Thank you for sharing,., I’ve recently have been diagnosed with since 1 month ago but have symptoms for 3-+ years after having my first child and it’s lan to get pregnant soon

Hi, first off I want to say how grateful I am for your videos as I have been recently diagnosed and am looking for a treatment plan where I can safely get pregnant and treat my MS. I wanted to know, how many weeks were you pregnant with Beau that prompted you to stop compaxone?

I had an awesome pregnancy with Ms my baby was so good to me thank god for that! I wasn’t on my meds at all when I was preggo also but got right on it about another two months cause I was trynna breast feed my baby for about a month and a half after I got my infusions again I stopped breast feeding me baby I saved as much as I could also this was in 2019 I had my beautiful boy today he is 4 years old going on 5 smart ass ever I’m blessed and just taking care of me! ❤❤❤

My recurrent symptom of an exacerbation is a weird sensation on the bottom of my feet. I feel like I am walking on marbles. Of course there is nothing there but it’s very uncomfortable and lasts for weeks. As it subsides the other symptoms of the exacerbation recede at the same time….until next time. You’re right that illness, physical and emotional stress can cause an exacerbation. Recently I had an emergency surgery. That was May and I am just now mostly recovered from the MS symptoms that were a result. I do take gabapentin 300 mg at night. I am a nightmare of side effects with whatever I take with the exception of gabapentin. I have not had any side effects on gabapentin. I think for you it’s worth a try. You can always stop taking it if you have side effects you can’t tolerate.

Took gabapentin for YEARS as a prevention for migraines. NO PROBLEMS WHAT SO EVER. No side effects. At least try it. Those things listed should have % after them. Don't be afraid to try.🤞🤞🤞

Cymbalta 90mg and Pregabalin 50mg a day keeps 90% of my burning/stabbing/crushing/electric shocking/itching/ MS pain away my darling xxx Ps Pregabalin is far more effective with less side effects than Gabapentin And Cymbalta/Duloxetine also is an antidepressant and is Neuro protective and protects our brain from damage

Hello, I recently listened to a lecture by Dr. Alan Macdonald in which he spoke about 10 autopsies he performed on MS patients. He discovered that every patient had parasites in their cerebral spinal fluid. His talk is outstanding. There’s also another outstanding KZbin channel called live disease-free where the host has been in remission for MS for 30 years.

I wear compression sox every day and I still have really bad burning feet. Maybe it's worth a try for you though. Remember those are possible side effects, you may only get one or two lasting only a few days. For me it would be worth trying it, you could come out of it feeling better. Best wishes.

I won't take it. It made me sooo fatigued. More than I already am!!

I have taken gabapentin for many years. I take a large dose of it. I haven’t had any of those symptoms. At first it helped so much but after 20 years it doesn’t help as well. Lately I have used Vicks on my legs and feet, believe it or not. That has been helping very much. I put socks after. So far it has helped. But of coarse you can’t do that in the day. The burning of my feet and then it radiates up to my legs and it turns into a weird ache pain. I constantly move my feet at night to try and soothe it. I’m glint to keep up with the Vicks and see if it keeps helping. I wish they would study this symptom more. I have it bad at night and NEVER sleep well. I’m 66 and have had ms for 40 years. Good luck.

I don’t know if this is a coincidence but we’re having a little boy and his name is going to be Bo as well that’s hilarious😂

So I’m 21 weeks pregnant now I have MS and I’ve been diagnosed by two years ago kind of similar to yourself but pregnancy is like you said kind of good for it but my doctors realistic with me about the risk of relapse after birth and we’re taking out the cautions we can but it is scary and there’s very little contact on here about women with their pregnant with a ms . My doctor is making sure I induced at 34 weeks they can give me an assisted birth and try to avoid caesarean so that I can be back on the medication quickly to avoid relapse as much as we can. I’m not gonna lie it’s super scary I’m very grateful to have your contact here it really helps to hear from another mom😊

They prescribed it to me too and i didnt take it either but man my legs and feet are on fire

Diagnosed at 18 now 22 and pregnant 🤰

I am waiting for a diagnosis, for years, lots of tests this year especially with a Neurologist. I feel my Neurologist is very thorough, and I trust him completely. For him, I am very thankful. But the waiting is horrible, feeling in limbo is very difficult.

KZbin Alan Macdonald MS is a parasitosis

kzbin.info/www/bejne/e3m5iX2meaeWo7c

Hi, just came to check how things are by you. It's been a while! Love

Are you on Ocrevus infusion?

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Hey what is the treatment going on ? My fiance is suffering from this .Lost his right eye vision

When they do your MRIs, do they use contrast/dye to see the lesions? or are they visible without dye? Thank you! Hope you're well xx

Thank you for sharing. I myself have been on going for 2 years still trying to get a diagnosis.

