Tried to Film a Video but Almost Had a Panic Attack..

This video was very different and I'm a bit nervous to be this vulnerable on the internet. If you have dealt with medical trauma or PTSD in general, my heart goes out to you. Stay strong lovelies
Follow me on Instagram: @life.with.stripes
Follow me on TikTok: @lifewithstripes
Want to send me mail? PO Box 46, Waconia, MN 55387 USA
Merch: www.redbubble....

[@LifewithStripes]

I have read each and every one of these comments and my heart is so full of joy, yet breaking for all of you who have gone through the same things. Thank you for the support you have given me not only on this video, but throughout the last four years. You all mean more to me than you'll ever know. Theres a reason I call us the Stripes Family. Because while I may not know each of you personally, we come together like a family. This video was hard to make and it took courage to post, but im so glad I did. I can see that some of you needed to see it. If it helps even one person, it was worth posting. Love you all

[@ServiceDogRosie]

Hey mickey! I found out recently I have classical eds as well.. misdiagnosed for years (col5a2) it be awesome to get to know someone else with out many shared diagnoses and ceds.. I also have a Gtube and Jtube and duel port.. mast cell, ceds pots and 6 autoimmune disorders 3 are terminal.. I'm here for you... dm me please if u need support

[@ServiceDogRosie]

Mickey don't seem yourself short!! This shows the raw reality of life with life threatening autoimmune disorders, genetic disorders and feeding tubes!! Your amazing, im praying for you!!

[@CanadianMum444]

Hi sweetheart, I’m so sorry you had to go through medical trauma so young. I’m not going to add my stuff, I’m old enough to be your mum and I’ve been receiving repeated medical trauma since infancy and you are 100% RIGHT , medical PTSD & CPTSD is SO Real. You are so much stronger than you know or see yourself. I can actually recall my twentieth yr on this earth, was one of my top 5 worst. I’m just so sorry. I’m hoping that you can work with therapy to deal through it. It’s the only thing I find has helped me so far. I’m chronically ill and disabled and so you are sadly right we need better supports and advocacy. I hope and know if your health will co-operate, You sweet girl young lady will make a phenomenal nurse and you may find as I’ve heard this from nurses I’ve had that being a nurse can give you some of your strength and power back that you lost at those moments. I hear you so clearly, I even wonder how have I survived til today? But somehow we do. 💜🥰🙏🌈☀️ ive super missed your updates, I need to add you again to my new phone as I lost my prayer list with the malfunction of my last one 🙄 lol. You are a fighter Mickey❣️

[@morningwithgracie7870]

Are u still on feeding tube for gastroparesis?

[@jacquelinescourageousworld2438]

Can I just say honestly Mickey some doctors suck and when I was 10 years old I had a doctor that said to my mom.....I can go in your daughters brain and see what I can find. I have had many brain surgeries ok.

[@Orangezebra86]

I actually started crying when you started to explain about how each time you go to the ER or hospital stay your body prepares for a war. No one has been able that feeling I have so very often so clearly. I have my first virtual appointment with a psychologist who specializes in chronic illnesses to work through years of medical ptsd that I have experienced

[@LifewithStripes]

Sending you a hug and I pray your appointment goes well! I found that way to explain it awhile back and it does perfectly describe it. Remember that you are so strong and you are here today because you've won every one of those battles

[@haileyhudson4157]

Yes! Medical trauma is unique and difficult because those of us who are chronically ill regularly have to go back into similar situations.

[@jacquelinescourageousworld2438]

Hey Hailey doctors should invent a feeding tube that is electronic. Would that be a stupid idea?

[@annikazehm6589]

I'm proud of you for talking about this, PTSD really sucks and I know how hard it can be to talk about trauma. I'm also proud of you for being willing to say you aren't ready to talk about your journey, because I know how hard it can be to admit that you're struggling with this stuff. You did a great job, and I’m proud of you.

[@thatswhatshesaid14]

I started getting gastroparesis symptoms at 12 and didnt get a feeding tube until 27. Believe me when I say I feel you deeply when you ask "Why did I have to wait so long to get a feeding tube?". Im almost 32 and I ask myself that almost everyday. Keep on surviving girl! We got this 💓

[@catloverKD]

Every time something like this turns into something else you didn't expect it to be, it's because someone needs it. How much awareness is there of medical trauma? It was incredibly brave of you to put this out there, and someone who needs it will benefit greatly. I don't have PTSD, but growing up with an undiagnosed learning/social disability in the public school system, I'm actually shocked that I don't have it. Not the same at all, but similar in that, "I had to keep going back because I needed an education." and at the time, it was the only option. Sending love and hugs, be gentle with yourself!

