Webinar-PNES Not all that Shakes is a Seizure

[@malijahangiri1027]

Should we tell the patient the exact diagnosis? When we need to communicate the diagnosis of PNES to the patient? Thanks for this helpful webinar.

[@JinkerJilly]

This was so very helpful, especially seeing a PNES. Thank you.

[@athomeinmyhead]

I was specifically interested in how PNES was diagnosed after reading some papers about EEG diagnosis. I was very unclear about what was being observed, and this definitely helped me understand better. So glad you made this talk available.

[@tamifromvirginia4046]

Thank you for this informative and indepth presentation. We were misdiagnosed for 18 years and now we are trying to play catchup. So few specialists out there to help. Neurologists do not want to give up the epilepsy diagnosis as well, so much money in the medication.

[@Spacecadet499]

Doctors always assume everything is stress or anxiety . 30 percent probably isn’t the right amount when most of us are being ignored

[@LawofMoses]

I don't remember waking up March 25th the day after I had a covid home test spritz me in the eyes(sodium azide). That morning from what I am being told I woke up got dressed and then for some reason had a bath which I don't do, after which I started throwing up profusely and went and laid on my bed to have a convulsion which they describe as a grand mal like seizure. An ambulance came and got me, took me to hospital. While there they said I had another seizure and became violent. They sent me to another hospita(1.5 hrs one way) by ambulance for a CT scan then returned to local hospital and then by about 10pm they called NY wife to come get me. I don't remember anything since the Nighy before. It's been 4 weeks and no more symptoms at all. While at the hospital I also somehow had my t5 and t12 vertebrae fractured. The Dr isn't sure but they are sending me for tests to see if I have epilepsy. I am 50, healthy, I eat right, I don't drink or smoke. I do suffer from extreme pain and depression already. I don't have any other pressure in life. My bills are paid and I own a home. I am wondering if a seizure can break a healthy person's bones and just come out of the blue. I did have one syncope incident several months previously but woke immediately after 30 to 50 seconds. Any interesting comments from professionals?

[@haunnacornejo1498]

I need help I live in a small town and they are acting like im nuts saying I had epilepsy but now my eeg's are not showing any abnormalities so im so confused and im having daily seizures and they are RUINING MY LIFE!!!! Where should I go if my neuro isn't doing anything should i start seeing a psychiatrist?

[@ozgegunaydin85]

Same as you Sleepy eeg and awake eeg singals are normal. İ got seziures at 3-7 a.m. it is starting from my right hand my all arm starting to burn! When comes to my head i lose my mind. Now i started a physcriatri.

[@haunnacornejo1498]

@@ozgegunaydin85 so sorry love I hope you get proper help I'm here if u like to talk look me up on fb 😊 sending much love your way just remember ur not crazy!!

[@ozgegunaydin85]

@@haunnacornejo1498 using epilepsy drugs by the way. Both epilepsy drugs. + Psychatric drugs. Arter last control doctor decided To increase amount of mg to control epileptic tonic Clinic seizures.

[@haunnacornejo1498]

@@ozgegunaydin85 see I went to a new dr and hospital and they did sleep and awake study on me for a Lil over a week and they did flashing lights and high pitch sounds that was this January and this neurologist found I have epilepsy in my temporal lobe goes from left lobe to right and makes me have tonic clonic which we used to call grandma seizures.. but he found out I have P.N.E.E attacks also so not only epilepsy but this other disorder as well but the anti epileptic meds don't help me with my tonic clonic still which we upped the mg but they don't help my P.N.E.E. attacks he told me CBT therapy helps so I've been doing CBT Therapy since January neither have helped so far but I'm hopeful 😊 ..

[@ozgegunaydin85]

@@haunnacornejo1498 thanks God. İ see. Have nice Life !btw i will try gluten free sugar free diet to feel better and have a clean brain