Thank you so much for sharing. I am 52 and have had symptoms since I was in my mid twenties. Still not diagnosed because the symptoms for me started in my cervical spine and then ribs/thoracic spine. I have IBS, pelvic pain and can’t sit on my bottom for too long because of the pain. I am HLA B27 negative - yet my sister has a AS diagnosis. I had a doctor write on my file back in the early 2000’s that I was ‘phobic’ without any professional assessment because I kept going back to him with my aches and pains. I only discovered this in recent times when they gave us access to our own files. I’m sure this is why I’ve been fobbed off with my doctors visits in the last 20 years. I’ve had his opinion removed from my file and my experiences with doctors meant my visits were few. I have an appointment in a weeks time with a female doctor and won’t leave without a referral to a rheumatologist. I will bring my case history along and have booked a double appointment to show I mean business. It is such a shame that sufferers get so easily dismissed - as if we enjoy taking time out for costly appointments. We know our own bodies and when something feels wrong. It is through KZbin and people like you who are sharing their experiences that more people will have the confidence to push forward and be given the comprehensive assessment they deserve. Thank you so much for sharing xxx

6:56

Very easy and effective excercises madam thank you. Like this kindly bring out exercises for hypertension and diabetes also for which i will be grateful to you

Hi guys, I had AS over 40 years, started in early teens, let me say it gets better and less painful as you get older. I'm pain free now. Look after yourself , keep exercising, eat well and enjoy life. It's not death sentence. I haven’t let it stop me doing anything in life. Good luck. 😊

You booked this tour from?

It's too common getting dismissed again and again with inflammatory symptoms. Feel the same as you. That you kind of give up with dr's as not really doing a lot. My story is similar. But good when it all gets discovered. Ooer bowel prep colonoscopy. Scary. 😮 After a year of waiting. I also saw the prof at Rhuem best appointment ever. Just waiting for gathering of results. Diagnosed with IBD after 2 decades of symptoms, now just being diagnosed with AS after 10 years of moderate - severe pain/ stiffness. Funny thing is. I work in hospital. Many patients on wards have serious IBD conditions and history. You wonder, if disease had been picked up and managed earlier, would they have avoided being so badly affected ? Good news is, changes are happening. More awareness of auto immune conditions. Maybe one day they will find what causes them. Wishing you good health, good management and excellent clinicians. ❤ 😊 thank you for the video

My Dr said ankylosis is for men only

Kon Tum is my hometown. Thank for your cool review!

thank you so much this has helped as I just got diagnosed a couple days ago, I am only 20

I loved this video but it was sad seeing that communist flag the center of town near that tall hut building. That reminded me of the siege of that town in 1972 when the yellow flag with the three red stripes of the Republic of Vietnam flew over that town while the Communists launched a ferocious attacks around the outskirts of that city trying to take it. The South Vietnamese soldiers bravely defended themselves and the population there with the help of American advisors and airpower. It was a vicious siege but the South Vietnamese Army ultimately held out and kept the town free for 3 more years until the Communists sadley conquered the whole country. kzbin.info/www/bejne/pZOQmnp9n7qtj7Msi=QtAnzzyZ8LFj_5bB

I got diagnosed with crohns at 17 and the way you describe your diagnosis for IBD saddens me, bc the moment i got symptoms we went to the doctor. they actually checked for haemorrhoids and ruled it out, they did blood tests, stool samples, etc. i can’t remember if the results showed anything or not but regardless they sent me for a colonoscopy and endoscopy to get answers. we went privately specifically for that procedure to get answers faster and the doctor was able to give me the diagnosis within hours. i’m almost 19 and have had multiple other colonoscopies and unfortunately have gone through so many different meds to no result, hopefully the new one i’ve started will work this time - i even had bad symptoms but a clear colonoscopy at one point!

This was helpful.

I was diagnosed with ankylosing spondylitis at 24 , 4 years ago and so much of your journey sounds relatable. The embarrassment, the blood when you wipe, the million doctor visits , the reality of AS flare ups can abruptly stop life that’s for certain! I hope all who suffer , experience less daily stress from AS!

