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@deborahtawadros567
@deborahtawadros567 8 жыл бұрын
My husband left me for another woman after 25 years together right after I got my diagnosis. Where do you get support when your family doesn't understand? Along with PPMS I also have degenerative spine disease, chronic fatigue and a few other things. Some of my adult children don't understand and they think I can work a part time job. I know they don't mean to hurt me but it does hurt when they say this. How do you get people to understand that just because you look well you're not?
@BrainyLassie
@BrainyLassie 8 жыл бұрын
well, at first I was over reacting to any word I get by my family. When I was first diagnosed they didnt even tell me I have MS I was so young even my doctor didnt tell me I was diagnosed in Saudi Arabia. But I was a wee detective I wrote my symptoms online and sussed it out and faced them and they hardly admited after getting my secong symptom. I asked is that cortisone again in my vien? they said no I said just admit it then they did. I lived kinda angry most of the time specially that I started interferon. then I went to University graduated in 2011. then in 2012 I hated my whole existance and I moved to the uk Scotland. I even met a guy hehe. shh ._. but I was kinda feeble lol and I was losing weight like crazy 38 kilos 155cm age 26 I volunteered part time job uk gov requirement to be allowed to study English. I did but it was lil bit stressful. but I assume changing the environment for a lil while helped me now I'm back to saudi everyone is understanding but yh they nag on me to find a job sometimes because I'm quiet well. or at least thats how I seem. meh my hand shakes a lil bit when I try to poor me a drink or milk out of a jar or something stairs stresses me I walk very careful and slow on them.
@BrainyLassie
@BrainyLassie 9 жыл бұрын
Thanks for sharing. I got PPMS i got MS when I was 16 PPMS when I became 25 you look tough. Watching this vid made me optimistic
@deborahtawadros567
@deborahtawadros567 8 жыл бұрын
If you had RRMS when you were younger and now have progressive MS that means you have Secondary Progressive not primary. PPMS starts as PPMS. Keep strong and March on.
@BrainyLassie
@BrainyLassie 8 жыл бұрын
not quite sure what i have what im sure about is that i have atrophy in my brain by age 25 lol but suffer no disability at all. no symptoms but scary mri results that r getting worse
@BrainyLassie
@BrainyLassie 8 жыл бұрын
btw im now 28
@deborahtawadros567
@deborahtawadros567 8 жыл бұрын
+Nutshell AIC You are lucky if you have no symptoms, what a miracle. It is my symptoms that led to my diagnosis. I also have degenerative disk disease. Both are slowly taking my mobility away but it is the daily pain I struggle with the most. Keep strong.
@BrainyLassie
@BrainyLassie 8 жыл бұрын
I hope we all find a cure one day before its too late.
@luvdogs50
@luvdogs50 10 жыл бұрын
love ya buddy,i have it too,but you're a lot tougher than i am.
@TheLori61
@TheLori61 12 жыл бұрын
Hey Smitty, I've been enjoying your show. Especially when you have guests whom I know.
@jeffreyppmssmith8110
@jeffreyppmssmith8110 12 жыл бұрын
Hi Jandy, I would love to hear more of your binaural neats. I have listened to what you have on the link hear and they are very effective for my needs, tnx. And yes ,I take 7000iue a day, oh !the sunshine vitamine.I would love to hear more ! i know this is a weird question but is there a beat that may induce out of body experiences , just asking, no I,m not a crack pot, just looking for answers as we all are. My e-mail is [email protected], you also take care, Jeff
@UnisonicAscension
@UnisonicAscension 12 жыл бұрын
Hi Jeffrey, I would love to send you a few free binaural beats downloads. Have you also looked into the link between MS & vitamin D. People with higher levels of D3 are reported to have less relapses. All the best to you ! Jandy
@jeffreyppmssmith8110
@jeffreyppmssmith8110 12 жыл бұрын
As soon as I can figure out how to boost my willpower, there seems to be a pill for just about everything except that, guess I'll have to muster it on my own.lol.
@TheLori61
@TheLori61 12 жыл бұрын
When are you going to quit?