Decoding PI: Antibody deficiencies
1:27:15
PI & aging: 2024 PI Conference
44:44
Gene therapy: 2024 PI Conference
40:43
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@AndrewMichaelLee-m4p
@AndrewMichaelLee-m4p 2 күн бұрын
I learned so much from this, thank you for sharing.
@byronkavanaugh1427
@byronkavanaugh1427 3 күн бұрын
I love watching Ironmouse and Connor videos and it was Connor who mentioned Ironmouse's Idf condition to me first and this amazing video, Ironmouse elaborates even more, I donate plasma regularly and am proud to do so and am so happy she is making the most of her situation and having fun.
@kwinn6996
@kwinn6996 13 күн бұрын
Good video but I recommend 1.5-2x speed
@martylund8411
@martylund8411 17 күн бұрын
15:00 - This part hits way too close to home as a parent of an ID kid - way to close. I wish we could send all the flowers in the world to this mom and dad for their perseverance in work and prayer. Opened up to John 9:3 and it just hits different.
@katiescape
@katiescape 19 күн бұрын
I have an auto immune disease, kinda the opposite problem where my immune system is fine, it just attacks my joints, tissues and ligaments sometimes even organs, but sometimes it 'feels' like living with no immunity because while my body is busy fighting itself it can't fight off anything else. I have been a 'poorly' person for aslong as I remember but only diagnosed officially with RA recently. I'm scared of the treatments, I am scared of not getting the treatments, my future feels so uncertain. Thank you Ironmouse for giving hope to those in the darkest of places.
@rioaditiyono8442
@rioaditiyono8442 19 күн бұрын
eee... eee... aaa... aaa... 🙄
@kaseyboles30
@kaseyboles30 26 күн бұрын
When, NOT if!, they get that beer there'll be a lot of ugly crying of happiness that day. Not ashamed to include myself in that group either.
@SubhraNil_Roy_26
@SubhraNil_Roy_26 26 күн бұрын
I read your story in our biotechnology and It's application chapter ❤
@RainielCastillo-dz1vk
@RainielCastillo-dz1vk 23 күн бұрын
is she still alive?
@24voley
@24voley 28 күн бұрын
My daughter died frm SCID too x
@LovelyFjord-zg9lu
@LovelyFjord-zg9lu Ай бұрын
what is veins blood
@lindastiles4981
@lindastiles4981 Ай бұрын
I’m so sorry! My grandson was just diagnosed with this.. bless you
@lindastiles4981
@lindastiles4981 Ай бұрын
My grandson who is 17 months now was just diagnosed with this, He is such a beautiful child.. this is tough!
@lindastiles4981
@lindastiles4981 Ай бұрын
My grandson was just diagnosed with this, he is 17 months old now.. it took a long time to get diagnosed with this..
@takenname8053
@takenname8053 Ай бұрын
SUPER NICE
@dactal4444
@dactal4444 Ай бұрын
Great video was just diagnosed at 51
@songthanh896
@songthanh896 Ай бұрын
Thank you very much
@TotalRhythm
@TotalRhythm Ай бұрын
That’s sad
@Doyle-n4z
@Doyle-n4z Ай бұрын
Hello
@Doyle-n4z
@Doyle-n4z Ай бұрын
What does it mean for if your a,qn and your m,qn, is low
@garyhogue2367
@garyhogue2367 Ай бұрын
Yes I have Medicaid I am disabled I was wondering if there’s any financial help club for anything I can get
@wendymcdonald5145
@wendymcdonald5145 Ай бұрын
I’m 59 and just diagnosed. Can one dose of Rituximab cause CVID? I’ve got inflammation, all over and sore joints, no doctor has any idea what to do about inflammation.
@il3mendo
@il3mendo Ай бұрын
Any autoimmune disease that you developed ?
@il3mendo
@il3mendo Ай бұрын
Electrophoresis never showed any sign of immunodeficiency despite 4 active autoimmune diseases presents while having hyper eosinophilia. Should I connect the dot with IgE/nk/Fox3p ?
@il3mendo
@il3mendo Ай бұрын
Celiac disease with hypothyroidism, autoimmune gastritis, pernicious anemia, cerebellar ataxia (gad 65 and ttg6) and my problem was due to the fact that i just produced Ige (no transglutaminase 2/tpo antibody). Homocysteine was a marker for my vitamin b12 deficiency, endoscopy for the celiac and gastritis diagnosis and ultrasound for my Hashimoto. Now I understood the issue with the Fox3p.
@AngeDeJmusic
@AngeDeJmusic Ай бұрын
man this was hard to listen to without tearing up. This is why I love Mouse, she is such a strong person and makes living with illness less scary.
@radhika__2146
@radhika__2146 Ай бұрын
Excellent talk, thank you Dr Sullivan!
@radhika__2146
@radhika__2146 Ай бұрын
Thankyou IDF and Dr Wu for this lecture! The way slides were delivered is commendable.
