What to expect when being placed on Hospice Care with Cancer

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#endoflife #hospice #activelydying

[@razorblade-serenade-ic9my]

My uncle just died from pancreatic cancer. I couldnt even recognize him anymore. Loss of weight, skin color, ect...but while he was in the hospital, he slept alot. When he did wake, he moaned in pain and the doctor told the nurses to give him as much pain meds as he needs. He is a great doc and told us that he's gonna give my uncle as much pain medication as to make him as comfortable as possible because there was no need to regulate it when he was surely going to pass away soon. I hope the same will happen with me if i am ever in that situation....just juice me up on pain meds until i pass. Great videos by this nurse.

[@sandybrown4764]

When my dad was to that same stage, with his painful cancer, he agreed to be sedated 24/7. He got the pain medication, as well, of course. That's a good alternative. It was something he had discussed with the care facility, ahead of time.

[@waynetreanor7439]

My mother also died from pancreatic cancer. I definitely can relate with you. I'm sorry for your loss

[@danteharris3259]

My roommate passed at 36 from pancreatic cancer he had cancer for a whole year and didn't know he had it

[@tsmith7119]

My Beautiful Sister just passed away from pancreatic cancer on June 12 2024 I am devastated heartbroken 💔! She believed in Jesus her whole life. I believe she is with Jesus, my Dad and Mom and other love ones that have passed. We were very close. I miss her so much! I have faith I will see her again.❤❤❤❤❤❤😢😢

[@donaldj7314]

My dad died of stomach cancer on 3/14/24 in hospice. His decline was fast, 5 days. I binged watch all of your videos while he was in hospice. Your videos helped a lot. Thank you for your videos, and all you do.

[@01splitpea]

💜🌻

[@mygreenfroggy]

What you don't say is how tired a family member will get of taking care of someone who is declining from dementia. And yes, I mean that, you get tired of not being able to live your own life because you can't afford a home that will care for them or a person to come in every so often and let you go do something else for a while. Even with family help every so often, you get very, very tired of doing it.

[@cavgrey8]

It takes a village.

[@sandysue202]

I got very tired when my husband was dying, but I would have never wanted anyone else to be there day in and day out to take care of his needs. His daughter came some, and it was nice to be able to just take a 2 hour nap and a long shower on those days. That got me through. Hospice can provide someone to just come in and sit with the patient so that the family caregiver can take a break. Not every day, but once or twice a week. You just have to ask about it.

[@diIdaho]

The tiredness is an absolute! But i promised mom she would live in her home until the end. And I would Don’t do it differently. I only wish doctors were more forthright with us. Our mom had undiagnosed dimentia (until 1 wk prior to passing), accompanied with bladder and breast cancer, afib, heart disease, and chronic kidney disease . The hardest part was that we didn’t know that the symptoms observed were because of the dementia. So, the belligerent behavior and the forgetfulness was not a result of things we were doing, but a natural decline. I was her FT caregiver and the mental impacts to myself have been so difficult. I now go thru anxiety bouts that come out of nowhere. Thank goodness for my husband. He’s so patient with me.

[@windsongshf]

Yup, 2 years into taking care of an older relative with Alzheimer's. He's 87 with pretty good physical health. If a doc said, "Oh, he's only got 6 months to live", it would be easier to dedicate myself. But his doc said he could easily live another 5 years. I don't even "nurse" him. Just stuck in the house enduring this mean old man that yells at me with crazy eyes. Can't do this much longer.

[@djbail1]

97 YO MIL with dementia and my wife is primary caregiver and has been for the last 6 years. Our personal life is basically on hold. MIL being Belligerent is an understatement and she is so nasty to my wife (and my wife is eligible for Sainthood) with everything everyday. My biggest fear is she’s taking years off my wife’s life.

[@renzo6490]

You are the only one I can talk to. I am 78. I was just diagnosed with a rare cancer. I have no family,no partner,no children…no pets. No dependents.* A couple of close friends. No one will inherit anything when I die. I have no life’s work that I need to accomplish. I live alone in a small apartment. I have No Fear of Death! I am not afraid to die. I am afraid to live diminished,incontinent,in pain,immobile, unable to gather my thoughts well enough to express them in words,unable to recognize people,unable to expel my waste in a toilet. I know what it is like to die slowly. I have been visiting a friend with cancer and dementia for years. I know what I want and what I don’t want!!! I want to be able to end my life when and how I CHOOSE! * ok, a few house plants 😉

[@Jomama02]

There are some states that allow you to end life on your terms. Watch some of her previous videos as she explains it in detail. Exactly what to do, when you decide to do it, and exactly what to expect on a timetable. I personally wouldn't do it but I can empathize with why someone would. May God be with you .

