im 17 months right now. when did you heal fully?

Have u tried wet wrap therapy

Thanks for the update

Cassie how are you now? did you get better since January 2021?

Hey Cassie, I’m currently in the first 7 months of TSW. Just wanted to see how you are going now, is your problem area improving?

Hi Cassie, how are you going now?? I’m going through TSW, I’m at 7 months now and it’s a struggle. Have you tried low histamine diet. Or just carnivore diet???

Hi Cassie. I have my flare pretty much in the same place (the worst) as you. I clean houses for a living and started wearing cotton gloves fisrt, with vinyl big gloves over top. It sure helps!! I buy my cottin gloves at Walmart. Stopped grains again for now, as well as mustard, peppers, tomatoes, black pepper. I also noticed if i ate too much salt, by morning my hands are swollen with fluid and itch so bad, i scratch and rub, locking my fingers together, until the itch stops but then my skin oozes, so i cut WAY back on salt. It's helped. I follow Susan Valkai and Ullenka on KZbin. Wonderful ladies! Hugggggggggs to you! No dairy or gluten for me. Still doing the process of elimination. Also checking into amylase to help break down carbs...

Your intro video says you suffered the most on eye lids and cheek. But the color on your face looks great!

I know that you don't want to take any medications but you might consider phototeraphy UVB 311. I think it's something worth a try

Hi Cassie, Thank you for so faithfully posting on your blog and KZbin. I’m on my 14th month of TSW right now and I feel like we have so much in common- especially as far as allergies go! It’s so restrictive and debilitating, and I’m reading hoping I’m not such an allergic mess and can eat normal food for maybe the first time in my life at the end of this! 3 encouraging ideas below: 1. You talk about reacting to everything. I totally sympathize! (The list of foods I CAN eat is so much shorter than what I can’t. 😢) Have you heard about histamine intolerance? I discovered I had it before TSW, and while there’s no way to fix the problem, knowing that you’re not *allergic* to any specific foods and that it’s a histamine build-up could give you a lot of peace and tools to manage it better. I found Yasmina at healinghistamine.com to be a really helpful resource. Pork, wine, and chocolate totally destroy me! Also: I’m a patient of Dr. Rapaport and he told me “everyone is better in 5 years,” so just set back your goal post one more painful, challenging year! You’re healing! Keep up the faith. You have so much going on right now and you’re doing so well navigating it and hanging in there. 3. As far as working out goes: I feel ya! I can’t sweat without horrible consequences, but I’ve REALLY been enjoying Qi Gong for Healing with Lee Holden (it’s a DVD). It’s really gentle movements you can do without stretching your skin too much, and really balances me. It’s a time commitment, but it could be a restful way to carve out some me-time in your day. 4. I’m praying for you as a sister in Christ and I’m sorry you have to go through this! “He disciplines who He loves.” ❤️

Search about no moisturizer treatment

Great to see you back Cassie.

Hi feel your pain. I used a herbal cream in the uk called orange pe cream, was told it was all natural ingredients only to use the cream on my face for 3 years. I was always hungry put on weight allergies disappeared never thought the cream had steroids until I was unable to get the cream. I then started to get the rebound effect, face went bright red, insomnia, all tsw symptoms. I did some research and found the herbalist was raided by mhra a government regulator for medicine and they found high levels of colbesterol steroid super potent. I’ve lost 3 1/2 stone, my face would burn and sting every day and my hands. I take a Dead Sea salt bath every morning and apply aquaphour healing ointment on face and hands which helps.

Sorry you are not doing too well. You have done great pushing through all this time. I’m 2y5m and probably going through the worst flare I’ve had which started 14 months ago. Just no let up so sitting here with bandages on the arms and really struggling with it all over my face. Also sensitive to just about every food I eat. I’m getting to the point where I’m thinking maybe immuno suppressors may help me, maybe I can’t keep going like this. I don’t know right now but continue to try heal

I've been going through TSW for 3 1/2 years, it will be 4 years in April. My wrists are exactly like yours, the skin gets really thick and every day they flake. I use vaseline on my hands and wrists every night and it seems to help. M y lower legs have been the worst because that's where I used the steroid cream, for 3 years they were a mess, bright red, and oozing. During the past few months they've been showing a slow, gradual improvement and they are looking a lot better, they still ooze sometimes though. I too was hoping that I'd be completely cured by the 4 year mark but April is getting pretty close and I doubt if it will be completely healed by then. Sometimes it take s a little bit longer , the healing from this is a slow process. I listened to an interview from a surgeon who went through TSW herself, she must have done research on it because she said that if older people use steroid cream it can cause heart problems, strokes and cataracts. She said she told the Doctors at the hospital where she works "When you prescribe steroids you're killing your patients", so she's very against steroid cream now. I watched some videos from someone on youtube who went through it and she used collagen as a supplement, I'm considering trying that. Her channel is called "Fit and Nerdy", I'll put a link to it. kzbin.info/www/bejne/eYbbY4GMoquUnNU

