Why I Need a Port and Infusions💉 2/25/2018

[@F33NQW33N]

Whenever i see you two together, I'm just amazed. The little group of 6 you have (counting the dogs) is just meant to be. If ever there was a group of people meant to find each other, it's you guys.

[@cori8489]

I don't know if you guys have heard of this, but there is a company called Reel Raw that delivers raw meal pre measured for your pup with the bone element, but I don't know if it's the same diet you and Jaquie do. But it may be something to look into to help out too. I have seen a couple KZbinrs opening them up and feeding there dogs them. They say it comes very cold and still frozen, the meat is very fresh, and it has an awesome variety like green tripe, duck, rabbit, buffalo, turkey, etc. From what I saw it went by 10% organs, 10% bone, and 80% meat. And they would add to these meals with coconut oil, raw eggs with the shell, and stuff. I hope this is helpful. I know nothing about it, I don't have a dog (service dog plans in the future for my disabilities and I will be feeding raw), but I wanted to pass it on in the off chance it might be useful to you both.

[@abbyc4266]

Totally book smart and street smart. You two are so amusing.(Harlow and Orion too - Harlow was like "hey! That bowl is pink, mine!" )

[@beckallen3231]

Ya know what irritates me to NO END... other people THINKING they know more about you, your condition, and what your best options for treatment are. Everyone has SUCH an opionion. I trust that you guys know what is best for your own situation!! Just like me, I have lupus, but just because I have it doesnt mean EVERY person has the same types of issues as me. No one has the same body system, pain levels aka what we can handle. I just wish everyone would stop judgements and JUST be supportive. Not just on youtube too, instagram, twitter.. all of it.. If you are chronically sick visible or not, BE SUPPORTIVE, our lives and struggle(with diagnosing, treatments, understanding doctors, family and friends) are bad enough. Please pass it on.. Love and Support each other!! We need it and DESERVE it!!

[@TheRawLife1]

Loved this comment 💚💚💚💚

[@sueschultz9358]

Beck Allen - exactly!

[@beckallen3231]

Thank you, I really mean it lol I get frustrated for all chronically ill people when other people pass judgement so quickly and easily. I just wish love and understanding was passed as easily. Maybe with more prayers and passing on the fact that I am NOT ok with it. I WILL and DO block and turn in people that will not spread happy messages lol

[@MissLeopard28]

I hate the people out there with the mindset that, if you aren't a certain way, you are faking it for attention or you have Munchausen's. There is a nasty group online that talks about people on Instagram saying that they are just wanting attention and aren't really sick. How hateful! You don't know what that person is experiencing! I pray that those people never get sick and get the same treatment. Be supportive - unless you've walked in that person's shoes, you have no right to judge!

[@Mary-op8hi]

AMEN SISTER!! I almost can't believe just how judgey people are being of you my dear sweet and funny Janice! I hope you know that there are many, MANY of us who support you and will continue to support you no matter what decisions you making regarding your health and treatment plans

[@1roze4me]

I thought it was so interesting how Harlow wasn’t responding to your commands when you were talking to Orian. They are really smart service dogs! I was just so tickled by that! I’d love to see a special video for Harlow and Orian....or Orian and Harlow. Haha!

[@MissLeopard28]

LOL! I love how Harlow doesn't follow your commands. It's like the dog equivalent of "You're not my mom!" HAHA!

[@NeverSilenceLove]

It makes me sad that you two have to defend yourself or explain yourself. I never doubt that you two are doing the best you can for your body! I wish I could help more, but the best I can do is support you! Keep fighting, you got this.

[@supportforaly]

LDianne sadly it's what we with chronic illnesses have to do a lot and that percentage increase when you talk to strangers about it

[@ravenmun]

You do what is best for you. Your doctors sound like they are all in agreement about the port; and that should be comforting. Please don’t dwell on the rest of us who are just arm chair doctors at best, and have our own hang ups about ports/etc. Nothing else matters beyond you being comfortable with what you are doing! No one else has to live with it. So stay strong! Know you’re doing what is the best, and no one has ANY room to question that. Praying for you all! And learn Jaquie’s middle name! 😉

[@jenncort3127]

Harlow is probably like“hey that's my bowl. Must be my food"

[@monicauyeno7368]

omg! I would not be able to resist Harlow's face! I'm dying here!

[@TheRawLife1]

Hahaha I’m her tia, I can resist 😂

[@monicauyeno7368]

Nope, i'd be the Aunty that would give all the treats and then pay for dental bills. lol!

