WEEK IN OUR LIFE | SPECIAL NEEDS FAMILY VLOG PART 2 - G Tube Feeding/Autism/Cerebral Palsy/Dystonia

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Күн бұрын

Пікірлер: 56

@marygrando4089 2 жыл бұрын

Avery is such a darling, oh my goodness, she is so adorable. You are such a fantastic mom, I know it must be so hard for you but know you are doing a great job.

@mummyandavery 2 жыл бұрын

Thank you so much ❤️

@robyngreliche7603 2 жыл бұрын

A wonderful mum for sure beautiful baby

@lauram4124 2 жыл бұрын

You are a beautiful momma. U deserve the world. Your children are beautiful and are loved so very much. I have a special needs child different needs but as you explained other people just don’t understand what we go thru and the worries and stress it causes. It’s hard mentally and physically. I’m so happy you go to the group with the other mothers and children. It’s so good for both of you. I worked in pediatrics and met all kind of parents with different needs. We all want the best for our children irregardless. You are doing just that, and you should be really proud of that. I love the way you take your time and think of every little thing. It makes all the difference in the world and it truly shows. God bless you and your family with good health and happiness. 💖💖💖💖💖💖💖💖💖💖💖💖

@mummyandavery 2 жыл бұрын

Thank you that means a lot ❤️❤️

@pinacoloda226 2 жыл бұрын

I love watching little Avery,she is truly adorable, and a big thankyou to you for letting us into your home life😊😊 Blessings to you and your family🙏🙏💖💖💖

@mummyandavery 2 жыл бұрын

Thank you for your kind words ❤️

@WalkingwithGod-u6b Жыл бұрын

You are a fantastic mom and wife. Your love and care for your family is inspiring. God be with you.

@mummyandavery Жыл бұрын

Thank you so much ❤️

@anastasiajuneau9921 2 жыл бұрын

I admire the gift of your health of mind and the growth that has flowered from it. I admire you very much for all you do for your family. Your love gives God glory. Keep up the blessed work.💕

@mummyandavery 2 жыл бұрын

Thank you so much ❤️

@aliciakillen1940 2 жыл бұрын

Love that you are honest about how something wasn’t helpful at first ( the cards)and now they are! It’s soooo true. Sometimes you’re too upset and overwhelmed and now they make sense and are comforting. It’s just the truth. Btw, you always look amazing and your house looks warm and inviting.

@mummyandavery 2 жыл бұрын

It’s so true I really think your emotional state can really cloud your overall judgement. Thank you so much, I generally make minimal effort in my appearance most days because its not how I want to be spending my time, but that’s so sweet of you to say ❤️

@pamelawages7927 2 жыл бұрын

Happy Birthday. You are such a wonderful mom!

@mummyandavery 2 жыл бұрын

Thank you so much that’s so sweet ❤️

@beccasbanquet4965 2 жыл бұрын

You are doing a great job! Your children (and husband) are lucky to have you!

@mummyandavery 2 жыл бұрын

You’re so sweet ❤️

@ronniemcharry2636 2 жыл бұрын

Happy 29th birthday for Saturday you deserve it very much you are the most magnificent mum ever 🎂🎁🎂🎁🎂🎁🎂🎁🎂🎁🎂🎁🎂🎁🎂🎁🎂🎁🎂🎁🎂🎁🎂🎁🎂🎁🎂🎁🎂🎁🎂🎁🎂🎁🎂🎁🎂🎁🎂🎁🎂 thanks heaps from Ronnie 😀👍😀👍 from Geelong VIC Australia.

@mummyandavery 2 жыл бұрын

Aww thank you so much 😃❤️

@ronniemcharry2636 2 жыл бұрын

@@mummyandavery you welcome thanks heaps from Ronnie 😀👍😀👍

@Amy-hs1qe 2 жыл бұрын

You're doing an amazing job as well as helping others through this channel - fully impressed by your strength and attitude - quite a role model for others in similar/difficult situations.