Most of us TSW people just use water on our face to clean it or nothing. I try to leave my face alone but if I have to clean it I'll just use distilled water on an organic dry cotton cloth wipe & pat it lightly. That's it. The less you put on it the better & it'll heal faster. I also have cut down on my bathing because I've found out the water dries out my skin more & makes it itchy. Less water on the skin is better & I never use soap. Since your skin is so dry to begin with it doesn't get dirty.

Hi Cassie, I hope you are doing well, your skin looks great! Currently i’m in my eighth month of TSW, (I am in Moisturizer Withdrawal) and i’m getting a little desperate. So I’m going through hell, scratching all night or hurting all night depending If I scratched my wounds open or not. I’m beginning to fear that certain wounds, mostly on my chest en shoulders, will not heal anymore.... if only they would heal without that maddening itch. Up till now I’m able to stand the (almost unbearable) pain, that turns into an unbearable itch after three days, and I can’t get myself to go over that bump to let my wounds heal. Did you have the same experience? Will there be a break?

Hi glad ur doing so well wanted 2 knw I hav asthma and tk inhalers will this stop my tsw gting better as I need 2 to my inhalers xxx.

You look great well done 👍🏼

You look heaps better compared to your last video.

Hi Cassie, so glad I found your videos. I am binge watching your journey and finding it both informative and comforting! I just started my withdrawal two weeks ago after stumbling across some information while looking into nickel allergy. It suddenly dawned on me that the steroid creams, lotions and Prednisone I have been using since the 1980's could very well be the cause of my continued - worsening - rash. 😒 I am a bit scared of what might happen the longer I go with the withdrawal, BUT I am terrified of what WILL happen if I keep using topical steroids!! Thanks again for sharing your journey! Healing hugs to you! Ginny xo 💜💚💛

You look great!! So glad you’re doing well. I just hit the 2 year mark at the end of May. Currently in a flare. Super dry and flakey. But overall, like you, I’m much healthier and my body is stronger. Both food and environment allergies are much better. I saw you in Brianna’s documentary, Preventable!! I’ve been using non latex gloves when I do wet chores. Just wondering if you tried wearing gloves?

Pls rply??

Hey dear.... How'z ur skin atrophy now?? Could u pls tell me ....is ur facial skin improved..I means thin skin over your face got better?

Hi cassie, glad to see you're doing so well. Are you following a particular diet?

I was wondering how you were doing

May ALLAH bless u & family....much love 🇲🇾🇲🇾🇲🇾

I always wear rubber gloves when I wash the dishes, my skin wouldn't be able to handle doing it without them. Have you tried wearing gloves ?

You are so strong👍👍It takes so much courage to tell ur story...i appreciate you for that.I too have eczema and i have been thru TSW and its worse then Hell but Trust me things dont remain the same...it gets better, just keep going.I would suggest u start drinking celery juice 16 oz on an empty stomach every single day.Wish u lots of healing and love.❤😊

steroid phsychosis adreanal damage

So inspiring!! Thank you for your skin update. I’m a year and 4 months into it and damn, I developed red sleeves this year. I eat a whole food plant based diet and take care of myself not to use chemicals either! I just want this this to heal sometime soon!!!

So nice to hear about you're great progress, congrats!! 😃 I'm one month behind you, and when I past the 2 year anniversary, I could see so much difference. Also, fighting the Malezias (or how it is spelled) fungus finally 😃

I noticed my immune system is much better also since I stopped using TS. Before TSW, I got sick often and at least one big infection like upper respiratory infection every winter. But in the last 20 months since starting of my TSW journey, I’ve only been sick with mild colds a few times. My seasonal allergies are much milder also!

Hi Cassie... I've always watched your updates .I am actually one month behind you...I will be 2 years in February....my skin has calmed down but because i have Asian skin.. I have dark patches....hopefully they will become same colour over time....but I react to clothes I haven't wore for a while....lumps start developing on my arms and chest like a bad reaction. I have been living on t-shirts and leggings....no fancy clothes. My neck is my worse part and the creases in my arms....but I am grateful to God that I have passed the worst of it. Good to hear u are getting better and u continue on ur journey to fully recovering.