[@renzo6490]

@@Jomama02 Thank you! And, yes, I do live in a state that allows death with dignity!

[@davidowen9671]

Your state allows! What the heck is that? A felt need to make the newspapers, to be applauded? Maybe someone with integrity will step in and explain how the euth doctors' self-congratulatory drama is superior to just taking pain meds and good wine freely, and if/when they push over the brink, where is the sin?

[@Jomama02]

@@davidowen9671 you are not a nice person.

[@renzo6490]

@@davidowen9671 Instead of ranting , maybe you could calmly say what you think. Pretend you’re in school and you have to write an essay.

[@carolchmielewski5313]

I was diagnosed almost 1 year ago with Stage 4 metastatic breast cancer. Had to have a thoracic spinal fusion to prevent damage to my spinal cord. Rough road for sure, I am taking chemo daily in pill form and it's working well. I'm only just now emotionally able to watch your videos about Hospice care related to cancer and dying. Retired Nurse myself. Been watching you a long time. Thank you for your information and keep up the life-changing work!

[@01splitpea]

💜🫂

[@iSheree]

I am so sorry you have stage 4 cancer. 😢 I hope science keeps up with you and you live as long as possible with not too much suffering. I just had my one year Cancerversary and have scans tomorrow to see if I am in remission. I have so much anxiety! Initially they told me I have stage 4 cancer because my liver is full of tumours and I have nodules and enlarged lymph nodes all throughout my body. But after surgeries and treatment they realised that all these findings are unrelated to my original cancer diagnosis and now I am in the process of eliminating other cancers. It is starting to look like an autoimmune disease. I have been sick for years with autoimmune symptoms so maybe I will finally have answers. So for a while, I believed I had stage 4 cancer. I kinda know how you feel. ❤

[@carolchmielewski5313]

@@iSheree thank you for caring, and I truly wish you all the best!

[@iSheree]

@@carolchmielewski5313 thank you and wishing you all the best too! ❤️❤️

[@kellyosborne7571]

Hey lovely. How are you doing today, x

[@BobSebring]

Very true. My mom had cancer and her decline was a gradual, and steady downward decline. Towards the end, she slept a lot more and had died primarily from congestive heart failure even though she had cancer too. I was the one who took 100% care of my mom even though I had two siblings that lived close. But since I was living with her they figured it was my job to do it alone. I have since disowned them. I did everything!!! Even had bought a baby monitor in case my mom needed me in the middle of the night. I was grateful for hospice to provide a babysitter for me so I could go to the dentist and to get my haircut. It was so overwhelming to me mentality, physically, and emotionally, but giving the chance to do it all over I wouldn't think twice about it. I'd do practically anything for my mom. Even when it was the most painful experience of my life.

[@user-of5ek5dj7p]

My father was in hospice last year. He died last June. You are absolutely right about hospice doing personal hygiene. I changed his diaper but hospice walked me through it on the phone. The woman stood with me on the phone and went step by step with me. It was so hard to change my father because it was so painful to him when I had to turn him. He had end stage bladder cancer. He’ll be gone 10 months on the 11th but it seems just like yesterday that he died. I don’t feel any better than I did 10 months ago. I think it gets more painful as time goes by. I love you very much dad. Rest in peace. 😢

[@hailstorm733]

My father passed away from liver cancer at the end of March 2024. He was diagnosed 3 weeks prior to his death. He not only retained fluid in his abdominal area, but all his extremities, about 40 pounds of fluid. I also want to thank you for your videos. They helped me get thru being my father's care giver. And yes, my father declined at a rapid rate. Went from eating small portions to only small cups of icecream. The last week of his life, he just slept. Not eating or drinking.

[@user-fl3im1qy2o]

Hi Julie, I had esophageal cancer. The surgery seemed to take care of it. Within a few months, it metastasized to my liver and lungs. I’m seeing that slow decline. I don’t eat as much anymore and I can only take a few steps (Before I was walking 300 feet several times in a row.) I sleep a lot more now, too. I am safe and well cared for. I’m not on hospice yet but I see it coming.

