What is Brain Fluid Leak? Symptoms and Treatment for CSF Leak

[@SchizophrenicGamer]

"the patients often know better than the physicians that there's something not quite right" Oh how I wish more doctors took this approach, the world would be a much healthier place.

[@latishiabedwards1423]

Going into a Doctors office looking for care, empathy, and the desire to listen is becoming a joke. If I don't need ER I'm not going to the Doctor bc it's an expensive waste of time.

[@Ur.MomfAg]

Yup

[@Yahootie]

I had one specialist doctor that kept checking himself out in the mirror most of the entire visit. Another did surgery on me without telling me i had a bladder infection. I damn near died. Another one told my mother that she would have one baby, she had twins. I can keep going, i have several crazy doctor stories. AVOID THEM IF YOU CAN!

[@andersonb.cardoso3196]

Agree 100 %

[@andersonb.cardoso3196]

I agree 100%

[@meno4054]

I just got diagnosed with this. I've had it since I broke my nose in 7th grade. It has never been dealt with by a doctor. They always brushed me off and said it was my sinuses. I am 43. I have terrible migraines, clear fluid leaking from my left nostril, light sensitivity, vertigo, and neck pain. But I have always just dealt with it. I just had it confirmed.

[@lasvegashula]

Wow! And no infection. So sorry it wasn’t caught early. How miserable to live with symptoms. My 21 year old son had all those symptoms for 4 months and was brushed off, not tested for meningitis. Started with Valley Fever, fungal crept in to his brain. Caught in Tempe, Arizona. Treated the obvious symptoms like cough, pneumonia and what you had. He moved back home to Vegas. The final doctor ruled it as depression…. and a month later it caused paralysis, and worser things.

[@rudetoy8264]

Good man! Congrats to you for understanding where’s your headache came from😊

[@ChanakaPalliyaguru]

She seems to be a doctor who wants to care before cure. Very well explained. Thank you!

[@prettymessedup7644]

This was a scary, yet great video. Was easy to understand and super informative. I have had so many just strange and random symptoms that can easily be written off and are because of how benign they can appear. I'm terrified because I know something is wrong but yet have only gotten the feeling that most doctors will just label me as having anxiety and have actually been told that I should try therapy.

[@jessicaross323]

@Searching 4 a cure are you better

[@nmg6248]

Did you ever get help or get better?

[@prettymessedup7644]

You wouldnt believe.......i found out I have HEART FAILURE! And it onky took years to get a diagnosis.

[@nmg6248]

@@prettymessedup7644 oh my goodness I believe it! Can I ask if you have congestive heart failure or left-sided (diastolic) heart failure?

[@nmg6248]

@@prettymessedup7644 It’s incredible how bad most of our medical system is and how long it takes to figure out symptoms that should be treated as extremely serious. The reason I’m asking is I do have a CSF leak and left-sided heart failure from Dysautonomia caused by the CSF leak (it’s complicated)

[@bodyofhope]

For those who have nasal dripping, and are concerned it could be CSF leak- there are other symptoms that go along with CSF leaks. Dizziness, Vertigo, vision blurring, severe headaches when upright, falling over/losing balance, ears ringing, tingling in hands & feet. It's a debilitating condition, so you will be ill. Check that you get enough vitamin B & B12 in your diet. Best of luck!

[@auraios820]

Thank you I’m currently freaking out and crying

[@teddlynsterling641]

Thanks because I was getting really worried.

[@lynpatricia6854]

Thanks for sharing that's a relief to me.

[@faisalmansoor2185]

@@auraios820 are you okay bro?

[@MrChase115]

Oh shit ! The dizziness, vertigo, tingling in hands, all that has been going on for a while now. I thought it had something to do with alcoholism. But tonight my right nostril started leaking a yellow fluid which led me to look it up, finding this video and ultimately this comment.

[@alancarlyon340]

Months ago I noticed my nose leaking just on the right hand side of my nose, so I went to the Doctor who gave me a spray and asked me to call back if it did not clear, that was 4 weeks ago, my appointment is this Thursday! Appointments for to See a Doctor here in Scotland in around 3 too 4 weeks! You are right, I knew something was not right, because my nose never leeks! Thank you so much for assuring me! I have not been in any accident or had surgery, I am 73 years of age, a carer for my wife, I am active every day - 10.000 too 30.000 steps a day! Thank you so much! Take care!!

[@SleeplessNSeattle]

THIS WORKS-- It struck me that one of you mentioned a cracking sound, because I also hear that when trying to get CSF out of my ears! I have a Chiari Malformation Type 1 which causes compression to the brainstem and blocks CSF from draining properly at times. That causes Intracranial Hypertension which gives me nasty compression headaches, but also, has caused my dura to expand and thin like an old balloon. But I have had leaks before, that I HAVE BEEN ABLE TO STOP at home, using the advice of my neurologist. If you get pounding headaches that seem to improve with leaking, here's what to do: My first spontaneous leak happened the day after stepping off a plane from Madrid. I don't know if flying (pressure changes) had anything to do with it, or maybe it was the fact that I wore myself out every day of the trip? But I bent over to eat and felt like I had a sudden nosebleed, but it was clear. My neurologist said one simple way to test that fluid, is to use a glucose test strip, since CSF is richer in glucose. You CANNOT use the glucose strips for testing blood. They must be the kind made for testing urine. The test strips are wide and on a kind of bendy, but sharp plastic. For comfort, and to triple the number of tests available, I cut each strip into thirds, lengthwise, with a very clean pair of scissors. (You don't want to contaminate the strips, giving you falls results.) The testing area is only on one end. This gives you 3 thin strips. Wait until fluid collects in your OUTER EAR to test. Don't shove that bad boy into your ear canal!! For the nose leaks, just use the strip directly on the fluid. Then watch to see if the color changes. The test strip bottle shows the colors for positive and negative. A POS reaction does not insure it's CSF, but if you do it a few times with NEG reactions each time, it is NOT CSF. It's just a preliminary test. If the leaked liquid came out positive: Take a caffeine pill, first thing in the AM and a diuretic (reduces excess fluid in the body) and lay flat. Stay in bed flat! Take another caffeine pill with lunch. The caffeine constricts blood vessels. The two over-the-counter drugs together, with as little upright activity as possible for 3-5 days will often allow the body to heal itself, while there is less pressure on the dura. Then, try not to strain in any way for at least a week. I've used this approach 3 or 4 times and it worked like a charm the first 3 times. But my unique health problems have made my dura very easy to spring a leak. I have been leaking out my ears and occasionally out my nose for 3 years now. My neurologist knows that my Chiari condition can often get worse with a lumbar puncture, and I really need a decompression (brain surgery) worse, to stop the myriad of problems in body functioning, that happen when your brain stem isn't happy. I'm dying anyway though, since I also have progressive Mitochondrial Disease which worsens with any illness or stress to the body, so no more surgeries for me. Anyway, to keep this leaking problem from worsening for these last 3 years, without any surgical patches, my neurologist keeps me on Diamox, which reduces the amount of CSF (and lowers the risk of springing new leaks.) The biggest concern with leaking is that if the CSF can cross the blood/brain barrier to get out of your skull, then there is a higher risk of pathogens finding a way into your skull. Contracting meningitis, for example, can be fatal. I have gotten a vaccine to help protect me from that happening, so for me, we've pretty much covered all we can. I think of the leaking as just a nuisance. I hope my experiences will help someone else!

