The worst thing about ME/CFS - German translation

Special thanks to Sonja and Claudia from Millions Missing Germany for translating this video.
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If you have ME/CFS, no matter how much you want to do activities most people take for granted, exertion can make you far more ill - for days, weeks, months, or longer.
Someday, hopefully soon, we’ll be able to explain and treat the biological abnormalities behind post-exertional malaise (PEM) and reverse the long-term debility so many are experiencing.
Until then, we could all use a reminder to stop, rest, and pace. It’s especially hard when there are so many things in this life we’d all like to go and do. #MECFS #LongCOVID #PEM #PESE
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MORE RESOURCES:
• Pacing for PEM/PESE: batemanhornecenter.org/wp-content/uploads/2023/05/Pacing-for-PEM-PESE-05_2023.pdf
• ME/CFS Crash Survival Guide: batemanhornecenter.org/education/mecfs-guidebook
ADDITIONAL BACKGROUND:
ME/CFS is a debilitating disease that strikes many in the prime of their lives, often following infection. Today there are no FDA-approved treatments and there is no known cure. Biomedical research into ME/CFS has historically been underfunded. Despite hundreds of physical abnormalities that have been observed in scientific studies over the years, there are still no official diagnostics.
Now that many with long COVID are presenting with a condition that meets even the strictest ME/CFS criteria - which includes post-exertional malaise as a cardinal symptom - the condition is receiving renewed attention from policymakers, medical researchers, and clinicians.
For information about post-exertional malaise (PEM), also known as post-exertional symptom exacerbation (PESE), see the following resources by the Bateman Horne Center:
• Video series: kzbin.info/www/bejne/rajKqHuwnKatbdUsi=g6vK7MGkNSCIBpIQ
• Presentation slides (PDF): batemanhornecenter.org/wp-content/uploads/filebase/providers/PEM-Lecture-Slides-ECHO-v4-5_17_2022.pdf
For more resources for medical practitioners, see the ME/CFS Clinician Coalition:
• mecfscliniciancoalition.org
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Video by Winston Blick. Music composed by Andrew Vickers.

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