Treatment Update: Myelodysplastic Syndromes (MDS)

[@billygarner7362]

When on Reblozyl toward the end of its course fatigue was constant. Also shortness of breath accompanied the low Hb. I am now on Azacitidine and have finished the third course. My Hb is up from 7-8 to near 11. The fatigue is improved and SOB has gone away. Side effects have been minimal, constipation being the main one. I hope for a long successful therapy. After it comes BMT. I’m not looking forward to that.

[@Cincyseller513]

You are an amazing Dr. Thank you for all of this info providing the medical side with studies and acknowledging how our immune system can cure us and adding diet is important :)

[@ronoconnor8971]

Procrit weekly has my hgb to +10 but my dizziness and larthogy is very bad. Ive been anemic for many years and was diagnosed with mds last year

[@Anti-leftist7777]

I have ASXL1, excess blasts @15%, low white blood cells, platelets at 10 up to 30 when I have transfusions twice a week. One cycle Vidaza completed with a few coming and a stem cell transplant in a couple months. Additionally multiple myeloma just diagnosed. Chances of success, years? The ASXL1 concerns me.

[@philwhitcroft914]

Brilliant information many thanks for your help

[@tazroni9100]

Thank you, i learn alot from this video.

[@at6969]

Excellent