living with PPMS, jeffery ppms smith

what is this ppms

[@BrainyLassie]

Thanks for sharing. I got PPMS i got MS when I was 16 PPMS when I became 25 you look tough. Watching this vid made me optimistic

[@deborahtawadros567]

If you had RRMS when you were younger and now have progressive MS that means you have Secondary Progressive not primary. PPMS starts as PPMS. Keep strong and March on.

[@BrainyLassie]

not quite sure what i have what im sure about is that i have atrophy in my brain by age 25 lol but suffer no disability at all. no symptoms but scary mri results that r getting worse

[@BrainyLassie]

btw im now 28

[@deborahtawadros567]

+Nutshell AIC You are lucky if you have no symptoms, what a miracle. It is my symptoms that led to my diagnosis. I also have degenerative disk disease. Both are slowly taking my mobility away but it is the daily pain I struggle with the most. Keep strong.

[@BrainyLassie]

I hope we all find a cure one day before its too late.

[@luvdogs50]

love ya buddy,i have it too,but you're a lot tougher than i am.

[@deborahtawadros567]

My husband left me for another woman after 25 years together right after I got my diagnosis. Where do you get support when your family doesn't understand? Along with PPMS I also have degenerative spine disease, chronic fatigue and a few other things. Some of my adult children don't understand and they think I can work a part time job. I know they don't mean to hurt me but it does hurt when they say this. How do you get people to understand that just because you look well you're not?

[@BrainyLassie]

well, at first I was over reacting to any word I get by my family. When I was first diagnosed they didnt even tell me I have MS I was so young even my doctor didnt tell me I was diagnosed in Saudi Arabia. But I was a wee detective I wrote my symptoms online and sussed it out and faced them and they hardly admited after getting my secong symptom. I asked is that cortisone again in my vien? they said no I said just admit it then they did. I lived kinda angry most of the time specially that I started interferon. then I went to University graduated in 2011. then in 2012 I hated my whole existance and I moved to the uk Scotland. I even met a guy hehe. shh ._. but I was kinda feeble lol and I was losing weight like crazy 38 kilos 155cm age 26 I volunteered part time job uk gov requirement to be allowed to study English. I did but it was lil bit stressful. but I assume changing the environment for a lil while helped me now I'm back to saudi everyone is understanding but yh they nag on me to find a job sometimes because I'm quiet well. or at least thats how I seem. meh my hand shakes a lil bit when I try to poor me a drink or milk out of a jar or something stairs stresses me I walk very careful and slow on them.