[@riannaf927]

this was such a brave video to make ❤ people don't talk about the trauma and how hard it is to keep going back to doctors nearly enough and you put it all so well

[@sarahokerson6438]

Medical trauma is so tough to navigate, I know that feeling of reliving it. Thank you for sharing about it, you've made me feel less alone. 💕

[@lynnham6896]

I have had doctors say and do medical procedures to me that I told them no because I could bleed out or that I do not want. I am a RN for 21 years now. Amd I understand people like me. Its sad that there is not more of us who understands. Or even listens to the patient because they know best with their bodies. We all are not guinea pigs! Sending hugs to you! I understand how you feel. I will not let them just do anything to me. So I have had doctors to tell me to get out of their office... LOL

[@neegsiabzoo2764]

I've been watching you for a while now. Actually today a nj tube was placed and it was not successfully, I was so emotional and frustrated. Tomorrow they'll do it again. I've been going thru this illness for 2 and a half years. Your experiences and journey kept me going. You're such an inspiration to me. Thanks. Nick.

[@LifewithStripes]

Good luck with your NJ placement. They can be so rough, so remember to work through those feelings as they come up. The worst thing I ever did was push them down. They will fester until eventually they resurface. The healing is in the feeling!

[@averihartsfield261]

i’ve followed you since the VERY beginning of my medical journey, which is CRAZY. you were actually the one who made me realize that i might have EDS, and now i’m diagnosed with EDS, Gastroparesis, POTS, and more. thank you for your posts, even when you don’t post ALL the time❤️

[@sierraschoep1501]

Same! I started watching her videos even before I really had symptoms. It’s crazy how someone we’ve never met can change our lives!

[@michaelweiss6791]

I am the moderator and a mentor for the Minnesota POTS support group that currently has 366 POTS warriors . If you interested in joining us contact us . I am not involved in the decision factor on who will be accepted but Kristin Tiarks is our administrator she makes the final decisions . There are a couple questions that you will need to answer. I look forward to talking with you about my experiences with POTS and all it's off shoots. One last thing although I will be glad if you join us however at same moment I am also sorry you have had go through this.

[@Dulcimerist]

I also have EDS (hypermobile type) with gastroparesis, POTS, and additional EDS issues. Have they given you Mestinon to treat your gastroparesis and POTS? EDS researchers have repurposed this old and inexpensive medication to treat the digestive and dysautonomia issues that are associated with EDS. It's been my miracle cure for multiple EDS symptoms.

[@IonIsFalling7217]

Deeply glad you posted this! This is such an articulate and important narrative. ❤️

[@user-le8xi9xi2i]

Thank you for sharing your story. I followed your journey throughout medical school and now that I’m qualified, really appreciate the opportunity to learn, particularly in regards to medical trauma

[@CosmicAlliance03]

I didn't realize that I had medical trauma until I was talking to my therapist about how scared I get just even thinking about going to the doctor for being not believed for so long. I even had a doctor tell me he would no longer treat me because he wasn't comfortable doing so; it crushed me. Thank you for talking about this

[@robinhahnsopran]

Thank you for sharing what you were able to about this. These discussions are so vital to have within the chronic illness community. At the same time, I'm so glad you were able to stop and say, "no, this is not helpful in my journey to go further into" and stop when you needed to stop. Your well-being comes first. Thank you for all your hard work for the EDS community and the chronic illness community writ large.

[@maayan2818]

Its good to see you back on KZbin! I'm so sorry you had to experience all that you did. I was wondering about the tallis (prayer shawl) on your bed. I am Jewish so I recognized it. If you don't feel comfortable talking about it no problem!! Love ya!

[@MC-tl5bf]

yeah im also interested

[@Ladypuppy510]

You’re right. It is a Tallis.

[@LifewithStripes]

Should I make a video about this? I was going to make a post on Instagram about it, but its always been a very private thing. If it goes well on Insta, maybe ill make a video.

[@maayan2818]

@@LifewithStripes If it’s private and you don’t feel comfortable sharing that is totally your prerogative. I am interested but it is really whatever makes you feel best! ❤️

[@LifewithStripes]

@@maayan2818 Thank you! It's not that I don't want to share it, I'm just hesitant. I will for sure be making an instagram post, I'm just not sure about youtube yet. The Tallis means so much to me and I pray with it each and every day. I would love to share that with you all when I'm ready

[@aspooniquelife6812]

I’m terrified of going back to the ER due to the medical trauma caused from my last visit (and multiple other visits). I think the hardest part is when others like family invalidate your feelings and act like it’s nothing when they weren’t even there to see what you went through... I’m so sorry you have also faced so much medical trauma. It is so sad that medical trauma exists. I send my love out to you and appreciate you for being so vulnerable and putting this out here for us. It takes so much and you are so strong. Thank you

[@Astroatlas03]

Thank you so much for making this video. Medical trauma is real and HARD. Thank you for trying your best. We are here to support you no matter what!

[@MrWisky22]

Thank you for sharing such a hard video for you. Medical trauma is something very important that is not talked about enough.

