He mentioned a NUCCA Chiropractor adjudtment is telling on MCAS, adjustment won't hold, maybe a week. Mine didn't hold at all, I turned my neck and went out on other side. Over and over again. He gave up on me. Anyone else experience this?

[@maggiefuller6291]

So many questions but just a couple are about my long covid. Diagnosed last yr. After they started checking my heart. All the tests and exams and all came back my heart is fine. But last week , I now have a murmur. Did the long covid pots cause the murmur do you think?? Also, you say the co 19 virus can latch onto epstein barr if you ever had it. Would that be the same if . Well as a child I had encephalitis. And fatigue sleepiness has been a big problem for me. As it was as a child.

[@Carol-vx8ru]

High can MCAS cause you’re gut to irritate the vagus nerve causing AFIB Thanks

[@Gina-dn6xm]

POTS can come about with many diseases , mine being a positive lyme test.

[@renu653]

Mine came with Sjogren's.

[@karlacharger]

Why are all these studies comparing populations by category of “vaccinated” and “covid infected” without differentiating between unvaccinated and vaccinated covid infections? Without that factor included in analysis, it can’t be concluded that covid also causes it.

[@lizarosa156]

Differentiate in how many vaccines include boosters data . Look for correlations clues.

[@davidkruse4030]

What difference does that really make at the end of the day? If you know you have MCAS then you know how you have to treat it. we’re not even sure as to what MCAS actually is or why Covid or other factors would cause it or trigger it