How Does Tulsa-Pro for

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Күн бұрын

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@KarlPilkington-u4e 8 ай бұрын

I had Tulsa-Pro treatment in Nov 2023 and, in 3 months, my PSA went down from 6 to 0.02 which, for me, is a very good result. I would mention a whole bunch of stuff which is not discussed in this video. 1. It can be used as a salvage treatment. In my case, I had a recurrence of PC after focal radiation treatment and Tulso-Pro seemed like the best re-treatment option open to me. 2. I had a biopsy just before, which showed some Gleason 4+4, and this was considered acceptable. 3. The role of the MRI in this procedure is not what you might expect, it is to measure the temperature of the prostate during the HIFU dosing. This is to make sure that the areas under treatment hit the temperature required to ablate the tissue. 4. In order to protect the rectum and the urethra, a cooling device is inserted into the rectum and the Tulsa-Pro device, itself, cools the urethra. 5. Calcifications are the biggest impediment to successful treatment, since they block the ultrasound. I didn't have any but they are not uncommon in a prostate. 6. At my hospital, the protocol was to remove the catheter after just 24 hours. I could not imagine keeping it in for 10 days! 7. My side effects include ED, which I think may be permanent (it actually started after the radiation treatment). Also I suffer some urinary urgency, which is slowly resolving. 8. Although the procedure is quick (around 1.5 hours), there is extensive preparatory work and it involves a very large team, consequently the cost is commensurate.

@dmcarden 6 ай бұрын

So regarding item 7.. it sounds like you had radiation treatment prior which had already started you down the path of having ED. Did it get worse after tulsa pro?. Also any pain in the urethra afterwards?

@schmingusss 3 ай бұрын

Isn't the whole point of Tulsa Pro to avoid ED and urinary issues?

@dmcarden 3 ай бұрын

@@schmingusss my thoughts exactly

@user-oy1gk8is9o 9 ай бұрын

I had Tulsa Pro this year, 2024, I highly recommend it if you are a candidate. Other treatment procedures will leave you with incontinence. It's been 5 weeks and I'm doing fine. PSA will be checked in April, wish me luck, thanks

@Kantuk391 9 ай бұрын

Were was you treated? And did insurence pay? Thank you. Wish you the best.

@bb3b644 8 ай бұрын

@user-oy1gk8is9o Where did you get treated?

@tjc5624 7 ай бұрын

Did you have focal or whole gland treated?

@dmcarden 6 ай бұрын

Any ED?

@iconoclast6994 4 ай бұрын

Insurance doesn’t pay. It’s all out of pocket…

@Blakefan2520 10 ай бұрын

Thank you so much for your video's. I am trying to educate myself with treatment options, etc. and your channel does a fantastic job.

@pjf93 10 ай бұрын

I had Tulsa performed in May 2023 at Sunnybrook Hospital in Toronto. So far so good. PSA went from 5.8 to 1 within a few months. 🤞

@Jack-2day 5 ай бұрын

Hello Paul, is there a particular Dr you would recommend? Also curious as to an approx $Cdn charge for the procedure (will have to fly out from Vancouver as there is no facility here as yet) Much appreciated

@pjf93 5 ай бұрын

@@Jack-2day Hi Jack, Dr. L. Klotz is leading the Tulsa program at Sunnybrook. Cost is 30K CAD. Feel free to reach out for any additional questions.

@Jack-2day 5 ай бұрын

@@pjf93 Thank you for your quick response Paul! This will significantly help my research and I am most grateful. Hope you are doing well yourself these days. All for now & Muito obrigato?!

@schmingusss 4 ай бұрын

@@pjf93 Not covered by OHIP?

@pjf93 4 ай бұрын

@@schmingusss unfortunately not.

@RootedInThePastWoodworking 10 ай бұрын

Thank you for presenting this video. I wasn't aware of this treatment.

@jonmcphee9662 10 ай бұрын

Excellent information and presentation as always. Thank you.

@glenrose7925 4 ай бұрын

Terrific information. I keep seeing the Tulsa Pro ads and reading them still left me uncertain about the procedure. Dr. Scholz gives us clear, unbiased information.