[@annabanana8267]

I'm so sorry that you have to deal with this, my heart goes out to you, you've gone through so much it was really brave of you to make this video

[@ZebraJenn]

I get it. Medical trauma sucks. My hips dislocate constantly too, and that alone is agony. I have to admit that I will put off seeing specialists myself because it'll mean that there's the possibility of completely upending the at least somewhat balance I have right now dealing with my potsy issues and dislocations, and gastroparesis along with pain management. I literally spent an entire year trying to get pain management specialists to take on my medical care. Everybody looked at my case complexity and are unwilling to take me on to help with my care because all that can be done is maintain and try to prevent further decline. There's no incentive for them because my case will never end in successful discharge from pain management. I will always need pain management in all the various forms. Thank God for the Primary care I have. With insurance requirements saying that I have to have a pain management specialist for them to cover even the mildest of pain management options, we gave up on finding someone after a year of only trying to get a specialist to take me, and we decided to just pay out of pocket. I have had far too many allergic or adverse reactions to medications that are usually used and my options are very limited. He's not specialized in Classical EDS or POTS or Gastroparesis, but he at least will sit down with me and research together with me while looking at my health issues wholistically to find a balance that gives me at least some semblance of a good quality of life, considering it'll never get better. My injuries are too severe. Surgery does more harm than good because of my problems with anesthesia. Neurologists won't touch me, asking me to wait another decade to see if FDA will approve disc replacements that will still allow my neck and spine to move like it's used to. Fusions will start a cascade of more destroyed discs because of just how much my joints dislocate and sublax. The next thing I really need to do is figure out the allergic flare ups, possible Mast Cell and the thought of going through all that is just overwhelming. The cost alone for testing and treatment... I have 2 kids with classical as well, so we're focused on preventing them from the severity of injuries I had from gymnastics. We didn't know I had Ehlers Danlos. It took me 16 years to figure out a diagnosis.

[@Dulcimerist]

Sorry you've gone through all of that. I have hEDS with all of the "bells and whistles" except I don't have the mast cell issues. Do they have you on Mestinon to treat both your gastroparesis and POTS? EDS researchers have repurposed that old and inexpensive medication to treat both of these issues in EDS patients, since they can treat both with a single medication. It's been a miracle medication for me. It's also knocked out some of my fatigue.

[@lauriestewart3700]

I'm so proud of you for going ahead and posting this! I have similar problems and I know how hard it can be. Posting helps people l!me me know I'm not alone. Xoxo

[@corriographer374]

Mickey!!!! I feel for you, and I’m so sorry you’ve gone through such severe and repetitive medical trauma 😔 4 years ago today (I was 24 at the time), I tried to donate a kidney to my father and my surgeon DROPPED MY KIDNEY on the floor...... It ended up being unusable, and they literally threw my organ away like a piece of trash. It is BEYOND RIDICULOUS that so many people have experienced such horrible medical trauma and the medical community won’t take responsibility for it, or in most cases even try and get us the help we need to get through it. I’ve always wanted to talk about this topic and share my story/PTSD journey, so thank you for giving me a safe space to do so ❤️

[@carlweiss8942]

i'm glad you are going into the medical field. peds is the only field i could not work in, i would be crying all the time.remember your power is knowledge about your situation.the medical field works for you, question,assess, and be you. i wish i had your strength, keep the videos coming for those that are not

[@sarahdossor296]

I am sorry for your pain, I know that many of us have had extreme situations and pain that go along with tests done by doctors specialist and healthcare professionals that don't understand ED's and the pain that goes with this and related illnesses.i have been thereand I send you my love

[@michetrue-aspoonielife4me389]

When you said Medical trauma at that very moments, bells went off in my head. Things started coming at me like thunder bolts. I do suffer from PTSD already from something I lived in my later teenage years. Yes, Medical Trauma would definitely cause PTSD. I've followed you & Amy for a longtime now because some of the commonalities that we share are Gastroparesis, Extremely slow to no motility, Intestinal pseudo-obstruction & Hip Dysplasia. I can see your pain of reliving all those horrible experiences. When I went back to see if I could summon up the horrific things that have happened to me, I immediately choked up and my eyes filled with tears. So I do understand where you're coming from. It's a place that nobody should have to be in. I wish that I could wave a wand & it would make it right. You are a warrior & unbelievably strong even in your weakest moments, your still stronger then most people would ever know or be in a lifetime. YOU ROCK 💚🤘🌻

[@mikadoavocado5164]

thank you so much for being open about your medical trauma. I think there is still way too little awareness of the mental and emotional aspects of chronic illness and medical care. things that happen frequently like not knowing what‘s going on, being left alone in pain, people not taking you serious when you tell them you‘re suffering etc. can have a lasting impact but can often be prevented or treated and medical professionals as well as patients need to be aware of it and understand that it’s valid. keep going, I widh you the best in your recovery. it’s great that you‘re going to be a nurse, we need more people like you in healthcare!

