The Talk | About my diagnosis : Ovarian Cancer

[@susancrouthamel760]

My niece was diagnosed with ovarian cancer they said it was 3 but could have become 4 quickly. She only had some abdominal pain. Thank God, I'm an RN n glad I convinced her to go for an exam with HER OBGYN. SHE HAD A TUMER SIZE OF A LARGE GRAPEFRUIT. THEY STARTED ON AN EXPERIMENT CHEMO IN NC N IM HAPPY TO SAY SHE IS 12 YEARS CA FREE.

[@memoirof]

This is a very motivating story! Thank you!

[@lindsayholden5959]

Oh you are so composed, so humble and perfectly BRAVE. God Bless you Little lady xx

[@memoirof]

Thank you so much! This means a lot! And God bless you too! 🙌🏻

[@caryngoldsmith6782]

I am a 17+ year ovarian cancer survivor. I was also given 70% chance of survival, but my mindset was always either I would be a zero or one - I’d love or die. I chose to believe I’d be a one. (Yes, I’m a researcher!) I was not a genetic carrier, but I got my CA-125 done every three months for 15 years and now I’m twice a year. I hope they are offering you the Signatera test, as coupled with CA-125, it’s a very good monitoring tool. Normal CA-125 with Labcorp is 38 or lower. They start to suspect OC when you’re over 200. I was only a 64 and ended up being stage 3C. Hang in there. You’ve got great newer medicines and a good support team. The first couple of years are the worst in terms of feeling like cancer is driving your life, but it gets better. Exercise if you can. I hate it too, but it helps.

[@memoirof]

Thank you so much for the encouraging experience! It's been a year and three months since my diagnosis and glad to say everything has been all good! I keep telling myself that I am not sick and just go about my life as normal as it could be, if anything I become more productive! You're right, I have great faith in today's treatment and medicines and I most definitely will ask my oncologist about that test you mentioned!

[@tseringdolma1137]

@@memoirof

[@Missy182]

You’re in my thoughts ❤ I have recently been diagnosed with BRCA2 so I am having a double mastectomy and removing my ovaries and fallopian tubes this winter.

[@memoirof]

Thank you and please stay strong! I'm going to have breast MRI in a few months also, the fight is not over yet. I hope that everything goes as planned with you 💪🏻

[@donnamariedunn3944]

You are a very strong young lady. I am sorry you are going through this. I also had ovarian cancer. I was diagnosed September 2021.i had surgery to remove my ovaries because I had the braca2 gene and breast cancer 22 years before. My mom also died from breast cancer. Anyway, it turned out I was too late and already had ovarian cancer. Went through another surgery and 6 rounds of chemo. I was 60 at the time. You are so young. My stage was 1c3. I didn't get any medication afterwards. I wish you all the best and I am glad you are finished with treatment, except for the medication. Take care.

[@memoirof]

That's what the doctors were saying as well, they kept saying I was too young for this but it turns out I was confirmed for Rad51 C germline mutation, so that explains it. My mom also had breast cancer when she was 38 years old but she's in remission now for years. My fight is still not over yet but I'm optimistic. Thank you so much for the wishes and support. Let's finish strong together!

[@donnamariedunn3944]

​ I always have to be checked. And it's always hanging over my head. I'm with you on staying strong together. ♥️

[@muma6559]

@@memoirof how often do you have to get checked? Is Rad51C linked to both breast and ovarian cancers ? How old were you when you were first diagnosed ? Kamsahamnida

[@memoirof]

@@muma6559 Hi! Yes, RAD51C is a breast and ovarian cancer susceptibility gene. I still have 2 months of bevacizumab (antibiotic), so I always need to do CT-Scan every 3 months to assess the treatment. After that, I would only need to see my oncologist every 6 months along with routine CT-Scan or MRI, eventually the visit time will get lesser and lesser (Amen to that!) I was diagnosed on December 2022, I was 33 years old!

