Yeh Hai Lupus (This is Lupus) - Launch Webinar (23/03/2021)

This is a recording of the live webinar held to launch "Yeh Hai Lupus" a Hindi-language video about lupus on the LUPUS UK website. The webpage can be accessed at
The webinar features:
Welcome, introduction and housekeeping - Paul Howard (LUPUS UK CEO)
An overview of lupus and its impact on patients - Prof Anisur Rahman
Personal experiences of living with lupus (views from patients) - Rashmika Daji & Santhia Subramanian
The role of ethnicity in perceiving lupus - Dr Kanta Kumar
“Yeh Hai Lupus”: What is included? - Mandeep Ubhi
The importance of information resources such as “Yeh Hai Lupus” - Dr John Reynolds & Dr Shirish Dubey
Questions & closing remarks - Paul Howard
The webinar was hosted on Microsoft Teams from 3.30pm to 5pm on 23/03/2021.

[@seferasidhu8012]

About time awareness is made to the Asian community who have no idea what Lupus is the effects and majority who suffer are asains quietly due to the stigma of staying quite

[@asifaawan7441]

Hey i'm asifa iam 30 year old girl from Pakistan suffering with SLE since last 4 years iam fortunate enough that my dr diagnose it from very early stage and my lulus is controlled but some time i feel lethargy and mild to moderate pain in my hands and fingers .....i am on medicine and i never skip my dose if i do so i remain in dormant condition ...i want to just get rid of this disease i'm just fadeup of taking medicines day and night kindly do let me know