[@KaRiNa-pj9sb]

Thanks Kay, I had it happened to me twice today. I thought it was a nose bleed but just water dripping out of my nose. Hope this message find you well. I will be making an appointment.

[@TheSilkyPink]

This was very informative, thank you so much for sharing. I really hope you are doing well! 🙏

[@diegog2679]

Hope you are doing good bro

[@kortneyterry6875]

I'm so glad I seen this !! I have Chiari as well . I have not been decompressed . But I believe I have a cfs leak ! . Iv been on a diuretic for other reasons but currently I am not taking them . And the leaking has started again ! . This makes perfect sense! I have not spoke to my doctor about this leak issue yet .

[@mattscott6591]

I had brain surgery to takeout meningioma a year ago. Went to Disney and got off a ride that gave me like a whiplash, clear fluid dropped from left side of nose but quickly resolved. It happened again yesterday but again, quickly resolved. I might try that glucose strip test thing

[@pearlyone1]

Thank you Dr. Luong for a very concise and easy to understand education about Cerebrocele. You've covered the topic from start to finish and in a very clear way.

[@CaroleMinxBlanton]

My Name what about a leak not from the brain but due to Spurs sticking into your spinal cord? Yes I have a leak. The headaches. It's in my lumbar therefore my legs go numb it's hard to walk. But getting up becomes a literal headache from Hades. I'm suppose to see a local surgeon next month. He refused to do my cervical fusion and made me wait a yr where it got worse, now I'm disabled. I worked in ICU as a RRT,ACLS. I had to get another surgeon to do the cervical fusion. Don't you understand just becuz am MRI says one thing, and you do surgery you'll find things are actually worse than what the scan showed. It's happened in every patient I had in the unit and to me and several friends all retired from the medical field. We know our bodies. But yet there are Drs that ignore our voices in the matter. What's can I do to get it to stop? I'm laying, if reclined I get a headache if standing out trying to sit. Even laying it takes it time for the headache too go away. What else can I do?

[@skellibones2233]

Health anxiety anyone ?

[@rubberneckk]

SkelliBones 223 yep! 😅

[@palwashaymirza5973]

yess

[@Jacobbradshaw]

YES MEEEEE I think I have every issue

[@mariahbennett1533]

Yup im scared

[@Default6476]

Me

[@nowhereman5640]

I've had this for over 2 years, and I had no idea this condition existed. Two wrong diagnoses, never a mention of CSF. For a time I gave up, then search the internet finally entered my leaking brain. "nose runs with clear fluid" brought many results for this surprising ailment. I researched and learned it's treatable. Thanks for your info Dr. Luong

[@pinakgaur1657]

from how years u have this csf problem,,?

[@jameswong7712]

Do u have to do surgery

[@kavyas5209]

Guys I know, how it feels to have these kinda health issues. I would like to tell u all something. Pls do not ignore any kinda symptoms. Don't get anxious. Go to a doctor n get treated as soon as possible. You're all in my prayers. 🙏 There's nothin tht we can't do. Everything is possible. Be positive n hv courage. Don't lose Hopes ♥️

[@Watermelon_Shuga]

This is actually common in patients with known and unknown connective tissue disorders such as Ehlers-Danlos Syndrome.

[@jesbro12]

I have just returned home after being told to get to Sydney for MRI, CT, blood tests and lumbar puncture after having a leak whilst I was asleep. I have had a perforated septum repair surgery earlier this year and had a Covid-19 test done which apparently pierced the lining causing the leak. I had migraines, neck and shoulder pain and felt sick plus clear fluid coming out of my right nostril.I am lucky that my ENT took me serious and had me travel 500 kms to be treated. He thinks the tear has repaired itself but am on heavy pain medication and have collect any fluid if it happens again. This explains a lot to me thank you.

[@RaulGonzalez-lb1ok]

The covid test messed my nose up feels like I have allergies now! Never have I felt like this!

[@teletoby7]

@@RaulGonzalez-lb1okdo you have any pain?

[@teletoby7]

So the swab caused your leak or the surgery you had? What symptoms did you have with your leak?

[@OoT_Link]

This happened to me back in May 2024 after I got a lumbar puncture at the ER. The day after I got the procedure , I would get really bad headaches whenever I stood up or even sat up. The only thing that relived 90% of the pain was lying flat on my back. When I told this to the Nurse she didn’t seem to know what the cause was. It was so bad I started vomiting if I stood up for more than 2 minutes. The back of my neck hurt & my lower back as well. It only took me 5 minutes on google to know what it was. I got into an argument with the nurse because she was being rude for no reason when I was in pain & she even refused my painkillers. I managed to leave AMA & after walking for 5-10 minutes I became dizzy & was vomiting & shaking outside. I called 911 & when the fire department came they were downplaying my symptoms & treating me like I was some drug addict. I told them I’m not going back to that hospital & they brought me to another. This hospital told me I was fine & was getting ready to discharge me. My phone was about to die & I was in no shape to drive. I had my friend pick me & I left before they discharged me to prevent being stranded at the hospital with no way home. My friend came & when I got home I suffered stuck in bed for 3 days. Symptoms didn’t improve at all. I was 99% sure I had a CFS leak & I needed a blood patch but I was scared to go to the hospital again. Luckily there was a different one not too far & I called the ambulance & went there. When I explained to the ER nurses & doctor what I was feeling & what I believed was the cause they didn’t question me at all , they brought me into this room & gave me a blood patch & I instantly felt better. I mean like the difference was night & day as soon as they injected my blood in my spinal cord where the leak was from the lumbar puncture & my blood formed a clot to seal the leak It was so relieving. Its crazy how I figured out within minutes what was wrong with me without no experience in the medical field & yet these 2 or 3 nurses I told of my symptoms didn’t seem to know. Or maybe they did but they just didn’t care. Either way people advocate for yourself. Health care workers may have degrees & experience etc but they are still humans at the end of the day & are far from perfect. 90% of the time we know our own bodies & know when something is wrong…

[@amyslingsby6947]

Mine leaked into my ear. I understand that is more rare, but it may be helpful to mention that there are other areas that can leak and what those symptoms can be. My surgical area was definitely not as accessible.

[@alancarlyon340]

Thank you so much, I will take this information to my Doctor, who is obviously not treating this leakage of mine!

[@KristinaMarie463]

I’m in west Texas I’m concerned about possibly having a slow csf leak. 2018 after my second lumbar fusion and laminectomy I had a large csf tear where I was taken back to surgery the next morning and a skin graft taken from my left thigh was used to patch that tear. A year later I was informed by one physician after an MRI of my lumbar back detected a considerable amount of fluid within L4-L5 area and the surgeon who performed my spine surgery said it was okay and nothing ever done about it shortly after this finding I began having multiple spontaneous nose drainage and other symptoms from headaches to vertigo and loss of feeling in my arms and hands. These episodes occurred every two weeks all occurred in the same way upon waking up in the mornings as soon as I stood up from bed the symptoms started and I was confused could not walk or talk I would have to lay down and every episode lasted for 24 hours not fully subsiding until the next morning. This lasted for 8-9 months. I had to have a third lumbar fusion in September 2020 after that surgery which was a 360 degree surgery I ironically had my last suspicious episode in November 2020. All of the physicians in my hometown did not know what I had or why these episodes were occurring I had numerous testing done and everything I had came back normal the mri’s and ct scans of the brain showed mild issues but according to these doctors nothing to warrant any problems. (Will these symptoms return? I recently had an abdominal MRI that detected mild fluid collection in the lumbar region). I am having chronic low back and hip pain still that is different pain from what I was experiencing before my last lumbar fusion.