@RRRR-jv7dx 10 ай бұрын

כל המשפחה נדהמת מרמת ההסברה הבהירה שלך ...ממש תבורך ❤

@RedPillTruth2023 10 ай бұрын

I’m in the VA health system. Unfortunately this procedure isn’t covered at all. Only the radical prostatectomy. To pay out of pocket for this, the doctor I consulted in Sarasota said it would be 31K. I asked the Florida VA organization to see if this can be covered. As of 1 January 2025 the Medicare system is set to cover this TULSA PRO procedure.

@dmcarden 6 ай бұрын

Had HIFU done in Sarasota.. Dr Scionti

@RedPillTruth2023 6 ай бұрын

@@dmcarden how did it go? Can you tell me? I’m considering it strongly.

@dmcarden 6 ай бұрын

@@RedPillTruth2023 Had it in august 2021, have had no issues since then though I just had an MRI which showed two new lesions. I am hoping it is not recurrence. The procedure itself wsa not bad at all, pain the first night that the medicine took care of. Biggest issue was the catheter..and bladder spasms because of it, but overall, not bad at all. And I had really no side effects, I did have 1 seminal vesicle treated so I had less semen afterwards but other than that, no ED, no incontinence..like i went back to normal pretty quickly. I will be going for a biopsy in June, will keep you posted with the outcome.

@toddhupp 10 ай бұрын

fyi folks: I was told one can petition Medicare for reimbursement of cash payments for focal ,if one has referral(s) from a urologist /GP for the procedure, I plan to do this.

@antoniodelrey164 3 ай бұрын

Seems like a great option. I’m interested so I gave TULSA a call for more info on who is a good candidate and the one thing that may rule a person out is calcium in the prostate because it interferes with delivery of the ultrasound. I just hope this isn’t my case. This presentation like all others is very informative and helpful. Can’t thank you two enough!

@noads6566 10 күн бұрын

I had Tulsa Pro in May 2022 on about 60% of my prostate (Gleason 3+4 in two cores on one side). PSA went from 9.1 to 0.6. But in the 2 years since, it's been climbing slowly, and the most recent is 2.5. Unfortunately, it looks like I'll need more treatment.

@toddhupp 10 ай бұрын

how about a combo focal and immune therapy to subdue recurrence?

@jimk7964 10 ай бұрын

Any treatment that requires an indwelling catheter for days is excluded from my consideration. That was one reason why I chose IMRT (along with its effectiveness and - in my case, anyway - negligible side effects).

@R50_J0 10 ай бұрын

A catheter for a few days is 50 times worse in your mind than it really is. Ask around and see if other men have had an indwelling catheter for any reason and their experience. That is no reason to eliminate a valid treatment option.

@Rockinrn 10 ай бұрын

My side effects from IMRT were fairly mild.

@sonjaedwards1876 7 ай бұрын

My Husband has on an in-dwelling cath for 7 MONTHS !! HE IS NOT ABLE TO URINATE ON HIS OWN FOR 6 MONTHS. Sorry I didn,t notice all caps was on. He has a highly aggresive cancer. He had biopsy and all his biopsy was at least 8. His Doctor has told us that without treatment he would only have 1 to 2 years to live. Prayers always asked for..... His Name is Tommy

@dondgc2298 7 ай бұрын

Catheter is a minor inconvenience. Whether or not a catheter is involved is a terrible reason to choose or reject a treatment procedure when your very life is on the line.

@olegmatveev6223 10 ай бұрын

Do they do the TULSA PRO surgery plus MRI with or without Gadolinium contrast?

@kevinrummelhart 10 ай бұрын

There was mention of Brachytherapy as a focal therapy… I have never heard of this as a focal therapy?… Can a small lesion be treated vocally with brachytherapy?

@mperloe 9 ай бұрын

The Tulsa Pro clinical trial was restricted to GL 3+4 or less. Some MDs are treating more advanced cases with Tulsa Pro despite a lack of clinical trials. Wearing a catheter for 12 days is not fun. I had Tulsa Pro and suffered post treatment UTI and now have chronic pain from epididymitis. 3 months after TP I did a PSMA PET and was found to have disease in the seminal vesicles and ultimately did MRIdian SBRT at UCLA and it was planned curative and was much easier. No anesthesia, no catheter. The ProtecT study shows for focal disease active surveillance, surgery or RT offer similar long term side outcomes. I’m not sure why anyone would opt for a focal treatment without evidence from controlled clinical trials.

