Visual issues in Multiple Sclerosis - - Multiple Sclerosis Breaking it down podcast

[@darrenhirst9900]

Thanks ladies I really enjoyed watching. You're a credit to the trust. All the best to you.

[@__Wanderer]

The strange thing is when I had ON I had very little / no pain whatsoever. Was looking at presentations the entire day and thought my eyes were a bit tired, that same night I checked my eyes and was shocked that my left eye was extremely blurry. Went to bed thinking it was just a long day but realised that it only got worse* the next morning. Sorted out GP appointment who referred me to the hospital - it took 3-4 days before I got through to an optician / neurologist. By that point my entire left vision was black. Entirely black except for a tiny ring of periphery vision and even that was extremely blurry. Pumped me full of steroids 2 days later for three days in a row which I actually also had no problems from, none whatsoever. Now 10 months later I am still technically blind in my left eye. I sincerely hope I don't have another attack in my remaining eye - not sure what I would do if that were to happen :/ Pretty depressing. Thank you for the overview and for sharing :)

[@__Wanderer]

My first symptom of MS was severe Optic neuritis... I somehow lucked out and am in the 5% group that doesn't get their vision back. I am now blind in my left eye. Everything is a blur - I have to hold a book close to my eye to read words one by one. Everything is also black and white in that eye from the vague shapes I see. Was officially diagnosed last year, 6 months ago now... really shocked me, came completely out of the blue, im not even 30 yet...

[@zionthestarofyoutube9961]

I have Optic Neuritis due to MS since April 2023. I have only 30% vision on my right eye, my left eye is perfect! I was admitted in the Hospital after this for 5 days, was on medical steroids for 3 months… Took Rituximab, I have to take it every 6 months… Hope my right eye vision recovers 🎉. It's been more than a year 😢 But I'm hopeful, and I'm just 27😢

[@mstrust]

Thank you for sharing your experiences of optic neuritis. Sending you best wishes from the MS Trust.

[@lea9977]

I went to the eye doctor several times, and everything came back fine. His reaction is that MS is “weird”. My eyes flicker at night, like I compare it to a camera taking a snapshot, and when you make the shutter go slowly. It will like make my response time when I blinked like a slow shutter. My blinking was normal, but something with me processing the information. Then I randomly get stars, or something where something is in my eye like a floater, that I can’t see for a while until it goes away.

[@louielucero7649]

I have this issue and my neurologist told me it’s just due to migraine. I was sensitive to light and even had loss of viaion when expose to sunlight and bright light. I’m from Philippines and it is not common here in our country.

[@paulspratt362]

I lost the vision in my left eye about 5 years ago it lasted for about 1 hour and took half hour to recover. It consisted of a opaque greyness, eye clinic said they couldn't find the cause. It happened again last February but only lasted for about 6 minutes. Now having problems with blurring in my left eye and double vision. This is in addition to have a permanent problem with my balance. Getting a bit worried now as I have been fobbed off with "we can't find the cause", or the balance is caused by Cervical Spondylosis.

[@vintagevibes1974]

I love listening to this doctor. He’s wonderful.

[@mstrust]

Thank you so much for watching. We hope that the advice was helpful 💙

[@DoctorGretchenHawley]

Thank you for sharing this with us!🧡

[@MsTubbytube]

EBMD/Corneal erosion can cause some similar symptoms (light phobia, one sided eye pain, pain on eye movement, blurry vision) and be hard to explain to an optometrist or a boss.

[@mstrust]

Thank you for sharing. That must be really difficult and frustrating to manage as a regular symptom. Sending you best wishes from the MS Trust.

[@mepanousispanousis6784]

Suddenly colors , especially red , appeared too Vivid , in a bad way . Red was too red . Examination of the eye didnt show anything , after two weeks colors went back to normal. Doctor said lets fix your classes first as they are off , and then lest wait to see if the eyes are going to be better . I am sure that this is a form of optic neuritis .

[@mstrust]

Thank you for sharing. Sending you best wishes from the MS Trust. 💙

[@paulspratt362]

I lost the vision in my left eye about 5 years ago it lasted for about 1 hour and took half hour to recover. It consisted of a opaque greyness, eye clinic said they couldn't find the cause. It happened again last February but only lasted for about 6 minutes. Now having problems with blurring in my left eye and double vision. This is in addition to have a permanent problem with my balance. Getting a bit worried now as I have been fobbed off with "we can't find the cause", or the balance is caused by Cervical Spondylosis.

[@mstrust]

Thank you for sharing your experiences. That must be really frustrating to not know why it is happening. Sending you best wishes from the MS Trust.