Relapsing Nephrotic Syndrome

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[@JasminesJourney]

Here’s what happened next... kzbin.info/www/bejne/aGjWiop6ntKbo6s ... thank you everyone for all your support so far! 🙏

[@lucygomez6663]

I'm sorry to hear you relapsed, you will get better xx

[@JasminesJourney]

Bless you thank you so much! X

[@cher2409]

"but you know what, I'm still smiling"❤

[@JasminesJourney]

That’s the only way to do it 😁🙏

[@CandyCaneLane5678]

It’s okay to feel low and express that 💜💜 I hate that you had a relapse. You’re being strong 💜💜

[@JasminesJourney]

Oh Brae I do love you! Bless you and thank you for always supporting me! ❤️❤️❤️❤️

[@bellawilliam3670]

Best wishes to you, I’ve been diagnosed with nephrotic syndrome for the last 2 years and was on steroids 5mg 16tabs per day on my second relapse. It was a hard time for me. Am still on follow up w my nephrologist just to monitor my body weight ,my blood and the urine to make sure that I’m fully recovered. But because of the heavy steroids intake, I am now following up with the endocrinologist, since I do have adrenal insufficiency , top off w tons of steroids , it takes forever for the body to recover back. Especially now that I have fully stopped on my prednisolone. It’s a whole mess to be honest, the recovery road is endless. But, you’ll get to it. Hope your condition improves hun ❤️

[@omarsalam7586]

Hope you will be normal soon. how old are you when you have been diagnosed?

[@JasminesJourney]

Don’t worry you will feel so much better in time now that you are no longer on the steroids! It took me a fair time to get ‘back to normality’ but I promise it will happen some day! Keep fighting, you are stronger than you think! 🙏👌

[@hayleejanae5222]

i’m sorry to hear you have relapsed :/ ive had nephrotic syndrome (fsgs) for 4 years now. and i was just recently told that i need a transplant so i can understand what your feeling right now and that sucks so much. i wish you the best! ❤️❤️❤️

[@JasminesJourney]

Wow 😮 well my prayers are with you!!! I hope everything goes well 🙏

[@vtutz7728]

So sorry to hear of your relapse, you one strong lady you’ve beat this before and am sure you will again. My husband was diagnosed last year and still on steroids so i understand your views on the steroids. Stay strong 💪🏽

[@JasminesJourney]

Thank you for your kind words! Things are looking good so just got to stay positive I guess ☺️🙏 prayers for your hubby!

[@amandapinchak9485]

So sorry to hear you relapsed. I enjoyed this entire video, even the parts where you showed your sadness. It’s just a true reflection of how we all feel sometimes. Did you stop losartan because your bp is normal? I know that bp meds keep protein levels down. I find it odd you noticed the foamy urine shortly after stopping. It probably took the medicine a couple of weeks to completely leave your system. Just my thoughts anyway. Please keep us updated and I hope you get better soon! Positive outlook is key. ❤️

[@JasminesJourney]

Bless you! Thank you so much for video feedback that was very helpful for me! It was a tough video to record! I stopped losartan because it made me extremely light headed and I couldn’t stand up without feeling like I will pass out. We know losartan isn’t the case for relapse but still waiting on some results to know for sure. Hopefully next update soon on my KZbin 👏🏽 stay blessed ❤️

[@theoddacitymentor]

It is true Jasmine, you never look like you worry. I guess that's a strength we admire. We are rooting for you. Broken for you. You still are an inspiration even now.

[@JasminesJourney]

Bless you!

[@ferinmohammed6445]

So sorry to hear that you relapsed...my son also just had relapse.stay strong as you are.praying you feel better soon.just a suggestion, ask your nephrologist whether you can try 20 mg prednisone. My son now comes to remission with this dose.just save us bit than going full dose.take care dear.xx

[@JasminesJourney]

Thank you! We are trying to avoid pred as I had such a bad experience on it and right now we don’t think the relapse is too bad to have to have pred again but thank you for the suggestion I really appreciate it 🙏 also sending your son lots of positivity

[@yardhieu1970]

Sorry to hear about the relapse 😔Thanks for sharing your journey with us and hopefully you feel better soon! I just completed a 24hr urine plus blood test, nervously awaiting results.

[@JasminesJourney]

Best of luck for your results! Keeping my fingers crossed for you! 🙏

[@rubyramirez2785]

I hope you get better soon. I know the feeling to well because I get like that every time my daughter relapses. My poor child relapses too frequently but I make her live her life to the fullest. Like you said it is what it is. I am trying to get my daughter off steroids bc she has been on them way too long. Best wishes to you.

[@JasminesJourney]

Bless her! Yes let’s hope she can come off the steroids soon but also safely 🙏

[@daniellaotalora5961]

I signed in too the group for tmr !! hope to see u there. Really sorry for u 💕 I’m not of a talk person so yea for tmr 🤣💗

[@Imname62]

On prednisone & cyclosporine for my nephrotic syndrome, below 200mgs of cyclo & 25 pred i seem to have relapses though sadly, in the passed 10 years though these seem to be working well thankfully compared to tacro/prograf which i had to keep upping the dose on to stay in remission.

[@kingsdiary8102]

Keep fighting 💪😁

[@JasminesJourney]

👌🙏

[@junaid_aslam]

So sorry to know that. Hope you get into remission soon.

[@JasminesJourney]

Thank you 🙏

[@ryanmcgerty8731]

I've had it for 38 years I've had many relapse I've just got use to it it's part of mi now

[@JasminesJourney]

Yes! It’s something we just have to accept, adapt and move on! 😌

[@Oiseau_solo]

@@JasminesJourney Hi, I've just wanted to know that I have been diagnosed with nephrotic syndrome and using tacrolimus and 10mg pedinisol for about 1 yr. Every thing was normal until again I got swelling on my legs. Do you know why I'm I getting swellings again in my legs even I'm on my medicine.

[@worldtop3937]

you're so lovely.iam also in the same journey with you.keep praying for you.and also try to manage your diet.love your videos,

[@JasminesJourney]

Thank you!

[@guillot1999]

hey jasmine how do you manage to travel with a nephrotic syndrome? i wanna go to australia for fews months but i dont know what i would do if i ever relapse over there

[@kiwisafety]

Wish you health sooner

[@JasminesJourney]

Thank you 🙏