GOD Bless You & Yours Brother! I cannot imagine! "Oh But By The Grace Of GOD Go I"

Feel so bad for folks experiencing this. The itching from hems is unreal, i could only imagine the pain

Isn't Windows 10 being phased out.. with No Updates?

My sister died from this. She had had some symptoms prior to the diagnosis. The day she went to the hospital and was diagnosed thats was during Covid. After she went to the hospital. I never saw her awake again. She was in the hospital for 10 days and Hospice 4 days before she died. I was with her when she died. It all happened so fast. I still can't believe she is gone.😢

The oldest word processor dates from 1958. www.bafour.fr/public/docs/GB/Brevet%201.153.399.pdf

Had surgery about 6wks ago and currently have minimal pain. Most of my pain is with BMs and it’s not that bad. Just had a follow up and my Dr said I’m healing slow and shouldn’t have pain. After watching several videos and reading the comments, I can’t believe she said I should have any pain at 6wks post.

Don’t feel guilty, at all. You are an amazing son.

Amazing review, definitely in the exact same boat as you. I looked at all the products you were talking about.

hi sorry for everything my wife and family are going through the same as i am in my last stage of life as ive got gioblastomas had radiotherapy and 4 cycles of chemotherapy and when we all seem to have different opinions about my thoughts on my last bit of time and the best way to explain to people for me is that its like we are all reading the same book some friends are on the first chapter and trying to understand what the book is about my wife and kids and brother and parents are all in the middle of the book in different chapters and still trying to work the ending out as i am now on the last chapter and no the ending so i am saying my good byes to every one and starting to distance myself from them all which they will understand shortly when the time comes i must admit its a horrble way to die and a cruel one as you seem to think your not that bad and then bang you just seem to fall off the shelf and go down hill in no time ,thanks for reading and me and the wife enjoyed your post as it put some of our last 5months into prespective for what she has had to go through which hurts me to think good luck for the future to you from me dave in sheffield england

Euthanasia is a really tough question. There is an indecency ajd indignity that i think is worse than just passing. But there is a slippery slope id be concerned about. Its awful all around.

I am appalled that the attending was so unresponsive to your Dad needs. This is unconscionable! I battled with doctors, red tape, and *#<£^ for months with my son. 🙏🏽❤️

Don't ever be afraid of data. Collect all data like scientists do. Was there lead paint in the remodel, any new medicines or vaccines? Any environmental issues where you live? Ty

My father has been diagnosed with high grade giloma what should I do I do now

Great for programmers and for reading

Ha ha, When being queer finally catches up with you.

My english is not good but trying i am also going through this pain and this is unexplainably and done my fisher +hemorrhoids serjary in two weeks ago now i have less pain hope so i am recoverfully and great respect for all who suffering form this bad pain

I'm from Bangladesh. I got this thing at 10$ which is 1000BDT.

My brother died of a Glioblastoma a month ago. I along with my parents were his primary caregivers and we experienced much the same as you. Same problems with medicines and getting him to use the restroom. What was different was Jeff did begin a death rattle and remained conscious nearly until his death. He began a short sharp breaths for 12 hours before dying. His heart rate reached 230 before his breaths stopped and he passed - going from being stressed to immediately at peace. At the moment he stopped breathing, he opened his eyes, looked at his mother and locked eyes with her. Jeff was only 45 and a body builder who spent a lifetime working out. His body did not go quietly into the night. The night before, I told him that I loved him, that he’ll always be with me and I’ll always look up to him. He mouthed “I love you” In the weeks since, my brain is quickly dumping these memories of the painful final weeks for him and us and that time wrestling with my emotions much as you described. I’m lucky I’m not focusing on what a positive impact he made in his life.

Oh, you can remodel your grief memories by writing about what you want to remember and why 👍

I hope you find peace at some point. I’ve lost my parents and two husbands plus multiple friends. No one gets out of here alive and you did the best you could under the worst conditions possible. Guilt is useless.

My god. Your father lived in a hellish existence at the end of his life. So tragic. Life can be so cruel.

I just watched your video about your dad's diagnosis, realised how old the video was but still wished you well. Anyway, sorry for your loss. I have gbm and we lost our dad in 2023. Absolutely devastated us, dad was the family glue. His cancer diagnosis was sudden and very unexpected (lung cancer, never smoked!). I always thought I'd die first and he could have my lungs. Never happened. Still cannot believe I'm still here and he is not. Hospice was not fun for any of us.

