WHAT IS "THE VEST" CYSTIC FIBROSIS TREATMENT?

[@monicafaridhy]

*"Don't skip, because it builds up"* That'll be my phrase for my students from now on! You have taught me a lot of things about CF. Keep up the great work! Big hugs from Mexico. ❤

[@thefreylife]

That's awesome! What do you teach?

[@monicafaridhy]

History and English. You help to practice my listening and speaking.

[@thefreylife]

So awesome! Glad our videos can be helpful to you!

[@tunatoad7221]

Monica Didi I use do what you think you can't do with my grandkids. This little couple are so sweet. Mary didn't miss her vest, I don't miss the Frye Life

[@taracole5945]

The Frey Life I love your videos!! I am going to be providing day care for an 8 month old little girl with C.F. in the fall and have learned so so much from you! You are sweet and Beautiful and your voice literally makes me feel so calm and relaxed!! Love you and Peter! God bless you both! 💗💗

[@stacyklostermann8378]

I just got my Vest about a month ago and it has been a HUGE help for me. I'm in respiratory failure from mitochondrial disease and vent dependent (niv) via face mask 24/7.

[@ReineDeLaSeine14]

Hey mito-fighter, hopefully the vest helps!

[@stacyklostermann8378]

Thank you!!! It is doing amazing!!! ❤️

[@fiddlegirl79]

Mary - When you suggested to color with the vest on and then said "Oh, that might be interesting." you should do a drawing challenge with the vest on. That would be fun to see the outcome. :)

[@thefreylife]

haha, good idea! :)

[@ReineDeLaSeine14]

Hannah did makeup while doing her vest...it was hilarious

[@MandieZangora]

Claire Wineland said her parents used to give her markers and paper and she'd hold like, 3-4 colors in one hand and doodle and it ended up looking really cool! I would love to see a duel between Mary doing it in her vest and Peter doing it with an "as seen on tv" wiggle pen 😂 see which one turns out better. Or try watercolor painting with the vest 😱

[@rileebingham-davis6266]

fiddlegirl79 I draw a lot when I do my Vest it takes practice and focus lol

[@rileebingham-davis6266]

ReineDeLaSeine14 I do my makeup during my vest all the time lol

[@millymcbug]

6:15-6:45 Literally why y'all are so inspirational to me as I struggle with depression/anxiety. Because there are lies that come every day, every hour, and some days every minute at me. And sometimes I'm so exhausted from life and anxiety and I don't feel like taking time to identify the lies and deny/reject them, because depending on the day, it sometimes leads to several hours of doing nothing but fighting to believe God's truth (and it's good that I focus on God, but also I could be DOING things that need to happen in those hours. Also, I get in trouble if I don't do my HW/chores/whatever). Anyways, y'all encourage me so much to stick with it and not let a single lie slip past. Because one lie leads to more lies. Thank you to whoever reads my comment. I'm going to go to bed, because that's what I need right now to take care of God's temple. I very much appreciate any prayers, and if there's anything I can pray for you about, I will. You are loved and able and worthy of love.

[@TheStephandSteveShow]

i'm having pain injections into my back today because my back is degenerating. and frey life uploads early. thanks :) made my day

[@jessicas2379]

Don"t skip cause it builds up. That goes with many things!!! Don't skip brushing your teeth cause plaque builds up. Don't skip doing personal care like showering cause your smell builds up lol. Don't skip your homework s cause it builds up (literally) especially in college you got to keep up with your school work

[@thefreylife]

Well said!

[@shaneluke346]

you say you have been using your vest since you were 11 but recently you also said you USED to work as nanny , DID YOU. HAVE to use your vest THEN to keep you as WELL as possible ? from the UK XX

[@cfoster6804]

You are so right!

[@saramaleneiversen6643]

And don't Skip dishes It will build up

[@chitternebacon6007]

Thanks for being transparent about your sponsored videos! Another great one.

[@sayswice5621]

*Peter tries to do math* Stick to preaching, brother 😂

[@thefreylife]

haha, will do! :)

[@jonathandpg6115]

omg his math lol

[@AptixD]

Hi Mary and Peter :) I once found a random video of yours, I think it was the wedding cake one and watched you ever since. After almost 3 years of watching you and learning about CF I pretty much new about everything you were talking about in this video but I still watched it all and smiled :) They way you guys are with each other, the way you talk and keep so positive reflects so much when I watch these videos and it helps me feel better in myself. I don't have CF but I've been struggling with depression for a long time, my life have been quite hard.. but you know what? You make it better and I want to thank you for that so so much. I love you guys and keep up the awesome job you're doing! xxx

[@kittymervine6115]

vests are such an improvement I imagine! It must have been in the "old days" it was all hand PT! This enables someone to watch TV, play a video game, listen to music, to whatever...and I imagine it must be far more easy to convince a child with CF to use a vest, than PT!! All the things that make life better!