[@j.mcconnell5260]

Hope your better. Whenever clear drip from one nostril. Taste it. If saltier than the ocean. That's CSF.

[@baileystruss7319]

Mentioning symptoms would be helpful.

[@starkdilemma4916]

This happened to me last night... Now I can add anxiety to my fear. Awesome.

[@AMANIOFFICIAL_]

are you still alive?👀

[@jointsecretary6183]

No reply means he's no more.​@@AMANIOFFICIAL_

[@lukemonk5565]

I've had a cranial leak for 3 years now and have only just managed to get taken seriously my the doctors. I finally saw a neurologist in October and had the MRI in January which confirmed a hole causing the leak from my left nostril. Now I have to wait for this pandemic to be over to have my surgery finally 🙏 I have a headache 6 days a week and spend at least 7 hours a day lying down due to the pain. This video is really informative, I wish I had found this years ago 🥰

[@jerezaalexj.6343]

Done surgery bro?

[@rikkatakanashi9249]

How the mri went?? MRI cisternography? Did they inject something in you back ?

[@lukemonk5565]

@@jerezaalexj.6343 Hey, sorry I’ve only just seen this comment. No I haven’t had surgery yet. I’m from the UK so because of COVID the wait time for surgery is longer now. I am going in for surgery to have mesh fitted to cover the hole and rib cartilage used to plug it.

[@lukemonk5565]

@@rikkatakanashi9249 The MRI went ok thanks. I’m still waiting for surgery and I’ve had another MRI since to keep an eye on it. I’ve also got a CT scan booked for next month to get a better look at it too. I didn’t have anything injected when I had it done, they managed to see it without luckily

[@rikkatakanashi9249]

@@lukemonk5565 all the best 🕊 I'm also waiting for my results 🤧

[@chillNinjaLowSkill]

Me: has runny nose, decides to google how to fix it. Google: Yeah, so you brain is leaking Me: 👁👄👁

[@nouvelleriche27]

Please cover the possibility of EDS in spontaneous cranial leak patients.

[@GrowingSmithsuPiNhEYAH]

It is the consistency that made me start to feel concerned...because it is so clear, but at times almost egg like, and almost seems to like to stay intact together...other times I have seen it so watery I can't lean over without grossing everyone out.

[@Txjane52011]

What wasn't said was that if you get an infection, it can go up the opening and get meningitis. That's the dangerous part to expedite fixing the leak. Thank you Dr. Luong. I wasn't told that the spinal tap would stay for a couple of days.

[@HamesTTFD]

This happened to me in school for the first time in my life. But it was so random, I had no trauma event happen to me in the past few months. But then it happened a second time but so one threw a hard object at my head and this time there was alot of fluid. So thanks for this information

[@esahm373]

Did you check with a physician? I would highly recommend doing a MRI.

[@Wildtooth-mg9sl]

I was just laughing and it started goining out of my nose out of no where

[@dreamzz25]

Same here, even after walking and after getting tired

[@Vipinzback]

Thank you mam Im a medical student in india And your videos really help me.. Thanks alote And plz keep posting these kinda videos

[@tgtmathsliku]

Vipin Tanwar hlo.. I'm from odisha. my right nose is always running. I have also taken medicines starting from homeopathic to aelopathic. BT these are of no use. what should I do? plz suggest

[@StaphanyVazquez]

This video was very informative about CSF. I am now 1000% that my friend will have a smooth surgery. She has the spontaneous CSF.

[@CuriousKidddd]

This started to me a couple of days ago and again a while ago. How's your friend?

[@Chowder6486]

I'm not a victim of car accident, head injury, tumor and sinusitis but when I lean forward my right nostril realises water like fluid and I have head ache.

[@muhammadmustafa7363]

Bro I'm also suffering from such a disease which u have....no car crash, no head injury, no tumor, no sinusitis...but when i lean .. my right nostril seem like fluid in it...

[@dicks.and.clicks.6509]

ME TOO MY MOM JUST THINKS I HAVE A RUNNY NOSE

[@ThePhoenixstar88]

Franz Peter Vitor a collagen disease such a Ehlers Danlos causes this

[@skkieeedeleon8561]

Y’all so like I hit my head really bad and my nose immediately started dripping when I stood up but I didn’t tell the hospital that...what y’all think I should do?

[@mahnoorkhattak6160]

There is a characteristic positional headache to it that is relieved on lying down n agggrevated on standing up in addition its not important that there must be a history of trauma theres alot of connecting symptoms that roots down from the cranial cavity to the nose n u might want to detect the site of leakage using a mri or ct for instance

[@pinescent1]

This is scary but helpful! I had it yesterday at 12 am

[@meghandawe1073]

I experienced this today, and I’m really hoping it’s just a sinus infection or allergies but I’ve never experienced this before and I’m slightly concerned lol

[@ashlymcnamara1876]

Did it go away?

[@steviebrock4368]

Just happened to me yesterday

[@VikramSingh-wb5kt]

@@steviebrock4368 we are all in the same boat. I had it 5 days back and my anxiety went through the roof.

[@doublethemoney]

@@steviebrock4368 do you get a headache when you stand up after lying down for a long period of time? And do you not like loud noises?

[@jonassandberg3573]

i have just had the flu and i’ve gotten a stuffy nose, hopefully its just that

[@seanbrody5669]

If it switches sides constantly does that mean its not a leak? I get allergies but the liquid is quite clear and watery.

[@photocop1959]

Same. It's happening to me

[@animallover8779]

It can switch I didn't leak from both nostrils until months later it can leak from one side or both and switch sides.

[@diana-nd5pq]

She is talking about CRANIAL CSF leaks. Then there is also spinal CSF leaks (which is what I suffer from.) Don't get the two confused 😊

[@rorolove7421]

sugarplumfairy how did u know u have spinal Csf leak ? Did u do any tests? Or any symptoms going on with it ?

[@zarikhan4256]

Is it dangerous

[@animallover8779]

@@zarikhan4256 if you get meningitis it's deadly and can kill you and leave you in a coma or Brian dead. Worst case scenario

[@nw7721]

Yes, I have had 13 blood patches

[@OoT_Link]

@@nw7721guess I got lucky. I only needed one patch & was instantly better after.

