Thank You very helpful even for Grannies with pda grandchildren💓
@SunshineSupportUKАй бұрын
It's fantastic to see grandparents actively taking the time and initiative to learn more about PDA and SEND! Absolutely love it. They're lucky to have you! 💛
@MotifMusicStudios2 ай бұрын
Well presented and helpful.
@user-cf4jt9qi5k3 ай бұрын
What a truly interesting and helpful discussion. Thank you do much. This helps supoort me as a parent with a youngster who experienced such misunderstandings, lack of appropriate supports and lack of feeling liked by his tecahers last year at school.
@ashleyhelton67033 ай бұрын
I’d like to be in a study. I’m in the USA and this needs to be recognized believe I have this. I have a psychiatric evaluation for ADHD when I was four years old and it describes a pda child . I’ve been studying this for the last year because I developed a new mental disorder called PMDD and down the rabbit hole I went looking for answers. I still am. I’d also like to help others who are struggling with themselves and feel alone.
@Thilosophocl3s5 ай бұрын
As a late diagnosed Autistic with a mild PDA, I can't imagine trapping a PDA is a comfortable experience for anyone involved. Parents must be trusted and respected first. Then, the practices they develop must look interesting, and have demonstrable benefits that can inspire the affected person to make changes. Throw away thefucking medication
@michaelanthony2796 ай бұрын
Thank you Ruth Fidler
@jguitar237 ай бұрын
Main features list should include difficulty changing activities.
@jaseman8 ай бұрын
I have it and being forced to go to school caused me daily trauma for my entire childhood. I wasn't naughty - I just had an extreme need to get away from there.
@Sandra-faith9 ай бұрын
Thank you for all you are doing for PDAers. We are in Australia.
@nnylasoR Жыл бұрын
YES @1:06 -1:53 😭😭😭
@stephstwogirls Жыл бұрын
Thanks for all you do and for making us all not feel so alone. (also, I love hearing from PDAers themselves. So much insight!)
@Sandra-faith Жыл бұрын
Thank you all so much. I can totally relate to all of your experiences and the journey of discovering PDA. It's changed our lives for the better.
@hispoiema Жыл бұрын
Do anxiety meds help?
@ReiverBlue1971 Жыл бұрын
I am 52 late diagnosis for autism and I have PDA, a condition that (almost) only those who have it believe it exists and yet it can destroy a life just as easily as any other condition. I'm intending to plough straight into PDA study (currently doing a Masters).
@PDA_Society Жыл бұрын
Please feel free to contact our enquiry line team if you'd like any support - www.pdasociety.org.uk/contact-us/enquiry-line/
@mspckls1057 Жыл бұрын
Thank you for these webinars, I'm realizing so much about myself, thank you for giving me perspectives, tools, an explanation for the bits of me i bury and beat finally helping me feel less desperately confused about continuously being told im evil or selfish and struggling to understand how i could possibly give more and why everyone says that, turns out they need a song and dance to see any of what you do and were always going to take from you because evidently a great majority think if they can take from you then you deserve to be taken from & here i was operating under the golden rule until i break just trying to isolate and catch a break never able to take care of myself realizing i dont know what hunger feels like only when its nausea late, i never learned what any sensation was.. im frustrated this is what i need, that all this time trying to find an efficient way to live so many answers were there! just not available to me, im excited to understand, i decided to give and then off myself because i couldnt imagine a life worth living but now, now knowing ok it isnt this ridiculously debilitating to exist, just the way i was forced to exist, yes the world is awful but not as bad as family. cold uncaring manipulative only taking screaming youre the problem beat you till they are tired even when you go quiet & still, you know the expected painful love of family.
@PDA_Society Жыл бұрын
If you'd ever like to get in touch with our enquiry line team for further info or support, here's the contact form: www.pdasociety.org.uk/contact-us/enquiry-line/
@mspckls1057 Жыл бұрын
@@PDA_Society that's a really cool resource, thank you for sharing that with me as well, I very much appreciate it.