[@rileywalker877]

I used to use the vest daily when I was eight because I had a bad respiratory infection that blocked my air ways. It was terrible I remember it vividly I’m so impressed that you can do it every day since you were so young.

[@liannmaguire7199]

This is very true with all chronic illnesses I have postural orthostatic tachycardia syndrome as well as fibromyalgia and this keeps me going watching your videos

[@PrincessMax360]

Great video. I personally do not know anyone with CF, but by watching Mary and Peter I have learned a lot. Thanks for sharing your life with us.

[@yurei87]

I kinda choked up when Mary did. 😢 Loved this type of video. Good to know more about CF.

[@TaraMorse]

When I was a child (early to mid 70s), I would get bronchitis and pneumonia yearly, and my mom had to pound my chest/back to help me cough up all the mucus. I'm so glad they've come out with something to help you more effectively clear your lungs (that also doesn't rely on someone else to help you).

[@heathersmith4774]

Thank you for sharing your life with us!

[@thefreylife]

Thanks for choosing to be a part of it! :)

[@hannahmanche2950]

Omg i have cystic fibrosis i have had my 1st veat since 3 weeks old and i am 11 years old plz reply

[@2listening1]

8:19 Thumbs up for "knit or crochet," preferably while catching up on Frey Life vlogs! XD

[@ITSJUNE2]

The new vest from Afflovest doesn't have a compressor or use hoses, it runs off a rechargeable battery or off the electric socket. I will say the new vest is very heavy, it's a good for helping keep the strength in your arms when putting it on and in your legs when walking around as it does its job.

[@johnsonfamilyvidsvlogs3745]

This was great. I figured that's what the best was for. But I didn't ask. Looking forward to you getting the new vest.

[@crazysauce2]

Good morning Mary and Peter

[@eej1983able]

You guys are so awesome to watch and inspirational! love you!!

[@robinwrightdenny5448]

Great post! Packed full of information!

[@kathieshah6145]

I think Mary should do a sketch or a painting or some kind of doodle art while wearing the vest to see if something magical is created while wearing it...and sell it at the Frey Life online store. Something fun and different to try while wearing it anyway, to break up boredom.

[@TechGirl84]

Rewards? I'm 33 years old, and I still think that's a great idea! Thanks for the vid! I don't have CF, but I do have a disability that requires more daily care than the average person who doesn't have a disability.

[@divamisse7]

Good morning! ☀️

[@janaye7iverson]

I laughed so hard at the end Peter

[@joevlogs1279]

Cool couple! God bless.

[@Renaa991]

Hey! Love your videos! thank you for teaching me about CF, before finding your channel I knew nothing about it and I've loved learning about it all. Have a wonderful day you guys! :)

[@thefreylife]

Hey there! We're so glad that these videos can give you a little glimpse into life with CF! Thanks for coming along on this journey with us! :)

[@yanickabarbara2482]

The Frey Life How irresponsible of Hill-Rom! I am shocked and disappointed.

[@stacyklostermann8378]

Yanicka Barbara about what??

[@ericalynn5416]

Yanicka Barbara why? Nothing to be shocked and disappointed about

[@jaytee2642]

Yanicka, Hill-Rom is irresponsible for sponsoring a video that informs Frey Life viewers about the vest that Mary uses??????? Please do explain. Pretty please.

[@Dez272727]

Have you guys ever considered looking into IPV breathing treatments? Look it up...it's amazing!!!! (I am a respiratory therapist)

[@boo-keyunicorn1585]

I am 9 I Have CYSTIC FIBROSIS/CF and now you know that you have a CF subscriber

[@boo-keyunicorn1585]

big hugs

[@boo-keyunicorn1585]

😚😚😚😎😍😍

[@vmcgovern26]

Does anyone know if the vest is available in Ireland?

