UVB Light Therapy for MS with Kathy Reagan Young and John MacMahon - MS Exercise

[@aluna_m888]

This is just false advertising. It’s the same with the sun-beds argument, as it will improve the Vit D levels. I personally have two red light devices and I have been using those on and off for the last two years. if my ms is better, is because of something completely different, my Vit D levels are at the level they are because I take them regularly, I am on DMT’s, I eat healthy, I exercise, I am positive and try and rest well at night. That’s my view. I also spend as much time outside as I can; wish Uk weather would be better, but it’s making the most of a bit of everything. Also my fatigue, had improved lately, but again, it’s the combination of doing a little of everything. Amazing video, I have learned so much, but we still have so much to learn

[@hayatdonnabain5411]

If you listen to this all the way through, you’ll hear that this is not about red light therapy, which is completely different. It’s about UVB therapy.

[@pelletey]

great to hear of the octave bio ms disease progression blood test - this is exactly what people with MS need. Now if only the rest of the world outside of the US could have access to similar blood tests... I will need to do some research to see what is part of the blood test panel.

[@karenm2350]

So interesting. Thank you! I live in Australia and have a history of skin cancer from sun exposure in my younger years. This led me to avoid the sun as much as possible from my mid-20s. I was diagnosed with MS in 2008 at 44. They found I had very low levels of vitamin D and I have taken supplements ever since. However I am now trying to spend time outside in the morning sunshine - to help both my MS and also my bone health. As I now have osteoporosis at the age of 58... But I know that my bone density can be improved through weight-bearing exercise and sunlight, so I don't feel too bad 😊

[@DoctorGretchenHawley]

Thank you for sharing Karen!

[@katmeyer414]

This is interesting! I have MS and also vitiligo and recently started UVB therapy again for the vitiligo. Maybe this will be helpong both! Yay!

[@DoctorGretchenHawley]

Thank you for sharing! ☺️

[@blackgeniusfilmsinc]

🎉❤🙏🏽🛐👏🏾🫶🏾❤ another beautiful uplifting podcast to start my day I appreciate it thank you🎉❤

[@DoctorGretchenHawley]

So glad you enjoyed it!☺️

[@CarolCreates]

UVB gives me skin rash. That’s why I use sun lotion with a high UVB rating. UVA rating can be low. Just UVB has to be a 4-5 star rating. I have to block UVB or I get an awful sun burn/rash. When I was diagnosed I asked my nuro if wearing sun screen for most of my life had anything to do with my MS. He said no. Also my vitamin D levels were fine.

[@DoctorGretchenHawley]

Thank you for sharing Carol! ☺️

[@lauracarlson9260]

Strange but I was Dx in 2005 and have never really had the typical fatigue others with MS describe. I get "motor fatigue" pretty quickly. My husband has used this light to try to help with his UC but hasn't had remarkable success. I was out enough this summer and take enough D3 each day that I've gotten my Vit D blood test to consistently land close to 100 the recent tests. Just to note that not all MSrs have fatigue issues...more like I have issues getting enough sleep ;-0 and I'm in Wi and 3/4 swede so pretty light skin as well

[@DoctorGretchenHawley]

You're right - Not all MS'ers struggle with fatigue☺️

[@ernietollar407]

protective glasses must be used with this yes?

[@DoctorGretchenHawley]

That’s a great question that I forgot to ask! I’ll have to reach back out and ask.

[@lisacooper4137]

Where do i we get one?

[@DoctorGretchenHawley]

I don’t have a product recommendation yet - I’m still searching and looking at different options!

[@lauracarlson9260]

According to much of the research I should have never gotten MS- I grew up on a farm and although a light skinned Swede I was nut brown as I was always out doing chores, baling hay, weeding garden, training horses, etc. I did a lot of weight lifting besides due to a fixation on a power lifting boyfriend. I never smoked (besides a bit of teenage experimentation) and was never overweight. I never even had mono that I know of although I was certainly exposed being in public school.

[@nealkincheloe9233]

Sooo, They didn't answer the question about sitting in front of the window, and if there was a difference?

[@kathleendonahue5955]

Do you have a recommendation for a product to buy?

[@DoctorGretchenHawley]

I don’t have a product recommendation yet - I’m still searching and looking at different options!

[@sc78187]

Great vid G! I greatly appreciate all you do. Are there ubv bulbs or light specs to review?

[@DoctorGretchenHawley]

I'm so glad you enjoyed it! I don’t have a product recommendation yet - I’m still searching and looking at different options!

[@kevindecoteau3186]

what color lighting is the best? blue, red?

[@eloknu]

I’m curious on this too, I have ppms and other auto immune issues. I’m still in the beginning of this video. I hope this video mentions how it helps with it as well as well as recommended products

[@DoctorGretchenHawley]

That’s a great question that I forgot to ask! I’ll have to reach back out and ask. I’ll let you know if I hear back!

[@suzieb.1386]

a suggestion, hydrate your skin with a lotion or a cream of your choice before your light treatment for more comfort.

[@DoctorGretchenHawley]

Thank you for sharing this!☺️

[@marybethcully5883]

Wondering if you live in sunny area and use sunscreen are you still getting benefit of UVB rays….🤷‍♀️

[@ernietollar407]

attitude is huge... 60 ppms performing music professionally still

[@nealkincheloe9233]

How would neurologist give a script ?if its not recognized as a treetment for MS

[@DoctorGretchenHawley]

That’s a great question - I’d bring this up with your neurologist and see what they say about the script!

[@ernietollar407]

why $1800 bucks! it is not especially developed technology is it!?

[@kathleendonahue5955]

Good point! It’s probably because it’s new and “they” can charge us anything they want. They know how much we pay for medication so it’s not a huge surprise.

[@Jennifyr-wo5cv]

Wow TY 🎉 THIS is ground-breaking & worth every moment of time investment. 72, learned late in life have had since age 14. 😮 reach out: need referral for MS neuro in OC, CA who's NOT afraid to fight the med system!!! (My beloved, superb, world-renowned MS expert has left 🌎 . 🙏

[@DoctorGretchenHawley]

Glad you enjoyed this video☺️