What is life like living with M.E./CFS?

In this video Anna speaks about what life is like living with M.E. and the misconceptions that surround the condition. This is the third and final video from this series created by Anna.
"I live alone so it’s important that I manage small tasks because doing too has payback - resulting in me being bed-bound. I have gone three days without food; I now keep nuts and water by the side of my bed.
"M.E. is life changing. Well it certainly changed mine. I hate how it’s dismissed as “oh that’s the illness where you’re tired a lot.” What I say is if you’re not covered in blood no one cares. M.E. is very hard to come back from. It’s a long, long time, if not a lifelong illness.”