[@TheMetalfreak55]

I have Asthma and there is never a day that I go without having a runny nose or mucus in my system, yes i take antihistamines but they dont always work and dont last all day. There are sometimes that a lot of mucus will build up that it can hurt my lungs and i have to use an inhaler etc. I have looked on the websites that talk about vest and it mentions asthma. I dont know i feel like if i could use this it would help so much

[@kenziet720]

Does the vest completely replace manual chest PT, effect-wise? Does the vest clear your lungs more or better than manual chest PT ever could? Since when you're in the hospital, you both do the vest and receive manual chest PT, right? Is it advisable or recommendable to do the vest multiple times a day, like three or four times, considering you have the time, and would it give better results or is it just a strain on your body and lungs to do it more often than twice a day? So many questions, I'm sorry :D

[@thefreylife]

Great questions! Essentially The Vest replaces manual chest PT in most everyday life. However, while both methods are effective forms of airway clearance, they accomplish it differently (high frequency oscillation vs. manual force)... so there are times when one is favored over the other. There are days when Mary's lungs are needing more care than the recommended twice a day treatment, and on those days we try to supplement with either some manual PT or some extra Vest time. That being said, doing The Vest is an active treatment of clearing the airways... including a lot of coughing, so it can be exhausting to do it more than twice a day. Hope that's helpful! Thanks for asking good questions!

[@kenziet720]

The Frey Life Thank you very much for answering and explaining all these questions in so much detail! :)

[@MoonyAJ]

When does Mary tend to start coughing when she's using the vest? I guess it can be very variable, but does it often start straight away, or only after twenty/thirty/forty minutes etc? Does the coughing tend to continue after the vest treatment?

[@emilycasper-kelley7118]

How long do you have to do it at a time?

[@denisestrecker8838]

I know that this is therapeutic. When you talk while using it it makes me giggle. Your voice sounds like someone talking in a fan.

[@analorenasanchez9285]

I've been following you for a couple of weeks and I was actually wondering what was the vest for.

[@andrewderby4132]

This is my first time ever hearing of Cystic Fibrosis and the vest treatment. But I just have a question about the vest itself, hypothetically speaking if a woman has cystic fibrosis but is also pregnant would that cause negative effects on the child? Are there warnings for the women who are pregnant? Sorry if this is out there but seeing your video (my first time watching btw) I'm always curious about learning new things.

[@lorigillon427]

My sister died from CF she was only 17.

[@lauragadille3384]

I'm going to do that with my CPAP machine. I hate it though.

[@Rosanna609]

Thanks for the video! Just curious, how long do you wear the vest for each day?

[@luvlyxcupcake5988]

I have CF too and when I do my vest no buddy can understand what I am saying 😂. And sotimes when I am doing my vest the hoses become detached. (Its so annoying 😂)

[@sonjacreech4267]

Maybe a back massage would help by breaking and loosening the mucus up too, Worth a try anyways.

[@justcallmejess7294]

Just another tool in the tool belt!

[@peterjnee13]

cough in your elbow not your hand

[@LizzyMarieTina]

You guys look at most 23!

[@stephaniemccann7291]

Call911

[@RandallJT84]

Sounds like a helicopter.

[@peggymarsh6569]

They have come SO FAR in CF treatments since my sister passed away in 1963. She was almost 17 and back in those days CF didn’t live that long. I remember my parents pounding on my sister. You don’t know how happy I am to be learning about CF since i was only 9 when she passed away. So glad for you to have these options that she didn’t. May God bless you!!!

[@drknstrmynyte]

Vest art might be kinda amazing. You could watercolor fuzzy things so the edges don't have to be crisp, like a pomeranian dog or a cloud.

[@thefreylife]

good ideas! :)

[@XravensunsetX]

it's an inVESTment! haha =D

[@abigailt]

I just got that too!

[@dianedeck3128]

haha the sped up voice at the end cracked me up!

[@thefreylife]

Haha, don't forget to laugh every day! :)

[@Judymontel]

so glad they invented the vest in time for you to be able to use it since you were 11!! What a blessing...

[@uhmaybeidk]

the vest used to TERRIFY me, i wore it one time around the age mary started and got so scared with the shakiness of it and the tightness of the vest they gave me i started to cry, and WOULD NOT use one again until i was 18 😂. i'm now 20 and i love my vest and try to get everyone else to use it so they can feel it

[@OompieFN]

What does it feel like and is it fun to use?

[@XK_tyX]

Um- I think it's super dope Hill Rom sponsored this! 😂

[@c.k.1252]

I remember hearing the story of my parents being relieved when my sweat test came back negative as a child, but I grew up with very severe, life threatening asthma. As an adult, it came back again a little, but mostly bothers me in the coldest temperatures. I love watching your vlog to see how much you appreciate life, despite all you have to put up with. You have an amazing husband, adorable dog, and support team! I never had a vest, but I have a nebulizer, and those little saline/medicine plastic pouches that go into the breathing treatments are also second nature to me. I'm in the process of moving and just went through a whole bunch. Anyways, I have always wondered exactly how these vests work. Does it usually bring relief after it's use?

