So I started getting a stabbing pain in my head months ago that would happen a couple times in a row with warning symptoms. Like Alice in wonderland syndrome or would mess up my speech or time distortions. My head even became sore on my scalp from it. My arm felt like it came out of my arm once and other weird stuff. Other weird physical sensations etc. I got MRI & it showed WM lesion on my frontal lobe. Towards the back of it. I’ve had a frontal concussion 15 yrs ago & a skull fracture concussion to temporal lobe 10 yrs ago which really caused issues. I had lot of temporal lobe symptoms after that. Plus some migraines. And I’ve been misdiagnosed twice with narcolepsy since the first one due to bizarre sleep disturbances. Well my family doctor put me on Topamax to treat my rapid stabbing migraines because migraine meds weren’t seeming to help or couldn’t take enough for as many days as it was happening. The Topamax caused bad insomnia though. Despite being a seizure medication….it seemed to trigger a series of seizures. Frontal aware seizures for so many days and then couple temporal seizures. Those were the type of symptoms I was having anyway and felt like half my brain was being fried. I could barely function. And once my right arm went numb instantly after feeling a weird sensation in my head and I fell back and just remember feeling brain dead not being able to move or talk for a minute. The frontal ones were happening in clusters and only lasted for 30 seconds at a time, sometimes I’d get nauseas for a second and would get this creepy feeling first. My face would start twitching and then half my body would start tensing up real bad and my eyes would always turn in the same direction and I’d make weird faces and groan. Was worse later at night but would also happen in the daytime. Was the worst but luckily had stopped. I probably should’ve went to the hospital but I had already did the MRI and was already on a seizure med and had an appointment with neurologist who seems to think I have nothing to worry about. I’m not saying that migraines can’t cause this but it doesn’t seem normal either. Some days I do get normal migraines though so not sure if i just have two different issues going on at same time or what’s going on. The bad episodes seem to happen when I’m sleep deprived. Before I started getting those weird pains months ago, I would be walking to my car and then start walking a completely different direction all the sudden. I was still aware of my surroundings & can remember it but wasn’t able to respond to anything or control what I was doing. That also would only last like 30 seconds. Then I’d go right back to whatever I was doing. That one temporal episode I had was pretty wild, whatever caused it. Smelled like the house was burning down and I saw reflections out of the corner of my eye. Then things got really blurry. When I watched the recording on my phone…..I was laying there all sweaty looking pointing at things that weren’t there for like 4 minutes straight……
@CF-wn2ce2 ай бұрын
This was incredibly informative, thank you. My new neurologist is further investigating my left TLE disgnosis, as my EEG slowed both right and left discharges Insular would better account for symptoms. Have MRI and another EEG soon.
@neilbeni77443 ай бұрын
Love❤. this Thank You
@sheilamoradi92314 ай бұрын
Hello doctor I have epilepsy for 52 years and I'm 52 years old my deja vu auras lots of times turn into grand mal seizures what part of the brain is that coming from
@Arabian_Abomination3 ай бұрын
From the temporal lobe
@lucasdumb4626Ай бұрын
Amygdala
@Spacecadet4996 ай бұрын
Doctors always assume everything is stress or anxiety . 30 percent probably isn’t the right amount when most of us are being ignored
@Spacecadet4996 ай бұрын
Wrong they’re SEIZURES! Give it up
@malijahangiri10277 ай бұрын
Should we tell the patient the exact diagnosis? When we need to communicate the diagnosis of PNES to the patient? Thanks for this helpful webinar.