@mb1064294 ай бұрын
@@mspckls1057 good on you for posting your story. You are helping loads of others by doing this. Loads of other people haven't got the guts to post like you have, you are not just a sufferer, you are a therapist as well
@mspckls1057 Жыл бұрын
DONT MERELY GET YOUR PDA'ER TO OBEY, TEACH THEM, EXPLAIN, IF YOU CARE. About getting them to talk about one of their favorite topics then feigning interest, even if i noticed, you asked ME a question its about the question and me if you wanted me to be concerned with you you shouldn't have approached it that way, you signed up for me to talk when you asked, why be cruel and let me go on if you want me to stop, interrupt tell me you lost interest what you want to do about it pick a new topic walk away and we can move on with our damn lives no shame or wasted time for anyone! but no thats what would be irrational & too much work, so people fake interest and then make fun and judge and whisper about it with everyone EXCEPT you & you know the vibe is different but have no idea why and noone will tell you and so you operate like things are fine and still the vibe sucks so you ask again actually valuing the family or friends involved & your relationship and still they refuse to tell you what's wrong but you find out they talk amongst themselves all the time about everything you needed to know in order to be who they needed but instead they chose to keep the information from you beat you when you got too much in the way and laugh as you flounder for 32 years while making sure to steal any bit of good i created in my own life, money? must go to the family youre selfish for wanting to exist think of the kids! since im 11 my mom found the magic words, for the kids, and all of society backed it up so there they put the weight of children on my back while everyone around is a neglectful abusive asshole and i only know about babies through movies and books and now here i am never got to look at how i feel how things effect me i dont think i took a full breath until i was 30.
@lanni82243 ай бұрын
Wow that’s a lot, I been in tears trying to figure out how to help my daughter that’s turning 9 tomorrow
@muurrarium9460 Жыл бұрын
The soundquality is absolutely terrible! I have autism and could not force myself to endure the buzzing etc. for more than a minute! NOT HELPING! (Hi, we may have important information, but we torture you to get to it)
@alexisscarbrough4083 Жыл бұрын
I'm masking with my PDA that this is like an old timey, American radio show. I want to understand! It's absolute agony trying to pay attention with the dogs and vibrating phone pulse...
@Gill8819 Жыл бұрын
I had to give myself permission to admit this to myself 😬....😮💨
@m.51373 Жыл бұрын
Our middle school called the Sheriff on my son because he refused to get into my car to go to school. Then did it again for refusal during school. Then , all in the same day, suspended him. His anxiety was so severe. He will never go back to school again.
@PDA_Society Жыл бұрын
We're so sorry to hear this. If you'd like any support and advice, our enquiry line can can help - please use this form to contact the team and someone will be in touch: www.pdasociety.org.uk/contact-us/enquiry-line/
@m.51373 Жыл бұрын
More volume would really make hearing easier. Excellent information.
@PDA_Society Жыл бұрын
Thanks for your feedback, which we'll pass on to our training team.
@Wow-xg3ni2 жыл бұрын
Oh, this is making me realize that for me, a blank sketchbook can be a demand. Thus, I will often start (and make further entries) on the back page, or a random page-- somewhere where I'm not SUPPOSED to start/make entries. Wow!
@PDADadUK2 жыл бұрын
The work you guys have done is amazing!
@TheCuratorIsHere2 жыл бұрын
Can you guys get a basic microphone without stupid noise. It’s hell to listen to. $40 on a basic usb microphone for podcasting would be a thousand miles better than this.
@aliasgirl9 Жыл бұрын
I will often avoid many webinars for this reason. The only way I can make myself listen is if I’m alone with no other background noise and it’s a topic I really want to learn about.
@alexisscarbrough4083 Жыл бұрын
@@aliasgirl9 easy for you to say. As PDA truly is not an option, it's a CANNOT. Add ADHD & the buzzing pulse & dogs in the background make trying to learn this topic 2nd and 3rd cannot.
@aliasgirl9 Жыл бұрын
@@alexisscarbrough4083 what? Are you replying to me or the original commenter?
@paulmead54342 жыл бұрын
Mine reached 44 before being diagnosed Autistic with PDA Sensory Processing , acute anxiety, we had hell at school.
@aliasgirl9 Жыл бұрын
My son is just turned 14 about to enter high school. Pda won’t be dx’d here in Canada but I know it makes more sense than the ODD Dx he was given. May I ask you how this this information could’ve helped you and your son had it been available when it would have been useful?
@M.Shepardbee2 жыл бұрын
Relating myself to others, then seeing the consequences others deal with made me use my anxiety to keep myself in check. That and if I did mess up.. I was usually comming down pretty hard on myself.
@teslaandhumanity73835 жыл бұрын
I believe I have adult children with PDA I think there Dad had it . Never been diagnosed but my my grandson is , where do these adults go they are in their early 20s . I have an 18 yr old with Aspergers no one believed me till her official diagnosis and I have Adhd. There is no support. They refuse to go to Gp . Girls fly under the radar . They couldn’t go to school work is a nightmare for one just washing up the other can’t work . My son refused to leave the house for years . My older 3 children different father are all successful eldest a sgt Detective in met police. I know the anxiety is what feeds this behaviour.
@PDA_Society5 жыл бұрын
Hi Jules, our enquiry line team can provide confidential information and advice to you regarding this if you'd like to contact us via www.pdasociety.org.uk/contact
@YOUAreTheSecretToLife Жыл бұрын
This "behavior" ?????????? I think you must have meant, DISABILITY. Right? Ugh.