[@samanthasvideos9262]

Have you tried doing yoga in the vest? I tried with my vest but I'm not flexible lol. It's something funny to do :)

[@belindaj8173]

Love your videos... they make my days much more bearable. Your relationship is adorable and shows how much you both truly love and have mutual respect for each other. Such a brave, beautiful and uplifting couple. True Christians. Proud of you both. Love from Australia xx

[@jenesimar]

I love hillrom and all they're new equipment I think it's awesome that they're making the monarch. I got to try it on and order it!! But they haven't sent it to anybody yet.

[@thefreylife]

We're pretty excited about The Monarch too!

[@arimitchell8345]

Do what you think you can't do, uh huh!

[@ItsMe-ow8wu]

Good morning 😊 Looks like a great video! Keep up the good work 👍🏼

[@thefreylife]

Good Morning! :)

[@danalihinds6593]

Thanks for sharing. Very interesting! I was born with Congenital Heart Disease and would have to have chest PT after my open heart operations so that I wouldnt get pneumonia. Now days when I get bronchitis or pneumonia I still have my husband pound on my back to help loosen that mucus, because it is definitely hard to loosen just by coughing. I often tell my mom and husband "I wish I could have a Vest to help, it would make things so much more efficient when I get sick". Thank you both for sharing your everyday lives with us viewers and being such an inspiration to so many!

[@GamingNinja1998]

wtf.... im 19 with cf and my doctors have never said anything about that vest. :/ they just gave me a small inhaler that vibrates when i breath out. that look like it would work so much better.

[@mistywilson7123]

Thank you for helping those with CF! My son was diagnosed at 2 weeks and got his first vest at age 2. Before that we did manual PT. We are so grateful for the vest. Sometimes my son complains but we never miss a treatment. We are waiting anxiously for the new Monarch mobile vest for when we travel. All the best to both of you!

[@jenesimar]

I just realized that I have watched you guys for 1 whole year now!! I found you guys when I got the new 105 vest last year and I was searching youtube for it and I found your video and started watching your daily life. And I loved ❤️ it!!! Love you guys!!

[@thefreylife]

That's awesome! Thanks for being on this journey with us!

[@juliamagical2519]

I wish this treatment had been invented a decade ago. My best friend of my youth had cystic fibrosis and chest pt just sort of stopped working properly for her. She passed away peacefully in her sleep 6 doors down from me on a cruise ship when we were both 7 years old. Since then I have fought to spread awareness for cystic fibrosis in my small community and I'm so happy better treatment has come onto the scene. Thank you so much for being a positive role model and motivator for people of all chronic illnesses and circles of life! 😊

[@bunnyyamor3154]

Jay Rose oh my gosh, sorry for you lose (especially while on a vacation) .

[@vividdawn913]

When I was in the hospital in April, they had a "vest" that was not over the shoulders... it was a band that went around, under the arms. Hill Rom calls it the "wrap" :)

[@oldaccountt9164]

My hospital had like the oldest treatment machine ever 😩 great hospital, great food (the chicken noodle soup and cantaloupe 10/10) I was also at a hospital April for sinus surgery

[@Easter5460]

Afternoon everyone I hope u have an amazing day further!!

[@priyankichakraborty3662]

Thanx for sharing the video.Please share the company name . Where I can place the order to buy the Vest Machine?

[@lucianocaolo]

Hello, Thanks for the video. I have a question, what happens to used vests once patients are given new ones ? We have friends in South Africa that have 2 kids with CF and they have no means of getting a vest. Is there anyway of getting hold of used vests for them ? Thanks

[@saffronmaygot7256]

I got a nice big laugh from picturing "wiggle pen" vest art. And living with chronic illness, I also use the motivation of my loved ones to keep me going on treatments, it is really heartwarming to see that in you as well.

[@anikabaddeleyrollingbackwa7341]

This is a fab video! Some other disabilities that have impaired cough find the vest helpful too.

[@cfoster6804]

Omg, I always thought CF was a female issue (like uterine fibroids).😳 I have bronchiectasis and am talking to my doc now about a vest so I have been looking up vest videos. Those hand held devices are a joke. I see you have a hoarse voice. Since dealing with my issue my voice has gone hoarse permanently. It sucks because people always think I'm sick with a cold.😑 I thought I was the only one with an affected voice.