[@ericaewing8514]

This video is so raw and real and although I don’t have medical trauma, I feel for you and I support you. Your story really inspired me to prevail through tough things and see the best in the worst. Even though I don’t know you personally, I just know you are the most positive person which is so rare considering your medical situation. Thank you for putting yourself out there to teach people like me about things that often go unsaid.

[@LittleDergon]

Thank you so much for sharing so much about your trauma, I know how difficult it can be and how vulnerable it can make you feel. There is no pressure to share more than your ready to share

[@CarolineDarvill]

Im only just discovering Life with Stripes but you are amazing! The fact that you can recognise and are aware of how you are feeling is a huge thing so you keep on being you....

[@leeannabreyette5989]

As sad as this video is I think this is one of the best and most helpful videos you have made yet!

[@florianmuller9598]

As an cancer patient who suffered from various medical mistakes, of which one WILL cost me my life about 30 years early, I finally have at least a name for that trauma, thanks to you. I am very impressed by your charisma, and wish you strength, help and loving people around you.

[@MissLeopard28]

EMDR is amazing! I am doing it with my counselor for the trauma I faced through my last job. I hope you are able to start it again soon. I am studying to be a counselor myself and I know how bad PTSD affects the mind. I've been diagnosed with it, as well. Thank you for being so raw and sharing your story.

[@MOJORAPSCALLION]

I had EMDR for my PTSD & Trauma I’m a lot better! I had such bad malnutrition I almost died had sepsis 3 times in the year after I had my traumatic GES and got my first tube NJ a year later. My GI consultant saved my life! I have a GJ tube now and I’m a zebra with whole GI & Bowel system dysmotility 5 part paralysed organs. I hope you manage to process your PTSD & Trauma Mickey! Lots of love to all ♥️🦓♥️

[@toodlesbookworm]

Thank you so much for being willing to share! I have EDS and was recently in a bad car accident which damaged my neck significantly and permanently. I’ve recently started spinal injections and have been feeling traumatized from my experience with that. But hearing what you feel validates what I’ve been feeling. So thank you for your courage to share. 💕

[@MandieZangora]

Maisy alerting and comforting you in the beginning is amazing and relatable. I love you so much babe, please please feel free to message or call me

[@rebekahkasper6126]

I am so sorry you’ve had to endure this. You’re so so young, and yet you carry this with so much grace. I have my own medical journey, and I actually am going to nursing school now because of it. Because of stories like this. I’ll be a nurse and part of the system, but I’m also a patient first. And I’ve walked stories like this. And I want to take those memories and march in and hold the hand of the patient who is terrified. And advocate for the patient and their mental health. And be the voice for the patient who falls through the cracks. Because I’ve been that patient, and so have you. And so many others. Hang in there friend ❤️

[@Dulcimerist]

I fell through the cracks for a couple of decades, until I learned how to advocate for myself and get myself diagnosed with hypermobile type Ehlers Danlos syndrome and find the right medications to ask for. I admire you for choosing a career where you can help others! I'd love to be able to do that, too.

[@sadiemcgunigale6583]

Thank you for talking about these horrible situations I feel like medical trauma isn’t talked about enough. Stay strong 💪👊 sending love and prayers 🙏❤️

[@cinna8474]

Having gone through medical trauma, I definitely know what this is like and I get your extreme hesitation. If you can NEVER make this video the way you want, that's okay. You are enough.

[@bretthibbs6083]

I'm so sorry that you had to go through that Mickey. I had a similar thing happen to me when i was in my early 20's I had really bad pain in my stomach and they diagnosed me with having appendicitis so i had to have a bunch of tests done and they finally took me in for surgery to remove my appendix but it wasn't my appendix I was misdiagnosed cause the pain after 2 weeks never went away and i can take a lot of pain I had to have mom come and pick me up and she lived at the time 30 minutes away from me and take me to the ER late at night and that's when i found i had a bowel obstruction and it was bad enough that I could have died and ever since then I've been very skeptical of doctors. I know this was very hard for you to make this video and my heart goes out to you.

[@sierraschoep1501]

I’m so proud of you for posting this! It makes me not feel so alone. Medical trauma is awful for so many reasons and I don’t think it’s talked about enough. I don’t have full blown ptsd but I do have medical trauma. It is so unbelievably hard. I have eds (and other things haha) but I also want to go into the medical field to advocate for people like us. If anyone reading this is struggling with medical trauma, please know that you are not alone, you are valid, and you are so loved. 🥰🤍💕

[@Dulcimerist]

I admire you for wanting to go into the medical field to advocate for patients! I have hEDS and a bad history in dealing with the healthcare system, and also wish I could advocate for people who are struggling to get the help and care that they deserve.

[@VulcanOnWheels]

I do hope that your video will help many people, even with the hope that no one else will have to go through this.

[@tessakudo6765]

Glad you talked about this! Medical trauma is not talked about enough and it really needs more awareness. Nonetheless as someone with (c)ptsd (not from medical trauma) I understand how hard it can be to talk about trauma, so thank you for educating!

