Understanding Lupus: Activist Spreads Awareness, Breaks Stigmas

In honor of Lupus Awareness Month, TODAY’s Dylan Dreyer sits down with “Lupus Warrior” Maria Alejandra Hernandez. Hernandez shares how she struggled to understand the autoimmune disease after getting diagnosed, but how she’s learned to manage the chronic symptoms over time.
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#Lupus #ChronicDisease #TODAY

[@idonhadenuff5979]

I’m laying in my bed right now with Lupus watching this story. Thank for bringing awareness to the struggles of Lupus.

[@hermithollow2024]

Me, too. I wasn’t diagnosed until my late 40’s and it effects me in more extreme ways. But each one of us who “soldier on” can be an inspiration to each other just like this young lady. 😊

[@pierrettelaf9728]

I have a naturopath that can help you. It's not a commercial. Not for me. Just want to help .

[@shedejadlockett8274]

Me too!

[@nicolettesnyder5866]

Same :( laying in agonizing pain

[@RebaMiran]

Me too

[@janecoffey3330]

Lupus is cruel,my brother passed away February 24 2022 from lupus, his last months were horrible. He is no longer in pain and is happy in heaven.

[@m.layfette6249]

Rest in Peace 🕊️ Sweet Prince may flights of Angels carry thee to thy Rest 💜💪🏾🦋

[@mariawhite2760]

God bless you and your brother,he is definitely happy and pain free physically and mentally,love to you and your family 💕🙏🏼

[@courtneymcleod7283]

Lupus unfortunately took my mom. Her organs were failing. She was on hemodialysis and was in need of s kidney and a liver transplant. Her heart was so weak and she went into cardiac arrest in the hospital and couldn't be resuscitated. My mom lasted 15 years after her diagnosis and she lived life well. She was a manager at Disney and she had many friends. I miss her so much.

[@garlandowls1134]

I'm so sorry for your loss. My condolences goes out to you and your family. 🙏🏾❤️🕊

[@paulmontes7686]

I’m so sorry for your loss! I suffer with lupus so I know the struggles. Your mom sounds amazing! ❤

[@kerrividler6571]

OMG that was me. Diagnosed at 25, all the symptoms Maria has. The way lupus travels is frightening. I used to sit down, able to walk but try to get up half an hour later and can’t walk. The dr came in one day and said ‘you have rheumatoid arthritis’ the next day he came in and said ‘you have lupus too’ and then he came back and said ‘oh you have hashimoto’s thyroiditis’ - a trifecta! Mind you, I wasn’t celebrating thats for sure. It’s a very cruel disease.

[@oddlilbird]

It’s easy to see why her husband wouldn’t leave her; what an incredible woman!

[@brooklyn3299]

Women like her get left all the time, bird… and he may do so later

[@oddlilbird]

@@brooklyn3299 I know that’s true, but I hope the best for her.

[@rahulmiya5496]

Dr Ewi1 on have the cure for it

[@mahmudrza191]

With the help of Dr Ewi1 herbes my Lupus was cure thank you sir you are a great man

[@Donna-cc1kt]

It’s not that easy. I say that with love for all the family members that could not deal with it. It’s pain for them too.

[@donnam4305]

Maria did a wonderful job describing this disease. Lupus has many faces, effecting millions of people in many ways. I have had Lupus and Lupus Nephritis for 32 years with many ups and downs. Thankfully, I am in a good place right now. I wish Maria and everyone with this disease the best of health and hope for a cure!

[@moneemitchell1227]

I have systemic lupus for 19 years and still learning about symptoms

[@m.layfette6249]

@@moneemitchell1227 I too have SLE and with every doctor's appointment, every minute, moment, day I learn something new. Stay Strong! 💪🏾💜🦋

[@melissamartin1485]

Amen!

[@patticakes74]

32 year's you've suffered? Definitely change your doctor's they are not helping....

[@lesleyd2448]

It’s absolutely horrible. This Disease needs to be talked about more and doctors need more awareness. I was told I had chronic pain and menopause for years before diagnosed.