@dmcarden 6 ай бұрын

Hi Mike, did you experience side effects from SBRT (am assuming photon)? Any ED?

@mperloe 6 ай бұрын

@@dmcarden No change in pre treatment symptoms. Mild ED was present before as was mild urinary urgency.

@dmcarden 6 ай бұрын

@@mperloe Been hearing good things about sbrt; how many years has it been since your sbrt treatment?

@mperloe 6 ай бұрын

@@dmcarden I finished SBRT in October 2020. Not all SBRT is the same.

@dmcarden 6 ай бұрын

@@mperloe which one did you do?

@daisuke6072 10 ай бұрын

Catheters are indeed very intrusive, I had one for only 3 days and it was very hard to live with and I believe caused some long-lasting trauma to the urethra and penis - this was with IRE, though the treatment seems to have been effective

@roberthuff3122 27 күн бұрын

🎯 Key points for quick navigation: 00:00 *🧪 Introduction to Tulsa Pro* - Tulsa Pro is a new treatment for prostate cancer being marketed in the US. - Questions arise about its efficacy compared to traditional treatments. - Focus on understanding its side effects, pros, and cons for gland and focal treatment. 01:07 *🛰️ Tulsa Pro Technology Explained* - Uses high-intensity focused ultrasound (HIFU) for precise prostate treatment. - Image-guided treatment using MRI enhances precision. - Best suited for localized prostate cancer, not for metastatic cases. 03:24 *⚖️ Considerations and Side Effects* - Treatment choice depends less on Gleason score, more on new imaging techniques. - Procedure requires general anesthesia, lasts 1.5 to 2.5 hours, with possible side effects tied to prostate proximity to sensitive structures. - Focal treatments often have quicker recovery and fewer sexual or urinary side effects. 06:26 *🌍 Current Position and Comparisons* - Tulsa Pro's cost, anesthesia requirement, and insurance coverage are points of concern. - Other treatments might be more established, but Tulsa Pro is promising, particularly avoiding erectile dysfunction when performed expertly. - Necessary skill in imaging and technique challenges exist due to the newness of the method. 09:03 *🎯 Focal Therapy and Post-treatment Monitoring* - Absence of strict guidelines for focal therapy requires experienced practitioners. - Continuous monitoring with MRIs is essential post-treatment. - Challenges like imaging imperfections and scar formation need careful consideration to avoid complications. 10:48 *📉 PSA Levels and Scans* - PSA changes vary based on whether focal or whole prostate therapy was done. - Regular PSA checks and yearly MRI scans post-treatment advised. - Focal therapy leads to selective prostate tissue removal visible in ultrasounds. 11:34 *💡 Expert Opinion and Key Factors* - Tulsa Pro suitable alongside radiation for metastatic disease; convenience and preference matter. - Expert opinion emphasizes selecting treatment based on doctor skill more than technology. - Experience with brachytherapy lends familiarity and reliability compared to newer Tulsa Pro. 14:06 *🔍 Advice for Patients Seeking Tulsa Pro* - Importance of understanding treatment options, consulting multiple professionals, and researching centers' experience emphasized. - Engagement with prostate cancer communities and seeking firsthand patient experiences advised. - Knowing the risks and benefits prior to treatment can lead to better management of outcomes. 16:26 *🎗️ Support and Next Steps* - Contacting support helplines for guidance and question formulation recommended. - Ensuring informed decision-making and exploration of all treatment avenues is critical. - Emphasizes patient empowerment through strategic questioning and research. Made with HARPA AI

@stevef7814 10 ай бұрын

I wasted 25k+ on HIFU in 2016. Went to the "best", and it failed miserably, though I was deemed an ideal candidate.

@pinotwinelover 9 ай бұрын

What did you end up doing the problem at the time you did it it was so new and there was very few practitioners that had skills

@stevef7814 9 ай бұрын

@@pinotwinelover the guy I went to actually got the fda approval and had 15 years doing it out of states.