[@laurenwylie3153]

As a medical student this was super eye opening! I’ve been following you for quite some time and love your content:) I just learned in class about different types of medical errors and how to prevent them at personal and systemic levels, but this video really solidified the importance of that for me. Obviously medical errors can affect people physically, but no one talks about the emotional side of them. Thanks for sharing your story!!

[@LifewithStripes]

If even one doctor saw this and can change the way they treat patients, it will have been worth it. I myself want to be in the medical field to fight for the patients the way I wanted someone to fight for me. I hope you become the kind of doctor who will always fight for their patients. I loved this comment!

[@laurenwylie3153]

Life with Stripes - I’m so glad. I minored in disability studies and medical sociology in college and have given presentations to other pre-med students about advocating for their patients! I will always try my absolute hardest to fight for people that are in their most vulnerable state because that’s when they need it most♥️ I’m so glad there are people like you pursuing the medical field despite everything you have gone through. That takes a lot of strength and you’re going to be an amazing and empathetic medical professional someday!

[@sabrinahaake8195]

This video made me cry. Thank you so much for sharing.

[@celestevanveenen6005]

You are amazing and I really applaud the fact that you can talk about this! I think I might have some degree of medical PTSD and also have a suspected ASD. So hospital stays and procedures are absolutely horrible. Too many times I’ve been told, just relax this isn’t going to hurt and been in agony.

[@am7063]

This made me feel so seen. Thank you Mykie ❤️

[@audreyjensen9653]

I struggle with medical ptsd as well, this video reminded me that I’m not alone 💗💗 Thank you so much for being vulnerable and posting this!! It truly resonated with me

[@jackiehicks2223]

Thank you so much for making this video Mickey. Your strength is a great reminder that no one is entitled to know about personal trauma and that medical trauma is equally as valid as any other type of trauma. We love you forever Mickey! ❤️

[@tarah8919]

30 something, medical trauma is real. I have a lot of it. And yes you were right it is definitely hard to go back and have to face it all the time. A lot of people don’t have to do that and they don’t understand what it would be like to face their worst fear every day. We’re not faking it, a lot of us probably have misdiagnosis in terms of anxiety and depression. I think it’s a thing right now due to the pandemic because it change the majority of peoples lives. But people with chronic illnesses or Lifelong disabilities know what it’s like to be limited and not being able to go everywhere do we want to go. You got this! it took me a long time to get through it but now I’m pretty much to the stage where I just tell people how I feel and if they don’t wanna work with me I find somebody else.

[@thegastroparesisgoofball1030]

I’m just starting my counseling journey in regards to medical trauma, and really needed to see this video today after a standard test had me near panic. Thank you for sharing, and know that you are certainly not alone!

[@hannahflickema6613]

This is such an eye opening video for me especially...I have had so many bad memories with doctors and I've never really thought about how traumatizing those events have been, because I've tried to push it all out of my brain. I honestly don't know if I'd ever be able to talk about those experiences either, so you are incredibly strong and amazing!! Keep killing it, I love following your journey!!

[@Herzeleid1985]

7:30 and onward breaks my heart.

[@kimberlygsatt]

thank you for posting this mickey, i’m so grateful for your honesty and vulnerability ❤️ you represent the chronic illness community so well

[@LifewithStripes]

Love you!! I love to see your posts of you out living your life. They make me smile so much to see you happy!!!

[@iammellbell]

Thanks so much, Mickey, for being so open and honest and real and vulnerable with us. I think medical trauma is something that affects so many of us, and it can be so triggering (in the real sense of the word) to talk about, or even hear about it. I think it is an important part of our advocacy work, to share our experiences physically, mentally, emotionally (without sacrificing our mental health of course) so I just want to thank you so much, for talking about this. I know you must have had sacrifices filming this, posting it and now reading comments about it that would all be trigging. So sending love

[@annapotts2568]

That was an amazingly BRAVE thing you did, posting this video up. I could see exactly how hurt you were, and toa minor extent, I can relate. Thank you for posting. You are giving space to all of us who have suffered because of the medical system, and we don't tend to get a voice much at all. (I've been quietly watching you for a while here in KZbin :) )

[@maryhelenhopkins2015]

Thank you for this video, I can't even imagine how difficult making this video was for you.

[@sunflowercatie]

Yes! I have gotten lucky to have some really fantastic doctors but I have a lot of trauma from a few of my doctors who were horrible I can’t trust. I have had horrible experiences at my local hospital. Only a very select few doctors I trust. Stay strong and I love you and your videos

[@FreeToDance6]

EMDR is very helpful. Sending you light and love!!! Thank you for your voice!!