[@DillyDallyMa]

I experienced EXACTLY this in 2020. I had the symptoms for about 7 years and was told it was just a migraine and allergies. I had the migraines every single, dizziness, spots in my vision, photophobia, ringing in my ears.. In 2020, I started noticing the leak when I bent down or finished working out. Long story short, I had Idiopathic Intracranial Hypotension with a spontaneous encephalocele and of course CSF Rhinorrhea. I had no prior accident or injury, by the way. After all of the scans and MRIs, they found the encephalocele/hole located in my nasal cavity and saw some of the dura poking out. I had a repair in October of 2020, through my nose. It was successful, but I also had a lumbar drain because the CSF pressure was extremely high. The hole where the drain was never closed up and I had a leak for about a month. It was painful for my head. I had to go back a month later for an MRI on my back. They located the hole and did a epidural blood patch to insert and seal the hole. I had to lay on my back for 3 days.. I didn't find relief until after 3 weeks to a month. I was also on Diamox to keep the csf fluid pressure down, as a precaution. It was also to alleviate the thickness of the optic nerve in my left eye. I had some complications afterward, and I currently still deal with it. But this October will make 2 years since my surgery and I'm doing quite alright! Thanks for this video! This condition is commonly unheard of, so the video is much appreciated.

[@prashantgoel08]

Hi where you have surgery ?

[@DillyDallyMa]

@@prashantgoel08 Hi, I had my surgery at Mount Sinai in New York.

[@prashantgoel08]

@@DillyDallyMa Thank you, Hope all good now. I am observing running nose (in Single) since last 1 year , intermittent sneezing. Will got to Doctor for checkup. Please also share any other symptoms you faced before treatment. I am worried now 🙁

[@DillyDallyMa]

@@prashantgoel08 Thank you! It will be 3 years since the surgery on 10/27. I just have some irritations due to hoe the surgery was done (intranasal). What exactly is draining from your nose? Mucus or a watery clear fluid? I truly hope you are able to get it checked out.

[@fifalabibi6228]

I just had this and I thought I had a bloody nose at first and it run out like water it just happened just a few minutes to me but I never had brain surgery and as far as I know I never have hit my head to cause injury and I never had nose surgery or a brain tumor or any kind of operation done to my brain this is the first time this has ever happened to me that's why I looked it up online to see what caused it to happen because I don't have a cold and as far as I know my allergies are OK when my allergies do kick in that's when the pollen is out and flying through the air then it feels like I have a cold then I take allergy pills for that I am so glad I found you on KZbin and listened to your Channel now I think I will call my doctor and see what she says by any chance could seizures cause this also?

[@yourvlog7374]

i have head hit cause watery nose same like you first time and im totally ok after that!

[@kokildeb]

This is so well explained

[@tauresattauresa7137]

My friend had it after an epidural. The Docs fixed it by given her a transfusion into her spine. Her symptoms were a terrible headache after getting the epidural.

[@VignaSimp]

Shook my head violently several times last midnight due to anxiety on life and job finding, then I felt liquid in my nose. I feel like it's very slowly leaking through the back of my throat, but I can't confirm it because the amount was too little and there's no metallic taste. 20 hours passed and now I'm still feeling some (but too little to leak out from the nose) liquid inside my nose and the back of my throat. I'm so scared right now, hope it's not CSF leak and hope it goes away soon

[@michellecole7936]

How much more common are these leaks in patients with connective tissue disorders?

[@10littlebear]

Especially common with EDS..

[@homawahidi6980]

Thank you so much for the well explained information. I am experiencing this issue as we communicate. How much this cost? Do you refer a Doctor in California? Thank you

[@heinrichschoenke7568]

Hi, My name is Yasmin from Canada. I am very impressed by you educating us regarding CSF. I have a question, when the CSF is leaking behind the throat where does it go. I have been dealing with this from year 2010. In the beginning a lot of clear fluid was draining from my nose. QUESTION REALLY SUFFERING ALSO HAVE A CYST IN THE PINEAL GLAND 7MM WAS IN 2013 NO MRI TAKEN AFTER THAT GETTING A LOT OF PRESSURE IN MY HEAD AND THEN A GUSH OF THICK LIQUID BEHIND MY THROAT. I WILL REALLY APPRECIATE YOUR INPUT. HAVE HAD TOO MANY OPEN HANDED HEAD NECK AND SPINE INJURIES REPLY

[@flippybirdy3330]

How Are You Doing Now ?

[@susanmitchell9257]

Thank you very much for this info and how you explained it 😊

[@mila4078]

If it will help for someone... My daughter had csf leak from her born. She had leak from left nostril. 6 years all doctors told that it’s running nose, allergy, cold and something else. She had liquid from only one nostril, that liquid was so clear, no smell, solt. When she got meningitis she had mri and ct, and then they are diagnosed some cranial defect. Ent and neurosurgeon doctors repair that defect.

[@jeanbotha6538]

Mine also leaked on the left side today.. Also same description, no smell but mine was yellowish in colour

[@zubathabangladesh6016]

@@jeanbotha6538 hey dear, have any update? I have face this problem. 😥😥

[@ammrro]

I was sick in January and had Bartonella as well. I don't know if that's the cause, but lately...and lately as in 1 month or so....every time I lean over it leaks....i have to have napkins on me.

[@glynisr285]

What if the fluid is not coming down my nose....It's happening at the back and could be going down my throat? I do have phlegm in my throat area.

[@jayanthigrao]

Thank you so much for sharing your thoughts on this... Is it possible for you to speak about the leakage that happens through the ear, please!?🙏... I have a feeling that the discharge that happens from my left ear is the CSF...

[@MommaBearsCorner]

thank you. you explained this in great clear detail.

[@queen-ol4gi]

Just a few minutes ago (Yup I immediately went to Google and KZbin because I have anxiety) I had this liquid feeling on top of my head. I still have it now and it feels cold and I have a headache. I'm just really scared also I'm 13 by the way and I told my mom about it but she just said it was because of my phone or something :(.

[@gav668]

hey, first off, keep calm. obligatory not a doctor, just someone on the neuro ward for guess what keep your back and neck straight (avoid twisting or bending your spine), take acetaminophen/paracetamol and allow for it the appropriate amount of time for it ti take effect. is the headache better, worse, or the same? lay down, flat on your back with no pillow. is it better, worse, or the same? schedule a dr appointment asap to talk about symptoms and concerns, regardless. write everything down you can think of as a recent change before looking up symptoms if possible. start the conservative treatment whole awaiting that dr: bedrest with keeping a straight back, you've got three approved positions basically: on your back, on your side, in recovery position (ensure that your neck is straight and your head is no higher than your hips, which basically means little to no pillows), increase caffeine intake, increase hydration (at least 2-300mg caffeine, and 2litres of water). you should be upright as little as possible, including eating while lying down if you can navigate it. avoid straining in the restroom, take a stool softener if you need. this option is usually given one to three days to work to see if it works. if you can instigate the leak, do so and let it gently drip on something clean and white. if is a csf leak, it will form a halo of very light liquid (dries clear or almost clear) around a circle of blood. if you can instigate it readily (not many can as it can be too uncomfortable to continue, or there just isn't a large amount of fluid regardless), try collecting the liquid on a diabetic test strip. the proteins she talked about (the ones that also cause the halo), metabolise into sugars. this is less accurate than a halo stain, as there are a few things that metabolise similarly, but beta transferrin only occurs in csf. don't try to collect enough to test, 1) it's a lot and most people apparently don't have an active enough leak, and 2) testing things caught in nonstandard containers is a nightmare for pathology due to potential contamination. just stay on bed rest or as close to bedrest as possible, ideally trendelenburg (bed angled 15 to 30 with head down). keep your back/spine as stiff as possible, resisting twisting or bending. wait for neuro to take their sweet time with ordering the head and spine mri. if that doesn't show anything and you're neuro cannot produce an alternative diagnosis (which is not a simple diagnosis of exclusion) and support it with certain test results, then press them that mri/ct are not definitive, and plenty of leaks don't show. a ct myelogram is the gold standard for confirming a leak and finding placement. they'll want to go through the mri/ct of head and spine first though because a ct myelogram involves a lumbar puncture, which can cause a new leaks. opening pressure of lumbar puncture misses low volume (as opposed to high/low pressure) caused headaches and if you need to have a lumbar puncture for the opening pressure, you might as well collect the csf to test and run the ct myelogram.