[@lauramartinez7057]

I’m so sorry to hear of your prognosis. My brother had a massive stroke last April and discovered videos on KZbin Tube about near-death experiences. They all said it was so peaceful and such an enormous amount of love penetrating their souls as they were dying that none are scared of dying now. In fact, they are so much at peace that some were angry having to come back into their bodies to live on earth because the other place was indescribably beautiful. I wish you peace and absolute bliss on your journey.

[@soulspaces]

Praying for love and comfort to sorround you.

[@edevanko160]

My thoughts and prayers out to you and you're family My dad had the same cancer he passed in 2017 one of the darkest days in my life keep fighing the good fight sorry you got this horriable diganosis i wouldn't wish this awful cancer on my own worst enemy

[@bordereau1]

Sending prayers

[@nancynorsworthy2526]

Prayers for you and for your loved ones also. Thank God for Hospice

[@kelsiewilson]

My father just lost his best friend to gleoblastoma last week and he was under hospice care for about a week before he died. They were awesome.

[@zeldamoore8371]

Good points. My husband's symptoms with cancer actually improved some after chemo was stopped & hospice only gave what was necessary to manage symptoms. But I wish I would have understood how difficult it would for me to care for him alone without help as his mobility declined to none. Barely survived it & Lord knows after 6 months I was at my limit. Was trying to decide what to do next, but then the end came.

[@kareldebures7006]

I have lost count of how many people I know that have died from cancer, but the several survivors I know bring a smile to me whenever I think about them! Happy Sunday everyone!

[@sandi5276]

@ karel What a beautiful thought to share. You are a gift to humanity.

[@lauriemarie6395]

My Father passed in January from Dementia and Ear cancer that spread into his neck he was in rough shape. 😢 RIP Dad. 🙏💙

[@01splitpea]

♥️

[@carrie1666]

my father in law is currently going into comfort care/hospice today. He has Stage 4b Esophogeal cancer and his declined super fast when he was DX Feb 19. He was to start chemo on the 1st but he was too sick. I asked what prognosis was (noone else would ask) and they said 4-6 mos without treatment.. They gave him days to 2 weeks max. I have shared your vids with him to help him to understand hospice. I know that he will pass at home where he wants to be. Thank you so much for your videos!

[@ConversationsWithGodST]

Praying. I’m so sorry!

[@myheartsdesire643]

Please except my apologies and sincere thoughts. My husband ( age 76) has esophageal cancer and we have been fighting it for 17 months...so far he is getting Palliative Care chemo and immunotherapy...but as Julie said above even with that I am watching a slow and steady decline. My husband too wants to pass at home and that is our plan. I will be praying for you and your dad to have the nicest easiest journey possible to leave this planet and go on to the next life. Hugs~ Jodi

[@philholdsworth8280]

I have the same. My decline has been quite quick. In September, October and November 2023 I was still cycling 40-60 miles per week and now I'm out of breath after a flight of stairs. I had an oesophogectamy in December 2021 to remove a 4" tumour (100mm) but it grew back and I've now refused further chemo and radio. I've accepted that I'm going to die, and while not massively happy at this prospect, I've decided I'm going to endeavour to face it with as much dignity as I can. I strongly suspect that I'll have to enter into the UK Hospice system for end of life care, but I'm unsure where this line in the sand is. I'm in very little pain, only discomfort after eating, and I'm having a little trouble now with reflux of saliva. Thank you for this video. I just wish I knew where I was on the slide.

[@carrie1666]

@@philholdsworth8280 Many hugs and blessings sent your way.

[@philholdsworth8280]

@@carrie1666 Thank you.

[@Absaalookemensch]

Julie, thank you so much for making these videos to help people. I'm a retired nurse and I was with my mom for a week when she died at home in comfort with Hospice Care. Although it was heart failure and old age, there are so many similarities. Hospice nurses are so essential to end of life care. You make the world of difference in positive outcomes. I was a Trauma/ICU/Life Flight nurse and I will say that hospice nurses are as essential as my specialty. Thank you and God Bless from one nurse to another.

[@roymillsjnr5172]

My step mother pushed herself to the limit , she had bone cancer ,she had both breasts removed ,loss of all hair , she tried to live a normal life as she could, being a nursing sister ,she knew the outcome , it's the finality and realising your mortal , people say your brave ,your not ,you've no choice . It's a lot better if possible you can stay at home ,with controlled morphine .