[@erinnbrown9662]

So glad you guys got to spend time together. In the last two vlogs your cough is so much better!!! Hope you get to feeling well soon!!!

[@claireelizabethblake8911]

Jaquie is never letting that go... 🤣

[@TheRawLife1]

Never 😂😂😂

[@alexisrivas307]

I have had my power port for 5 years and I don’t do my own port care. It’s only used for chemotherapy, CT with contrast, PET scans, MRI’s, and blood work related to treatment. I’m getting my custom wheelchair and power assist tomorrow morning. 2/27/18

[@iamboxboy569]

Janice let me tell you something. Infusions help a ton and I am super glad you are getting them. I've been getting them for about a little over a year and you can really see a difference. And good luck with getting a Power Port!!! Of course jaquie will visit you but let me worn you, the pain after getting the surgery is terrible but I think you can handle it!

[@joshuacreel3000]

Jaquie thinking you would vlog in the bathroom is the most hilarious thing to me lmao! Honestly as someone who deals with neurological issues on the daily more so than like physical ones it's sort of nice to see the other side of things through you guy's vlogs.

[@Beauty-and-the-Dia-betes]

I've known my bff for years and I don't know her middle name either. In the grand scheme of things it's far more important you support each other through life's trials. On my own channel there are only small snippets of my spoonie life, there are things I'd rather keep to myself. You're going to do well with caring for a port, you got this Janiece 💕

[@TheRawLife1]

Exactly!!!! You know what your talking about🤗

[@Beauty-and-the-Dia-betes]

I learned after years of fretting about the unimportant things. My bff has major ptsd, I have everything else under the sun. Her nickname for me is "human science experiment" LOL!!!

[@13meli55a]

WOW Janiece, you don’t even know your best friend’s middle name and you’ve known each other for YEARS.

[@TheRawLife1]

😂 oops

[@kaylathomasson9619]

The Raw Life i dont know my best friends bday so its ok lol

[@Beauty-and-the-Dia-betes]

I don't know my bff's middle name, we worry about bigger things than that. Like she has me on deck to write her obit, that's how close we are :)

[@laylee8307]

Jaquie's world seem's to revolve around her and her alone.

[@Saturndazed74]

I love your shirt!! And I know I have been MIA, trying to catch up, the joys of having a chronic illness and working full time, life gets in the way. And wow, that's a crazy run on sentence, but I miss you and hope the port is helping you out!

[@betterwiththeirish]

My POTS is very out of control as well. Mine is severe so I'm there with you Janiece! I hope yours gets better soon along with GI!

[@TheRawLife1]

I’m so sorry, we both know the struggle💚💚💚 I hope your treatment is coming along

[@betterwiththeirish]

The Raw Life thank you so much! I've had reactions to several of the meds they have tried and I am also almost to the port point as well! I completely relate!

[@sarahdeeb4852]

You got this girl ❤️ Don't be scared. Hopefully it's the right tool for you and really helps!

[@annamarie6422]

Completely understand how you're feeling about the port. I get mine Friday and I'm beyond nervous. I have crappy veins too. But in all reality, it's going to help. Hoping everything goes well when you get yours.

[@TheRawLife1]

Hope your port journey goes amazing 🙌🙌🙌

[@supportforaly]

AnnaMarie I'll be praying for you honestly mine has been amazing! Only issue I ever had was my surgeon was being considerate of my size and at 20 I got a pediatric port but we had too many issues sometimes I wouldn't get a good flow on blood return so we replaced it a year later with a regular port and I haven't had issues since it's been 3 years now. Havent had any other issues and it took anxiety away from blood drawn, and even going to the ER because that was one less scary moment to deal with

[@ScoobyDoozy]

I'm sorry your POTS is so severe. What POTS medications are you currently on? What's your experience of them been?

[@TheRawLife1]

I'm sorry I don't disclose my prescription medication.

[@ashleighclute]

janiece ports are not very dangerous in itself the danger comes from a line infection, i have had my port for going on 4 years now and have had no issues! i go and get it flushed every 4 weeks and they take bloodwork from it every 4 months. my veins are completely shot like your are. you will love having it so much just be sure when they are accessing it that they take all precautions as well as when hooking up. you'll be fine!!!

[@TheRawLife1]

Thanks for the great advice

[@supportforaly]

OMG someone like me! Most people I know are constantly accessed and so when I'm in my port group and I talk about mine everyone is like shocked about mine and I'm like uh....