[@joycehernma3541]

Herbal medicine is the best to treat our body system naturally Hi I’ve been living with lupus😭 for more than 5years now but I got rid of it naturally after using dr Omo herbal medicine

[@L.Spencer]

A few years ago we lost a dear, young friend in Mexico who had lupus and died of a heart attack at 16. She's resting, awaiting the resurrection.

[@mahmudrza191]

With the help of Dr Ewi1 herbes my Lupus was cure thank you sir you are a great man

[@Real_Life_Is_More_Important]

I'm in the tub crying because of my lupus flare and I have so much hope for you. It's a hard life, but blessing are rich when they come.

[@TheBritot]

Girl, I am right here with you. I was diagnosed over 10 years ago and there were times when I would just sob out of pain and frustration. The minute I started eating better and exercising I felt better and I believe I am in remission. Keep going, you are on the right track..and don't give up on having your family...it is possible, speaking from experience. God Bless you and thank you for sharing your story.💜💜💜💜💜💜💜💜

[@Zisjejk]

what test is used to diagnose lupus pls

[@TheBritot]

@@Zisjejk it's very hard to detect...its done through blood. I was tested in my 20s and it showed negative all the way up until my 30's. They caught it when I was going in for a colonoscopy. The dr told me that I had double stranded DNA (really unsure how to explain that myself) and it was Lupus. My mother has it as well, so I honestly think it's passed on, but I can't say for certain. It's a young woman's disease and if you are weak in the muscles and joints, constantly tired with no energy, hair loss, rashes on your face you should seek out a rheumatologist and get tested. As you can see from my story it lied dormant in my body for a long time. I hope this helps and not scares you. GOD BLESS ❤️

[@vlogsofsamiyusuf6651]

I have lupus I eat healthy most of the time and exercise makes it worse every single time and I like walking come to exercise I'm glad it's work for you

[@brittneybabeee4031]

@@vlogsofsamiyusuf6651Thank you for commenting this because while eating right & exercising can definitely help many people, many other people struggle with it because it doesn’t make a difference for them. I spent 5 years eating right & working out & not only was I miserable from constantly forcing myself to work out through the pain, fatigue, etc., but it wasn’t helping at all & no matter what workouts I did, the pain would stay and sometimes even worsen. I ended up giving up entirely & over the years following, I gained so much weight & progressively got worse. Now, I’m back to portion control, eating better, and trying to be as active as I can between the pain, insane fatigue, and constantly getting sick, and I’m down 40 pounds, which makes me so happy to say. Still, my symptoms aren’t any better. So, eating right (but allowing yourself some treats still) and working out are great things to do & those who are capable of doing so should, but the idea that it will cure everyone who struggles with lupus or other chronic illnesses is not only false, but it’s harmful. Doing these things are beneficial in their own right & they can help us in many ways, but curing or bettering illnesses, chronic or otherwise, is not something they do for everyone. It’s great that there are those who got better after eating right & exercising, but it’s just not the case for everyone. I promise that you’re not alone & it’s not anything you’re doing or not doing that’s causing your lupus or preventing you from getting better. All that said, OP is not wrong in their comment & sharing what’s worked for them was a good choice as it may work for others. I just think we should be careful & add disclaimers when sharing what’s worked for us so that others know that it may not work for them & that that’s okay & it doesn’t mean they’re doing anything wrong or that it’s their fault they’re sick.

[@IvySnowFillyVideos]

Its not just a young women's disease...it can happen @any age.

[@ShyFly1000]

I’m so grateful people are talking about this. So grateful! I have been diagnosed for 20 years and it took 4 years to finally be diagnosed. Awareness is so important. Maria is a warrior. I am a warrior. We can own our tragedies and turn them in to growth and support for one another.

