Your information has been life changing for me after a neuro-Lyme infection. Thank you so much.
@laidymagallanes78497 ай бұрын
I was diagnosed with both. I am located in Long Island, NY. I started treatment with a Functional Nurologist jist last week. I would have loved to be able to visot yoir clinic unfortunately it is too far from where i live. As of my first visit i felt great for the next two days but i am feeling farigued and off balance after three days of my first session. I am hoping with the right treatment i will be able to get better soon 🙏
@christinefarneman443324 күн бұрын
How did they explain to you that you can have both POTS and OH at the same time?
@kaitymahrii6 ай бұрын
This is really good break down. Its nice to see a dr who understands. I have had issues since 2005 and was told id grow out of it. Only got diagnoised last year with OH. Trying to get more testing done.
@forthetruth243 ай бұрын
I had series of dysautonomia testing including tilt table, and the neurologist diagnosed me with POTS. On a regular day, I don’t have OH. However, I had multiple syncope throughout my life starting in early childhood. I don’t have diagnosis of OH.
@wunderin28442 ай бұрын
I have orthostatic hypertension. Standing I was over 225/125. Laying down I’m 105/50. There’s just nothing to support me and I’m having a terrible time with this causing extreme headaches
@finding_jess5 ай бұрын
I was “borderline” on the tilt table test. I’m not sure who to turn to for an accurate diagnosis. Some say could still be POTS, some say OH, most say it’s anxiety. Would love to find a doctor that actually explains things like this.
@mountainmolerat8 ай бұрын
You have such great videos. Thank you. Is small fiber neuropathy the only diagnosis that explains the OH in case #3? (drop in bp and rise in hr)
@loanadooty8 ай бұрын
I would also like to know that!! And if the small fiber neuropathy could be due to fybro because I don’t habe any weight struggles or diabetes or similar.
@vela74478 ай бұрын
@@loanadooty SFN explains more than Fibro, as SFN has specific signs and tests to be done, but Fibro is not a specific problem and mostly indicated by pain I would like to know if SFN causes this too or what else! my BP spikes then falls and I have symptoms similar to SFN, that is what neurologist expects but cannot test for it yet
@michele03243 ай бұрын
There are many possible causes of Orthostatic Hypotension including, and not limited to, Neurogenic (arising from the nervous system or nerves), Anemia, Diabetes, Medications, Prolonged immobility, Heart disease and Hypovolemia. A sudden drop in BP upon standing from a sitting or supine position causes the body to make rapid adjustments in an effort to compensate for hypoperfusion. Some common and predictable responses include increasing HR and Vasoconstriction.
@DanielleCrowell-hd3py6 ай бұрын
I think I’ve got a similar situation as your case here. Constant leg and foot pain, weakness, and OH with elevated heart rate. Leg weakness, all precipitated by viral infections. How did you diagnose the small fiber neuropathy in this case? What’s the general direction with treating small fiber neuropathy in this instance? Thank you
@MainlineFlippers5 ай бұрын
So what would you do for #3? My autonomic specialist at Vanderbilt told me that I didn’t have SFN. 😩
@christinefarneman44333 ай бұрын
Thank you! Good video! Does the blood pressure always decrease in non hyperadrenergic POTS but not that much so you faint and does the body compensate that with increased HR so the blood pressure then comes back to normal?
@juanitahyde12654 ай бұрын
What causes OH?
@ddflower78 ай бұрын
If i have small fiber neuropathy patchy around body but in legs too face so forth does that mran it should not be called pots syndrome?. Is there anyway fond out whats causing it i did have some tests.but did not find the reason. The metoprolol and meclizine does not cure everything else. Help
@anjolotito3858 ай бұрын
Wow 😮, I have intolerance orthostatic and hypo perfusion and vasovagal syndrome, and sometimes my heart rate is up and then down 🥹🥹🥹 … I want to visit you Doc but i live in Mexico 🥲🥲
@brittanytoretto52876 ай бұрын
I fall in such an odd category here that i get confused . I get a huge increase in heart rate with standing, no initial drop in blood pressure whatsoever never been told i had OH im diagnosed with POTS. i get venous pooling in my legs which you can visibly see. I can be extremely symptomatic with normal blood pressure but very high tachycardia HOWEVER a couple of times a day if ive been on my feet for extended periods or ive had a shower or my venous poolings particularly bad or it's warm i will get the sudden drop in heart rate and blood pressure but it seems to be two separate issues. Can you have both POTS and VVS
@ailsa75556 ай бұрын
Can SFN actually be treated?
@loanadooty8 ай бұрын
THANK YOU SO MUCH this video is so so helpful and informative! I just now realized that I probably have the 3rd case or OH and not Pots since I‘m also having trouble with temperature regulation and I read that that could be due to small fiber neuropathy. So if I understood properly the way to „heal“ the 3rd case would be exercises/physio for the small fiber neuropathy?
@loanadooty8 ай бұрын
Also why do some people that have Pots pass out too?
@alexander_39233 ай бұрын
This is confusing because in pots u can have drop in blood pressure that’s literally why heart rate increase to compensate that drop of bp
@christinefarneman44333 ай бұрын
Yes but not more drop than 20 systolic and/or 10 diastolic or a systolic bp by 90 in POTS.
@KimaltavatIrtokynnet5 ай бұрын
That isnt correct. You can't have certain type of POTS with OH. But you can have autoantibodies that is causing POTS and also small fiber neuropathy