[@allie4680]

I love how ur and Jaquie’s attitude really come out when you’re together! It really makes me smile on even the hardest days so THANK YOU 😍 Also I was wondering... How do u keep Harlow and Orion from eating one another’s food??

[@heatherd.9390]

I am only answering the Harlow/Orion food question because I saw her reply in someone else's question here. Janiece said that they are fed separately. Hope that helps!

[@ABDR4]

I get the dysautonomia & diarrhea issues, since I’m dealing with that myself. Going many times a day. The electrolyte I use kinda helps. No matter what I can’t seem to drink enough water. I’m seeing a new doctor to see what he has to say. I think trying meds for my MCAS makes more sense, but I certainly won’t refuse infusions if the new doctor offers them.

[@ChronicallyKats]

Praying the infusions help you. I too am going through a rough time, I've lost 6 Ibs in 5 days, But we know I have Gastroparesis, we just haven't found a treatment that is helping yet. I am praying for you girl. Stay strong! Orion is so cute! And Harlow just sitting there giving you those puppy eyes!

[@shekeyra100]

she explained whats going on with you and she really loves you and how much she is worrying about you bf rule my bf died and i miss that bond so take time for each other no matter what sending hugs from britain

[@supportforaly]

Praying your fears are eased I have a port to and tis been 4 years no infections! And I know you're vocal enough that if someone doesn't follow protocol you'll speak up which is the biggest thing you can do with a port to avoid infections! I hope they find what's going on with your stomach so you can get treatment

[@bazokire]

Btw, the 'street smart' and 'booksmart' is so obvious now ...no wonder you both are such thick friends

[@sueschultz9358]

You two are hilarious together. And you will do just fine with your Port. You have a good teacher.....Jacquie! Hang in there sweetie!

[@skythomas7008]

You share what you are comfortable sharing. I understand some things don't get shared but I'm very glad that you have each other your families and hubbies at your sides.

[@SummersPlace]

Let's rumble girls. Lol Joking! Glad to see you both smiling! 💚💚

[@nicolebezanson8734]

Janiece all the best to you,the most important thing is your health hugs😊❤️💚💚💪🏻💪🏻

[@sammihom15]

Y'all are too cute. Also, Jacquie I LOVE hearing about weird dreams. Feel free to share if you're comfortable doing so.

[@robinharris0562]

Lol tizzy. You two are great

[@TheRawLife1]

Hahaha when Jaquie said that I was like what😂

[@supportforaly]

Also a question for comment readers! I have POTS really want to try fluids as treatment but so far been knocked down and my quality of life is crap. How did y'all get your doctors to help you? I see a really good POTS neurologist soon for the first time so hopefully he helps but just in case!

[@thegoatmama9693]

"Spin! ...but don't hurt yourself." 😂

[@ansleylowe7256]

You got my su-port God i think I’m funny

[@TheRawLife1]

hahahahaha

[@ZombiieLoveQuadCreations]

Yeah.. I had people acting negative about when I got the port.. They aren't the ones who has infusions or blood work or being poked 14 times to get an iv started!.. So don't even sweat their comments.. A port can have its dangers but it definitely a life changer! It has made treatment 2 thousands times more tolerable and so much less painful!!.. It also helps to be able to do the infusions in home! Get your treatment and do what you have to! 💪👍

[@briatecheira9269]

Girl I know the feeling when your tummy is not doing good i don’t have pain tummy issues I kind get them once and a while and let me tell it’s hurts when you know your tummy is warning you it’s time for pain time I hope the port helps you with all the issues you been having I’m sorry 😐 my brother loves rick and Mordie good show 👍🏻👍🏻👍🏻👍🏻

[@penelopepolinsneemeyer4757]

Janiece cariad, you have to do what is right for your health. Don’t worry about the amateur armchair experts, take advice from the doctors that you trust, do your research and go forward with what is right for you. I’ll be cheering you on! xxxxx

[@anunez3450]

happy that you are staying 💪you got this and you have an amazing support team with you. unfortunately this comes with the package of putting a part of your life on KZbin so many cons but if you still remember why you started this Journey then that's all that matters. awareness is key.

[@gothic1774]

Love you guys and your precious pup's, keep on staying positive and hopefully things will turn out ok for you.

[@TheRawLife1]

Thank you for the support 💚

[@kimberleydunbar6481]

A Port will save your life Janice.. if they can't get a vein... my anestologist (sp?) demanded I get one, becasue god forbid something happened and I they couldn't get a vein.. Yes it's scary, but no one will let it get bad, they will do what they have too, if there is a problem.... But, its been a lifesaver. for me! Don't worry.. just relax and breathe.... Hugs Janice.. and Orion. and Paul.

