Tracey's Story - NeuroPace RNS System

My name is Tracey. I’ve had the RNS for about a year and a half. I’ve actually had epilepsy for about 14 years and the RNS has changed my life completely. Before I got the RNS System, the seizures controlled my life more than I did.
I wouldn’t leave the house a lot, and I didn’t really want to go anywhere. I know my friends and family worried about me getting depressed.
I felt incapable of planning any activity with friends because I could feel great in the morning, and then ten minutes later a seizure would kick in and I would be down for maybe two to three days. I first tried medications, but they were a big trial and error game. I went through several of them before I got some that helped make small improvements, but it was a lottery with the medications.
After some time, I got the VNS implant, which was helping, but a year later, I was back to the point where I couldn’t plan anything. I never knew what the day was going to be like. There were so many days that were just completely lost for me.
My uncle read about the RNS System and we spoke to our doctor about it. My family thought that it was a great idea in my situation, because we knew where the seizures were coming from.
At first I told my doctor “No more surgery,” but as he went through and explained what the RNS System is and how it works, I became a lot more open to it and eventually decided to undergo the procedure to have the RNS System implanted.
Now my seizures are lot shorter than they were, sometimes it’s just a couple-second thing-then it’s gone. From the beginning, once they turned it on, every month when I go to see my doctor and review my seizure activity, we see less and less seizure activity altogether.
My friends and family say that within a matter of months, they could see the difference. I’m able to be more involved in conversations, I have much more confidence when I meet people,
and I feel like I am finally free to pick up at the spur of the moment and do anything I want to do.
It’s definitely something where I think the end result is far outweighed by the fear of the procedure. I don’t even think about the seizures. I don’t even notice that the RNS System is there. I don’t notice any stimulation, or abnormal activity, anything.
The only thing that’s different is the seizures-I don’t have them anymore.
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This represents the experience of individual(s) who have used the RNS System. Individual results will vary.
Important safety information about the RNS System can be found here: www.neuropace.c...