[@lunamoran2463]

This made me cry. I had my daughter at 21 before I was diagnosed and I’m 34 now and can’t have more children because I could die if I got pregnant due to antiphospholipid syndrome and lupus. I’m happy and grateful I had a successful pregnancy at 21 though. I cried when she said “there’s no cure?” … some days I just want to cry and say why me? But then I say why not me? I’m not special. I just have to get through it. Life on life’s terms. To all the other lupus warriors out there, stay strong, life is tough but so are you ❤

[@thelearner55]

I was diagnosed 1 year ago. I had symptoms a few months before the diagnosis. Loss of hair, severe pain in joints, lost 30 lbs in 1 1/2 month, bleeding, throwing up everyday. I thank God that I recovered so fast. 🙏

[@laurakelly631]

What a lovely woman! And good to know there are men like her husband. I wish them the best. I lost a best friend to lupus and my sister has it. People often get very ill in their late 30's, and if they make it through, have perhaps remissions (but with ups and downs) till the 60's... when many succumb. Lupus can attack any organ, so the symptoms are variable. My friend had crisis in the lungs in her late 30's and made it through. Then in her 50's her kidneys were the problem till she needed dialysis. She was a warrior also and lived well with all of the difficulties till she died at 63. My sister has had several crisis involving kidneys and lungs also, almost died a couple of times...still hanging in there at 65. People with Lupus like other immune dysfunction diseases, can look perfectly normal but be very sick. It is not necessarily something you can see. They often suffer from debilitating fatigue and pain that is not visible. Exertion is dangerous. They have disabled parking stickers and get yelled at for it. (Think twice people)

[@patticakes74]

What did they prescribed for infection 😕? This will create alot of havoc for the body....

[@buttaflyantics8618]

Many people succumb to what ever they develop in life in their 60’s. Don’t put a timeline on anyone but yourself. Everyone is different and God has the last say not an imaginary timeline. Sorry for your loss and prays for you loved ones that are still thriving with Lupus.

[@evaang3616]

omgoodness love you comment! Amen! my daughter got diagnosed with lupus nephritis at only 15 and a half we gone thru so much in that short time, her poor figure changed amongst soooo much more…We need support and others for the battle. She’s a warrior for sure🙏🏼

[@sydneyrogers9697]

I've had Lupus for 50 years! At the time the prognosis was 10 years max. I've had some hard times to be sure but I'm still alive and living independently (with my 2 cats). Saw my rheumatologist yesterday and I'm stable. New treatments on the way I'm sure for younger patients.

[@IvySnowFillyVideos]

Your story is so inspiring. Thank you for sharing

[@AlejandraXio]

April 2021, due to a severe lupus flare, I went to the ER due to dysphagia and ended up getting a feeding tube. A few days later I had a PRES seizure and got acute respiratory failure. I was on a ventilator 10 days and miraculously survived. My doctors told my family to start planning my funeral but here I am. I woke up with a tracheostomy and paralyzed. I had to relearn how to breathe, swallow, talk with a speaking valve, and can move in bed some. I still can’t walk but my next goal is to be able to transfer to a wheelchair. Lupus is a real battle. For those of you who haven’t faced the scary life threatening side of the disease please please do what you can to prevent it. It can leave so much damage if you survive it.

[@aquamarine2416]

but some doctors can't do the test, sometimes it doesn't show and other times yes , I need medication but they can't give me, my results come out good but I am not Good. this is very Hard.

[@sierralima1433]

@@aquamarine2416 Hi! How are you doing now? I totally understand how you must have felt

[@sydneyrogers9697]

I'm sorry, you can't prevent it. I've had Lupus for 59 years. It's been tough but I'm alive.

[@AlejandraXio]

@@aquamarine2416 I would get a second opinion at least. It took me 4 rheumatologists to finally get results. It was my moms idea and if she hadn’t done that the doctors probably wouldn’t have treated me for that in the hospital and I probably wouldn’t be here.

[@AlejandraXio]

@@sierralima1433 oh my this comment was 10 months ago! After going through another 3 month health crisis where I needed an emergency nephrostomy tube, kidney stone removal surgery and the flu I’m finally able to sit in my wheelchair 2 hours. My next goal is four hours

[@denisedean8503]

I have lupus we will be alright do not lose hope keep God first place keep praying God Bless you Maria. 🙏🏾❤

[@m.layfette6249]

💜💜💜💜💜💜💜💜💜

[@rahulmiya5496]

Dr Ewi1 on have the cure for it

[@laurad3497]

Wishing her the absolute best

[@rahulmiya5496]

Dr Ewi1 on have the cure for it

[@jenceepooh4520]

That's exactly how I started with a lot of pain and could not even put on my own clothes...then the rashes and swelling in my ankles....I was diagnosed with lupus

[@lea9977]

I understand , don’t have Lupus, but have multiple sclerosis. Once diagnosed, you think medication is enough, but the reality hits. Stay strong anyone who’s suffering.