[@penelopepolinsneemeyer4757]

Love you too, sweetie. Well done. You did a great job and yes, as a trauma survivor myself, I was feeling for you every step of the way xxxxxxxxxxxx

[@ilovemybigbro]

Medical trauma PTSD is absolutely horrible and I have other PTSD issues on top of it so I understand completely hugs

[@haddockandbentley2903]

Girl, so proud of you how you managed to make this video. I, unfortunately, know how this feels and what it does to your mind and body to talk and remember stuff like that. And I hope that you can get the emdr soon and that it will help you as good as it helped me. Because since then I can talk about the traumas without getting anxious etc. It still isn’t nice to talk about but it isn’t horrendous anymore. And after the emdr I started to open up about my traumas to friends, talked a lot about it and that also helped me so much. But, please wait to share those traumas with us or anyone you don’t feel comfortable enough with to talk about it. Talk about it with your counselor and the people who know it, but the rest can wait. First you need to deal with those feelings girl. I don’t want you to tell us things and that you feel like hell the rest of the day or days or weeks. When the time is right you can tell but, only if you want to and feel comfortabel enough to do so!! It is sad that so many people have experienced medical trauma, it is so hard to deal with especially when you need to see a medical person or treatment or whatever, often. Please, think about what you need and want at the moment!! Wish you all the best and strength and everything!!! You are amazing ❤️ And uhhh when your dog started reverse sneezing I was thinking one of my dogs was starting to have a reverse sneezing attack. He had them a lot today and he get them so bad that his tongue turns blue and he gasps for air 😞 your dog does have it quite cute to be honest haha. It still isn’t nice when they have them but it sounded so soft hihi. Big hug!!!! ❤️

[@ingejanssens1729]

Mickey, you are so brave! I hope for you someday you van talk about it. I pray for you.

[@trishowens8392]

My daughter is going through the same thing. I pray you both find peace. She is starting the same therapy. I hope it helps you both

[@charleneb5361]

This was incredibly helpful and relatable and validating for the mental and physical reactions I’ve had to situations that I didn’t understand at the time. This is the reason. Thanks for sharing ❤️

[@Oholoco]

You're so brave for talking about it

[@gaby3007]

Thank you for sharing this. I can’t imagine what you went through. Stay strong love ❤️

[@animallover101able]

Thank you so much for sharing, I know how hard it is. I struggle with server PTSD. My heart goes out to you. I am so sorry you have to experience it.

[@curtisbemis6640]

Mickey your a soldier I know you have been through some insane medical trama and your still able to talk about it shows how strong you truly are . always admired you Mickey tha k you for the video girl appreciate everything you do .❤❤❤❤🙏🙏🙏🙏🙏

[@jadeedgington1282]

I appreciate that you posted this regardless! Hope you're having a great day

[@sophieamarant1536]

I have medical trauma that has very little to do with the staff and mostly the confusion of not knowing what was happening.

[@brendalevesque6384]

Thank you for this video. You were very brave for continuing to the end. I’m sorry you have experienced such trauma. I think maybe this video does show an element of feeding tube awareness as I’ve never seen the trauma of it before mentioned. I hope you were able to recover your day.

[@jasminakochanowicz1007]

I cannot even imagine whats its like❤ im very grearful that you are sharing this with us so that we can understand more about the pain you are going through

[@ericabauer3416]

Ptsd is real especially us chronically ill (I have eds and gastroparesis, and pots and mcas) and tube changes are terrible I panic each time I need one which seems to every month, nobody believes how real our ptsd is. Thanks for talking about it and raising awareness

[@LifewithStripes]

I have to be sedated for most procedures or ill have a panic attack. Sometimes they don't understand and don't set up for sedation and when it comes time I lose it and they realize my trauma is real. Tube changes are one of the worst.

[@Dulcimerist]

I hadn't believed I had medical PTSD until recently - I myself was in denial of it. In recent years I've finally been going through the process of coming to terms with it, accepting it and my past, and working to address it. (A low dose of Clonidine has helped me with some of the anxiety and PTSD, and it has helped reduce my POTS.) I have hypermobile type Ehlers Danlos, dysautonomia/POTS, digestive motility issues, and additional EDS stuff; plus a history of three different cancers. Have they given you Mestinon to treat your gastroparesis and POTS? That's the only medication that has really helped with my EDS digestive issues, and it also helped a lot with my POTS and fatigue. It's an old drug that EDS researchers have repurposed to treat multiple EDS issues.

[@ericabauer3416]

@@Dulcimerist I have not but im on several motility drugs and then muscle relaxers for my dislocations and hopefully it also helps with my motility, although I have been on clonidine and had to come off of it due to hr and bp issues from it

[@Dulcimerist]

@@ericabauer3416 Muscle relaxants make it easier to dislocate and sublux joints in EDS by reducing muscle tone, although they can reduce pain. They tend to slow digestive motility since the muscles can't push the food through, but it depends on which ones you get. My doctors did mention Tizanidine as a possible EDS-friendly muscle relaxer, though. Which dosing of Clonidine were you on? I only do 0.2mg nightly. Higher than that can reduce blood pressure too much.