[@zakiashad5411]

Excellent explanation!

[@deirdrestewart4394]

Been palmed of with nasal sprays since 2017 salt taste in mouth told them about the csf not one thing done cranial leak due to head trauma had experienced balance is awful. They tried to say it was vertigo think a person knows there own body my spinal area also effected went to an ent doc who staated it was a neuro issue living hell it effects daily activity fit for nothing they said post nasal drip mine been continuous headaches eye leaky sinus one side blocked due to see a neuro soon but from what i gather and was told nothing can be done been off balance since 2017 fluid pressure in ears muffled hearing woulnt wish it upon anyone but info on this vid helpful will indeed pass it on to neuro

[@AshFurAshFur]

Ik a KZbin comment section isn’t the place to put this but this is also the most helpful video I’ve seen on it; I’d gone to a weekend long metal festival and while in the mosh pit I’d been hit on the top of my head really hard, I’d refrained from doing anything strenuous for the rest of that day but later when I’d sat down to collect myself I’d suddenly had a whole bunch of fluid come out of my nose, steadily streaming and dripping, it was brownish orangish no doubt initially from blood but it was so watery, later when the festival was coming to an end I’d, excuse me for lack of a better term, snorted a blob of blood when breathing in through my nose really hard and spat it out, it wasn’t mucous of any kind but rather much more viscous almost jelly like, the days that followed I’d be dripping from my nose until a few weeks later it’d almost entirely stopped, the fluid draining to the back of the throat however I think is still super slight almost imperceptible and as the days go by I keep wondering if it’s actually draining anymore or ever did. The fear of it being a CSF leak though is unnerving to say the least

[@afiyaqureshi8351]

My best friend had this for years and she died recently. She would stuff bits of clothes in her nostrils to soak it up while she slept because the flow was so much.

[@soprotivleniye7620]

Why did she die?

[@afiyaqureshi8351]

@@soprotivleniye7620 She had a brain aneurysm.

[@soprotivleniye7620]

@@afiyaqureshi8351 I see. I am sorry.

[@afiyaqureshi8351]

@@soprotivleniye7620 It's alright. She suffered a lot in her final days. She slipped into a coma. I wish she had heeded her doctor's advice and gotten surgery at the right time when it was diagnosed.

[@soprotivleniye7620]

@@afiyaqureshi8351 So how did the CSF leakage lead to an aneurism?

[@Blairpark]

I am surprised that she focuses almost only on leaks around the skull. They can also be from the spinal canal as far down as the lumbar region.

[@愛-t9w]

I get these often for seemingly no reason. Always paired with a pressure headache.

[@sissy1979x]

Do you gave regular eye exams? Ever have any visual disturbances like spots or flashes of darkness?

[@liamharrington1169]

Go to the doctor!

[@tomsaywer9883]

@@sissy1979x Had darkness, went away on its own.

[@bobbiquezada397]

Did you figure out what it was ??? Having this now

[@RenaPainter]

I’m like 1000% sure this is what’s causing my migraines right now

[@rajkamalrevathy3768]

Hi Doctor, My husband underwent endoscopic CSF leak repair along with Septoplasty on July 19, 2017 through his right nostril. As the exact location of the leak was not found, based on the presumptions, doctor sealed the soft areas from where the leak was most likely to occur. He found his right nostril wet and recently he got fluid discharge through his left nostril (nearly 8 drops). My question here is, would the leak sealed on the right side can recur in his left side? If so, should he go for another surgery or wait for it to heal by itself. He underwent a great pain in his previous surgery due to the lumbar drain and also find his head heavy as the exact place of leak was not sealed but had many layers of the tissues and muscles filled in the approximate place of leak. Please let us know what to do further. Thanks REVATHY

[@AlishaSharma-xi3oy]

What's the name of the Hospital ?

[@Scorpioncactusflower]

First off, get a new surgeon, preferably an actual ENT surgeon. Second, ask how they intend to find the leak. If they don't say how, find another surgeon. The way they SHOULD do it is to clean and dry the sinus cavity, inject a fluorescent dye into your husband's CSF via his spine, then use a tilt table to tilt him head-down. They should have, basically, a tiny suction tube and a tiny camera with a tiny special light attached. They suction fluid until the fluorescent stuff starts coming out, and there it is~ Then, what they SHOULD have done was used the excess tissue from his septoplasty to plug the hole, because it would take and scar more easily. I had that exact same procedure done, just on the left side. If you still need an ENT surgeon and are okay with travel, let me know. I'll recommend you to mine.

[@iindamonegan890]

Thanks for the information! A private hospital won't do this surgery on someone I know because they want $10,800 we have all but $900 & they are refusing to do the surgery?! Micro General Phychatric Home in San Francisco, CA!

[@OxysLokiMoros]

is at possible to fly with an liquorcanal damage, liquorunderpressuere/spinal fluid leak syndrom(not postpuncture) ? and is it possible to fly with this syndrom and a subdural hämatoma caused by liquorunderpressure?

[@TrueTags201]

Thankyou Doctor for this useful information. I just want to know, Is that a surgery without any cut and stitches on face or head?? Is it a safe surgery ? How long that surgery goes? And what is recovery time? Thanks 🙏

[@FaizanMulla]

Even after surgery it's not guaranteed that it will not starts again. Because csf pressure is not normalised

[@nowhereman5640]

She did say that it's through the nose. No cuts or stitches. Only if brain surgery is required in rare cases.

[@asadsheikh5713]

my mother has been diagnosed with CSF leak she got this Leak 3 years before we tried to cover this with the help of medicines but all in vain now doctor has suggested the surgery we are so terrified of this surgery because in Pakistan doctors are not experienced for such cases ... they know nothing about the endoscopic surgery but i know that she could cover this with the help of conservative management but here in Pakistan doctors don't even know about lumber drain and all those managements before recommending surgery feeling totally helpless .. don't know what to do ... i love her so much .. i don't want her to become an experiment for the doctors ... if you can help us please guide us ...

[@jerrystewart9795]

Asad Sheikh Believe in GOD and JESUS with faith. I will put your mother in prayer. Have a bless day.God bless.

[@shereehardin5783]

hope things are ok

[@fashionincollection946]

I m suffering same problem.Allah apki mother ko or mujh ko sehat dy.Ameen. ap ny Kahan sy checkup krwaya hy. Or konsa test krwaya.

[@asadsheikh5713]

@@fashionincollection946 beta 2 transferrin for csf, Kisi abhi achi laboratory say krwa sakty hain !!