[@Rainpeltemily]

i feel like you should have shouted "STREET SMARTS" when jaquie didn't get your joke about vlogging diarrhea lol

[@wjlake5089]

You don't have to defend or justify any decisions made for the betterment of your health. Praying something will work. On not knowing Jackie's middle name.....she'll get over it. Silly of her to pout. She's very lucky to have such a spunky friend to keep her grounded. And for the record, I love Jackie too! I consider you both yin and yang for each other.

[@slowedsongsaremyreligion5434]

Thank you for the port info too!

[@wendydickason9206]

Jacquie and Jeneice you are both an inspiration to me. With all the medical issues you both have. And you are both very up beat and happy

[@beeking7971]

If people are questioning what you're saying, ignore them. You don't have to explain yourself to other people. You have way more important things to spend your time and energy on. Good luck with the port and everything :)

[@BeverleyButterfly]

So glad you have one another especially right now with so many health related decisions to be made but you will make the right choice I believe in you...but I can’t believe you didn’t know your best friends middle name 😂😂😂

[@Uniquelyyours1]

You got this, Janiece:))) Hugs

[@NorseButterfly]

I'm happy that your medical team decided to go straight to a port and not mess around with a pic line first. To me, THAT would be more scary.

[@vitasolano3272]

All the best with what you need Janeice ❤️❤️❤️❤️❤️💚💚💚💚💚💚💚💚💚💚💚💚💚💚

[@crazylady2902]

You got this. Rest and take care of yourself.

[@TheRawLife1]

Thank you💚

[@slowedsongsaremyreligion5434]

I love their cute doggy faces!!

[@robinblake5783]

I totally understand the effects of having to be in the bathroom most of the day. It's exhausting and it hurts.

[@ebonymarie7016]

Hey, I just would like to know which doctor is best to ask for a port or picc line. I haven't been commenting because I have been in the hospital and I am an extremely hard stick. I have needed IVs quite a bit lately. What are your thoughts??

[@pennyheisler7500]

A port could change your life for the better. It will be great for you to feel well! You can do this! (I’m a long term RN)

[@TheRawLife1]

Thank you for the support means a lot💪

[@Allipartyrocking]

Love harlow and orian

[@CSpaniel14]

I hope the infusions will help your weight and health. Continued prayers

[@xclumsyangelx]

Can u explain how dysautonomia affects u? I googled it and I don't understan it it seems very broad in its effects. Also I think ur doing amazing and it sounds like a port is a good idea - paralysed hands are not cool!

[@brandieblakley7214]

Jaquie,Janiece,do what u need to do to keep yourselves healthy! Forget all of the negative comments! People have no idea if they don't share the same health problems! No clue!

[@IzzyKDNA]

hahhah i remembered her middle name! (probably because it's my name, but I still want creds)😜Love you guys!

[@TheRawLife1]

Hahaha cheater!!! Doesn’t count😂😂

[@hannahmariellewellynllewel7128]

Good morning both of you girls and 2 pups

[@933marnie]

I hope you feel better soon

[@kavitadeva]

Hi Janice I want to thank you so much for explaining why you need a port. I didn't understand why and you weren't talking very much about the fact of what the port will do for you and the reasons why your doctors want to put in a port. I can also understand that you're very nervous and scared it's something very new but hopefully it will make your life easier and better. Okay I will see you next time and maybe you could ask Judd privately what jaquies middle name is. Byes

[@supportforaly]

kavita deva it's Isabella it was in their friendship tag video!

[@kimsouders]

You two share the same Doctors.?

[@TheRawLife1]

I took all her fabulous doctors here in Orlando 😜

[@kimsouders]

The Raw Life Jaquie said all “our”doctors...I was just wondering.

[@meganlovesdisneyandcrafts4780]

that doesn't neccisarily mean doctors belonging to them both exclusively. They both have doctors.

[@kimsouders]

Disney Gamer well..we all have doctors..some are reputable, some are quacks. I hope she finds a reputable one.

[@bazokire]

Why were Orion not fed with Harlow ...or, why Harlow did not wait for Orion for breakfast ??

[@TheRawLife1]

Because they are goldens 😂😂. If they eat together, they will eat each other’s food🤣. They need to be feed at different times

[@bazokire]

Ah ...ok ! Can't wait for Friday to see them together again

[@quilabright4263]

I love the J&J shananigans. Janiece do what you got to do. It's like Judd always says the port is just a tool to use. There are some risks with most tools, but it sounds like the benefits will outweigh the risks. Do what you need to.

