Hello jasmine❤ I thought of you today, I been following you years ago I was wondering how are you and how is things going with you? I miss your videos, I hope you doing great 🙏 Please make a video if you can, we miss you Happy holidays
@giridharcn562726 күн бұрын
How is your health now? It’s been a while and no update, hope you are doing well,, god bless you
@sabmaryamkhan4941Ай бұрын
Hi jasmine has this treatment caused weight gain ,Thank you
@LuvvMyBrownSkinАй бұрын
Was this an intracapsular tonsillectomy using laser? It looks like there was still a lot of tonsil tissue left after the procedure.
@JoseThedudАй бұрын
You’re so beautiful girl❤😊
@gurpreetdullat566Ай бұрын
My daughter is suffering nephrotic syndrome please give me advice my daughter diet.. nephrotic syndrome cureable.. my daughter age 7 year …
@paulnevitt7260Ай бұрын
This is a life long condition. I've just relapsed after 5 years in remission. There has to be a connection between certain foods and triggers. More research into prevention is needed in my opinion. It is autoimmune, however clinically it is is a particular protein that is causing the problem. Treatment is all good but prevention is paramount.
@sarahmansoor61733 ай бұрын
I have C3GN diagnosed at age 9 in 2014. C3GN is what the doctors consider to be an ultra rare kidney disease. Ive had alot of treatments and 3 renal biopsies at a young age. I had nephrotic syndrome for 8 years and just 2 years ago, my doctor said my proteinuria is gone below what is considered nephrotic range proteinuria which is more that 3.5g per day. My proteinuria is 1g per day and the nephrologist said this is considered sub-nephrotic range proteinuria. Hopefully i dont relapse at some point but for everyone struggling with similar issues, we are in this fight together, stay strong and stay positive.
@mooriahscary71603 ай бұрын
Thank you Beautiful Young Lady.
@Shay33563 ай бұрын
I think this need needs to be scrapped. It’s dangerous. I had it for four weeks, had to stop it after severe reactions.
@sabmaryamkhan49413 ай бұрын
Hi did u gain weight with infusion rithmatab ❤
@sabmaryamkhan49413 ай бұрын
😅hi Jasmine , did you put weight on with the infusion rithmatab ❤
@kuljeet64463 ай бұрын
Such an informative video. Has the infusion caused hairloss too ?
@KILLSWITCH09-l8x4 ай бұрын
I also have nephrotic syndrome i am 28 years I had a relapse on may 10 2024 i will be having the Rituximab treatment but before that they asked me to have a different type of tablet so i will have to take that for my protien uria to get negative and later do the treatment.
@sauravmalik32564 ай бұрын
My mother suffering from pampeguis vulgarius,,plz tell me rituximab is cured for this disease
@akg83455 ай бұрын
I’m white, 29 yo & thought I was healthy. Worked out 5-6x a week and ate an abundance of fruits / veg. However, I think my protein intake was lacking for how much I worked out. I noticed my NS starting peeking through (3wks ago) after intense workouts. At the time I was also stressed with work, and was planning a trip for me and my best friend to go to Hawaii. I was NOT getting enough sleep as I was prioritizing Game Of Thrones episodes over zzz’s. Sleep around 2 am and get up to work at 7:30. Anyways, scary times but am positive there is a light near. I’m so swollen & the diuretic does not work for me. 🙏🏼
@PeterPauls5 ай бұрын
I started my Nephrotic Syndrome journey back in 2003. My biopsy showed Minimal Changed Disease. After 2 years past and my biopsy showed Focal Segmental Glumelorusclerosis and my kidney functions are gone and went on dialysis. After my first transplant Nephrotic Syndrome again with MCD later FSGS lost the kidney and I also lost my second transplant the same way. I am 35M on dialysos for 19 years now. I wish you remain stable.
@jeffzee379126 күн бұрын
How it got from MCD to FSGS
@PeterPauls26 күн бұрын
@ my first biopsy showed MCD, my second 2 years later showed FSGS. I don’t know either.
@jeffzee379126 күн бұрын
@@PeterPauls you were a welder?
@jeffzee379126 күн бұрын
@@PeterPauls Did you got blood in urine before 1st biopsy?
@PeterPauls26 күн бұрын
@@jeffzee3791 no as far as I remember. But a lots of protein 10 g/die.
@thedawesgang5 ай бұрын
about to have my 12 th course (13 years) of rituximab,if my infusion is too fast i have similar reactions to yours,also tried truxima a substitute biologic,but reacted a fair bit...despite that most infusions go smoothly and rituximab is a life changer for Rheumatoid
@amywillisjohnson41606 ай бұрын
Thank you for posting your experiences, Jasmine. This video helped me a lot! And I share it often when I meet people online who are nervous about Rituximab and what to expect. I really appreciate that you took the time to make and post this video and others about this treatment.
@rahmed916 ай бұрын
Are you getting cyclosporine on this NHS?