@mummyandavery 2 жыл бұрын

Thank you so much ❤️

@shajahanabubaker3696 2 жыл бұрын

Watching from Saudi Arabia....hi avery....beautiful young princess god bless you

@mummyandavery 2 жыл бұрын

Welcome, thank you so much 🥰

@1964Potter 2 жыл бұрын

Happy Birthday to you on Saturday! ♥️

@mummyandavery 2 жыл бұрын

Thank you ❤️

@pjk1714 2 жыл бұрын

Do hope you had a nice birthday. In our family, we stay 29 for 5 years. It's a tradition🎈 Sorting and cleaning is so much fun but rewarding once completed. Went through 7 car seats finding one that could take us more than 2km from the house, so I feel your accomplishment for a 5 minute drive. Have you tried homemade apple sauce? You can stew low acid variety on the back burner for a few hours while doing other things. Lasts a few days in refrigerator. I only added cinnamon, no sugar. Mixed two kinds to reduce acidity. Sweet potato worked too with a bit of rice cereal. Amazing how our outlook, knowledge changes faced with challenges that become our lives. I'm sure you grew, it's reflected from within even from here. Wishing you the best. Thanks for sharing and glad I found your vlog.

@mummyandavery 2 жыл бұрын

Thank you, that sounds awesome I may have to implement that tradition into my household 😂 I’ve tried so many flavours and she always has the same reaction. I think it may be the sensation more than the taste. And she’s been teething since what feels like forever, perhaps that doesn’t help xx

@pjk1714 2 жыл бұрын

@@mummyandavery sensory happens. Texture is probably issue. If swallowing is choke hazard, try consistency of cereal. Unfortunately that one never improved for us but we did learn. Hang in there, you are doing an incredible job.

@mummyandavery 2 жыл бұрын

I’m giving her a bit of a break with it at the moment I used to try every single day but the last few months she’s just had illness on top of illness. we’re going to be trying a blended diet soon so I plan to let her have small tastes of what I blend for her xx

@kiwigirl3914 2 жыл бұрын

Happy birthday for Saturday lovely lady ❤

@mummyandavery 2 жыл бұрын

Thank you ❤️

@danielapearls1491 2 жыл бұрын

I have worked with people, children and adults with special needs for many years and you are doing an amazing job. Dont have to high expectations. Keeping Avery comfortable and loved is really all you can do. Honestly the disability takes over everything else. So just dont be to hard on yourself. Its a very hard situation you are in. It takes all your energy and effort 24 hrs a day. Dont feel guilty asking for help. You are not failing her as you are human as well. You can only do so much and no matter what it wont change her situation weather you are caring for her or someone else is as long as she has kindness and care thats all she needs. Avery has your love and nothing changes that. Be kind to yourself and try not to take the disability to serious. It is serious but it is what it is and no stress or beating yourself up or over doing things will change that. So just do what you can its enough. Avery has a loving family. Plenty of touch, hugs and love with all her needs met so she will be fine. In all my years working with people and their parents. The parents who accept they cant change anything and simply apply what love and care they can without over stressing are the most happy and these parents still live life for themselves as well, accepting that life goes on and you cant stop everything for a disability that wont change anyway. So its just accepting Averys condition but loving her just as you love all your children. Parents all suffer guilt but as long as we tried our best thats all we can do. 💖🌼 God grant me the serenity to accept the things I cannot change, courage to change the things I can, and the wisdom to know the difference, living one day at a time; enjoying one moment at a time; taking this world as it is and not as I would have it; trusting that You will make all things right if I surrender to Your will; so that I may be reasonably happy in this life and supremely happy with You forever in the next. Amen🙏🏻 God Bless you and your family💕💕💕💕💕💕💕💕💕💕💕

@mummyandavery 2 жыл бұрын

Thank you ❤️ I’m so glad you’ve said this because I forever battling with just wanting to be a mum and not a therapist and the mum guilt for not doing enough therapy. Your words have really helped ❤️