[@sandybrown4764]

I appreciate your words said to prepare, not scare. You do such a great job of that. Both of my parents died in 2009. They starved to death, from cancer. I stayed by my dad's side for the last month of his life, in a care home. I was glad to be there for him but traumatized to have had to watch him, as he died. My older brother had said that he would not have wanted to die alone. So I sat with him and held his hand. Unbelievable experience.

[@gaggymott9159]

Over here in Northern Ireland, in the United Kingdom, my late Dad presented with Primary Lung, with metastasis of brain...He wasn't in Hospice care, but under the care of our wonderful NHS Nurses in the UK in a hospital situation....The Nurses and attending doctors were simply ANGELS...ANGELS!!!! A very special shout out to Dr John Winter, MRCGP, BCh, BAO ❤

[@paulcooley8947]

I found your channel invaluable when my partner went into hospice. Unfortunately the night he died the hospice nurse panicked and recommended he go to a hospital. It was the wrong thing to do. He went into dying very quickly. It took me by surprise and I still wonder if it could have been different. Probably not. I would suggest if your loved one is in hospice, make arrangements before the death happens, it will be easier. It's been 3 weeks but I still have not come to terms yet. Again thank you for these videos.

[@smajd86]

I wish you whatever gives you peace and comfort at this sad time.

[@lauramartinez7057]

I’m confused why Hospice would suggest the hospital visit when they were at home to die.

[@01splitpea]

Please accept my heartfelt condolences for your tragic loss. 🙏🏻💔💜🌻🌞

[@BR-kk9qu]

My heart goes out to you. 🌼

[@sandi5276]

ohhh, Paul.......I wish I could just hug you, for as long as you need. I hope you have a good ally beside you right now. I lost my son; grief is a very very hard journey. Come her and post often; don't isolate.

[@pearlsbeforeswine60]

If my cancer returns, I plan to refuse treatment a second time and go to hospice toward the end. But no way am I going to stay til I need the round the clock care. I did it for my husband and I'm not putting myself or anyone else through that. I have a plan to see myself out and I will follow through while I am still able. People sometimes doubt me, but I walked out of chemo after one round and refused to go back again, it was so awful. I was fully prepared to die instead. It was 8 years ago.

[@carolvalentine9223]

I don't want chemo either...I got cancer again & that chemo is horrible,especially when you have other health problems 😢

[@carolynblizzard6192]

My husband has been living with advanced prostate cancer for 5 years now. Thanks to your videos we've had great conversations about dying and the care that is available. We don't know how long we have together but being informed this way makes it less frightening. Thank you.

[@sallyethridge1393]

My husband had cancer. He was in Hospice for 4 days and it was a very positive experience.

[@Rossiegirl]

I don't understand why today with modern medicine, we still can't control fully a patient's pain. So sad, particularly in countries that don't allow assisted dying.

[@carolmead3289]

Greetings and thank you for your insite. My brother had ocular cancer that was cured, however the cancer metastasized to his liver after about a year. Once we decided with Hospice to do in-home care, he declined very rapidly. His liver was fully engulfed with cancer, but amazingly, John never had pain. He never needed the morphine, he stopped eating on his own, he never had another bowel movement or urine issue, he was comfortable, no pain, no issues except he couldn't think clearly after his decline. The hospice nurse who came two days before he passed said, "he's declining very quickly" though I wish she hadn't said it in front of him. But at one point, he rallied, got up from the hospital bed and said "I want my baked beans....where are my baked beans? Two hours later he was gone. It's amazing how different it is for people. I was blessed that as his caregiver for him and for my 98 year father, I was afforded a virtually uncomplicated experience of his passing. Thank you for your videos- they are immensely important and I appreciate your making them. Keep up the important and comforting work!

[@JessWicked]

It’s so important that we take care of the person(s) who are taking care of the loved ones on Hospice, really take time to offer focused care & TLC. Many times it is an exhausting, stressful, commitment for the caregiver. Offer an hour break, so they can shower or drop off a basket of individually wrapped snacks, and if you don’t know what is needed ask or give them a grub hub gift card.

[@PastaMakerCordy-qy4uz]

Thank God for Hospice. It really helps.

