Awkward Questions to Ask Your Doctor

O:00
2:04 I would like to get a tattoo but I also have active vasculitis. What are the risks?
Should I wait to achieve remission before getting it done?
4:19 Can patients who have gained weight on steroids take injectables such as
Ozempic®, or Wegovy®.
7:02 Do you tend to lose weight as you taper off of Prednisone?
8:59 Is it true these medications like Ozempic® affect your appetite? And, doesn’t that
work against you when you have active vasculitis?
10:56 Vaping.
13:05 Drinking alcohol when you are under treatment.
15:52 Sometimes I’m tempted to taper or increase my steroids on my own. Why is this a
bad idea?
18:48 CBD and active vasculitis.
20:58 How to ask your doctor the tough questions.
24:36 I want to ask my doctor to increase my pain medication, but I am hesitant to do so.
Any advice?
27:01 Acupuncture.
28:16 Medical marijuana and vasculitis.
28:49 Can I be around a newborn baby who is getting vaccinations?
Awkward Questions to Ask Your Doctor
Recorded June 2024
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[@jenfd9824]

I've been on prednisone for 2 years I'm now at 2 mg (started at 75 !) but still battling the weight issue ! I gained 20 pounds and have lost 9 but what a fight it's been !!!

[@vasculitisfoundation]

Hang in there. You will achieve your goal, Jenfd9824!

[@janeswart1154]

Hi hi! Thanks so much for these! I want to start running again. I am super unfit. I was training last in April 2022. But I had my 1st rituximab infusion and 2nd one is on the way. Can I run and train for a half marathon ? While on RTX, can I still run or will it put more stress on my body?

[@vasculitisfoundation]

Based on the current information we have on Rituximab and vasculitis it is safe to exercise. While it is always important to check with the healthcare provider who directs your vasculitis treatment, in most cases exercising at a level you can tolerate is recommended for people with vasculitis. Once you have your doctor's clearance, start training. You may find you have to modify the training regimen you were using in 2022 as you may need to give yourself more time before you proceed to the next level, but many people with vasculitis have been able to participate in half-marathons, marathons, and more. We're cheering you on!