[@barbaralkennedy1870]

I’m a Lupus Warrior too. I have 5 beautiful, and healthy adult children, and we just had grand baby 13 on Friday. Hang in there. Anyone who gets a Lupus diagnosis may feel depressed, but with adjustments in diet (a lot of adjustments), exercise (when you can) and listening to your body and not overdoing, things will get better. I refused to be on meds due to side effects. But I saw a great holistic healer and am on supplements and juices (and kombucha). I’ve learned what I can’t eat, not even once, and things I needed to include in my diet on a regular basis. I’m doing so much better. With each trial comes learning, and I’ve learned it’s ok to slow down (I’m very task oriented), and it’s ok to say ‘no’ when you need to (I was also very, very volunteer oriented). But I’ve also learned a great appreciation for my life, for my family, and I thank God everyday (literally) for all He has given me. I have much more than I deserve. Years ago when I started this journey I honestly thought my life was over. It’s not. It changed, I’m writing a new chapter, but I have much more living and loving to do! You are blessed to have a great husband by your side. I’m very blessed in that way too! I wish you and all Lupus warriors (all chronic illness warriors) the very best. Do your research! You can win this. 💪

[@aashiraali6864]

Pls let me know what diet you followed

[@jamilathomas6199]

​@@aashiraali6864 Look up Dr. Brooke Goldner

[@fallen605]

I have had this for over 14years your amazing and strong this is a ride please be blessed with everything life has thank you

[@cinephile1712]

Spreading awareness isn’t enough. It’s all about teaching people how to advocate within medical and social service systems, deciphering dense jargon, and providing the resources and other tools so people with lupus (or other autoimmune conditions) can get what they need :)

[@m.layfette6249]

Raising Awareness 💜, Being an Advocate 💜, Telling Your/Our/Their Story 💜 that and so much more makes YOU an Lupus 💜 Warrior!!

[@yajairapartida366]

Maria's story touched me. Omg she's so beautiful. I wish her the best in this difficult journey ❤️

[@antreaserobinson7995]

Keep fighting Maria 🥰

[@rahulmiya5496]

Dr Ewi1 on have the cure for it

[@mahmudrza191]

With the help of Dr Ewi1 herbes my Lupus was cure thank you sir you are a great man

[@LupusOrg]

Thank you so much for raising awareness about lupus!

[@rahulmiya5496]

Dr Ewi1 on have the cure for it

[@mahmudrza191]

With the help of Dr Ewi1 herbes my Lupus was cure thank you sir you are a great man

[@Sheloyigamer]

I’m trying to get a diagnosis; not that I want to have Lupus. But I have so many symptoms that come and go and change. Even with health insurance, I simply cannot afford constant visits and labs and no answers. Also feel like I am brushed off by doctors and even my own family. It’s so overwhelming to feel sick most of the time and have to fight to justify how I feel. Again, I don’t want to have Lupus or any other chronic condition but feeling horrible for the past 4-5 years with no help, no answers is debilitating

[@funnyadorabledonna]

Same here. Don't stop until you find answers

[@gabyrubio6647]

Hi Chaya, i’m no doctor here, but myself I suffer from hypothyroidism along with Hashimoto’s disease which is an autoimmune disease. That if not treated makes you feel A lot of fatigue, lethargic, depressed, constipated , low libido, weight gain , intolerance to cold, brain fog. As much as you sleep you’re still sleepy. Some days are good and other days are not. Also Mood swings. In case you want to start from there. I hope you find answers. 🙏🏻

[@Sheloyigamer]

@@gabyrubio6647 Thanks Gaby

[@manishajaswal1577]

Same with me I am suffering since last 3 to 4 years all test negative.... But I know there is something wrong

[@dawnbarber7980]

Awesome woman is an excellent lupus warrior that certainly inspires with words and her incredible spirit. Thank you!

[@dawnbarber7980]

@Kim Sonn Excellent news to read, thank you for sharing your wonderful news!!

