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What to Expect Prodromal (Early) Symptoms

  Рет қаралды 12,878

Huntington's Disease Society of America

Huntington's Disease Society of America

Күн бұрын

Пікірлер: 16
@shawnlove4502
@shawnlove4502 Ай бұрын
Great lecture
@jodiebird1551
@jodiebird1551 2 жыл бұрын
Great lecture. As a family carer of an adult with complex needs etc. Getting us both ready for a hospital visit I was multi tasking but will return to this.
@angiek1001
@angiek1001 2 жыл бұрын
My bf of 5yrs was just clinically diagnosed with Huntington's. I knew it ran on his father's side and being the one with him all the time, I began to notice his symptoms becoming prominent and pushed him to get tested. We find out how many repeats are present this Friday. He's a low voltage contractor and has no business being on a ladder as he's fallen off 3 times. He also forgets a LOT. Even major things like the court date for his daughters custody hearing. We live in a small town and the rumors of him being on drugs have been circulating for a couple years now. In reality, he can no longer work in his profession and is currently attempting handy man work here and there as he's the sole provider since my major back injury. We've since lost our apartment and had to buy an RV to live in. We struggle to pay the $575 required rent for the location we have. Two years ago, we were both working and living in our dream home in the best neighborhood with the option to buy. He slipped into a depression for a couple years and just didn't work anymore. My single income just wasn't enough and we lost everything we worked so hard for so long for. Our next step is disability. If he ever remembers to complete the application online 😒. From my prospective, it's becoming very difficult to remain involved with him as he consistently chooses other things and people over me, yet I have and continue to do everything for him. But he snaps at me unprovoked. Is there anything I can do to help him? To help us?
@1houndgal
@1houndgal 2 жыл бұрын
Get a case manager/sw. A case manager can help him get that disability form filled out. Consider a disability lawyer.
@1houndgal
@1houndgal 2 жыл бұрын
Have you consulted your county mental health services? In the US, that can help you really get the disability ball rolling and get you a case manager.
@pnkdahla5037
@pnkdahla5037 3 жыл бұрын
I Met A Guy.. He Couldn't Be Any Sweeter.. We Became Friends..Enjoy Each Others Company.. He Was Recently Diagnosed with Huntington's Disease..His Mother Had it.. Back than They Thought She Was CrazZzy.. She was Put in2 a Mental Health Hospital.. Thankfully Medical Studies Medicines and Science Has Come So Far and We Know Alil More.. I Myself Have Epilepsy/Seizures.. Tardine Dyskinesia (uncontrollable body and facial Movments/Twitches) from being Over Medicated.. and I Was just Diagnosed with schizophrenia.. We're in a Race ta See Who Loses Their Mind First.. 😜🤜💙🤛🤪
@lukas4132
@lukas4132 2 жыл бұрын
hahahaaha your comment was actually so uplifting 😂
@hoodatheist5549
@hoodatheist5549 2 жыл бұрын
i really hope you are ok.
@lanadower7113
@lanadower7113 8 ай бұрын
Thnk you very much for this info
@UniMatrix_1
@UniMatrix_1 4 жыл бұрын
👍
@marthapmathews9932
@marthapmathews9932 Жыл бұрын
O gig😢😂hghsh❤😊😅
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