[@stevenvicino8687]

My mother just got diagnosed with more cancers than she can name. I live with her. Thank you so much for this channel. I'd rather know ahead of time than be blind-sided.

[@musicgirl8152]

It’s a sad decline…taking care of a family member…she was dependent on me and that’s what I wanted…I miss her…It was taxing… I didn’t realize how much until she was gone…❤❤❤❤

[@chayamiriamweisman3733]

There were three of us caring for my friend who died from ovarian cancer. We were EXHAUSTED. We made certain her pain was managed well.

[@Renemor]

My mom got diagnosed with intestinal cancer witch has spread to her liver and her lungs..she also has KOLS. Survival rate due to this particular metastathic cancer in norway are about 2%.. We are preparing for the worst. Your videos really helps us, and comforts us on a daily basis. I wish I was so lucky to have excactly y o u here with us in our time of helplesness, you got a really special Gift. Mom says 'Hiiii'❤

[@kjohnsonshelton0923]

…”Prepare…not scare…”- Thank you, Nurse Julie❤️

[@dominiarnold3730]

Wish I had seen this when it just came out. I just lost a close friend to pancreatic cancer, she was 50. This was three days ago. I had watched some of your videos before so I kind of knew what was going on. But the rate she went downhill was beyond my comprehension. At least I got to tell her thank you and how much I valued her friendship. Whilst I visited I spoke directly to her. I hope she heard me, her family and friends telling her how loved she is.

[@idaliatamez3130]

My husband was put on hospice in early May. I am his caregiver here at home, he has a nurse that comes three times a week to our daughter is his cna, she’s wonderful of course. But I am with him 24/7, it’s exhausting physically I especially mentally. Sometimes I don’t know what to do. I’ll be with him when his time comes and I wouldn’t have it any other way but I can only imagine what my state of mind will be when that happens.😢

[@kimberlybegonia2869]

❤you die how you lived!! My husband is dying and is so grumpy to me and I’m the only one that ever stood by him thru 10 years of Lymphoma…he doesn’t want any more chemo and we have to get hospice assessment with next few days. I’ll never be the same. I took care of my mom and in 3 months she was gone. That was 7 yrs ago. Now it’s his turn and I’m dreading it. 💜

[@TheDa6781]

Terminally ill people should have the option to skip this part.

[@DebiG1057]

Please review ALS. I lost my mom, sister, and brother, and I have the gene.

[@soulspaces]

I think Als will have a cure. I pray for this.

[@user-hk8ws8fk1x]

I have ALS also! Would like more information also! Good luck with your journey! 😊

[@kathyfreeman9596]

@@soulspaces❤🙏🙏 hugs n prayers sent❤️🇨🇦

[@kathyfreeman9596]

@@user-hk8ws8fk1x❤❤🙏🙏hugs n prayers sent ❤️🇨🇦

[@sallyanngrisolia4876]

My husband had a steady decline and stopped eating. I hate cancer. I hate it. It destroys beautiful and wonderful beings. Please God, help us.

[@jamescady723]

So sweet for doing these. I know my time will come eventually as a stage IV myself. These are very helpful.

[@MevinKarkus]

I've been diagnosed with a brainstem glioma. I know that I also will end in hospice due this disease but your videos are very comforting. I am not afraid and I am ready for the day to come. Every day is precious.

[@user-qx3rw8fl6t]

Oh heck yes. Bravo Bravo BRAVO! Getting the message out quicker is Fantastic. My father in-law has advanced Dimentia, so semi applies. So GLAD to know your cognicint, intelligent, loving, caring, wisdom, life time experience. I know it's not natural for you to speak faster. Am from the South, I get it. Your hard work doing these messages, highly appreciated. Keep the speed work in your voice and you'll gain a larger audience. God Bless you, Ms. Julie. Edit: Just had to make a laughing lark: Get 2 cups of coffee or a Monster drink before Presenting. Love you (Agape).

[@-myal-8691]

Two relatives with dementia died while on Hospice care. Both were were treated the same way by Hospice. All fluids and nutrition were withheld from day one. Nothing by mouth was allowed due to aspiration risk. No IV fluids were given. The only thing Hospice did for them was to dose them heavily on morphine every couple of hours. They didn't die from cancer or from their disease of dementia. They both died from dehydration while heavily sedated on morphine.