Its so depressing if so I’m eating what i want and believe me its for the best because you’re gonna be attacked whatever you eat .. ankylosing spondylitis with inflammatory bowel disease , uveitis and spine fusion otherwise i feel healthy!!

Your stomach is supposed to be acid . So no omeprazole for me

I have AS and I recently found out leaky gut is related to most autoimmune diseases

Hello, thanks alot for helping Are you on Biological treatment ?

long term use of SULFASALAZINE will cause anemia as it has done to me.

Hope you get well , I have AS too 🫶🏻 I do hear crackling sound too

I have this too. Hi from NC, USA! 😊

I've been putting of traveling ever since I got diagnosed, especially since we tried a few driving trips (think 8 hours round trip) and I was in excruciating pain. I wish I hadn't gotten so stuck in my own head about what I couldn't do and figured out how I could what I wanted to do instead. I'm taking my first transcontinental (I'm from the States) and over the Pacific trips soon and your tips and tricks have helped. Thank you so much! Love your positivity and attitude! 💜💜💜💜💜💜💜

Hey! How are you? Waiting for an update from you…..

Do you know if folks with A.S. get charlie horses in their calves more that one normally would? I've been getting a lot lately upon waking. Thank you.

You are just a talkative lady..

You can reverse your Ankylosing Spondylitis by changing your diet which involve stop eating gluten foods like wheat, rye, barley, stop eating grains like rice, corn, oath, stop eating night shades like pepper, white, red or yellow potatoes (you can eat sweet potatoes), stop eating vegetable oils, peanut, stop eating fried foods. stop eating processed foods, stop eating white sugar, stop eating pasta, bread, dairy (milk), eggs, chicken. You can make smoothies like blending green vegetables like kale, spinach, cucumber, you can also cook vegetables, eat a lot of vegetables, eat coconut, avocados, eat home prepared/made whole foods like sweet potatoes, yams and beans. You can also do exercise like walking, cycling.

You can reverse your Ankylosing Spondylitis by changing your diet which involve stop eating gluten foods like wheat, rye, barley, stop eating grains like rice, corn, oath, stop eating night shades like pepper, white, red or yellow potatoe (you can eat sweet potatoe), stop eating vegetable oils, peanut, stop eating fried foods. stop eating processed foods, stop eating white sugar, stop eating pasta, bread, dairy (milk), eggs, chicken. You can make smoothies like blending green vegetables like kale, spinach, cucumber, you can also cook vegetables, eat a lot of vegetables, eat coconut, avocardo, eat home prepared/made whole foods like sweet potatoes, yams and beans. You can also do exercise like walking, cycling.

Sulfa-sala-zeen. How are you doing now?

What is the name of the rheumatologist please ? Im in Sydney

I have the same diagnoses and I think it's misdiagnosed Crohns disease. 3 people in my family have Crohns

I also have AS..I am taking indomethacin and I like it but my doctor wants to switch me to celebrex or meloxicam..in relation to AS which do think is better and why? bioligcs are not an option for me unfortunately... I also have Spinocerebellar ataxia type 2 or SCA2

I’ve been diagnosed with AS also, I was prescribed HUMIRA, and it works wonders. But I’m starting to get symptoms of IBS and I’m concerned I might have the same double diagnosis you have. For all the AS Warriors out there keep fighting ! I know it’s super hard dealing with this pain! ❤ #STAY STRONG

I was diagnosed with AS 12 months ago I see the Specialist appointment every 6 months get blood work done as well the last time I saw my Specialist I got blood work done inflammation in the blood was 29 was high she said I had to do another blood work on the day after seeing the Specialist it only drop to 27

I’m a international student in Australia i have ankylosing spondylitis How much it will cost for me do you know? Please reply 🙏

Thanks for your video. Mistakes ! : Since you had AS you should have been give biological but you didn’t get one and that’s why you got IBD ! I have exactly same story amd symptoms like you: I had AS and dying my 4 months holiday in Asia I developed IBD. So far they measured calprotecting label 75 4 weeks ago and now 127 ! It is still not 250 but this results suggest I am very likely to have IBD. But no blood in my poo so far! I was in Infleximab and I was reintroduced to it again in and also taking 15 mg steroids to control the flare. This is my 6th week of Infleximab stil no sign of working and tomorrow I have 3 injection ( drip) hopefully it will make some effect . Please get biological treatment asap !

