What to Know About Narcolepsy - Dr. Mignot, Nicole Jeray

Recording from Wake Up Narcolepsy's 2024 National Summit on April 27th in Redmond, WA.
What to Know About Narcolepsy - Emmanuel Mignot, MD, PhD, Nicole Jeray
Event recap & photos: www.wakeupnarcolepsy.org/news...
Thank you to our summit sponsors: Jazz Pharmaceuticals, Avadel Pharmaceuticals, Harmony Biosciences, Axsome Therapeutics, Takeda Pharmaceuticals, Alkermes, Zevra Therapeutics and Centessa Pharmaceuticals.
These recordings from the WUN Summit on 4/27/24 have been edited for time, accuracy and/or clarity of information for the patient community.

[@ProBloggerWorld]

This is another gem and highlight in this channel's series of latest videos. I appreciated Nicole Jeray's self-disclosure and openness around 46:00. I kind of wept when she mentioned that she goes to her car and takes nap frequently especially during lunch break for example. You have to mask and shield yourself from others, trying to function on the outside. While naps somewhat help, you miss the social part of others and usually need to hide what you are doing so as not to get mocked or pressured. I hope that she finds a solution for the medication coverage. It is so heartbreaking that the very thing that helps you function better is behind a paywall that you are unable to reach because you are not functioning properly. Also, Dr. Mignot's remarks on cataplexies were again spot on; the anticipation level is misunderstood by doctors. His recommendations and tricks of the trade for dealing with Xyrem are very helpful.