[@rahulmiya5496]

Dr Ewi1 on have the cure for it

[@jlf1309]

God bless you! I have lupus and have been miserable. You are such an inspiration! ❤

[@TheSmartBarbie]

I was just diagnosed a few weeks ago…I’ve been surfing Google for days…surfing KZbin for days…thank you so much for your story…I’ve been so tired of crying but it feels so good to actually cry from *joy* rather than from the pain and shock of learning this….so I greatly appreciate it the positive videos about this disease…🫶🏽Thank you.❤️

[@rosam578]

Amen Maria thank you with all the great powerful words don’t loose hope❤

[@shanabenjamin8945]

Seeing the specialist on 28/07 to hopefully get a diagnosis on which auto immune desease I have. Many years in the making. Prayers are always 🙏 ❤ welcome 🙏

[@imenrhouma8808]

I really need some stories like this🥺 Thank you so much🙏

[@marandamarvin]

I am so thankful for positive people! Yes! "Let's be light together!". 🥰

[@rahulmiya5496]

Dr Ewi1 on have the cure for it

[@g.c.m.productionsny]

Thank you for this interview 🙏🏻💜 means a lot to us 🙏🏻

[@dullfairie5886]

Dealing with the worst lupus pain of my life, hearing her motivates me sm!

[@tashab1628]

Your story is beautiful. Your husband is amazing giving you the support he does. Stay faithful in God, stay positive and hopeful.🎉🙏🏾

[@ayofefe3976]

I have Lupus and it’s crazy! Bless you💜

[@theamp1986]

I was diagnosed at 16 and now 35. I’m fortunate to have been able to manage it majority of my life. It’s gradually developed into more problem list/diagnosis. when treatment was not affordable, I dipped. It’s Unpredictable flare ups disrupt productivity/career. Outside nothing is noticeable, so sometimes I feel able body people aren’t as patient with me. I know others deal with more intense pain/dialysis or it becomes fatal upon being first diagnosed. I am one that doesn’t want to conceive because I don’t want my biological child to suffer; but I’ll adopt once I can be financially stable:)

[@LeonaLilly-gx8fj]

Keep fighting Maria, your not alone. I also have lupus! We'll just keep on fighting all of us together. And prayers ❤

[@emusedone]

Thank you for covering this. 💜

[@rahulmiya5496]

Dr Ewi1 on have the cure for it

[@m.layfette6249]

I was diagnosed with Lupus 💜 back in December 2015. It was a case of had I known then what I know now. Rewind back to 2012-2014 I had multiple Alopecia spots/bald spots in my hair. Rewind back to 2011-2013 I contracted rashes on my face and mouth. TBH I just summed up my rashes to something my daughter caught at daycare. Instead mine would never go away, they grew and created dark and scale-like circles on my cheeks and under my eyes. Fast forwarding to 2018, when at 40-years old I had total hip replacement surgery. Before my surgery I was in excruciating pain and was walking with a cane. Since that time I've had over 10-Ten surgeries and medical procedures. My life has turned upside down. I was active, working, moving, grooving, always on the go. Now I am a Stay at Home Mom, my daughter is now my Little Trooper. She can recognize when I'm having a flare up, before I'm ready to admit it to myself. It hurts even more when I'm crashing, drained of All energy, struggling just to get in and out of bed. Despite all of the trials and tribulations, I Am a Lupus 💜 Warrior! I wear my Butterfly 🦋 wings with Pride and Strength and Courage and Wisdom, to tell the world and myself that, "I may have Lupus but Lupus does not have me." 💜🦋💜🦋💜

[@auntbeth6794]

Preservere good Buterfly ❤

[@sherylousison981]

Sending love ❤

[@LuLu-kk5gs]

Aww what a great Husband she has… I pray for her wellness!!

[@jacquelynmunilla538]

What a trouper! I have Lupus as well and it can be very disabling. The fatigue and aches when one flares really bring one down. People don’t always understand either. But, you keep moving forward, make the best of your good days, eat healthy, take your meds; and, rest on your bad days. 🙏🏻😊

[@brittenyevans1101]

I too, have lupus. And in the beginning : the not knowing phase. Was the worst, I thought I was going to die. But, thanks to medication I’m here. I even know some women, who have it worse than my symptoms that have given birth. So yes , don’t give up.