[@muma6559]

@@memoirof thanks for that. I hope the antibiotic doesn't ruin your stomach, try taking probiotics and prebiotics at the same time to preserve your stomach lining. I wish you all the best, you are very sweet. God bless.

[@shanelittle1025]

Sending you strength and hope. Stay strong and live every moment!

[@memoirof]

Thank you so much for the support!

[@anglophils645]

Avastin is not an antibiotic. It is a Targeted Therapy, that keeps tumors from being able to develop a blood supply. It is typically given for about 18 months after surgery, to stage 3 and stage 4 patients. Lynparza is an Immunotherapy drug that can be given longterm, as a maintenance therapy.

[@crystalcalendars142]

I was in ER the same day COVID lock down in the hospital for a very large ovarian cancer mass. I was so lucky to have one of the best surgeons and surgical group. Now I have passed 4th year and am looking for the 5th year mark. For my impression, ovarian cancer was rare, but now it's so common, or maybe because I'm paying attention to it. Currently there are newly developed therapies, hope we all can live long enough to see its cure.

[@memoirof]

@@crystalcalendars142 thank you for such uplifting experience! We will be okay!! 💪🏻

[@judymawnis6332]

My tumor so large could not pee had to have bilateral stents and surgery

[@jdakat88]

What stage was your Ovarian cancer? Mine is 3C. My experience is similar to yours. It took months of misdiagnosis, many visits to specialists and many CT scans, sonograms,numerous blood tests…all inconclusive. I also thought it was gall bladder or liver because my pain was high up in my abdomen. Finally I was so bloated and in discomfort I went to the ER. I waited 4-1/2 hrs and almost left twice but my husband said no! We’re going to find out what’s going on. The ER staff was so kind. It was after midnight when a wonderful intern promised me that they would not send me home without an answer. He drew six carpules of abdominal fluid from my stomach. Then they admitted me into the hospital and 5 days later a doctor who had performed an endoscopy on me came into my room and broke the news that I had Ovarian cancer. I was so relieved. I thought I had pancreatic cancer! After testing, it was discovered I have a BRCA gene mutation. My children were tested and one of my daughters has tested positive for the same gene mutation so she is planning on a hysterectomy to prevent this disease. It’s been 3-1/2 years now. I’ve had two rounds of heavy duty chemo, a debulking surgery, PARP inhibitors and now Bevacizumab. I’m here, hoping for the best. My CA-125 was 1600 when I began treatment, now it’s 9. I feel blessed. Prayer and meditation have given us hope. ❤

[@memoirof]

OMG! I can feel all the hope and blessings from your words! I had stage 4, but my team of doctors were very quick to give me assurance that I could get through this just fine. So grateful for them but also to people forcing me to go to ER and "exaggerated" a bit to get checked. I'm so glad to hear you acted quickly regarding your children! I hear a lot of people getting their mammogram yearly due to breast cancer awareness, but we also need to do the same thing with ovarian cancer too! A yearly CT scan and/or CA-125 test should be in a basic check up thing!

[@anastasijaiceva7704]

This is one of the best well composed stories about ovarian cancer.Unfortunately you need to go to ER to get CT scan as doctors mainly discharge you with acid reflux pills😢

[@memoirof]

I know, right?! But thank goodness I listened to my co-worker and went to ER instead of sticking to acid reflux pills. Even up until now, lots of doctors would still ask how I made such a perfect decision 😲

[@akankshayadav6571]

😢😢😢it jist not only about cancer you know my story is like that i am akanksha i am feeling tight ness in stomach and 2 year before my stomach start growing after some time it looks liie i am pregnant of 9 month than i go to my gyne ,she told me for ultrasound i done my ultra sound and my gyne see report and told me ohh god😢😢😢that you have large ovarian cyst in right ovary size of watermalon and say we has to operate and remove your overy and fallopian tube😢😢😢😢 i just broke in november 24 i got operated for functional cyst

[@memoirof]

Aww I hope everything's okay with you now! These type of news are all gut-punching but as long as you are still here with us now. I wish nothing but long happiness for you!

