What is Arthrogryposis? Why should you care? |

[@janedoe4339]

Bless you! We wear blue for my son's Autism, and blue for my Myalgic Encephalitis, so blue is our world. We have to find happiness in every little thing in our life to keep from getting depressed.

[@sakinahahmad197]

Thanks for your video. Arthrogryposis runs in our family. I have 2 sisters and a son with it. You are such a beautiful and intelligent person. God bless you

[@silsilatahbin3051]

Thank you so much for sharing! I lost my son to the most severe case of arthrogryposis. You are strong! god bless you!

[@TheSANJAY8]

Very Brave Girl God Bless You My Friend And Thanks to make this video

[@jeremybray321]

I just found out how ignorant I was and thank you for explaining this (and your) condition so well. Awareness of our brothers and sisters and how the contradictions of nature affect so many and in such different ways is a step on the path of progress for our species, it's future survival and rightful place in this amazing universe.

[@garysadowski1261]

Jeremy Bray much respect

[@toboekey1273]

Ok this woman in da video answered all my fuckin questions in one video.🤯 this woman is fuckin awesome 🤝

[@johnsofia2454]

Thank you for such an informative video. I am finishing up my last semester for PT and I just wanted to say thank you. I have June 30th in my calendar and will be wearing blue!!

[@heathernwells]

I will wear blue on the 30th :) Thank you for sharing this with us all.

[@jennjeffs4893]

how awesome you are! my nieces son was born with Arthrogryposis last January...

[@socksofawesome]

Thank you for sharing! Blessings to you. Blue for me.

[@macycruz8413]

Thank you for making this video! It really helped me because I am doing arthrogryposis for my high school TPSP (Texas performance standard project) project, and I really want to place in district:)

[@Zinahelpingdog]

What a good video. I also have arthrogryposis. But i learnd more thank

[@MrHelirob]

My daughter Addison was born two weeks ago. Doctors said she would had arthrogryposis many months ago since they could never see her arms or legs move in any of her sonogram's. I did research and was still hopefull. Now that she is here the doctors believe she has severe arthrogryposis with severe Amyoplasia. She cannot move any part of her body below her neck at all and it would appear every joint has severe contractures. The neuromuscular doctor said we shuold let her pass away because she will have no quality of life. Since she also has a lack of muscle in her trunk area, she has a very undersized chest. She does not need much oxygen but has been unable to breathe on her own without the respirator. She is also very alert and aware when she is awake. My wife and I have been in the nicu with for the last two weeks and sounds like it may be months. They are also telling us she will likely never come off the ventilator. The not being able to breathe on her own part has her doctors very cocerned. As they do more research on Amyoplasia they have been unable to find any info on breathing problems like hers so we are very worried. if anyone has ever heard of any similar case please let me know what the outcome was. May God bless you.

[@inmyopinion-]

Robert Avina hope ur baby is doing better...

[@ikhan4938]

Thank you!

[@nikit4409]

Love you girl

[@dinkydean1967]

beautiful eyes

[@prc85040]

I have this

[@mothbrother5638]

I have arthrogryposis in my legs

[@dinkydean1967]

your very pretty