@AliceGoldberger6 ай бұрын
I find it interesting with over peoples side effects because I ALWAYS get ill and I literally can’t walk after I get so weak but some people have no side effects 😅
@AliceGoldberger6 ай бұрын
I find it interesting with over peoples side effects because I ALWAYS get ill and I literally can’t walk after I get so weak but some people have no side effects 😅
@keithalarcon82696 ай бұрын
Have you ever used Cicloperine?
@bawanextdoor15216 ай бұрын
Can you please tell me is it a good call to go for Rituximab
@bawanextdoor15216 ай бұрын
Hey i also have nephrotic syndrome just wanted to ask did Rituximab worked for you?
@WMW-828 ай бұрын
Hi, great informative video, I've been on Ritux for a couple of years now for inflammatory Arthritis. In my trust i have to get my ritux over 6hrs; all depending on how busy they are getting my pre meds done i can usually leave around 1730 in afternoon after 8:00 am start. Its such a loooong day and while its just sitting down all day it can be really tiring. I dont know about yourself but the only real side effects I get is for around 3 days after I feel a little washed out and under the weather but nothing that isn't managed with rest and a good boxset with chocolate. wishing you well, keep smiling 😊
@anthonymaddock64428 ай бұрын
Hi jasmine I'm on the same position as you I've just relapsed again they are going to start me on cyclosporine..any views on this ? They said they don't want to give me steroids again
@jimdraven24328 ай бұрын
@jasminesjourney i was recently diagnosed with Membranous Nephropathy (kidney disease). I'm 46 from Toronto Ontario Canada & have been told that ny kidneys are at about 22% efficiency, & that Rituximab is probably the one thing that can save my life & prevent dialysis. Youre an inspiration to me right now, keep fighting. If I ever get the money to afford this I'll have you to thank you for it. All the best from Canada!
@fidelitefidelite70388 ай бұрын
Esque rituximab fait tomber les cheveux
@anthonymaddock64428 ай бұрын
High jasmine have you had any more relapses with you nephrotic syndrome minimal change?
@Skyehye31139 ай бұрын
I was given them for ulcerative colitis cos I had a really bad case and I was fine for like two weeks and then suddenly became the most depressed I had ever been and now it’s almost 8 weeks later and I still feel like crap not as bad as I did but mentally not great
@justinjohnson112410 ай бұрын
I've been taking it due to my severe allergies... Depression kicked in HARD.....I had suicidal thoughts 😢
@vijiseshadri905910 ай бұрын
Hi I am Suganya. My 19-year-old autistic son has had nephrotic syndrome since his childhood (from 2 and a half year old). Last few months he has had two times relapses. He is on lot of streiods. Our nephrologist suggested this rituximab infusion therapy. we have to decide today to fix an appointment for this infusion therapy. we are very afraid how safe it is?. Kindly reply .How safe it is and It is required once a year or how many times a year?. we live in newyork. This treatment works for you. kindly reply to me. As a parent its hard to decide.
@ketakikulkarni803710 ай бұрын
Are you fine now?
@dangolo2310 ай бұрын
are u okay now??
@archanab77810 ай бұрын
Hii Jasmine,were you into remission after rituximab infusion
@prettylady-69710 ай бұрын
How long did u take to go onto remission?
@MistakenOno11 ай бұрын
Why are there bubbles allowed to go in?
@michelleblack959111 ай бұрын
Does it slove tonsil stone issue
@LuvvMyBrownSkinАй бұрын
I would imagine not. From the pictures she posted, it looks like there was A LOT of tonsil tissue left intact. I am guessing that her reason for having a tonsillectomy was because of the size of her tonsils and not a chronic tonsil stone issue.
@Ratnaprasadpegu435911 ай бұрын
Are you still taking any medicine. Why are you not update in present
@garimabari580811 ай бұрын
I just saw your video .. I still have some pain and tightness in my back and sides around my kidney and it’s been 10 days since my biopsy. How many days did you experience pain after the procedure??
@VIKASHSINGH-bz6dt6 ай бұрын
How many days it took for pain to go?
@Deviljho5 Жыл бұрын
Watching this review on Christmas morning 🎄
@jerrylei22 Жыл бұрын
Best wish
@thokomasango2294 Жыл бұрын
I'm having a heart attack from all the air bubbles
@ChathuriSamudrika Жыл бұрын
Did you suffer the cough after get the treatment ?
@inityo Жыл бұрын
Hey can you kindly give an update? Have you had any tonsillitis since the surgery? Because laser tonsillectomy has mixed reviews
@Jasii-g3g Жыл бұрын
Ar u ok sister pls rpy🥰
@westfield90 Жыл бұрын
I gained 12lbs in 15 days and always moody and angry. I had to stop
@StaceuF4 ай бұрын
I had to take it for 8 days I got poison ivy the reason I was prescribed it i took the last pill today its a terrible drug i hate it
@valdarixson5573 Жыл бұрын
I’m just starting my treatment this month I run my own business just checking I can still work many thanks