@danielapearls1491 2 жыл бұрын

@@mummyandavery I am so glad that I could help. You must not feel guilty for something that is out of your control. Therapy will not change the overall situation. Its not going to fix Avery so you can relax and enjoy her as she is. Your cuddles, soothing baths and basic love and care is what she needs the most and you will never be able to always care for her as its 24 hrs and you are only human. So dont be hard on yourself. Be kind to yourself. Let other people get comfortable with caring for her as well. People you trust and dont make it into a huge medical ordeal. Simplify everything as much as you can. She has food, love and is kept clean and cared for is all that matters. By including people you trust now to bond with Avery and get comfortable in caring for her will help you in the long term. That you have a family of people to help so you can live your life as well. You do such a marvelous job of caring for her. I love how you hold her, do her hair and fuss over her like any other child. Just being her mum. Its beautiful to watch. She cleary engages with you and enjoys the stimulation you make so much effort to give her. She is adorable. Such a cutie. Its ok to grieve as well as celebrate her and who she is. Your beautiful little girl. Bless you and your beautiful family. Enjoy them as they are, being a mum like any other mum💖🙏🏻🌼🦋A book I just read called, STRETCHED by Emma Rutland. She writes of her journey of having more than one child with medical issues. Its inspiring and very raw as well. If you can find it online and order it to read. From one mother to another. My son was diagnosed with Aspergus. I brought heaps of books, looked at them and wept thinking that this is not my son. My sons not a lable and I threw them all away in the bin!!! I chose to just love him as my son. If he needed any extra care I would give it to him but otherwise I refused to see him as a label and I treated him just as my son, as he is. It takes a lot of stress out of parenting and just allows you to love them as your own. They are who they are and every smile melts your heart. We only want the best for our babies🥰

@mummyandavery 2 жыл бұрын

Everything you say makes so much sense ❤️ I’ve made a note of the book I’ll have to have a look for it xx

@danielapearls1491 2 жыл бұрын

@@mummyandavery Bless you. The more laid back you can be the better. Children with disabilities who are raised with love like any ordinary child and not smothered with stress and overindulgence, come out much better and are happier to be treated as one of the family not a special child. As like with any child they can become more excessively demanding and it only gets harder if you jump at every little thing. We all need love, TLC and attention and so we cannot just give our all to one child. We need to be able to step back from overwhelming ourselves with their special needs and stick with the basics and enjoying them for who they are. Motherhood is such a huge learning curve. We learn as we go along. Our instincts as mothers are better than any therapist. Believe in who you are as a Mum. Avery is your baby as you are the best Mum for her. Your very inspiring. Take care of yourself. Step out from time to time and make sure you get time for you and your husband and the boys as you all need love and attention as a family. The disability does not come first. Family comes first for all of you, Avery as well. She is your little girl first and formost. One of the gang that you love. She is totally adorable.🥰❤️🙏🏻🦋💞🌺🌼🌈

@mummyandavery 2 жыл бұрын

Thank you, I find a lot of the things you have said very inspiring. I really appreciate it ❤️

@abrahamxraytech78 2 жыл бұрын

Avery is so cute! 🥰 not sure if I missed it but does Avery do physical therapy to strengthen her muscles?

@mummyandavery 2 жыл бұрын

Yes she has physio every month or two (not often enough in my opinion which is why I’m looking into private) and we incorporate what we’ve learnt into our play daily xx

@KatieT81 2 жыл бұрын

Do they know what caused Avery's cardiac arrest? Enjoying your beautiful Avery and content. Happy Birthday!

@mummyandavery 2 жыл бұрын

We’ve not had a definitive answer. I will share how it all happened at some point I’m just not quite ready yet ❤️

@KatieT81 2 жыл бұрын

@@mummyandavery completely understandable! ❤️‍🩹

@aliciakillen1940 2 жыл бұрын

It’s too bad she’s not able to get more enjoyment from eating food right now. I’m sure that’s frustrating for you. Is there a chance she might get to a point that she’s fully eating and won’t need feeds anymore?

@mummyandavery 2 жыл бұрын

I truly hope so, there’s definitely a possibility that she will be able to but we won’t really know for sure until Avery’s ready. It’s all part of the many unknown things 🙏❤️