The story of Griffin Being told their son has 3 6 months left

FOLLOW his journey on Facebook at / griffinsadventures
Donate to help this family go on a trip here www.gofundme.com/f/help-paren...
This is the story of Griffin. Griffin will be 5 September 16th he has polymicrogyra and heterotopia. He has a trach and vent for breathing and gtube for eating. He is no mobile and non verbal. He also has epilepsy along with infantile spasms. He had open heart surgery a year ago and had VNS placed for his seizures. He is currently on 4 seizure meds and unfortunately they are not working. We recently had another 24 hr eeg and his Drs told he is have over 400 seizures and day 18-20 an hour. At this point in time we have tried everything and nothing has worked. The Drs told us we are looking at 3-6 months left with him due to the brain damage caused by the seizures. Our hope is to enjoy whatever time God has planned left with him and make as many memories as a family. We want to take a camping trip with him and our 2 other kids so they have memories with him as well. We want to not worry about everyday life things and just cherish our time together.

[@michelled5204]

Michelle!!! You made me cry so hard. I love you guys and I’m still praying!!! You are so brave sharing this with the world!! I LOVE that he said I love you!!!!!

[@aleenahalls5850]

This story hits home hard As we just lost our 2 and a half year old baby boy to 2 extremely rear auto immune diseases less than 3 months ago I cried the whole time I watched this Thank you for sharing your story We miss our boy oh so much And wish he never got sick

[@meag_ken822]

As I’m watching this I can’t stop starring at my 6 week old baby boy.. my biggest fear since the day I found out I was pregnant, was my baby getting sick. Or not being healthy. I never cared what his gender was. It didn’t matter as long as he is healthy and growing. You truly just never know. Sending love, prayers and positive vibes to this family 🥺♥️

[@shauntellroberts7165]

Praying for this beautiful family. Oh my ❤.

[@MsBrat1967]

Prayers for this beautiful family.

[@amandamcclendon9547]

Watch this video breaks my heart this family is a strong family

[@emilyhubbard6312]

Thanks so much for sharing their story. Such a strong couple!

[@Ari-df2yy]

Such an amazing and special little boy ♥️

[@amyallcock8667]

💔💔💔 Thoughts are with the family so sad 💖💖💖

[@caitlinsmith9380]

Thanks for sharing this story 🙏 soo much love and prayers go out to this family 💜

[@nicb2073]

I didn't get a notification at all for this video. And that's odd. Hopefully the YT algorithm isn't pushing these videos to the side? ? Anyway ! I love that you're doing this on your platform! Sending love 💕

[@lorisarbinowski2965]

No it did that to most videos

[@abbycoop2112]

Beautiful family. ❤️ Praying for you guys. Love how you are doing these videos Mackenzie. Your Mom would be proud.

[@RabbitAndTheLabBestFriends]

Heartbreaking

[@TraumaSurvivorCynthia]

Thumbs up #28 for 🍼 baby Griffin. 🙏#davesandersstepdaughter 🤗

[@user-wj2qp1ig5s]

I was told my daughter would be a vegg her whole life...but yet here she is walking..she can't talk but she understands..how wrong the so called professional are...

[@user-wj2qp1ig5s]

My child was born normal...but at exactly 2 months she suffered her 1st seizer...after that she became mentally impaired..could not even turn over after 4-5 major siezers a day. ..my labor was not norm...there was a fresh from school "nurse" who gave me 5 to 6 fluid bags before breaking my water...she was suppose to break my water after the 1st bag...my doctor was not even in the room when I delivered...when shift change at 7 am happen...the new nurse opened my sac..cuz my baby was trying to come with sac intact...the nurse open it the baby fell out of me more or less...I was pissed..I asked her to check 3x since 7 pm the previous day...Plano med, TX is where this happened. I blame that young..wanna stay on my phone, not do my job b!+ch for my child's issues...oxygen being cut off to long causes issues...but what's bad is the hospital lied and in med records said the doc was there for birth...no honey a nurse deliver her and she didn't even have time to get gloves on...

[@isabelbriseno3668]

How can I donate. I don’t see a link

[@smardonian]

I’m hoping you can see my response! If not, click on the title of the video and you will see more info

[@maevecarey6411]

Love you from tem mom og

[@maevecarey6411]

You are one of my favorite form tem mom og by

[@lifewithmackenzie]

much love back at you. thank you for the love and support

[@maevecarey6411]

@@lifewithmackenzie your welcome

[@meag_ken822]

@@lifewithmackenzie I agree with Maeve 1000% and I am glad I am able to @ you directly- not even for a response, but I figured there is a better chance that you’d definitely see this comment. I wanted to make sure you know, that you’re such an amazing, kind, sweet soul. I cannot even begin to imagine how difficult it must have been, to sit with these brave, amazing, broken hearted parents. There is absolutely no “easy” way of doing it. Thank you for giving them this opportunity to explain to the world, the amount of pain they are enduring each and every day, while having to care for their gravely ill child. I don’t care who you are- there is not ONE parent in this whole world, that should have too, or that remotely deserves to ever go through something like this. Watching this video would have been difficult no matter what.. but I just gave birth to my first child 6 weeks ago & I couldn’t help but put myself in their shoes.. and the entire time I was watching this, I kept looking over at my baby boy who was sleeping so peacefully, and thinking to myself “imagine if I got that news when I was JUST in the hospital- that my precious, innocent baby was gravely ill.. and then have to hear there is not enough that they can do for him to be able to promise me he will definitely full recover”- and I just started sobbing. It was the first time I walked over, and woke up my sleeping baby- I couldn’t stop myself.. I NEEDED to hold him, and hug him.. while thanking god out loud for giving my son his good health. There is nothing worse than wanting [SO BADLY] to be able to tell these parents that their son is going to be OKAY- and be able to PROMISE them he would be. They are SO BRAVE for getting on here, and sharing their story. I hope they know that by doing so, they helped thousands & thousands of other families around the world, who unfortunately are going through something similar..by making them realize they are not alone. I’m so sorry for this long, drawn out, rambling comment, but your video hit me so hard today- and I know a part of it is because I am a momma now- I finally know & understand this love, that I always heard about- and was told I’d never experience it until I had a child of my own. This family, as well as yourself, and your family will be in my thoughts and prayers tonight- I will most definitely be praying for a miracle 🥺♥️🌙