Trisomy 13: Sometimes I forget about my son's profound disability (Patau Syndrome)

[@SamuelT13]

I started writing as a blog post almost 2 years ago back in Apr 26, 2022. I came across the draft, and decided to finish it and make it into this video. It really is a beautiful thing to watch my son sleep. It allows me, and maybe him also.. some respite from his condition. It is bitter sweet though, as he will eventually wake up again.. and i'll be reminded of his disability. Its a moment of ignorance that I allow myself occasionally.

[@leeann4743]

My second baby had Edward's Syndrome--- Trisomy 18. He died in utero at 30 weeks. I often wonder what our lives would have been like had he lived to be born. Sending love and light...

[@hannewelter4302]

Your son will be healthy in paradies like my little son, he dies in 1997. Both should play together, running, talking and laughing We live in Germany 😊

[@marielagent4387]

He’s gotten so big! I pray that you have many more years to come with him. ❤️✨

[@SamuelT13]

@@marielagent4387 thanks so much mariel

[@victoriatorresbrewer4592]

❤❤❤❤​😊

[@Yoongiwifie]

He’s so cute I’m so happy he’s still here! Thanks for sharing him

[@Michelle-gw4db]

Thank you for sharing your story. He is so adorable and I see how much love he has. My nephew eas born on January 4th 2024 he was born with trisomy 18. I pray he grows up to a strong lil boy.

[@dianekrenz6789]

Thanks for sharing your son with the world. Your bond with him is wonderful.

[@kuessmich88]

I wish you luck on your journey. Your boy looks like he feels very loved and very comfortable ♡ Parenting can be so hard.

[@jeannieves6275]

Embraced and Loved 😇🦋🙏🏽⭐️

[@doloresandruchow9502]

He so sweet love light and prayers to all of you

[@marlieshagg6144]

I love how he chose the bag over the toy....💙😊 Thanks for sharing this with us!

[@SamuelT13]

haha my wife absolutely loved that part too. She complained that I didn't include it in one of the earlier edits of this video, so I changed it and made sure to put it in :) such a little cutie isnt he

[@marlieshagg6144]

@@SamuelT13 absolutely cute! 🥰

[@dianehaines1220]

Miss seeing your videos. Hope all is well. You voice touches my heart so deeply, as well as seeing you cuddle your son and seeing the tremendous love you have for him.

[@ManzelaManz-pk8zy]

Thank you for your insights...and thank you for your sweet son❤❤❤

[@countpicula]

Thank you for sharing this part of your family’s life with the world my brother. It’s beautiful. He’s a beautiful boy. Your a great father. And your honesty and realism is appreciated. God bless you and your family. I wish more people could head your words of wisdom.

[@nyahirimatinyi211]

Living my son's life vivaciously through yours. Thank you so much for sharing your son's life with us. Unfortunately mine passed away a few days after he was born. My doctors just gave up on him told me he was not fit for life. Glad that your little fighter is proving them wrong❤

[@susanhicks255]

Bless you ❤❤❤❤❤❤

[@margaretgarana911]

Wonderful family

[@scratchy1704]

Omg this little munchkin is beautiful 🫶💙

[@Koolneen]

He’s a sweet boy who loves his daddy.

[@carrierussell6013]

Hes an absolute blessing in which his heart feels! Hes beautiful in every step of his way! Thank you for sharing your stories! You have a beautiful family! Many blessings being sent your way!!!❤❤❤❤❤❤❤

[@ntdtv]

Greetings, Divya here with NTD Television. We are one of the world's fastest-growing media companies with over 100 million fans and 1 billion monthly video views across all of our social properties. Our motto is truth, hope, and humanity. We love your videos and our editors would like to showcase them by uploading them on some of our social media pages and websites so that our fans can see them. Of course, we are happy to credit your channel clearly to make sure people know how to find you and your videos. You will still hold the exclusive rights to the video. Can we have your permission to do that? Kind regards, Divya

[@SamuelT13]

Thanks for your message. I've replied to your email with a few questions.

[@ntdtv]

@@SamuelT13 Hello Samuel, Yes, I got your email and replied. Thank you. Best, Divya

[@jeannieves6275]

Praises Dedicated Father🙏🏽💯

[@emilytaege]

@SamuelIT13 serious question for you. Is it possible to communicate with your son through sign language? Genuinely curious. Thank you for sharing your story.

[@SamuelT13]

thanks for your question. No - unfortunately there is no communication at all possible with my son (at least to date - possibly there may be some in the future, but I can't imagine it honestly). The only form of communication (if u can call it that) is through cuddles, tickles, rubbing etc... We show him love and affection. We talk to him, but we dont expect any recognition of the meaning of our words. We basically treat him as we would treat a family pet, as harsh as that may sound.

[@emilytaege]

@ you are so responsive! I appreciate your dedication - keep. It. UP!

[@sandraadams4940]

He smiles, he reaches for toys, he loves the crackle of the paper he is very much alive and he is beautiful.

[@DonnaAbrams-qh7zt]

Big difference between being alive and having a life.

[@cyndeelou-i1e]

Aww so sad

[@يوسف-ي3ق8خ]

اي دواء تعطيه لينام فترة اطول وبهدوء لدي طفل باتو

[@SamuelT13]

we dont give him any sleeping medicine. he sleeps naturally

[@يوسف-ي3ق8خ]

@@SamuelT13 شكرا عندي الطفل ينام قليلا ومطقطعا

[@SamuelT13]

@@يوسف-ي3ق8خ I see.. thats so difficult. I think we are lucky our son can sleep well on his own

[@يوسف-ي3ق8خ]

@@SamuelT13 شكرا

[@liyamesfin831]

Is the boy or the girl older?❤❤

[@SamuelT13]

my daughter is about 2 years younger than my son. in this video they are about 4 and 6

[@SamuelT13]

i read your comments but they were deleted. in 99% of cases Trisomy is a random mutation. Very very rarely it is passed on genetically by a mutation present in both parents. But this is rare. The chances of having a trisomy child are increased primarily with maternal age, so if the mother is over 35 or so, the risk will increase.

[@liyamesfin831]

@@SamuelT13 thank you very much Samuel. I need help, I have 24 weeks pregnancy with trisomy 13. So can you give me you're contact as soon as posible Please.

[@SamuelT13]

you can email me at [e-mail]

[@donnakaywain3487]

Those eyelashes ….❤

[@يوسف-ي3ق8خ]

عندي طفل مصاب بمتلازمة باتو

[@claudettecicora1192]

❤

[@claudettecicora1192]

😢❤