[@Laurie-JD]

Randy Kay channel has some interesting videos on "Near Death Experiences" (NDE's). I'm not afraid of any of this because I know where my soul will go

[@01splitpea]

You are an angel from heaven.

[@BrianHornak]

Thank you again for all you do ❤❤❤❤❤❤❤❤❤❤❤❤

[@JobyJoby-iw2wr]

Thanks for this. I want to fight this battle as long and as far as I can. For a few weeks after my last ER visit, I stopped bathing, exiting my home and pretty much slept most of the time. Home tasks were piling up, bills weren't getting paid and I looked like heck. Today was my last day in Home Nursing - was informed we will most likely skip Palliative Care and go straight into Hospice Care. Last week, I slowly started coming around, bathing, dressing, getting a few things done around the house. Had a major 'bleeding event' (first since early May) - took 40 minutes and numerous compresses to stop. I was determined to not call Rescue again for the bleeding issues - major tumor sits on top of my carotid artery in my neck. I need to pick up a few groceries and a prescription - haven't driven in over a month. Going from here. I know what needs to be done despite this overwhelming urge to give up and go to sleep.

[@rebeccadavis6102]

Just went off hospice because they couldn’t care for my trache. I have a peg tube also. I am so tired taking care of all this myself. I have been fighting breast cancer for 15 years.

[@geneblaha8100]

I have. AML. I was wanting to go hospic when I'm ready. But this made me rethink this. I'm going to talk to kids and Hubby and see what they would be more comfortable for them.

[@joannc147]

Frankly, I admire your comment about what’s comfortable for the family! ❤ That’s a very generous gift. As I read about people who “want to die at home” I can’t help but feel empathy for the caregivers who may have had NO choice in this decision. May God give you strength. 🙏🏻

[@BR-kk9qu]

This is great information. Thank you!

[@Paula-sw2tt]

My husband died of penile cancer. It destroyed us financially. He didn't have life insurance and didn't get disability until he was told by his doctor that he had 6 months to live (he lived 5 of those months). He died in hospice thankfully on medical.. I am most scared of the financial situation if I were to get cancer. I have cancer insurance from Aflac now, for some peace of mind

[@user-pq6iq4dp1t]

My mom was on hospice and she stayed in a deep sleep till she was gone 😢she had colon cancer

[@tsmith7119]

S0 sorry!!

[@motsumilioness]

As much as I've been trying to deny what is going on with my dad, I guess I needed to hear this from a hospice nurse. I see what is happening, but it still hurts. He has prostate and esophageal cancer. The esophageal is the most likely to cause his passing, the tumor is right on the duodenum. He is declining, he has been since ending chemo. He's doing a lot of sleeping, and was feeling really crappy yesterday with nausea so he was only eating yogurt or pretzels, but he did have a slice of my birthday cake. It's hard to see how he looks now compared to how he looked right when he was diagnosed 2 years ago. Now he looks like a living skeleton. He has been in hospice for a week so far, next week will be 2 weeks. When it gets to the 24 hour care, my mom wants him to go up to Winchester since the house is too small for the hospital bed. And we can't have our dog over at my house for days at a time.

[@ashmars4869]

My dad currently had kidney cancer and has had it for a year now 😢

[@reginacollins8666]

What if there is no one to care for the hospice patient in their home?

[@reginacollins8666]

What could a person do; having no one to care for them?

[@lizziedance2010]

My husband’s grandmother was diagnosed with cancer in her liver Sunday, by Wednesday she was on hospice and by today, Thursday, she is in a coma. It’s happening so fast.

[@tagyouritification]

What happens if you have no one to care for you? Where do those people die? This is a serious question I think about.

[@joannc147]

Me too! I’m going to book myself into some kind of facility to be safe, warm and pain-free..

[@vallivergano239]

Me too 😢

[@cr370]

Does someone ever say enough with the care, and opt for physician assisted suicide. Have you ever seen this situation.

[@seinfeldchik]

I really don’t want to crawl to the finish line like so many. I want to age like Barbara Eden or Betty White.

[@emptyk8662]

Have you done a video on the surge of energy towards the end of life?

[@joannc147]

I recall that Julie has mentioned this in a prior video.