I have a GBM (called Dudley), diagnosed in January of 2020. Completed the standard treatment (radiation and chemo), and now have MRIs every 3 months to see how he's going. After listening to this video, I really am so lucky. I know i want to die with dignity and have already hit up my GP about assited voluntary euthanasia (legal in my state in Australia), but he wouldn't entertain me. At least, not yet. Because he thinks I'm jumping the gun i guess? But i really want to have it officially approved so i don't have to put myself or loved ones through any of this. Anyway, you are an amazing son and I'm sure even though your dad isn't able to fully show it, he is incredibly proud of you. Best of luck to you!

Thank you for sharing, you are a great son anyway being very patience and alway prepared to take care of your loving dad. Do take care of yourself

Nice overview of the program. Very helpful.

Some how I found your video last night and am so happy I did. My 59 yr old son-in-law was diagnosed with GBM August 2, 2024. He had surgery, did 6 week’s radiation and chemo, had another awake surgery Dec. 26, 2024. We are waiting for pathology and doctor appointment. My daughter has to work as she provides the insurance, so my husband and I are his main caregivers. They have a 13 yr. old daughter who is struggling with depression and self image issues at the same time as this is going on. Our plate is full and your video has helped provide much needed information for us. Thank you for this honest account of your fathers illness, you have helped me to understand what is ahead for us as caregivers. God bless you🙏

The failure to have qualified staff happened to my husband as well. Thank insurance companies and large money hungry medical,facilities. The dominant hospital system in my area has management with private planes but their suburban facility had only one working toilet and is filthy dirty. This is a so-called world renowned hospital, at least in their opinion.

Seems like there are lots of people in this comments section that are connected with Scrivener in one way or another. Would Scrivener be also helpful for someone to write a short e-book/course? Appreciate your thoughts on that.

Did he make any diet and lifestyle changes?

I just ordered my second one of these. Spent ~$150 for a refurbished 5th gen a year ago, and ordered another last week, although I'm unsure of which gen the one I'd got coming is. One of them will be getting put into a dedicated ham radio go box, using software I already know works for what I need. I'd initially planned on using an Raspberry Pi 5, but found it's GPU not up to the basic task of plotting APRS packets on a map.

My late husband lived 31 years longer than doctors thought he would, he was 42 when he said of this. Prayer really does work

Glioblastoma is so aggressive i lost my healthy dad from one month of diagnosis..

I just came across your video, I am so glad I did, see my husband had Glioblastoma, and took his life in 2016. I've never really would have known what he would've gone through if he stayed, even though this story of your fathers passing seems so peaceful in a sense. I commend you for the care you gave your father. It's hard, and I wanted to say thank you for sharing your story, your point of view, and for allowing me to kind of understand my husbands passing. Thank you, thank you so much for this. I believe this has really helped me understand so much I never knew, and I feel almost a sense of closure, peace if you will. I hope you see this because I want you to know finding my husband has left me with serious trauma and PTSD Ive struggled with the why, how come, why would he, and tonight I got the answers I needed. You've just genuinely helped me heal more than anyone in years!!! I'll never forget you, and I will always support you from this point on!! Thank you really doesnt even show how appreciative I am. May god bless you and your family!🙏🫶

My grandmother who was 74 years old died of this hideous scum that lurks in our loved ones..4 months ago she was completely fine, the next thing you know, she struggles in her bed helplessly, but we avoided any therapy or surgery for quality of life. It’s a disgusting thought that you will never see a loved one again in your life..but we make the most out of it!

Hi AJ/Alex/Alexander, Thank you for your videos on your father’s glioblastoma. I am 72 years old and have glioblastoma (GBM). I am an outlier in that I was diagnosed with cerebellar GBM in May, 2021, went through the surgery, TMZ and radiation therapy and have been doing relatively well, other than some balance issues,, double vision, fatigue and a smidge of depression. And I just want to say thank you for the videos. So, having some idea how it will eventually, and likely inevitably , progress, I am waiting for the next shoe to drop. Sure, the videos are a bit frightening and I worry about the impact my illness may have on my wife, son and daughter. Like, YIKES. But honestly, I needed to know more about the impact, emotional & otherwise, my GBM will eventually have on those I love. I have my own ideas about how to do some planning to, I hope, decrease that impact. If you ever get the chance, please comment about what you would have liked your father to have done ahead of his deterioration that may have helped you? What letter or recording/ video from him would have helped assuage the suffering, guilt, & emotional fallout you experienced as his son and caretaker and you may continue to experience? I know these questions are a big ask so if you can’t respond, I certainly understand and I will still very much appreciated the videos you have already done. So, in the meantime, I have a basement to clean, files to organize and a living will to update. Thanks again.