@GodBless198910 ай бұрын
I was diagnosed with Temporal Lobe Epilepsy on Oct. 15, 2019 after i tried to commit suicide and over dosed on both my depression medications Zoloft and Wellbutrin, i picked up both those scripts that day and EMS counted i took around 45 Zoloft and almost 60 Wellbutrin and when 911 was called after my family got home shortly after i did that the hospital said i had Meningitis of the brain, Covid 19 and i can't remember what else but they said i almost didn't make it but my siezers were so bad they had to put me in a 7 day medical coma. My Neurologist has me taking the same siezer meds the hospital put me on which is Keppra 1500mg a day, Valproic Acid 1500mg a day and Topiramate 100mg a day. Im able to talk during my siezers is that normal for Temporal Lobe Epilepsy Siezer's? Everytime i go to the E.R for my siezers (because im still having them) my Prolactin levels in my blood work always come back high around the 40's to 50's showing i was having siezers yet the hospital tells me (because im able to talk during my seizures) that im having PNES (phyco genic non epilepsy siezers) and i tell them everytime that they need to pull my records because its the same hospital and it'll show on my paper work they diagnosed me with Temporal Lobe Epilepsy Siezer's. Dr. Navita Kaushal CortiCare, Inc.
@yuuokami21565 ай бұрын
Huh. That's weird. If it's the same hospital that diagnosed the epilepsy and if your diagnosis hasn't changed then PNES shouldn't even be brought up. To answer your question. Firstly, I am not a doctor. Just a person with seizures and someone who has done a ton of research on epilepsy and seizures. So if you're having focal seizures which is highly likely since you're diagnosed with TLE. If they don't occur where the language and speech is handled and awareness is unaffected then yes, you can talk during the seizure. 12:09 the video at this point also explains it. So what seems to to be happening in your situation is that the paramedics are not trained enough in TLE to know that talking can happen during a seizure. Since you said that there's confusion whenever you go to the ER. Though, paramedics shouldn't be diagnosing patients so, I'm confused why the hospital would question your diagnosis. Either there's poor communication or the doctors aren't as knowledgeable as they should be or both. The best thing to do is continue pointing out your records and just focus on what your neurologist says.
@GodBless19895 ай бұрын
@yuuokami2156 thank you so much for commenting back! Yeah I live in Oklahoma, Tulsa to be exact and to be honest I have noticed a lot of these doctors don't have the knowledge or communication skills that they should.
@ВладимирДементьевский Жыл бұрын
Great lecture, even fof neurosurgeon performing SEEG. Semiology is a key!
@camilocastelblanco2903 Жыл бұрын
Clear and insightful talk. Thank you!
@mahbuburrahmanalamin57162 жыл бұрын
Thanks sir ❤️❤️❤️
@tamifromvirginia40462 жыл бұрын
Thank you for this informative and indepth presentation. We were misdiagnosed for 18 years and now we are trying to play catchup. So few specialists out there to help. Neurologists do not want to give up the epilepsy diagnosis as well, so much money in the medication.
@LawofMoses2 жыл бұрын
I don't remember waking up March 25th the day after I had a covid home test spritz me in the eyes(sodium azide). That morning from what I am being told I woke up got dressed and then for some reason had a bath which I don't do, after which I started throwing up profusely and went and laid on my bed to have a convulsion which they describe as a grand mal like seizure. An ambulance came and got me, took me to hospital. While there they said I had another seizure and became violent. They sent me to another hospita(1.5 hrs one way) by ambulance for a CT scan then returned to local hospital and then by about 10pm they called NY wife to come get me. I don't remember anything since the Nighy before. It's been 4 weeks and no more symptoms at all. While at the hospital I also somehow had my t5 and t12 vertebrae fractured. The Dr isn't sure but they are sending me for tests to see if I have epilepsy. I am 50, healthy, I eat right, I don't drink or smoke. I do suffer from extreme pain and depression already. I don't have any other pressure in life. My bills are paid and I own a home. I am wondering if a seizure can break a healthy person's bones and just come out of the blue. I did have one syncope incident several months previously but woke immediately after 30 to 50 seconds. Any interesting comments from professionals?
@Luckyjaf_3 жыл бұрын
Excellent lecture. Thank you!
@sjay-zd7ei3 жыл бұрын
Great lecture, even for trained epileptologist
@woojoongkim85983 жыл бұрын
Best lecture ever on semiology and SEEG!