[@successisinyoupolishyourse9888]

Same this condition with my mother . Where u went for surgery . Kindly tell us. We are also from Pakistan

[@tripleccc123]

I have all of the symptoms and my mom won’t get me help. It stops me from having a stable job because being upright for longer than an hour causes migraines, vertigo, overheating and intense crackling in my ears. The “crackling” is always present, but the head pressure is even worse when I’m active. I’ve been abusing anti-histamines every day for 3 years and taken multiple rounds of anti-biotics because of my non-stop sinus issues. I’m practically bedridden because laying down is the only way to reduce these symptoms. If anyone sees this, please pray for me.

[@Stephen-jj8nc]

Me too I straight up have all the symptoms and a few days ago was an eye blur, but my ears arent cracking thats the only part, been leaking white substance from my left nose for few days now, idk if. I should goto the doctor. They always iust tell me i m googling too much. I feel they would just sent me straight home. The pressure on my head is really painful and even time i lean towards a side the liquid starts flowing idk if i m being a sped and too anxious or what but i dont feel ok at all. Quick question wondering if u know if this csf leaking thing have a cure and is it possible to fully cure from it, or will be there longterm

[@divinelyraven7759]

@@Stephen-jj8nc hey it’s a emergency I’m dealing with the same thing did u ever find out what happen?r u ok?

[@Oo7Hola]

I have had These Symptoms

[@ItalianStallion761]

I tired to have one today but couldn’t go through MRI. Once they put thing over ur head and locks in place you can’t move your head and anxiety came on and I couldn’t do it 😢

[@deth2allbutmetal74]

I have Ehlers Danlos Syndrome and I have Intracranial hypertension.

[@carroll213]

Do you mean HYPERtension (increased pressure) or HYPOtension (low pressure) in your case? Spontaneous csf leaks resulting in csf HYPOtension are more common in people with connective tissue disorders like Marfan's and Ehlers Danlos. If the constellation of findings of positional headache (search the internet and KZbin) matches your problem, you.should have your doctors follow up.

[@mbmbkb3]

I also have EDS and hypertension too. I've been leaking from my nose for 4 years. I also have chiari malformation.

[@B_B_Wes]

@@mbmbkb3 I know this is a bit later, but did you do a follow up on this? My understanding is chiari malformation is a large risk factor for CSF leaks and if you've had drainage for 4 years it sounds concerning.

[@bret9741]

For the past 2 years I’ve been having a constant fluid filling up my left earn drum. I have can feel fluid leaking down by throat and it’s perfect clear and tastes like saline. I’ve tried every spray and allergy tablet and steroid possible. I’ve taken steroids orally for a week at a time and still my ear fills up. My doctor asked me to capture some that runs out of my left nostril but it’s always just a drop or two that I can capture. I just pinched my nose and forced air into the eardrum and then the fluid began draining. I feel like I get about 30-40% out when I work at it but it quickly fills back up. I’m due to get ear drains next week. I’m hoping it will be easier to capture and sample some of the fluid. I have a headache all the time, mild. I can’t hear well with fluid in the left ear. I’m sleepy all the time. I can get 10 hours of sleep and end up taking 2 hour nap at lunch.. I dont feel like anyone is taking this issue seriously… it’s just “you have allergies”. Well. I’ve never had alerts except in spring. This never ends even with medication. In 2009 I had to have maxillomandibular extensions. The doctors forgot to put the screws into the upper plates in my sinuses. The upper surgery failed and slipped back. For the next year I had to wear headgear and braces to try and hold the upper jaw and lower sinuses in place. It pretty much fused up but in 2010 I ended up with a terrible infection where the loose metal hardware was near my sinuses. The infection ate away a lot of bone and tissue. The doctor who fixed took 8-9 hours. When done he said… you lost a lot of bone. All we could do was stretch the skin and sow it over the abscess. I’m wondering if the bone was weakened n

[@timwirshing9923]

I had an incident last weekend where I had a light burning in the back of the throat, followed by drainage and a distinctive metallic taste, a few hours later I was suffering from the worst migraine I have ever had, aches, chills, light sensitivity, seeing a haze around everything, confusion, nausea, a stiff neck and upper shoulders, and most of the symptoms disappeared while laying down. I should have gone to the doctors then, but I was stubborn. After two days all of the symptoms were lessened and today they are completely gone. I think I had a spontaneous leak, but the time I had the symptoms were really short and the drainage seems to have stopped on its own. Any opinions on if this was a CSF leak, and if it could have been, is there any cause for alarm if the symptoms and drainage has stopped?

[@EllenCPickle]

I have been experiencing this with also dripping in my head, I thought I was crazy until I saw this video. Now if my dr will listen to me, I do know I have a deviated Septum I was born with. Will see what dr says!

[@marygreene8681]

I have all the symptoms of a spinal fluid leak. A c.t .scan with contrast did not pick up a leak but there were some irregularities with my spine so a blood patch was done. I have been suffering with constant headaches for over two years now. I dont have nasal leaking but the headache intensifies when I lean forward, stand up, and sneeze or cough. Nothing has been decided as the next step, but it will probably be another c t scan and blood patches. I have lost more than two years of my life with no real cure in sight. Y E

[@mattbloom1004]

How are you doing now? My brother thinks he has this? But dr keeps telling him the run around

[@sharibrown4561]

Please look into Chiari Malformation

[@DoorDashers791]

I have multiple sclerosis since 2003. I have these symptoms

[@sh-sr1xs]

I have this and my doctor thinks im crazy when i tell him i can feel the fluid running in my head down my throat, out my eyes, and nose. It happened to me after i went to chiropractor and got an adjustment. Its hard to keep a job or do my job because any kind of straining triggers it and it makes me feel weak and woozy. I just fight through it and hope one day it heals but i cant stop working i have a wife and lots of kids and a student loan to pay. I wish there was some help for me and my doctor would take me serious. Even sitting or standing for long periods of time triggers it he thinks its nerves. I know its fluids. I feel it and taste it and see it. I want to cry hearing you say all things things because I am not a physician but i have come to the conclusion of everything you said on my own. After the leak happened and received no help from the er or Doctors started experimenting on myself to see what was going on. I noticed lifting things triggered it. Then i noticed eating too much also triggered it so i said ok when there is too much pressure on my spine the leak in my head is triggered so if i ate less and didn't lift anything i was ok. But how can i live this way? I must lift things to work and i have to eat to get energy. Help me!!! My doctor has no idea what my problem is and i do.

[@DillyDallyMa]

When you lift or over exert yourself, it can start the leak. Mine happened that way and came out of my nose. Keep doing your research and looking for doctors that actually care about the patient and not $$$$. I hope you find relief and an answer!

[@sh-sr1xs]

@@DillyDallyMa Thank you. Has your leak gotten better?

[@DillyDallyMa]

@@sh-sr1xs Yes. I had a CSF Rhinorrhea repair. I was also on a medication to bring the pressure of the fluid down.

[@sh-sr1xs]

@@DillyDallyMa O wow that's amazing. Im glad you were able to get better.

[@DillyDallyMa]

@@sh-sr1xs Me too! But I really urge you to get 2nd, 3rd and even 4th opinions if your current doctor isn't helping and your status isn't improving. Where are you located?

[@ruthsheehan6225]

My son says that the frequencies , emf, pulse modulation changes in barametric pressures, would most likely create pressure in the cranial cavity.