[@anglophils645]

When you went to the GI doctor with your abdominal pain, that doctor should have ordered a CT scan. You should not have had to go to the ER and sit waiting 10 hours to get one.

[@anglophils645]

If you have to have a second parathentesis, you're supposed to be given an abdominal port at that time, so that you can keep the ascites drained off, yourself.

[@memoirof]

Hello! Yeah, I guess the doctors kinda knew the ascites were caused by tiny cancer cells near my stomach lining and it would go away with chemo. Which it did. So glad for that!

[@anglophils645]

@@memoirofOh, good, so glad that the ascites went away, it can be so uncomfortable!

[@sddrunner]

CA125 Range 0-35

[@Beandbeandbe]

It breaks my heart she felt so abandoned basically by every medical person during this time because it’s the holiday season. Like people’s jobs just stop ….

[@Passs0011]

Hi, I live in South Africa. The sun is always shining here and there is always the risk of developing skin cancer if you have a light skin. I developed a growth on the lower eye lid of my right eye. I do not know if it is cancer or just a benign growth but I went on a high nutrition diet for about two months and the growth have shrunk noticeably. I would like to share the diet with you. The soup Ingredients: - two handfuls of Chopped broccoli, one chopped onion (purple), two bags of green tea, two pinches of mixed herbs, two sticks of cut celery, Two handfuls of frozen and crushed spinach or kale, half a table spoon of crushed garlic, Three shakes of black pepper, seven shakes of turmeric, two tablespoons full of apple cider vinegar (with the mother), one bag of white onion powder soup for flavour, a hand full of cooked red speckled beans and a handful of cooked mince meat. Just add all the ingredients in a pot, add boiling water and switch the stove on high till the water boils. Then lower the heat until the water simmer, Let the soup simmer for an hour. The soup is now ready. I would only drink water in the morning. At 12h00 I would start eating the soup. There will be about two helpings that you can eat in the 12h00 to 18h00 time frame. I also ate a fruit salad every day in the 12h00 to 18h00 time frame. (Note: Apparently turmeric reduces the effect of some chemotherapy drugs and thus should not be taken during chemotherapy.) During the rest of the week I would also eat food that contains vitamin D like avocado’s, mushrooms, liver and eggs in the 12h00 to 18h00 time frame. It seems to be working for me, maybe it will also work for you. I pray to God the Father in the name of Jesus Christ that you will be healed. Amen. I would also like to share the following five videos with you about salvation and two videos about evolution: Evolution vs. God kzbin.info/www/bejne/q5TCiGyMqd99ZqM DESTROYING Evolution In Under 3 Minutes kzbin.info/www/bejne/qYjIlIOtp7apaMU Watch the Holy Spirit Work in Her Heart (Very Moving) kzbin.info/www/bejne/n3OooHxoqpuef6s Fearing The Lord, God’s Discipline & Sharing The Gospel kzbin.info/www/bejne/mna2ZoqNa5uAqNE A Clear Gospel Presentation by Pastor Steven Anderson - How to go to Heaven kzbin.info/www/bejne/f4moloCNeN2sqLM The Plan of Salvation kzbin.info/www/bejne/hp7OmYWDhdunlZI How to Get Saved kzbin.info/www/bejne/l5u6lZ6rq9eHbNU Best regards Chris “For God so loved the world, that He gave His only begotten Son, that whosoever believeth in Him should not perish, but have everlasting life”. John 3:16 (King James Version Bible) Jesus Christ is the only begotten Son Of God the Father.

[@memoirof]

Thank you for the informative suggestion! I'd definitely give this a shot!

[@joanabug4479]

If you discredit evolution, you'd have to discredit all of modern medicine - you might as well discard all faith that medicine would work. Please don't spread misinformation. @memoirof take all avice with a grain of salt and always, always ask your closest friends, family and trusted doctors for a 2nd opinion over internet information. I've only stumbled upon your story recently - you remind me very much of my beloved cousin, please stay safe, keep healthy and live your best life!

[@beverleycumming1876]

Annoying music in background!