Treating Interstitial Cystitis (IC)/Painful Bladder Syndrome (PBS)

[@christymyers1329]

Thank you for making this video. Was recently diagnosed with IC after they found a Lesion while in during a TURBT for bladder tumors removals. It’s insanely painful. As you stated avoiding trigger foods and drinks can help greatly with pain and muscle contractions. However someone needs to invent a numbing agent that can numb our bladders, so we don’t have to suffer through insane pain levels! 🙏🏻😞💯. On a reg flare up basis. I have 8-12 flare up in one day at this time. She wanted to start Elmiron. However she stated the side effects didn’t prove it worth a shot. So we went with another one. However, if we could numb the bladder it wouldn’t help with the amount our bladders were able to hold but would help with our pain daily. Thank you this gave me more education on it than she did when letting me know I had it. Wish their was a fix. One things for sure. First doc to invent a fix is the next billionaire! 💯💯

[@shelleyswindell2465]

I have been told that Botox treatments work I am scheduled to have Botox injections in my bladder on March 2 I will respond by posting on this site whether it worked or not my doctor has stated that if it’s going to work for me I will know something within 4 to 7 days after the injection please say a prayer for more for me that it works😊

[@shikhasoni5518]

@@shelleyswindell2465 did it work??? And how they gave you injection in conscious? And the injection we have to take every 6 month for lifetime??

[@JeanneCiampa]

I hope you get this I cured it in two days by drinking coconut water and taking 800 mg of l-theanine which you can buy at any pharmacy I got the chewable kind

[@kathleenlairscey5934]

Thorough details about treatment, Ty.

[@shelleyswindell2465]

Has anyone tried the Botox treatment for interstitial cystitis please respond

[@Margarita_mom]

My daughter was admitted to the hospital yesterday for a suicide attempt. I’m going to ask about Botox and see if it helps her. She can’t handle the pain anymore

[@SarahSmith-td7ug]

​@@Margarita_mom In some countries they give morpheme. for IC. it's so damn painful. I have had suicide dreams too. It's a shame this disease stole our life from us.

[@shikhasoni5518]

@@Margarita_mom howz she??? Is she ok??