@dmcarden 6 ай бұрын

@@stevef7814 wow!!! Yeah, had mine done in 2021, but there is a chance that i'm having a recurrence now

@jkl6868 5 ай бұрын

@@stevef7814who was the doc?

@dmcarden 5 ай бұрын

@@stevef7814was it in florida?

@toddhupp 10 ай бұрын

sperling in Florida has been doing the proceedure for some time.35K cash.

@db_carguy4833 3 ай бұрын

Dr Sperling also does FLA. Supposedly has done over 5K procedures. Dr Scionti in Sarasota Florida also does the tulsa pro. Same approx cost. 34K Cash

@josegonzalez-wi4uy 10 ай бұрын

what about aoh1996 its still on trials

@texasrider5621 9 ай бұрын

I wonder about that too because that will be a miracle drug if they ever comes out

@peggyanker1978 2 ай бұрын

My husband is a good candidate for ablation. He has been given the choice between Tulsa or cryotherapy. He is trying to decide which one to do.

@DeathSentryCoH 4 ай бұрын

can you do whole gland tulsa pro with gleason 8 and still avoid the nerve bundles?

@mr.ronaldlawrence1231 10 ай бұрын

My cancer is localized in one of the prostates and, according to my doctor, the cancer is benign. Should I consider Tulsa-Pro?

@janetw9430 7 ай бұрын

If your 'cancer' is benign, its not cancer.

@toddhupp 10 ай бұрын

i want focal.i now have 2 small adjacent nodes affected now.the tumor in the prostate is localized.can the nodes be removed in the focal treatment?ultrasound is fda approved.

@jaybrox1652 10 ай бұрын

Photodynamic is best optin!

@toddhupp 10 ай бұрын

what is it?@@jaybrox1652

@lukehillier6121 9 ай бұрын

I have Gleason 9 prostate cancer with regional metastasis, 3 peri rectal lymphnodes lit up on the Pmsa scan. I am on ADT and just finished brachi and 25 sessions of external beam radiation. My psa pre treatment psa went from 2.3 in 6/22 to 19 in 9/23. I am worried that because the lymphatic system is a system and has 3 to 4 times more fluid in it then our blood and therefore that I need some sort of additional systemic treatment to kill the possible microscopic cells that didn’t get hit by the localized radiation. Am i thinking sbout this right? Im 52 and in good shape. Im thinking hit it wihile its down now with chemo and go for a cure. Not save the chemo for later! Thoughts please!

@ThePCRI 9 ай бұрын

For specific questions and information, please reach out to our Helpline here: pcri.org/helpline

@janetw9430 7 ай бұрын

Please tell me what is suppose to be the PSA for a 67 year old man with a healthy prostate?

@patm7286 2 ай бұрын

@@lukehillier6121 look up Dr. Thomas Siegfried at Boston University where he discusses cancer as a metabolic disease His team has developed a new protocol called press pulse therapy. This involves getting the body into a state of metabolic ketosis. While your body is in the state of metabolic ketosis, this effectively starves the cancer of its two main sources of fuel, Glucose and glutamine. So the glucose part of the process is strictly limiting your carbohydrates to nearly 0 the hard part is the glutamine.

@Kantuk391 10 ай бұрын

😮what if tumer does not show up on mri. And a mri biopsey showes one spot out of 14 with 3+4, and will not show on mri. We picked watching But do not know how to pick treatment with 3+4, and not showing up on mri.

@daisuke6072 10 ай бұрын

It’s got to be visible on mri for focal therapy

@voice4voicelessKrzysiek 10 ай бұрын

We talk about skilled doctors doing a procedure but how does somebody approach a search for such a doctor?

@alaskacanoe6837 9 ай бұрын

I contacted the actual Tulsa pro company and talked to the person in charge of training and support of the clinics and drs using the procedure .. yes!!! You need to find the right dr that has done many many of these treatment and also really takes the time to do it perfectly as possible of course .. Dr scionta from Sarasota has been given as a name to research as he has been doing HIFU and Tulsa pro as much as any single Dr.. He does every procedure himself .. not a training student.. yes $35 grand cash due to insurance not really caring if you have function after treatment .. so hopefully insurance will find the heart to allow this choice