[@ericabauer3416]

@@Dulcimerist my geneticist explained to me that a low dose muscle relaxer can actually help since our muscles are so tight trying to keep them in place can actually increase joint problems so I'm on flexeril at a low dose, clonidine we tried and .1 and .2 both caused the problems, also we are hoping the flexeril in combo with motility drugs will allow my intestinal sphincter to relax some to more can get through

[@libbygibson5612]

Praying for you sweetie. You are so brave.❤️

[@janie_robin7076]

I can understand how hard it can be. I wish you the best 💗

[@chrissmith2322]

You did brilliant job keep it up your doing well if you need to talk about anything I’m here for you your videos are brilliant

[@aspiechan420]

You are very strong and beautiful!

[@AnneAndCamel]

Thanks for sharing what you could at this point in life.

[@adamguymon7096]

I understand that it can be very traumatic. I wish the medical field would listen to people and not only think that just because they have a medical degree that they know everything? I can relate to what you are saying and there is a fear when you go to doctors for answers but they either don't care about what you need. It's like going to a doctor and saying that your arm is hurting but the doctor takes an x-ray and telling you that everything looks "normal". I'm sure each and every one of us has experienced things like you have in our own different way and it is real. Thank You for the video and I hope your day goes well?

[@billiebluesheepie2907]

It’s not quite the same as having a pain in your arm that doesn’t show up on an x-ray. I had kidney and liver failure due to a tumour the size of a melon (I have a scar from my navel to the top of my leg), they said they didn’t think to scan me despite being in agony because they thought I had a really low pain threshold and they thought the blood counts were due to me being given too much pain relief so they kept lowering my dose. Another time I had a CT scan and I told the nurse that I couldn’t put my arms above my head (I have EDS), so she grabbed my wrists and put my arms there for me - I screamed as both shoulders dislocated but as I was then stuck on the table and unable to move they did the scan anyway, and then left - I was in excruciating pain, and laid there for about three hours before anyone found me.

[@Dulcimerist]

@@billiebluesheepie2907 That was assault. I hope that you filed a report. I'm so sorry you experienced that. I also have EDS, and have to ensure that all of my doctors who order any imaging tests or medical procedures put in bold print on the paperwork that I have EDS and that my joints dislocate easily - especially if my limbs or body are forced into positions.

[@bandarusuresh]

My prayers with you..dear ...

[@zoesrensen4323]

Hi sweety, it's been a long time now in where I started to watch your story and I have medical ptsd myself. Each and every hospital stay, doctors appointments and all those things that have been been connected to the medical field, will make you feel uncomfortable for the rest of your life. You can't get rid of the trauma pain in your soul. The only thing you can do is try to get power over your mind and body with emdr, which does not work for me, but it's a good idea to start the process. It will take you a lot of time to recover from those episodes of remind yourself and going through the trauma. I really appreciate your afford but I also think the possibility of retraumatising yourself without having help besides, isn't a good idea! I had been in trauma therapy for over 10 years bc of medical treatment and family stuff. It took me more than 10 years to get back to a life that is not worth living. I'm 45 years now and I still get medical trauma bc it took doctors hundreds of years to try to find out what's wrong with my body. I'm still trying to find a doctor who is specialist in eds but I run out of money and in my small country Denmark, I'm out of the system bc nobody is willing to find out. So I really know what you're going through and all I can say is, keep keep going and fighting for yourself to get out of this circle. I send you lots of love and prayers and take all the help you can get ❤️🍀 you're so strong and have gone through so much f* stuff, so this will also help you getting stronger. You will always have trouble trusting medical professionals, but this is part of your story and you need to be OK with this and stay for this. Of course you will always find doctors who are trying to make fun of medical trauma bc they self know what they have done to others... So be strong and take time off, if it's getting too intense. Do not re traumatise yourself with telling stories your soul isn't ready for let go! 🥰🍀 You know what I mean...

[@Ladypuppy510]

I’m so tired of fighting. I have type one diabetes, fibromyalgia, gastroparesis, and severe stenosis in my hips and facets. I go for a couple weeks feeling ok, good even, then bam, a flare. Nausea, exhaustion, depression. That’s where I am now. My medical trauma is from every time I have to get involved in the medical world. Drugs and more drugs. Stuff working for a short time and then not. I’m just so tired. And that is the worst test ever.

[@Dulcimerist]

Sorry you're going through all of that. I've experienced that with my chronic issues, which mostly come from my Ehlers Danlos syndrome. Thankfully my doctors and I have finally found medications that have worked for years, and continue to work. Hoping you can find things that help you. I do know that Mayo clinic discovered that Mestinon helps diabetics who have gastroparesis, and that medication is sometimes prescribed to treat fatigue in other health conditions. There's also been research for Clonidine helping to treat fibromyalgia.

[@mattiesawyers4043]

unrelated to the video but your hair looks so pretty braided like that and your pink sweatshirt goes perfectly with your skin and hair. your beautiful

[@tenaciouszebra5691]

Good to see ya!

