GI Complications in hEDS and HSD

[@Empressively]

I so appreciate this presentation. I finally feel sane about my GI symptoms, and also now understand why the amitryptiline helps my stomach so much.

[@clp18plushearts]

Very helpful and thorough. This is the first video where someone mentioned empathy as the first thing for management.

[@kimleon-guerrero9980]

Thank you so much for this educational and informative video. I now have a more through understandingly how the gut works.

[@professionalcommenter]

Honestly when I get adjusted in my lower back, there is a spot that when it is put in place it literally helps me go to the bathroom. Otherwise no matter what I eat or do physically, I can't have a bowel movement. It is painful to have done but it's worth it.

[@maryr7593]

PT suggested taking a gloved, well lubricated finger and manually reaching in to dislodge the stool. If I would have known this was an option throughout life, ong, would have been so much easier throughout life. I no longer take bowel movement aides, etc...I check when I feel full, sometimes there isnt anything in there...others, I take out a bit and this makes room for more to move into rectum. Well lubricated is key. (Vaseline will work or sexual lubricant. Vaseline considerably cheaper. I also found out when I needed a rectoplexy.....there was a curve in the rectum where stool would get stuck. I can feel that curve and where I once strained...omg, wish I knew that manual extraction was something that ppl could do for themselves.

[@jett8193]

Very helpful & informative, thank you so much!

[@mn2mx563]

The junction at esphohus and stomach entrance when I stand up it feels like it’s pulling apart and I can’t stand for more than 2-5 minutes... have you ever had anyone with this symptom I’d like to get it fixed. I am an American living in Mexico ... thanks for any ideas or help you can pass along

[@mn2mx563]

Found out it’s a peptic ulcer. 6 weeks of medicine and I’m feeling much better ... tissue samples are cancer free as well

[@WildKatatHeart65]

Thank you.