[@ionelayony5480]

From 3 weeks a water like clear fluid runs down my nose when I bend down. Even sometimes when I sit idle, it happens mostly from my left nostril . I feel a disturbance on the right side of my head, a salty taste in my mouth and slightly dizziness. I haven’t had any head injuries and it happens all for sadden 🤷🏼‍♀️ I went to A&E but they wasn’t able to gave me a diagnostic.

[@amberluong3465]

I would follow up with an Ear Nose and Throat specialist.

[@Baltazar921]

That hapens to me 3 years but i dont have migrens and dizzzines any simptoms!

[@jewelsirene]

Hi Ionela, any update on this was it CSF fluid? I am having the same thing happen to me when I bent over a couple times watery fluid came out of my nose. Please let me know thank you

[@trishalandry5124]

I have had CSF leaks twice. Both times mine leaked out of my left ear not my nose. Now I have it happening again this will make a 3rd surgery for this.

[@merelw98]

I'm so scared, severe headache for days, almost unbearable when I go from lying to standing position. now suddenly a puddle of transparent fluid fell from my nose, it does not continue to leak but a whole puddle came at once. I know this isn't snot..

[@Stephen-jj8nc]

Did you get a check in at the doctors yet, any update

[@AchrafChakri-g3]

Any updates?

[@lindajdalton9184]

I was recently diagnosed with Meningiomas (benign mass) I had covid and was left with ear ringing. It feels like it is constantly filling up with fluid. The only way to relieve this is to lay my head on the left side. I feel the fluid moving and feels highly congested. I've gone to a couple of doctors and all they suggest is OTC remedies which don't work. I had symptoms of being lightheaded and feeling off balance. Is it meningiomas or is it CSF leakage gone undetected. Is it from long COVID? I just don't know what to think?

[@egarcia1139]

Can ur eye and back of ear hurt. I feel water on the back of my neck and ear/side of head

[@pavangurnani5618]

Same

[@rudetoy8264]

4:34 as a patient, my increase in intracranial pressure triggered by stuffy nose and coughing brought by seasonal allergy. Never have nasal surgery nor diagnose of brain tumor, this sudden onset of regional headache, nausea, and slight blur vision are from cerebrospinal spinal fluid leaks. Sure, the symptom can be alleviated by Advil, or rest lying down, but lots of fluid and lots of coffee will do the trick.

[@unsocialbish7432]

Today I woke up with an extremely stuffy nose. I kept trying to blow my nose but then soon later in the day this clear liquid started to leak out of my left nostril. I didn’t think much of it and out of curiosity I googled it. After reading trough a few articles I’m kind of scared??? I don’t have any tumours of stuff like that and it’s the first time I’m getting this so I’m not sure if it’s spontaneous. Help?

[@Shehasskills]

I'm dealing with that now, did you end up ok?

[@naimadahmani2388]

same

[@sigmaswan2969]

Same

[@roxyreallife8257]

This has been happening to me for the past four years it’s happening right now while I’m watching this

[@joella64]

I had surgery for this 2 days ago. Head needs to be kept at 30 degree angle. Excruciating headache along with severe congestion. Advised to use saline solution in nose as often as I can tolerate it. This helps clear out the mucous and blood from nose. I cannot life anything over 15 pounds, no bending, no strenuous activity, avoid constipation and anything that causes pressure.

[@AlishaSharma-xi3oy]

Can you please share your experience ! My mom is going for surgery in two days and I'm very much tensed and she's too. She feel good and courageous if you'll share your experience 🙏🏻 please.

[@joella64]

@@AlishaSharma-xi3oy My first surgery, to me, went smoothly. One thing I was not told that I would lose my sense of smell. Post surgery, I had some gauze under my nose to collect the drainage. No nasal pain but I had a very bad headache- worst ever. Doctor kept me overnight to treat headache. I went home (headache was gone), and as stated before no bending, lifting, straining. I had to take a laxative daily to prevent the straining associated with constipation. For 6 weeks I had to rinse my nose with saline solution to aid the large scabs from the surgery to exit my nose. Had check up and was released by doctor.

[@AlishaSharma-xi3oy]

@@joella64 before surgery what kind of tests you underwent. And what are the warnings that doctor gave before operating surgery?

[@joella64]

@@AlishaSharma-xi3oy Before surgery, the fluid in my nose was tested and showed beta-2 tranferrin whick is only found in cerebral spinal fluid. I had a MRI without contrast with high resolution coronal T2 imaging to better evaluate brain and meninges. My first doctor was great. He sat me down and explained and showed me where the leak was on the MRI, his plan for closing the leak. After surgery, I had another MRI to see if the fluid was no longer in places where it should not have been.

[@AlishaSharma-xi3oy]

@@joella64 my mom is just operated. She's not talking properly yet. She's just saying "she's in pain". How long it'll take you to get normal? After surgery how they treated you? When did your pain reduced?

[@robloxianmafia3084]

I Fell From Like 11-12 Feet And I've Now Been Having This Problem Very Frequent.

[@angelobabys2k]

I’m in the ER right now, cause I think this is what I have. Head is pounding on the right side and little bit towards the left side too, light headed, I feel very very dizzy & a uncomfortable feeling. When my head is tilted a certain way, it starts to leak yellow & the texture is like if you have a runny nose from a cold/flu. And lastly, when I blow my nose, big pieces/chunks of it comes out & I tried without a napkin & blew straight into the sink & it looked like a Lugy. A giant yellow lugy. As in typing this, my head is killin me & I can barely keep my eyes open.. The wife is tryin to keep me up, but it’s not easy.. Plz guys, a little prayer for me or something. I’m scared cuz of the symptoms & things it’s saying it can happen it not treated properly. I’ve been having off and on these headaches for weeks/Months. But, I’m terrified now cuz how the yellow leakage happened last night. (I’m sorry for the long message guys, I’m just scared)

[@HEAVENSLIGHT1234]

Praying for you...youre not alone...i am experiencing d same things...cant turn my head cant bend...keep going to d doctor cause I have imense prwssure on my head...eyes burning nose burning sensation like its on fire..im just miserable have no balance..dizzy migrains on a daily basis...and still dont have any answers so I want to see a neurologist..went to d er with rapid heart rate.and feeling like my heart coming out my chest can't stand without a walker r get very far at all so when I tell you ..i know exactly what youre dealing with..they even told me oh its just sinuses infection...after being told this five times at least in a row everytime I come back for d same thing that keeps reoccurring..so I am at my wits end...fustrated for just feeling like I'm going in circles with a bunch of bills and still no answers so I came on to some videos that looked like I could get some answers and a least see what others that may have d same story as me...going through d same thing.

[@lekram169]

Praying for you 🙏🏼🙏🏼

[@Z-Ack]

So like a built in pressure relief valve.. if left untreated wouldnt the excess pressure just spirt out then the cavity heal up and reseal on its own.. i would think that before the pressure release, a pretty sizable cluster of headaches would be present.. but would also think the ocular nerve would be deformed as well causing eyesight issues or pressure on the back of the eye..