[@ayyb6789]

I wish her the best in life.

[@rahulmiya5496]

Dr Ewi1 on have the cure for it

[@davidserrano4716]

I am amazed to know you and Chris both as Family. Que Dios te bendiga ❤❤.

[@happydays5989]

I have the opposite- I cant seem to gain a pound without losing it if I miss a meal. 110 is what I've been at for years- drives me nuts when people say "I wish I had thatc I have lupus and auto immune immunothrombocytapenia This makes me happy to know I'm not alone God bless all the lupus and ITP warriors

[@RebaMiran]

I have lupus and it it’s so hard…. I had it for 8 years now. It’s a bumpy road with lupus, some days you’ll have good days and some days are just awful, but you make the best of your situation. I’m a lupus warrior too and we are so strong but can be fragile in many ways… but we keep pushing because life is beautiful, yes we suffer but life itself is beautiful. So though we suffer we keep going.

[@rukhsanagulshairrukhsana7538]

My sister passed away 7march 2022 with lupus age 35 center nevrous system damage and sepsis diagnosed and 13 years before diagnosed lupus both hip are damage very pain ful death

[@ayyb6789]

Her words are encouraging.

[@rahulmiya5496]

Dr Ewi1 on have the cure for it

[@marissaPimentel-tq8dv]

Thank you📡🇲🇾🙏

[@Lani-jy2hv]

I was diagnosed at 8 and I am now 18… and I can tell you its such a tough journey…. Especially as long as it took for doctors to figure out what was wrong and to give me a diagnosis. One moment you can be fine , the next you can be going through flares. I am currently 9 months into my flare( my last was 3 years ago when I went on chemo) I am trying to reduce inflammation without chemotherapy as it is very toxic. Currently have been on prednisone since March, the lupus inflamed my lungs making it harder to breathe and shortness of breath, prednisone has been definitely helping. But the side effects of prednisone do play a negative role on self esteem. Hoping I get through and pass this flare to at least put my lupus to sleep.

[@evaang3616]

God bless you dear one, My daughter got diagnosed at 15. She is only 19 now it’s been a tough journey for sure and we are trying to keep meds at bay, she is going through a flare as well. Sending you so much love❤

[@sari5280]

😮😮😮😮😮😮😮😮😮😮had sle lupus for 30 painful years and I am still here never heard of it before but now I have COPD and RA and seizures and migraines and kidneys hurt but I just talk to God and pray been hospitalized 45 times So. Blessings to you all you lupus patients because people don't believe we are tried and in pain. But my sis

[@shellyrae777]

I have Ankylosing Spondylitis ( inflammatory spinal arthritis) I took a medication to help it and it caused temporary lupus for a year. I had hair loss, mouth sores, face rash and horrible fatigue. Lupus is no joke.

[@shellyrae777]

@@lufufydlitslirairarztxthank you for the hugs 💕, Yeah it’s very painful, I take Advil and morphine daily just to get out of bed. I guess all chronic illness is horrible in it’s own way.

[@debrabenavidez3382]

Temporarily lupus? I thought lupus wasn’t curable?

[@shellyrae777]

@@debrabenavidez3382 it was drug induced. It wasn’t actual incurable Lupus, it caused all of the horrible symptoms though including a positive ANA blood test, but went away after the medication was stopped about a year after stopping. I was taking a TNF blocker, but there are other meds that rarely cause this as well for epilepsy etc.

[@bexxs2245]

It's nice to hear that someone else gained weight with lupus. I though I was the only one.

[@rahulmiya5496]

Dr Ewi1 on have the cure for it

[@rabinaneupane7534]

I'm suffering from SLE with lupus nephritis from 3year ago .. my situation is going worst day by day 🥺💔

[@peacepocket]

That’s true love! God bless her and her husband

[@alisonbear7114]

I have lived with lupus for 10 years now. The pain I can deal with. The disfiguring rash on my face, arms, chest and hands tho, not so much. Hard to leave the house feeling like a freak.

