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In this episode of You're Not Alone, Mercedes and Linda re-unite and discuss when they first met and thought they were the only ones in the world with Periodic Paralysis. Mercedes tells the tale of how she relied on the orphan drug status of Keveyis in the early years before it became widely used for PP.
#PeriodicParalysis #TemporaryParalized #PPA
Periodic Paralysis is an extremely rare disease and you may have a lot of questions, a great resource to help find answers can be found at the PPA website at www.periodicpa...
We'd love to hear from you. Comment below on your experience with PP or with questions about the condition.
For more information on Strongbridge Biopharma®, please visit: www.strongbrid....
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Your donation will help with Dr. Cannon's genetic research or a list of other extremely helpful options. The great thing is you can decide how you want your donation to be used.
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#Keveyis #NotFaking #paralyzed #periodicparalysis #permanentdamage
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