[@MzYankeebreeze]

im doing my vest while watching i love you mary and that tip helped me

[@uhmaybeidk]

i've found that reading, watching your videos, listening to music, watching a tv show that is roughly as long as my vest time work the best

[@kimberlysichler7415]

Wow that looks like my apartment! I have asthma and the back beatings really help me breathe! Turns out I'm a carrier with a baby on the way. Fiance getting tested Monday.

[@danaglass9168]

It's made for anyone that has constant junk in the lungs my son used to have a vest and it takes place of cp and if you have a g tube they will set you up with protection foam so it protects the gtube

[@2listening1]

Mary, if this was the special video you needed Peter's help with, good job, sis!

[@MrsBozoiyo]

I too have an illness and I get this because when you have a chronic illness you are up against every day you have to do self maintenance even if, you don't feel that instant result every time. Thumbs up girl!

[@rileebingham-davis6266]

Lol I feel like my Vest is my best friend

[@anovemberstar]

I wish every single smoker and potential smoker would watch what you have to go through - it's mind blowing that some people like yourself would do ANYTHNG to have healthy lungs, and yet thousands of (stupid) people fill their lungs with cancer causing toxins.

[@OldsoulKilljoy]

Holy crumpets it's 8 am was not expecting to see this notification show up on my phone. Pleasantly surprised though great start to my morning.

[@jacquelinesmith-jackson2815]

Mary....... 😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂😂 Your a HERO!!!!!! I don’t have Cystic Fibrosis but when I was in middle school I had a friend that did. It would probably make me dizzy. I think you awesome Mary.

[@empty_gamer9949]

Good morning

[@julierocketqueen1477]

Wiggle pens!!! 😂😂😂. That was a flash from the past!! 😂😂😂

[@ashleyberwick]

Julie RocketQueen isn't it blast from past?! Ha..?!

[@elnora1469]

Omg I totally forgot about those! Haha

[@JulieR73]

All of my friends wanted to try on my Boston brace I wore for scoliosis

[@fralinsandfriends]

I don't have a vest with COPD, but there are treatments I'm supposed to do every day and I'll admit that it's easy to forget.

[@angelamangum3339]

I'm glad there are now the vests. When I was a teen I had a friend with CF and learned the chest PT (cupping) and I'm glad there is a better method.

[@GCJ0911]

I have a vest that my grandma had but I don’t think she ever used. I’m selling it so give an offer. It seems like it works well in all the videos I’ve watched. Message me anytime.

[@lauragadille3384]

To break up the mucus that builds up in her lungs.

[@kenleytaylor258]

Ha! an inVESTment! 😂😂😂

[@marieellis5598]

my little cousin has one for spinal muscle astrophy

[@courtascot]

Since cf is genetic are Mary's parents carriers since both mary and her sister have or had cf? Does mary have any other siblings beside Rachel? Thanks for being so encouraging to people with chronic diseases -i have several although not all are life threatening it helps to have encouragement

[@moriganna67ify]

Good Morning Peter and Mary. So happy you partnered up with Hill-Rom Vest! Love you guys and good luck with your appointment today.

[@michaezell4607]

Kinda reminds me of a CPAP machine....which reminds me. I have to do another sleep study and get tested for another CPAP machine soon. Hopefully they've developed more comfortable CPAP masks however because nearly a decade ago i first started CPAP for my apnea but didn't do well for long despite trying several different masks with each one more uncomfortable than the last.

[@heatherwelberry1]

Would this be an automated form of coupage (spelling ??) (Pronounced coo-pa-ge just in case my spelling is way off) when you cup your hand and pound on the area's over the lungs to break up build up so it can be coughed out... is that basically what this vest is doing ?? Thank you. Love your daily vlogs and both of you together are such an inspiration. Love you both. Good luck and we will be watching and praying.

[@marcialawhorn572]

I would like to hear about other parts of your life other them CF..maybe Peters church. Your family and other aspects if your life.

[@Jamie_Winsh]

If anyone is wondering, the way it works is the vibrating of the vest, ovbiously makes the body mobile which loosens any thin mucus, which is then of course coughed up by the patient. Sessions most commonly last around 20 - 30 minutes

[@Suki7stars]

What is the difference between manual pt and vibrations? I think that's what it's called, I think you asked Peter to do it after he finished pt on you. I'm sorry if I got the name wrong. Anyway, does the vest do rhat also?

[@AndreaShink]

Well, I'm new to your page, and apparently, getting a vest soon. Thank you for the comfortable introduction.