The VitLife: Erika's Vitiligo Story

[@amlucky18]

I have also lost 100% of my skin pigmentation to vitilago. It has been a tough journey and I would not say it never affected me, but I somehow I grew stronger with time. And I am still in a process of self acceptance. One thing I have learnt is don't force feed your mind, take your time, know yourself inside out. You are important for yourself than the world. The only acceptance that matters is you accepting yourself.

[@TheVitiligoSocietyUK]

Well said Amlan!

[@FélixJaureguiReyes-l3g]

Su color blanco es perfecto

[@sberlingieri]

Hi Erika , Great video,very informative & empowering. I have vitiligo for over half a century, my sister for 25 years & my brother for 20 years.Thank You !

[@erikabush9558]

Thanks, Salvatore! Siblings with vitiligo - that’s so cool!

[@mapoony]

This is so Cool!!! Thanks So Much!!!

[@TheVitiligoSocietyUK]

We're so glad you liked it Sandra

[@tarshabeverly6516]

Amazing story! How do I contact you to share my son’s story of being healed from Vitiligo?

[@wildflower462]

Thank you so much for sharing. I was just diagnosed with vitiligo after being misdiagnosed. My daughter and I just did our own research and figured out what I have is not fat deposits like my dermatologist office said it was…the physician’s assistant really changed her tune after seeing my third white patch. I’m looking at people’s stories to help me deal with this but I also have to be careful because some of these stories are making me sad and cry. I have no idea if it will be just the three patches or more. My family is supportive BUT they just keep saying it’s no big deal yet it is to me. So I’m just trying to figure this out and deal with my emotions.

[@TheVitiligoSocietyUK]

Vitiligo can be really hard to adjust to, you're not alone in feeling how you do. We share a lot of stories via our online magazine, The VitLife - it might be helpful to read stories from other people who have felt the same as you, and see what has helped them on their journeys: vitiligosociety.org/vitlife/

[@suryprakash3128]

@@karimbegum69 plz share the name and address of the ayurvedic doctor, my eight years daughter suffering from vitiligo. I m from India .plz plz bless my daughter by your suggestion

[@jessicamcgee3661]

You are beautiful. Never think you are less than. Unique is beautiful.

[@yonabih]

Thank you so much! ❤

[@sChick-vy3vi]

Thank you for your video. I have universal vitiligo as well and can't connect with anyone because I don't know anyone with the same condition. I didn't realize how desperate I was to connect with people just like me until I watched a story about a young man with albinism. Everytime they showed his hands I couldn't believe how much they looked like mine! Obviously we have different reasons for not having pigmentation but I was just so desperate for someone to understand. I too have gone through the self tanning phase but it's shocking to me how different I look with just one application and I wonder if people notice it, like, am I too dark, is it obvious? Your video cheered me up. I'm not happy that you share the same diagnosis but I AM thrilled to find someone similar! When I look at it now, with universal vitiligo being so rare, sometimes I feel special, like there aren't many people out there like up, we are rare and our porcelain skin makes us beautiful. Peace❤

[@TheVitiligoSocietyUK]

Thanks for your comment, we have a couple of volunteers with universal vitiligo here at the society. Here is a link to one of their stories: vitiligosociety.org/vitlife/what-its-like-to-live-with-universal-vitiligo-as-an-indian-woman/

[@sChick-vy3vi]

@@TheVitiligoSocietyUK Thank you. I did go to the site which immediately told me that I had read my share of articles for the month (?) when I didn't have the opportunity to read one. I'm kind of disappointed that a site that I would love the opportunity to view would immediately ask me for money to join.

[@FélixJaureguiReyes]

Su piel blanca es hermosa y perfecta,se puede vivir con el vitíligo

[@Aleena-t5i]

I need to ask you if the hair change to white i also have vitiligo , you are so pretty with white skin 😀

[@laurajanis9690]

Damn never thought of tanner! I was going to get cheetah spots tattooed on my face and neck instead! She's a genius

[@falak7730]

For me it was stress and sever vitamin d deficiency, so I removed the stress source , and took magnesium, omega 3s, and high high doses of D3 against my dr recommend and it made a difference

[@guzmanmikaela4826]

heyyy where are my universal vitiligo peeps at

[@beastislive9872]

How many year old your vitiligo

[@asankasanjeewa3263]

I was wondering if u could tell me , what 's the topical application you applied ?

[@TheVitiligoSocietyUK]

Hi Asanka, you can view the key treatment options on our website here: vitiligosociety.org/vitiligo-treatments/#treatment-decisions . Or if you are looking for more in depth information about vitiligo then we also have a free eBook which you can download: vitiligosociety.org/vitiligoebook/ . If you have any questions that aren't answered by the information then you can contact our team by emailing: [e-mail]

[@mohdsaud8520]

hi

[@AlbaConcepcionUriarteChave-d3v]

Se ve bien toda blanca

[@pankajchandwani21]

Can I use benoquin? Did you use benoquin?

[@TheVitiligoSocietyUK]

Hi Pankaj, if you have any medical questions about vitiligo then please email our team: [e-mail]

[@cheerup4566]

Did u use benoquin

[@phanjoubamrita9153]

You look so preety with vitiligo

[@mohdsaud8520]

mujhe bhi vitiligo hai