[@MOJORAPSCALLION]

I had EMDR for my PTSD & Trauma I’m a lot better! I had such bad malnutrition I almost died had sepsis 3 times in the year after I had my traumatic GES and got my first tube NJ a year later. My GI consultant saved my life! I have a GJ tube now and I’m a zebra with whole GI & Bowel system dysmotility 5 part paralysed organs. I hope you manage to process your PTSD & Trauma Mickey! Lots of love to all ♥️🦓♥️

[@RevolutionaryJen]

You are dying and this video is incredible. While I haven’t experienced medical trauma, I have experienced trauma in general. You are speaking your truth and that is helpful to others with shared experiences. Keep shining your light 💡 and helping others through your videos!

[@TheArmybrat12]

Yes! I have medical trauma induced PTSD from almost dying multiple times the last 6 years from shunt problems.

[@elizabethconroy7665]

Love your cheerful spirit Maisy is adorable Hugs

[@Carris-Chaos]

I had an esophageal manometry. It is super traumatic!! I can only imagine what you went through! Hugs!

[@ellagracew.9107]

Thank you for this because for the longest time I thought it was just me going through this, I'm 42 and every time I have to go into an appointment alone without my husband, I have a panic attack and I'm full on sobbing like a child and shaking uncontrollably...I have been hurt by medical doctors, nurses, and anesthesiologists and I trust no one anymore in that profession, I have been seeing my therapist for almost 4 years now and I am diagnosed with complex PTSD, if I could talk about it I would but, it's far to hard and don't know if I could ever talk about it honestly, only to say that I had the horrendous experience that nobody should ever have to go through as a child left alone with a doctor who was secretly a pedophile. Then at 8 had a dentist who drilled a cavity without any numbing meds and I was screaming, at the end he told my mom that I was just being a big baby. Other times when I woke up during endoscopy/colonoscopy and I felt everything and the pain was excrutiating!! I wish more than anything that I could have a service dog to help me with my ptsd but, in California I have searched and searched but they only get placed 99% with veterans, and they need them too, but I truly wish these places would take civilian PTSD seriously as well because we also need help too, a service dog would make such a huge difference in the lives of people who are diagnosed with it to lead more independent lives and these animals could help people so much!

[@racheljay9963]

You do know you can owner train a service dog. You don’t have to go through a program

[@ellagracew.9107]

@@racheljay9963 yes I have tried, several times I'm just not good at it books, videos, trainer tips I tried alot of them for a long time, maybe I'm just not cut out for it🤷‍♀️ or just the wrong type of dogs I'm choosing maybe. It was just difficult for me.😔 But thank you for that tip.🤗🙂

[@joshuatigga9616]

I have seen your videos since 2018 and what I want to say is that you are beautiful

[@NorseButterfly]

My first traumatic medical experience was my anterior lumbar fusion in 2012. It was the pain that brought me out of anesthesia. I was given the wrong type of pain management, and it would be many hours before the orders for the correct pain meds were called in and switched over. That surgery would be the beginning of a long road of medical trauma I suffered at the hands of the vascular surgeon who assisted in the lumbar fusion. Recently, I had 2 large abdominal cysts aspirated. My IV was located in the crook of my elbow, and I had to keep my arms bent across my chest. I will never know is versed and fentenyl actually work for me, because nothing went through my IV...I felt everything the radiologist was doing. I still haven't scheduled the GI tests I need done for my new specialist.... I'm terrified.

[@adamnsliceofcake6371]

Very brave video to make, props to you for doing it. I've been experiencing nausea for months now and the doctors think it might be gastroparesis (waiting on a test for it). It's been quite hard to eat but been managing with different medications. I actually had a question that I haven't asked my doctors yet cause I'm a little shy to. What's the average life expectancy of someone with a feeding tube? If you know. The doctors say I would only be put on one as a last resort, and I'd be completely fine to if it will help me get the nutrients.

[@0xEmmy]

Sending hugs.

[@reneekillino7265]

So Good to see you 👍. And the pup to✌️❄️💜

[@mollyAllison10]

I had a feeding tube when I was 6 to 12 and I cried for hours

[@evanesix1031]

I have missed u. It is so nice to see u again. 🙂

[@davidfinney2052]

Love this video already

[@Dulcimerist]

I have hypermobile type Ehlers Danlos, which went undiagnosed until I was 38. I experienced a lot of medical trauma and improper and abusive medical treatment during the time I was undiagnosed/misdiagnosed, which has given me bad PTSD. Have they ever tried you on a nightly dose of Catapres (Clonidine) to help treat anxiety and PTSD? It also helps to treat dysautonomia/POTS, migraines, and can reduce pain. It has helped me a lot. I also have gastroparesis and intestinal dysmotility. Mestinon is the medication that cured me of that, which is an old drug that EDS researchers have repurposed to treat the digestive and dysautonomia issues of EDS.

[@cathleenmoya2231]

Thank you so much for making this video I thought I was the only one I have really bad PTSD for medical surgeries I have a GJ tube and it hasn’t been easy