[@PaulNoake]

Hi Julie my beautiful mum passed away from Non Hodgkins lymphoma she had an operation for a related mass she was discharged a week after that but she was in severe pain and was re admitted to the oncology ward she went into a coma and passed away that was 12 yrs ago 😢😢😢😢😢😢😢😢😢😢😢😢😢💔💔💔💔💔💔💔💔💔💔💔💔

[@JackieCrittenden-dm9jp]

I love our hospice team I can call them anytime 8.45 pm tx

[@annfieger79]

I'm in hospice... If you don't decline in a 6 month period... They actually let you go.

[@Kent-qo6xp]

She is such an champ.

[@robincivitello4473]

Hello, I wrote to you a couple of mos. ago about my son having glioblastoma....thank you for the video. Justin is now at the end of 1 yr. He having testing to see if he is eligible for phase 2 of the clinical trial . I'm waiting to find out if he is eligible. The first one had shrunk the tumor enough to buy us some time . Of course we know that it can grow very fast when it decides to but I will take every day given😢. Thank you. Robin

[@andrewjoyce9038]

My mother died from mestasis cancer 6 months ago. It happened suddenly. She was unwell for a few weeks then we rushed her to hospital thinking it was a stroke. She wss diagnosed with cancer at the hospital. She died a week later. This was 5 weeks after my father died from a brain tumour

[@sandybrown4764]

Oh, my gosh, how awful! How heartbreaking to lose both parents within such a short period of time! I hope you do well with your own recovery. There is love all around us and if you need to, reach out for help. Bless you.

[@andrewjoyce9038]

@@sandybrown4764 thanks. It's been hard. Taking each day as it comes

[@albertouribe435]

Thank you

[@TonyBurke100]

I had cancer when I was 60 and I beat it, I'm 70 now and no more cancer. Why because I didn't rely on mainstream therapy I used Essiac which is a natural therapy used by Canadian Indians of course it isn't accepted by the mainstream but ask the hundreds of thousands of people who are still alive and cancer free..

[@jeanbaum376]

According to an article from NCBI of National Institute of Health “Benzodiazepines have emerged as important agents for symptom control in palliative medicine.1 Benzodiazepines treat a variety of symptoms in palliative care, including anxiety, delirium associated with alcohol withdrawal, seizures, and when symptoms are refractory, they are used for palliative sedation therapy.” Delirium, anxiety and agitation doesn’t sound like a peaceful death😢

[@melindahall5062]

They already use a lot of Ativan for agitation….It works well.

[@Bobby-nh9xp]

I currently have stage 4 urothelial cancer and will go to hospice eventually. I don't want to do home hospice as I live alone. Is this a requirement before going into a hospice facility? I'm hoping it isn't. Thank you for what you do.❤

[@Vodkainsomniac]

Pancreatic cancer, has bloating, and memory problems. They sleep loss and thankfully sleep.

[@janisvaro4949]

Do you mind elaborating on medications and managing symptoms? I am a stage 4 cancer patient, and I have to fight every. single. month. over my meds with the pharmacy. And I just can't take it anymore. I still, hopefully, have at least a few more years before I will be in hospice, but you mention that hospice is "great" at symptom management. But I am afraid. I have a fantastic Palliative Care team and I still have to fight. What makes hospice able to get what I have to fight so hard for being in Palliative care? I feel that pharmacists think cancer is a joke and don't give a sh*t about my care needs. How does hospice get around this?

[@andrewclarke3622]

How does a doctor determine how time a patient has left?

[@cyndiross7197]

Thank you 🎉

[@johnlakey4983]

My wife secretly got her 3rd mRNA vaccine in September 2022. Her cancer returned January 2023. She passed June 2023.

[@davidowen9671]

Your state allows! What the heck is that? A felt need to make the newspapers, to be applauded? Maybe someone with integrity will step in and explain how the euth doctors' self-congratulatory drama is superior to just taking pain meds and good wine freely, and if/when they push over the brink, where is the sin?

[@carlascearcy1280]

Is it common with cancer (liver,lung,lymph,and bone) to have severe dementia and confusion along with it? My FIL has had an extremely fast decline since diagnosis one month ago. He is now on hospice and bed ridden, doesn’t want to eat or drink and is confused and hallucinating and sleeping most of the time.

[@robertacarroll8481]

What happened to hospice care in the hospital?

[@BanFamilyVlogging]

Are there options for people without family? I don’t have anyone 💔

[@batchboy999]

I thought hospice would be a place! It's not? I'm an all alone 74yo senior, I'm concerned if I need hospice care someday, buy I have no family to help if am at that point, what's to happen for me?