[@gdsfamily_]

😭😭😭 its so pain and hopeless to survive

[@Sreelakshmiii]

Wishing you the best life❤❤

[@monserratebarbosa5850]

I am fighting my lupus and I understand the pain that every day I have to go through and I am taking care of my son that is in a wheelchair

[@JustRaine97]

My niece is a Lupus warrior. She was diagnosed at 14. The journey has been hard but she perseveres. She had to go on homebound school for a few years, but was able to return to school for junior and senior year. She got her associates degree a year later and 3 years after that she got her Bachelors degree. She achieved all of the this while gong in and out of the hospital and dealing with lots of pain. Unfortunately she is unable to hold a job because everyday is different and there are many days where she can't get out of bed. So she does light work part time. She's been on many many meds because she has 6 other autoimmune illnesses as well. So trying to stay insured and battle the insurance companies to pay for meds and treatments has been a full-time job. And finding a good Rheumatologist has been difficult. Before this we had never really heard of Lupus. So to all of the Lupus warriors, keep fighting. There needs to be more research and more advanced meds to help manage this disease. At 18 my niece had to have a hip replacement and at the age of 24 she needs another one. There needs to be more awareness of this disease.

[@freshfaced625]

A brave woman and a wonderful story

[@rahulmiya5496]

Dr Ewi1 on have the cure for it

[@BlackyBrownDestruction9337]

The hospital tortured me during testing, I wasn't able to get the biopsy. I discharge myself from the hospital and the doc said I'll live a long life

[@yvonneboaten8289]

I know two people with it. Keep educating and inspiring.

[@jackiealv6547]

Not only she’s physically beautiful but she also seems to be a very good person and I hope she continues getting better . I was diagnosed with Still’s disease (very similar to lupus ) at the age of 26 (I’m currently 42) and I still have painful flare ups . I got tired of immunosuppressants (including chemotherapy) and I haven’t taken medications in 2 years but I live in constant pain and extreme fatigue . Like her , I thought I would never have kids but after a long treatment I got into remission, feeling so well that I thought it would never come back but it always did . My kids are 6 & 9 and I’m always concerned that they could develop something like this . My daughter has asthma and eczema (also autoimmune ) and I feel so guilty . The pain in my knees is unbearable and I also have alopecia and skin issues . It really affects everything and good times come but they also go and the pain gets chronic. Prayers for this young and beautiful woman .

[@kimb2379]

Living with the pain of lupus. Was doing well with my symptoms since acquired after birth until getting Covid-19. It is my theory that the vaccinations given to us as children are responsible for all of our diseases. GOD designed our immune system and it does not need help from man-made vaccinations.

[@pamelamays4186]

My Mom passed from lupus in 2018😢

[@buttaflyantics8618]

So sorry for your loss

[@m.layfette6249]

Rest in Peace 🕊️ Sweet Princess may flights of Angels carry thee to thy Rest 💜 🦋🙏🏾

[@everythingtaken19]

I’m sorry for your loss. My mom passed away from rheumatoid arthritis wearing her body down over the years. It was the hardest thing I’ve ever witnessed, and also have been struggling since her death. You’re not alone. ʚ♡⃛ɞ

[@rocksofoffence.righteousam2422]

She's beautiful.

[@memyselfi1828]

I have had Lupus since 2009.

[@elizabethsamuel2894]

It’s nice that you have a supportive family but without that it would have been very hard

[@nidzaperez7258]

God bless here. I went threw that but no hospital maybe 4 times in 2 yrs. So im blessed but lord the pain. Father heal all reading tbis. I love her the man god molded fir her ❤😢😅😅❤❤❤👋👋💜👋👋👠👠

[@ruthmartinez4812]

Thanks for sharing Maria! I’m so nervous because I might have LUPuS!

[@tammiequales2207]

Wish I could connect with this woman

[@sinjinmonsoon9055]

I'm 59 with Lupus. 😢😢😢. I have so many symptoms. Sick all the time.

[@marcoriedamaso]

I'm a filipina 36yrs.a positive lupus😢😢😢

[@shakitashontajones]

I love her❤❤❤ Lupus is no joke.

[@jacklynapril4399]

Fellow lupus warrior! Xoxo

[@AresSevenn]

My mom got diagnosed with lupus at age 45, she was bed ridden for 6 months and no medicine could help her, she fasted for a while and over time it got better and she started an extremely healthy diet, now she is 50 and is perfectly normal and more flexible than a 30 year old, you are what you eat.