Just came across your video. I was diagnosed last summer. My first symptom was also optic neuritis & my story is very similar! When my ophthalmologist said I most likely had optic neuritis I had no clue what that was & asked him what pharmacy I could pick up my steroids at 🤣. The second he told me I needed to go to the hospital, I lost it! Thank you for sharing your journey!

I woke up burning in neck spine and legs today off and on.

You're amazing, Gd bless you with good health, and positivity. Think GOOD and it will be good.

I woke uo 2 hours ago. I can't walk. It feels like the bottom of my feet are on fire. It's scary. I'm waiting for it to subside.

6

My primary care provider introduced me to RichHerbs Foundation and their MS Formula protocol, the herbal treatment has made a tremendous difference for me. My symptoms including numbness and muscle weakness all disappeared after the treatment plan! Their website is w w w. richherbsfoundation. c o m.

Hi,please do you have body twitching,knees pain,lower back pain and hips pain?

I was prescribed this. Took one pill and then threw the rest away. My side affect from one pill was to sleep for 16 hrs. Already have severe fatigue don’t need to sleep more. Compression stockings work for me but not all the time

Gabapentin is not good to be on it long term.

Hi what treatment did u take when planning to have a baby ?

They found out that I have varicose eczema which is blood flow stops in the legs creating blood to pool under the skin and also makes my feet burning at night so I have to have a operation to fix the varicose veins it is requiring a duplex ultrasound

Have they talked to you about taking lyrica

I haven’t been able to get answers yet. They started me on it because it became to much to handle. But I hope Monday I’ll have all my answers thank you

I can definitely relate to this issue with my MS. It gets hard but you push through. Thank God for great support system.

Hey. I have MS and I know everyone with it is different. I am currently 30 weeks pregnant and I'm super exhausted all the time and my legs still bother me which is something my dr told me would happen but nothing new. I was also told that I will have to be on medical watch for up to 6 months. Also that I may not be able to breastfeed for too long depending on what happens after. After having your baby what were some things that happened to you? Were you ok for a while or did the symptoms come right back? I hear so many different things from people and drs

You have me crying momma. I've had ms now 16 years, very blessed. Stay positive

It's only for fibromyalgia and restless legs it's not helping with my burning feet at sleeping time I to would like to try compression socks

I take gabapentin and am better for it. I am less fatigued and it has relieved my pain alot. I tried coming off it for a while and all my pain came back and life ground to a halt again. I am 55 and have 3 adult children. Pregnancy was the best for me and gave me relief from MS. I have a fantastic Husband and we work as a team to live the best life we can. X

Thank you for sharing ur story!! First I'm sorry u have it!! U are so positive!! U are reaching people like me and give hope and a sense of peace that its NOT a death sentence!!! God bless all y'all!!

Thanks for this video. I’m currently not on any DMTs due to a reaction with glatiramer acetate. Scheduled for an Ocrevus infusion but am terrified due to side effects and current covid-19 pandemic. Want to do both diet and meds but am soooo scared. It’s really something what you mentally go through with MS. My condition has also been relatively mild, but I do wonder what the future may hold. I am also a mother of 4 and want to do what I can to be as active for my kids as I can. Any who, thanks again for these videos. They truly let me know I’m not alone with these feelings.

I posted a review of this documentary from the perspective of a neurologist for anyone who is interested: kzbin.info/www/bejne/e5mWamiNiKersM0

Thanks for d vedio.I m also a Ms patient.My name is Klisha.My disease was detected in 2016.already 4 yrs.crossed.I have a daughter.but I want one baby more.Is it safe that a Ms patient want to concieve.can I stop medicines during pragnancy.hope u will rply.can u give ur contact no.

I think I've had fatigue for much longer than i thought. Like you, I suffer if I have a really busy active day by being dead to the world the next day! Thanks for putting a voice to my worries.

PQQ and CoQ-10 promote mitochondrial energy production.

You mention West Jordan Utah. That’s actually where I go to my MS support group. It’s at Jordan Valley Hospital. Let me know if you want info

Preach!

I know this is a laaaatttte comment, but I take Gabapentin. What I did was have my doctor prescribe 100mg capsules, therefore I can take a low dose and if I am really having any issues I take 2 capsules about 2-3 hours before bedtime. If I take it too close to bedtime, it’s hard for me to get up on time the next morning. Considering the things I’ve read and seen, I too have a fairly mild case. I recently started back on Copaxone due to new lesions, and I thought Copaxone is the one drug with the mildest side effects. Good luck to you 👍