Common variable immune deficiency (CVID): Conversation with an expert: 2024 PI Conference

[@Oceanstarz]

Where can we access the Documentary? This was BRILLIANT!! I’m in the UK and really struggling, ‘diagnosed’ a few years ago at 60! 😐Hearing all your life stories was so helpful, THANKYOU 🤗🙏✨

[@IDFvideos]

You can find screening info at primaryimmune.org/compromised!

[@ProfessionalWidow291]

Unfortunately, my adult Son's CVID was not discovered until after he was diagnosed with NHL follicular at age 30 years. His IgG, IgA, and IgM were very low , and had he received treatment for lymphoma, the low IGs would have most certainly been attributed to the treatment and not investigated as a primary immunodeficiency. He has just commenced IVIG and we are hoping to see some positive results.

[@IDFvideos]

We're sorry to hear how difficult it's been, but hopefully treatment will help!

[@SandraCorchia]

How about fatigue? No mention as if I can play sports!

[@lisaverachtert]

Everyone gets fatigue. People with immune deficiencies can get tired a lot more easily than others. As for playing sports, that has nothing to do with the immune system. That choice is up to you.

[@SandraCorchia]

I really hate when drs act like you can live your normal life! Not true and just got celiac.

[@lisaverachtert]

You can live a normal life, you have to take a different approach.

[@kaymui13]

@@lisaverachtert Exactly - it's never going to be a normal life. Just a different life :)