I agree we need death and hospice education. We just go “oh they’re in your heart forever” “oh they’re in a better place” and move on avoiding it. But it’s important to be prepared for the process of what death looks like and the different ways it can look. It’ll be a horrible process no matter what but being prepared helps. Normalizing death as a natural process and occurrence so you aren’t shocked helps. And knowing hospice is an okay option is so vital, a lot of people are on hospice too late. They could’ve been more comfortable if they’d been on it earlier instead of having this mindset that you HAVE to “fight” and that accepting death is giving up on someone. It isn’t. I’m not saying people shouldn’t fight for more time if that’s what they want and with advancements in medicine, most cancer is fightable - glioblastoma is the worst possible diagnosis but in the case of other cancers there’s usually some options. But hospice is one of those options and it’s okay to choose .

These laptops have doubled in price. You can resell them for 3000+

Thanks for sharing...sad story but well put in the context. Now, enjoy the life your dad gave you man.

THANK YOU SO MUCH FOR THR DETAILED CLARITY OF YOUR EXPLANATION;I AM ON THIS JOURNEY AFTER SURGERY AND INTO CHEMO/RADIOTHERAPY AND NEEDING TO UNDERSTAND THE POTENTIAL PROGNOSIS.SINCERE BEST WISHES

Is there anybody who used to feel a lot of pain even before surgery? Is this postoperational pain similar to that one, just worse?

Came across your video when looking up Lenovo keyboards...how's that working for KZbin's algorithm😆 Anyway, I'm not a writer but I do journal on my laptop. I have been using a Lenovo Yoga 7 but found the keyboard not that great for touch typing. I mainly use the Yoga 7 for work as I extensively use the touchscreen and tablet functionality. Anyway, just want to mention, my go to 'writing' (journaling) gadget now has been a refurbished THINKPAD X270. I bought it as it's a 12.5" business laptop, much smaller than my 14" thin and slim Yoga 7. The X270 I bought has 4G LTE which means I can connect to the internet with a data/internet SIM. It was something I needed when out and about as I can sync with my Google Drive and OneDrive accounts (so I can access my journal files on any internet connected device). Love the Thinkpad's X270's keyboard as well! Great key travel and tactility and because it's small I can just shove it in my backpack and write anywhere. I bought a privacy screen/shield and an extended (larger capacity) battery just like you showed on this video and to me, the Thinkpad X270 laptop turned out to be my 'ideal' journaling laptop 👍

This sounds like exactly like what is happening to my Dad. He has only just found out he has this tumour whilst undergoing 2 completely independent neurosurgeries for hydroencephalitis so he has a shunt. These surgerys hid the fact that this glioma was growing in the other side. Thank you for this video. It must have been difficult. I am also a writer doing my doctorate.

Ice packs helped me

Great video. Thanks for sharing

Sir, I have the exact same dramatic experience, but with my mother. The disgusting treatment of her in the hospital still makes me sick. And after endless procrastination and ultimately a complete useless brain surgery, she died, 1 day after she got her diagnosis; glioblastoma, version “terminator.”

I got my hemorrhoids initially because I had a severe constipation for two weeks during freezing mid winter exams. The stars aligned against having an easy bm, or any at all. I looked pregnant and felt pregnant although I am a dude. Tried everything and took everything to give birth, even went to the dorm clinic and they gave me fibers instead of softeners or whatever. Anyway, not sure at what day of those two weeks, I went in our near absolute zero toilets and tried to go but instead I ended up just tearing myself and bleeding a lot. WORST PAIN EVER IN MY LIFE. The only thought on my head at the moment was *"I want all my enemies to have this and feel it even worse"* Couldn't push anything out and went to pass out in suffering on my bed. I couldn't handle it anymore and drove two hours to go back to our warm home with hot water to get that demon out. It worked and got that huge monster out painlessly somehow, but the damage was already done and the hemorrhoids have taken roots and left hideous skin tags giving me nightmarish weeks, and flareups over the years. That's why I say *the surgery isn't bad because it didn't hurt as much* almost not at all, but the discharge is worse so far but I hope it will be gone soon enough.

Dnt eat red meat

Watching this video six months ago, just a month after my dad's glioblastoma diagnosis, gave me a lot of insight and helped me prepare in ways I didn’t think possible. Even though you can never truly be ready, I’m deeply grateful to you for creating this.

P.S. Thank you for sharing though.It's very helpful

you're brave to talk about this so openly and honestly. this is very helpful to a lot of people including me. thank you