[@TheRawLife1]

Yes very true!!

[@TheNailgirl12345]

Are you going to keep the port accessed all the time? or just during infusions?

[@TheRawLife1]

Only during infusions

[@savannahtuttle4831]

99th to comment I feel so bad for you you have to go through a lot with chronic illnesses it's a lot to handle but we are all her for you to support you

[@SysVerse]

I actually call my best friend by her middle name. I’ve been using it as a nickname since 2nd grade. That’s like 13 years ago now lol

[@melissacaudell1622]

Know how to explain anything to me I totally understand what you're going through

[@emma_in_mn]

Yeah who knows since they still haven’t figured out what causes her abdominal pain a feeding tube could still cause it

[@melissacaudell1622]

You don't have to explain anything totally understand what you're going through

[@Kikiviewsvids]

U getting a port and those infusions is the smart way to go, its common sense so I don't undertand y a person would say you're getting just to have it smh. Love you too together💚❤

[@LisaMarie-xi6cw]

Its easy for me, my best friend and i share the same middle name Marie.

[@alyssawssinging4039]

Hey I agree with u if it helps you then do it but feeding tube if I don’t need it that’s awesome becasue I don’t want one lol I have diarrhea too it sucks but I’m Not sure if yours is worse than mine or not lol

[@meikajackson2683]

Where's Yodi I haven't been seeing him

[@HannahJoy333]

Meika Jackson , Yodi is a girl. I believe they have said she likes staying home with Janiece’s Mom when they travel.

[@Vikiexo]

hahahaha sorry Jaquie for my unhelpful comment on the last vlog about not knowing my 2 best friends' (of 11 years) middle names!

[@shawnstone666]

I can always remember my best friends middle name, because we both have the same middle name 😆 same spelling and everything 😜

[@meganlovesdisneyandcrafts4780]

I have been at a class and I STILL have trouble remembering names. I know you're educating but it kinda gets on my nerves That people see you being poorly but they feel the need to not be kind or whatever. When you get your port, Paul will have been taught (hopefully they do that) and you could also facetime Jaquie. It's scary but I'm positive the benefits are more than risks.

[@supportforaly]

Disney Gamer they are! I've had a port for 4 years been blessed no infections yet!

[@shekeyra100]

7yrs friendship

[@katiebellismiller3470]

Rock that Divatude Jaquie!! She should have remembered your middle name!! Love you both so much though!!

[@katiebellismiller3470]

That Friday song was a really corny song from 2011 too!

[@mariaslife790]

Every Friday I’ll be seeing each other?

[@zacharyrome3432]

Honestly I barely remember my own middle name sometimes lol !

[@nicolekelaher1979]

Why do people keep calling you janice isnt it denise?ive noticed it alot in comments lately.

[@TheRawLife1]

Janiece

[@supportforaly]

The Raw Life omg I've been spelling your name wrong! Girl correct me if I do cuz brain fog! My name is Alyssa but it's pronounced different so I totally get having your name misspell and stuff I want to get it right

[@beckyb9991]

You have the best attitude and I admire you so much, Janiece 💖. Keep being you!

[@TheRawLife1]

Thank you💚💚💚💚

[@hannahmariellewellynllewel7128]

Hi good morning what is your middle name ?

[@kaylathomasson9619]

Hannah Marie llewellyn Llewellyn marie is that actually your name

[@CSpaniel14]

Cockers love to eat to

[@chroniclesofabrokenperson2600]

I don't blame you for not knowing her middle name :D

[@kimberlyearly8918]

I’m really sorry but I feel like Jackie takes over a lot of times during your vlogs when you’re together.

[@TheeUnknown6468]

wow Jaquie didnt know Janice's fear she made vlogs for it lol jk

[@trishab2147]

Jacquie- vitamin.... lol

[@TheRawLife1]

I smiled when she said it😄

[@trishab2147]

The Raw Life I noticed that. 😂

[@laylee8307]

You have lost quite a bit of weight.

[@annaspicer-girlwithoutguts6890]

explosive, and everything she has ate and drank is coming right back out! Nothing pretty!

[@GMAILISKOOL]

Joaquin Isabel blake!

[@TheRawLife1]

Jaquie 😅😂

[@GMAILISKOOL]

@The Raw Life I'm sorry I didn't mean to upset you 😰😢

[@TheRawLife1]

Ohhh you didn’t, I found your comment really funny 💚💚🤗🤗