[@Brewsky63]

Hi Julie, Heard a good friend has cancer and its in his bones. Been trying to reach out to him, however he is not responding. How long does someone have with this, and should I continue to try to contact him. I feel he wants to be left alone!

[@joannc147]

One tactic might be to ask/offer something specific, like, “I’m stopping by a strawberry stand to pick up some fresh berries. May I pick up some for you? I can leave them at your door. I’ll knock twice to let you know they’re waiting for you.” It’s kind and attentive yet offers space to your friend. Pet care is also a HUGE benefit! Walk dog, drop off cat food. Blow the leaves off your driveway? (and plant some petunias in a pot?). Stop at bakery for some fresh muffins? (Yum, that sounds tasty right now). Good luck with your kindness. This rejection is perfectly understandable. It’s not you! ❤

[@Brewsky63]

@@joannc147 He came to visit me for a couple hours yesterday and is in good spirits. Thank you for your input!

[@youhandle10]

I'd like to know what cost would be. What insurance covers medi cal or medical care. And what does options does someone with not enough money to provide the care there loved one needs do.

[@larryulery3729]

I had a friend die of Cancer. When he was embalmed he had a yellowish tint to his skin. His skin was different

[@kripptonite7457]

My husbands step-mother turned yellow gold inmediately after dying. Julie can clarify, but I think it's from the huge amt of meds she was given, provided in a "med box" delivered 2 days fr FedEx. She was a Nurse Manager, afraid of hospice. She had much agitation, constant diarrhea slurry. The hospice box had haldol, atropine, laxative, ativan, morphine. There were others too, I've forgotten. We were instructed to crush pills w spoons, add a little water, & inject slowly in her mouth. She would bolt up screaming "help me, I'm dying". She needed more & more, the 24-7 Pharm approved all increases. I think these amounts affected her liver, hence her coloring. I also spotted yeast, & the hospice Pharm was on it immed. & we had within hours. The meds worked, she was peaceful. Foam came out of her nose & mouth. We sat her up so I could clean w toothelle, & she did a little hiccup & died, very peaceful. I will instruct my family not to give me any laxatives. I think it's counterproductive to hospice. It is also very hard on the caregiver, as clean up means a new gown, (we cut hers in the back for ease of removal). You go through a lot of wipes, chucks, & peri spray.

[@kripptonite7457]

Also forgot to add, like Julie says, every patient is different. My mom didn't have agitation, nor any discharge of bodily fluids bc we didn't give her laxatives & fluids. She was 81, died of lung cancer. She was very peaceful. Only drugs she had were morphine & atropine.

[@debbiekoonce1806]

What if I need hospice for a loved one but cannot do the care myself?

[@akathsmith]

If Morphine doesn’t help. How do you manage pain with cancer patients

[@kristensorensen2219]

What good is hospice if it doesnt manage the misery?🤔😤

[@sandysue202]

Hospice manages physical pain. Key word...physical. Misery is generally more of a mental or emotional unhappiness, not physical pain. There are some meds that can help this and the patient and their family would need to ask the hospice nurse about this.

[@sandi5276]

@ kristen - right? Relief from the despair

[@user-vz4yy8ix1u]

What is it to die from hiv?

[@susan9675]

Why is it so often that the steady decline you keep mentioning doesn't begin until hospice begins??? Sure you know what I'm getting at but will deny it.

[@angelamesser7743]

It seems to me that most don't start hospice until they only have a few hours/days/weeks left. If earlier, I heard and it seems very plausible, that adrenaline is keeping you alert in fight or flight mode and once you get on hospice and get better pain managment/anxiety meds, etc, you can finally relax some and then the decline happens. I hope I'm saying all that correctly.

[@jenniferfatzinger7714]

I have one question, can a child with pediatric cancer able to go on hospice while actively getting treatment?

[@angelamesser7743]

Yes, they can.

[@ivangranger8494]

How has president Carter maintained?

[@joannc147]

Right? He’s well over a year in hospice. Strong constitution in that man!

[@carolemantha8958]

❤

[@Ich00senottogivein]

$$$$$$$$

[@blatherskite9601]

WTF is COPD? Please don't assume we know this stuff.

[@dag118]

Google....