@TheHyperMD
@TheHyperMD 2 ай бұрын
Thank you! Can you please explain why they can have brain lesions
@lauraseiden5006
@lauraseiden5006 2 ай бұрын
What if you refuse ivig do you die if you get to low ?
@MusicmatchJukebox
@MusicmatchJukebox 2 ай бұрын
“I just want to have a beer with you someday.” I can’t stop crying.
@DarkKnightofIT
@DarkKnightofIT 2 ай бұрын
People are trying to reduce how much plasma can be donated/used!? WTF
@ProfessionalWidow291
@ProfessionalWidow291 2 ай бұрын
Unfortunately, my adult Son's CVID was not discovered until after he was diagnosed with NHL follicular at age 30 years. His IgG, IgA, and IgM were very low , and had he received treatment for lymphoma, the low IGs would have most certainly been attributed to the treatment and not investigated as a primary immunodeficiency. He has just commenced IVIG and we are hoping to see some positive results.
@immunedeficiencyfoundation
@immunedeficiencyfoundation 2 ай бұрын
We're sorry to hear how difficult it's been, but hopefully treatment will help!
@cv21a
@cv21a 2 ай бұрын
Thank you guys for uploading. I am recently diagnosed with CVID and this has been most helpful.
@RkiyaTouil
@RkiyaTouil 2 ай бұрын
Plz
@Aging_Casually_Late_Gamer
@Aging_Casually_Late_Gamer 2 ай бұрын
Every time i feel like i dont wanna donate platletes because im tired. I rememeber mouse
@RkiyaTouil
@RkiyaTouil 2 ай бұрын
Plz any one for communicaton my son is suffer from it He is 5 year old plz any one put his number here to ask him about this illness.
@historychannel123
@historychannel123 2 ай бұрын
I have also been diagnosed with this disease. I also live in Georgia.
@KilanPruna
@KilanPruna 2 ай бұрын
17969 Adams Avenue
@BJ_Freeplay
@BJ_Freeplay 2 ай бұрын
ah yes. Insurance passionately hating young people, a tale as old as time. I'm sure a TON of us can relate the emotional fall out of being told you must be healthy because you're like 20. It's the passionate lover to the phrase "This is the healthiest time of your life" when that's a nightmare to be told
@Jemilylover
@Jemilylover Ай бұрын
Or one of the worst “you don’t look sick.”
@KeenedakbeKebabs-f9l
@KeenedakbeKebabs-f9l 2 ай бұрын
Herman Oval
@lynnwong5854
@lynnwong5854 2 ай бұрын
Are plasma donors screened for infectious diseases like Hepatitis A-E, Epstein Barr, shingles, HIV, herpes and Covid before donating their body fluids?
@immunedeficiencyfoundation
@immunedeficiencyfoundation 2 ай бұрын
Yes, thoroughly. Plasma is _highly_ regulated -- donors are screened and donated plasma is tested rigorously before it's used in medicine.
@bloodydjehuty
@bloodydjehuty 2 ай бұрын
and it's so great knowing Mousey is the number one Twitch streamer. her and Conner's friendship is the absolute best. and honestly going through hard times myself... but if Mousey can can do it... then I can find a way.
@thehappywerewolf
@thehappywerewolf 2 ай бұрын
Being Agrophobic since 98 sometimes I cry watching being 51 my life has been a bad joke and I'm the punch line.
@Thatautisticdad
@Thatautisticdad 2 ай бұрын
Would love to be able to get in touch with you. Please and would love to share my story and here yours aswell
@Thatautisticdad
@Thatautisticdad 2 ай бұрын
Thankyou for this.
@TedChristine-x9y
@TedChristine-x9y 2 ай бұрын
Schumm Pike
@Nyx9533
@Nyx9533 2 ай бұрын
I can't This song is way too sad 😭
@andymartin6084
@andymartin6084 2 ай бұрын
2:20 2023 -> most subscribed female streamer. 2024 -> most subscribed Twitch streamer (of all time). Well deserved! congratulations!
@immunedeficiencyfoundation
@immunedeficiencyfoundation 2 ай бұрын
We're in awe of her. But... we always are.
@putsticker
@putsticker 2 ай бұрын
People might not realize that Mousey streaming for a month straight is very much like her equivalent of Connor's cyclethon. From being unable to stream for more than an hour at her worst state, to now rallying people from around the world to support the IDF, the records she's smashed are merely the by-product of the amazing work she's done to give back to the PI community and those around her. Her contributions to the IDF, the achievements & respect she's earned through her efforts, and her value as an individual and role model won't be undone from someone overtaking her sub record, no matter how many people wish that upon her or death threats she receives. At the end of the day, this performer spends the energy she has lifting others up and using her platform to serve more than just herself. Her gremolin antics are a distraction from the fact that she's a powerful leader operating from her bedroom: the Demon Queen herself.
@immunedeficiencyfoundation
@immunedeficiencyfoundation 2 ай бұрын
We couldn't have said it better!
@bloodydjehuty
@bloodydjehuty 2 ай бұрын
I'm getting Kingdom Hearts vibes from this. thank you being an inspiration to me Mousey.