@queenieyao34523 жыл бұрын
Thanks for the excellent presentation. My son was diagnosed PNES in 2017 at 14 after eliminations (MRI, Video EEG, Lumbar puncture). He started seizure like behavior at 4. The severity and duration increased as he grew older. He started taking dilantin at 9 and continued for several years. His neurologist abandoned him saying he does not have epileptic seizures. I had to beg the other doctors at the hospital not to give up treating him. After the 2nd DNA test (including the parents), a DNA mutation inherited from me (CHRNA4 variant) has been identified as the cause of his problem. There was a paper published in 2018 about this CHRNA4 variant as the cause of the problem. After taking 200mg (twice a day) carbamazepine, all his seizure like behavior gone. Before meds, he has 2-3 occurrences per hour everyday. If he misses a dose, it comes back in about 6-8 hours. He tried the ketogenic diet for 1 year before taking carbamazepine, it helped a little at the beginning. His ketone level was always marginally low. His general health has improved on ketogenic diet. By the way, he also has sleep disorder and development delay. Now, at least one less issue to deal with.
@haunnacornejo14983 жыл бұрын
I need help I live in a small town and they are acting like im nuts saying I had epilepsy but now my eeg's are not showing any abnormalities so im so confused and im having daily seizures and they are RUINING MY LIFE!!!! Where should I go if my neuro isn't doing anything should i start seeing a psychiatrist?
@ozgegunaydin852 жыл бұрын
Same as you Sleepy eeg and awake eeg singals are normal. İ got seziures at 3-7 a.m. it is starting from my right hand my all arm starting to burn! When comes to my head i lose my mind. Now i started a physcriatri.
@haunnacornejo14982 жыл бұрын
@@ozgegunaydin85 so sorry love I hope you get proper help I'm here if u like to talk look me up on fb 😊 sending much love your way just remember ur not crazy!!
@ozgegunaydin852 жыл бұрын
@@haunnacornejo1498 using epilepsy drugs by the way. Both epilepsy drugs. + Psychatric drugs. Arter last control doctor decided To increase amount of mg to control epileptic tonic Clinic seizures.
@haunnacornejo14982 жыл бұрын
@@ozgegunaydin85 see I went to a new dr and hospital and they did sleep and awake study on me for a Lil over a week and they did flashing lights and high pitch sounds that was this January and this neurologist found I have epilepsy in my temporal lobe goes from left lobe to right and makes me have tonic clonic which we used to call grandma seizures.. but he found out I have P.N.E.E attacks also so not only epilepsy but this other disorder as well but the anti epileptic meds don't help me with my tonic clonic still which we upped the mg but they don't help my P.N.E.E. attacks he told me CBT therapy helps so I've been doing CBT Therapy since January neither have helped so far but I'm hopeful 😊 ..
@ozgegunaydin852 жыл бұрын
@@haunnacornejo1498 thanks God. İ see. Have nice Life !btw i will try gluten free sugar free diet to feel better and have a clean brain
@DsonoutshinesDstars3 жыл бұрын
Grateful for this!
@marciofossari68823 жыл бұрын
Thank You very much.
@JinkerJilly3 жыл бұрын
This was so very helpful, especially seeing a PNES. Thank you.
@athomeinmyhead3 жыл бұрын
I was specifically interested in how PNES was diagnosed after reading some papers about EEG diagnosis. I was very unclear about what was being observed, and this definitely helped me understand better. So glad you made this talk available.
@emmaolivia19043 жыл бұрын
I have had Grand mal epilepsy since 2 year old and like Max I have had all ind of medication but none worked. I have smoked pot and in my exemble I do not get siziour the day after. I have also tryed cbd oil and it helps me alot with sideeffects of meds, but cant say it helps as much as with not getting kramps. I figuer that Herbal medicine from (Dr Joe Herbal research) that help heal me of my worries his herbs cured me completely