I was 26 years old. I felt alone. Because when I was diagnosed there was very little known about it. Because I am 45 years old now. But I didn't allow it to stop me.

My daughter was on that medication and broke out in full body rash and got a fever and nausea.

I stayed there a few years ago, it’s a place I’ve never forgotten.

Going there this summer, this made me so impatient to be there! So beautiful

Thank you so much for these! Diagnosed years ago but always looking for people with AS doing yoga or stretching!

My local beach, you need to visit in the summer its unbelievably busy

I have been for a few blood tests, i had test done for rhumatoid arthiritis it came back false negative, my test for imflammation came back positive, my vitamin D came back low. I had xrays in my back/hip and hand they came back as nothing showing, my neck and back came back saying i have arthitis. Its so confusing as my worst pain comes from my back and hip and right down my left leg, although my full body aches, i wake up 2-3 times a night with my forearms, elbow and shoulders aching, my hands ache, wrist, ankles, hip and lower back, And my groin. Also have plantar fascitits in both feet, if i have over done my upper body is tight and i have difficuilty breathing. After work i feel as though i have been hit by a bus, my heels are so so sore. I have been referred to a rhumatalogist but going to be a long wait. Dont know if i can wait months i have been trying to get this sorted for years this is them just doing these tests. I am so down about my day to day life, my pain on a good day is a 7 out of 10 on a bad day 10. So tired and fed up. Take meloxicam and dhyrcodiene, vitamin d, and onzeprole. Does anyone ever expierence pain i there achilles and calfs. Im am so depressed every night i say to myself maybe tomorrow i will feel better, i have been living like this for years now wondering if the next day will be better and it never is. I try to explain to people how sore and fatigued i am but its like they just dont believe me or understand how i am feeling. Often feel like giving up, if it wasnt for my family i would just give up.ARE ALL THESE SYMPTOMS SIMILAR TO HOW OTHER PEOPLE FEEL????

Thank you izzy ✌️🌻

So glad i found this. I have been for a few blood tests, i had test done for rhumatoid arthiritis it came back false negative, my test for imflammation came back positive, my vitamin D came back low. I had xrays in my back/hip they came back as nothing showing, my neck and back came back saying i have arthitis. Its so confusing as my worst pain comes from my back and hip, although my full body aches, i wake up 2-3 times a night with my forearms, elbow and shoulders aching, my hands ache, wrist, ankles, hip and lower back, And my groin. Also have plantar fascitits in both feet. I have been referred to a rhumatalogist but going to be a long wait. Dont know if i can wait months i have been trying to get this sorted for years this is them just doing these tests. I am so down about my day to day life, my pain on a good day is a 7 out of 10 on a bad day 10. So tired and fed up. Take meloxicam and dihydrcodiene, vitamin d, and onzeprole. Is AS classed as a disability in the UK?

Where have u been?

I don't understand how a colonoscopy could show symptoms of IBS. The colon is not the bowel.

Hello Izzy. I started to suffer very bad pain in my hips and spine when ten years old, nearly sixty years ago now. I had many x-rays and was prescribed many different drugs to no effect, for over ten years. Finally when age twenty one I was finally diagnosed with AS. At that time there were no drugs available to help with the pain that didn't have serious side effects, so I chose to suffer in silence, and not use any of the drugs. However. because of the pain and not getting proper exercise I ended up after some years with a completely fused spine, and am now unable to turn or nod my head. However about five years ago I was finally prescribed Etoricoxib and Omeprazole. This has transformed my life, very little pain anymore, although still suffer headaches because of the muscle tension in my neck.

Sulfasalazine is pronounced sulfa-sayla-zeen.

How to buy I'm in the phillipines

What did the biopsy show? Do you have Ulcerative Colitis or Crohns? I have Crohn’s and now dx correctly with AS. Severe pain in my neck, low back and SI joints. It’s been a journey but I have a great Dr that is treating both conditions.

My flare-ups vary. I had one that was was totally unmanaged and lasted a year. Then it went to a few months. Then weeks and now I'm at 5 months with my current flare. Ty for your videos