[@mariehoadley2075]

I have Lupus, Fibermyalgia, & Rheumatoid arthritis, they are all very painful, but I,m trying to coup.

[@LoveInParis4]

The husband part made me cry

[@abdulazizsani9100]

Your genuine contribution toward healing the sick shows how good you are at heart *dr omoh* , we are greatful for all you do @Dromoh. 😮

[@Ladylady-qc7rd]

Omg I got same symptoms

[@indubala608]

Same here mam

[@amzderdamn2064]

Finally diagnosed with lupus. I'm 30. 20 years of symptoms. They misdiagnosed me for 20 years

[@rahulmiya5496]

Dr Ewi1 on have the cure for it

[@lefromthecity]

Unfortunately I’ve known many people with Lupus, and for this who have passed…they haven’t lived past 50 years old. It just seems like their is no reason, it’s random and no cure. Just living with it until maybe one day one bad week it will take you smh

[@ronnieking3848]

My cousin who died from Lupus was 70.

[@tlkayaks8225]

My sister in law is 63 with lupus for over 30 + years. There's no expiration date on anyone's foot. Keep living and seeking joy.

[@moneemitchell1227]

I am 52 and still enduring this wretched disease. Prayers and positivity keep me going

[@user-nk5cl2un1l]

I was diagnosed with Lupus when I was 16. It's been 38 years. Now I'm 54. I also stop taking Medicine since 2 years ago

[@sydneyrogers9697]

I'm 70 and have had Lupus since 22. It's been a long road but I'm stable. It affects us all in different ways.

[@paulalobato5987]

What type of medicine helps for the pain

[@jazminvargas7942]

I was diagnosed skin lupus in 1995 . I have been in pain , thyroid problems and I feel like killing my self sometimes. And I don’t know if I’m not good at communicating with my doctor. I don’t know !!!

[@cry3090]

Im in the process of getting tested for lupus

[@shihtzuwhisperer9069]

Anyone heard of Dr Brooke Goldner. A physician with Lupus. Her protocol has helped my friend with Lupus. Good luck to all of you!

[@megramos2888]

I'm trying so hard to get out of bed today Ihave four children and I can't get up. It's all I want to do.

[@ashleygary1724]

I’m glad I found you here on KZbin Doc Kham. Curing me from herpes is something I never imagined. I’m so excited to be cured!.

[@sydneyrogers9697]

Getting out of bed is the hardest part and staying out is harder. You just want to crawl back in again.

[@kasmaineheyoka540]

Dealing with flare up right now. It’s been a tough weekend and trying to hold a straight face in front of my children. I’m worried I may lose my job because of this crap. I feel like have the flu.

[@hippiepisces9745]

they’re checking me for lupus and MS. i’m only 35, mom of 3

[@Aliciae2009]

I am.have trouble getting it diagnosed 😢

[@pixpusha]

I came here to say Lupus is not understandable. No rhyme or reason to Lupus symptoms. Pretty much anything can happen. Anything.

[@melroseortega5399]

Hi Tucson!

[@OutOfOrder4Good]

I have lupus. Before being diagnosed I'd been in the hospital more times than I can count. I take 20mg Prednisone every three to four days and that knocks out the fatigue but the pain not so much. Thanks to the good ole opioid crisis that really isnt a crisis thats really a bunch of bull. I take kratom capsules for pain and that helps. Its a struggle daily with flare ups. The main thing I know about being a man with lupus is I passed the blood test but still have all the symptoms. Legs itch out of the shower, arms hurt so bad I use compression sleeves, fatigue that can last for two weeks, red face, fingertips change color, phantom pain that hops around, etc. I just have to remind myself there's no cure. When I have bad days, I look forward to the good. 😊

[@diamondrose3242]

I was crying to my sister when I'd seen the positive test results. I've watched my father die from lupus and I've always dreamed of being a mother and carrying a baby at least once. Maria had given me so much hope that it doesn't feel like all is lost. Thank you warriors.

[@kiwioutlaw]

You fight everyday with this disease. Hoping today is a better day.