[@Chinita444]

I noticed clear water like fluid leaking out of my right nostril when i would bend forward to pickup something from the floor. It worried me because it was only my from right nostril and it happened 3x! Once a day for two days straight, and one last time about 3 days after. Its been about a month since my last episode. If it helps anyone...I had the flu from Nov. 13th to Nov. 23rd. The leaks happened 2 weeks later on December 7, 8 and 11. I also suffer from allergies and have nasal polyps, but I never drain/drip! That’s never a symptom for me. My doctor thinks it’s something that got left behind from the flu and not CSF. I hope this info helps someone sleep better at night, it’s not always CSF! :)

[@j45007]

Lily Bravo Thank you. happened to me today once, for about 30 secs. then it was gone. I did have the flu for 10 days and recovered about 2 weeks ago. I did freak out. maybe stress. i dont know.

[@Chinita444]

j45007 Hey! Yeah I do think it’s the flu, sounds like the exact same thing happened to me - this flu season has been pretty brutal

[@Chinita444]

Literally Felicity yes! it hasn’t happened since, it’s been 4mo no more episodes :)

[@joella64]

@Agustin Moscoso This is the best comment here. I have leaking from my right nostril for the past 2 years. Finally convinced my Humana physician to send me to an ENT. Fluid was tested and determined to be CSF fluid. Scheduled for an endoscopic repair tomorrow.

[@UnhingedVideos776]

Yes this makes sense as in December I had the flu so thanks for not making me worry.

[@RafeefKhalid-p5n]

My csf is going from my nose to throat how to collect it?? Could it be from mouth

[@Dave-901]

A simple glucose test on the fluid can tell you if its csf.

[@angiesolorio9077]

How do you check this ?

[@anandmadame9909]

Plsease tell how do we check this🙏

[@GlobalPrivateTruthWarrior]

We think our son may have a CSF Leak. But our insurance may not cover the cost of treatment. We've been fighting with our hospital for years for certain treatments. In fact, I personally have cancer but learned via searching the online MyCharts. There is something wrong with the medical world when a child is denied appropriate help, and when an adult finds out about cancer via his own searching of his Mycharts! Lower finances of patients should not mean they are ignored, left to suffer, and possibly die! A noble profession (medical professional) has been corrupted by the desire to generate high-profit margins at the expense of poorer patients.

[@AshknFX]

Today i got hit by the couch in the back of my head. And then water came out of my nose i thought it was blood. It's scary

[@andersonb.cardoso3196]

That could be CSF leak

[@cynthiastarzz9536]

This sounds similar to what happened to me yesterday I was picking up something from the floor and I forgot that my drawer was open and I got up and got hit on my back of the head when I touch my head I still feel some pain and my nose has been leaking that clear substance all day

[@AshknFX]

@@cynthiastarzz9536 for it was for like a few seconds and it stopped. I went to hospital and they said it's probably a mild concussion.

[@yourvlog7374]

yes same happened to me but im ok no symptoms its leaked when i hit not again is it something to worry?

[@AshknFX]

@@yourvlog7374 hopefully no. I went to the hospital and they said everything is ok. Maybe just a mild concussion

[@educationalfinancenewsmedi9682]

what a well constructed explanation, kudos

[@workstationjgc]

Yes i am suffering with CSF leak, after having sinus surgery, doctors didn't identify any leak, after two weeks it occurs again, I am from India, doctor what should I do? Regards Bikramjeet singh

[@sahverse]

Hey, How are you doing?

[@mha664]

Is there a non surgical treatment like Homeopathy or Ayurvedic. Do this treatment works .

[@loveKG26]

What about leaks into the ear? I have fluid there for over 10 yrs. Chalked up to be Eustachian tube block. My seizures are directly linked to this issue as I now know I for sure have chiari I checked my own MRI done 10 yrs ago. I LET THEM KNOW THROUGH A MESSAGE AT MY NEUROLOGIST’S OFFICE ASKING WHY IT WAS OVERLOOKED IN 2014 few yrs after I started having seizures. Wasted so many years sick my head pressure was immense my dizziness was immense I couldn’t even predict how fast I’d bring a cup of coffee to my lips I’d have to be extremely careful to not smash the glass mug against my teeth and mouth. I’m happy I got relief and haven’t went back to as worse as I once was. I’d never use and implanted draining systems other ways are possible. Chiari surgery leak patches tethered cord operations. My ear was so full for yrs before my head became worse. Steroids and antibiotics helped I think woke one day with all the pressure gone dizziness gone. I still get no proper answers or investigation into what’s happening. Another MRI next summer maybe I still will be here but losing weight and looking sick so I’m off to my next level at 35 I predict I have less than 10 yrs to go. My chiari is my brain squished into my spinal canal…… Simple overlooked and not given a simple care by any. So why should I give any care? Might just stop using the epilepsy meds and let it all take me. I cannot even get a simple massage fr anyone I’m tense in my neck and jaw all the time.

[@Super.great198]

There is clear liquid coming out of my nose has going on for a long time plus its only on my left side

[@Anaxxo]

and did it stop ? first day for me , 2 times !

[@cinnamongirlny]

I've had it since middle of December... every.single.day.all.the.time. I'm thinking I should probably seek medical info on this. No cold, no cough, sneezing, nothing..just running constantly.

[@Yourlostcousin]

Mine is on the right side😭

[@babble2leeza]

I have Lupus and Relapsing polychondritis. Base of my skull burns all the time. Went to 2 dr's. Both said I have a buffalo hump and Lipoma on my neck. I think they should do an MRI. This lump grows and decreases throughout the day. If I put ice on it and lay down it is less painful and starts to get smaller. To sick to fight for help. My family just thinks it's a flare. I increased my prednisone from 5mg to 40mg. It did seem to help stop the lump from moving to the side and front of my neck. Don't know if I should continue to suffer for another month to see if pred works. This started in July 2015 it is now Jan 2016.

[@larisha4188]

This literally just started yesterday now I’m like 👁👄👁

[@ryanfeery4593]

do u feel like u can feel a leak i get this weird feeling like ive a leak in my head with headaches its weird

[@ervin7124]

@@ryanfeery4593 same my mouth

[@biscotti4017]

dont get a fucking covid long swab thats what did it for me. Stupid doctors with 0 experience

[@ron3557]

@@biscotti4017 they did it to me but i felt weird after like 3 months Strange

[@biscotti4017]

@@ron3557 same i still cant smell dude

[@cecilysam]

Great video. Could a nasal balloon which was used to stop an epistaxis cause a brain fluid leak?

[@yack8947]

Just realized I had this bit I don't anymore

[@shawnad7165]

I have Pseudotumor Cerebri and have had CSF leak. Do you find more patients with this condition with csf leaks?

[@yogeshd9131]

ShawnaD716 my num 7010138988 pls help me ya

[@shawnad7165]

There is a Face Book page that I am on that helps.. We all have it in the group. Go here ~> pseudotumor cerebri/intracranial hypertension

[@deepsleepchannel8696]

Brilliant knowledge ...👍 Indian doctors never take tension coz they have "antibiotics+nasal spray" .

[@chakkakon]

I was brutally beaten and gang raped. My fluid started leaking out of my ears (drenched pillow) and nose within the week. That was 5 years ago. I just figured this out yesterday!! ALL my newer medical problems now make sense. This was done by people who are very well versed in the medical community.

[@synthiasimms4608]

So sorry 😒!God Bless!🙏

[@faizmudassir]

How did ur water ear got cured .......