What is Neuroendocrine Cancer?

[@theconfessionsof_a]

This is complex, but extremely helpful, thank you. Alan Motyer Lowndes

[@monicark2030]

My NET was discovered in my stomach, and is very differentiated, along with a autoimmune atrophic gastritis, my case was discussed between pathologists and my gastroenterologists, preventative going to the Oncology and seven more ambulatories... B12, Folic acid, Vitamin D3. What made me lose my patience, was the professor saying oh we see it every day! No! One patient among 100.000, now one in 6.000 is already diagnosed as rare. Also my grandfather, uncle and my mother had cancer, my mom had adeno carcinoma. My Oncologist said there's no chemo or radio for it, only surgery and then... possibly sessions or chemo.

[@neuroendocrinecanceruk]

We're sorry to hear about your frustrations with your diagnosis and the way it was communicated to you. It's understandable to feel upset when the rarity and seriousness of your disease are not fully acknowledged. If you need more support or information, please visit our website, or get in touch.

[@neuroendocrinecanceruk]

www.neuroendocrinecancer.org.uk

[@monicark2030]

@@neuroendocrinecanceruk Thank you for your response 🙏🏻🌷have a blessed weekend

[@linagauthier4193]

Please HELP!!! I'm 72 years old with neuroendoccrine breast carcinoma 3.1cm stage 2 poorly differentiated. I'm aware its a very agressive cancer. I had lumpectomy and my surgeon confirms that lymphs nodes were negative er+ pr+ her2- . All tissue around cancer margins very good. I saw two oncologists, one for radiation and the other for chemo. They don't know if I will benefit from chemo but I will have radiaton and hormones therapy. What kind of treatment do you think I should have and what are prognostic for this kind of cancer if I take chemo??? I'm in a good health but I want to have quality of life too and if treatment won't help to live longer then I would refuse chemo treatment. COULD IT BE A PRIMARY CANCER IF THEY DON'T SEE ANYTHING ON SCANS like nuclear bone, ct scan for abdo chest and brain???

[@neuroendocrinecanceruk]

Hi Lina, I'm really sorry to hear about your situation, it's important to discuss your specific case and treatment options with your healthcare team, including your oncologists. Given the complexity of your situation and the medical details involved, I strongly recommend that you reach out to your medical team or our specialised helpline - 0800 434 6476, or complete our nurse contact form: www.tfaforms.com/4779104 . They will be able to provide you with the most accurate and up-to-date information about your diagnosis and treatment options. Your healthcare team can evaluate your case thoroughly and provide you with the best advice based on your unique circumstances.

[@TrudyContos-gq1bw]

I am hoping you did the right treatments? And hopefully they got it all with surgery.