Do you still experience water sensitivity?

Hi Cassie, sorry to hear about your flare-up - wishing you a speedy recovery! :) Are you still on LDN? How is that going for you?

Hi Cassie, I'm starting my 18th month and I'm seeing some healing in my worst problem area, which is my lower legs. I used to have eczema on my ankles and then with TSW the problem area spread to my feet and up my lower legs. I think the area where we used the steroid cream is the worst area for tsw. You once mentioned that your ears would peel,...the same exact thing happened with my big toes on each side, they'd peel off and there would be new pink toes and then a few days later it would happen again. TSW is very strange. I'm glad you're feeling so much better.

Keep going strong :)

Thanks for posting your videos Cassie. I am only 12 days into TSW and struggling with it and worried on what more is to come. But I am determined to keep going and get through it. Watching your videos are really helping me to understand what is happening and cope.

You are beautiful. God bless you.

Hi Cassie! I was wondering if you skip a day of using lotion if you notices your face gets extra dry or develop peeling spots? Im still have a hard time finding a moisturizer that doesn't irritate my skin.

Hey Cassie! Im so sorry to write again since i feel we spoke, so forgive me! I had wanted to use your 11 month video i beleive as background for part of my documentary and want to double check and make sure you'd be alright with that x and im super glad youre able to be out and do fun stuff outdoors!

Hi Cassie! It's great to hear you're doing so well :) I can't believe you're already 18 months! I remember watching and rewatching your first few videos and now you're here and I'm 11 months in! Also it's much colder here in Melbourne haha

Hi Love!! I would love to know if I could use this youtube as part of my documentary? There would be no sound, just the silent video playing to represent how there are many of us on youtube making videos about TSW xx you can email me at [email protected] =)

Hi Cassie ! A couple of months ago I was at our pediatrician''s office with my daughter and my hands looked terrible that day, they were red and dry. The doctor noticed and asked about them, I didn't want to go into the whole TSW story because I thought she probably wouldn't have heard of it, so I just told her it was eczema. She left the office and came back with some sample size bottles of "Aveeno Baby Daily Lotion". I tried it and it's a great moisturizer. I bought the regular size of it and used it and it works really well. I also use Vaseline sometimes and Neutrogena Hand Cream but I think the Aveeno works even better than they do and it's only about $6.00. I bought a new one when I was out today and I put some on a few minutes ago, As soon as I put it on my hands felt sooo good and I thought of you. You might want to try it, it's very gentle for babies and I don't think it has any harmful ingredients. I just wanted to tell you about it.

I am just seven days into my journey - how utterly miserable! Thanks for posting these videos to show that there is hope and it does get better.

I just finished my 10th month of TSW. I’m pretty active person and prior to TSW, I regularly run. I was too weak and miserable to do any kind of physical exercise probably the first 4 months and didn’t do anything at all. Besides I lost 10 pounds in the first 2 months so rigorous exercise like running probably wasn’t the best anyway. Since around month 5, I went back at running and I’m doing my 3rd half marathon next month. My skin was doing okay for a while but since beginning of March, it’s flaring up again. Not as bad as before, but still frustrating since I thought I made some progress. What kind of diet are you on? I look forward to your update every month. Good to know there are people out there going through the same thing.

I'm glad you're doing so well ! I'm starting my 12th month and my skin is getting a lot better but it's a slow process. Right now my hands and wrists look a lot like yours. I always look forward to your updates every month.

Those bleach baths probably wouldn't do anything to speed up healing. I don't think anything done externally to the skin would have an effect, the healing takes place in your organs and blood vessels, they have to readjust to functioning without steroids....at least that's what it sounds like from what I've read. Any oozing you might have is just a normal part of TSW, it's NOT an infection. I've had oozing around my ankles (which is the place I was using steroid cream for exzema) , it's not an infection and it's still oozing every other day after 9 months. There's a naturopathic doctor on youtube who says the oozing is metabolic waste that's coming out, that's what he thinks anyway.

Hi Cassie! I'm also at a year and have been following along with you every step of the way! Our progress has been very similar. I'm wondering if you already have done moisturizer withdrawal or if you would consider it? I'm on week 8 of MW and my skin has recovered so quickly and I almost look normal!! It was a rough few weeks of shedding and a tiny but of oozing but it was so worth it! Anyway, just wanted to share! You're in my prayers, fight on!